The development of Penny Brohn Cancer Care's 'Living Well' services nationally. Georgia Diebel, Head of Living Well Services (External), Penny Brohn Cancer Care

1. Extending our Services: Reaching
out from our National Centre
Georgia Diebel
Head of Living Well Services (External)
Penny Brohn Cancer Care

2. Principle 8:
Supporting self management
Supporting self management is about helping people help themselves
through taking action to maximise their recovery and helping them to
sustain that recovery.
Cancer patients should be better informed about the choices they
make
to have a positive impact on their future health and wellbeing.
Innovation to Implementation: Stratified pathways
of care for people living with or beyond cancer A ‘how to guide’ 2013

3. In 1987 Penny wrote…
“If we shift the responsibility for health so that it is
no longer exclusively in the doctor’s hands, but
allow the patient to play a part as well, we go a
long way towards relieving feelings of
helplessness and futility.”

4. Living Well – our aim
All people affected by cancer can access the
support they need as close to them as possible.

5. Regional hubs
We established 4
regional hubs in 2012
North
Midlands
South West
London & South
East

6. Support for
people affected
by cancer and
their loved ones

7. Living well course design
 Living Well aims to help people manage the, psychological emotional,
financial, physical, social and spiritual impacts of cancer.
 The approach is patient-centred with emphasis on informed choice,
personal control and making sustainable lifestyle improvements.
 We can design our Living Well course to meet the needs of a specific
group; for example courses for prostate, breast and colorectal cancer
patients.
 We deliver the course in a choice of formats – weekly over 4 or 7
weeks, over 3 days delivered together or 3 days over weeks.

8. Living well course design
Each course is facilitated by our trained facilitators.
It offers peer support, lifestyle recommendations, self-help
tools, and action plan goal setting focussing on:
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Nutrition
Exercise
Relaxation / stress management
Emotional support
Managing the impact on close relationships
Financial / welfare issues

9. Cancer impacts the whole person
Psychological
Spiritual
purpose
meaning
Physical
Impact on
Whole person
Financial
welfare
Emotions
Relationships

10. Facilitator training and accreditation
 43 trained Facilitators
 Training & Development Manager
 Attaining Open College Network
Accreditation (OCN)

11. Service implementation
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Induction
Project planning
Identify potential partner(s)
Develop partnership opportunity
Agree terms
Scope venues
Notification submitted
Central administration
Minimum 12 week lead-in time to delivery

12. Third sector services –
part of the personalised care pathway
and cancer aftercare services
Part of the responsibility of the team is to build and
develop relationships through cross boundary
working; in order to foster an understanding and
respect for each other’s roles

13. Cross boundary professional working
 Cancer Teams in NHS Trusts & Networks - Hull, Arden, Stafford,
Stoke, Swindon, Yeovil, Northwick Park, Southampton and Isle of
Wight
 Cancer Information Centres -The Mulberry Centre at West
Middlesex University Hospital, Dimbleby Cancer Care Centre at St
Thomas’ Hospital
 Hospices – Great Oaks in the Forest of Dean, St Mary’s in
Birmingham, Thames Hospice in Ascot
 Local charities e.g Cancerwise in Chichester, The Cancer Support
Centre in Sutton Coldfield, Her Breast Friends in Hull and East
Riding of Yorkshire
 Supra-regional charity - It’s in the Bag, Bristol and South West
 National charities – Prostate Cancer UK, Target Ovarian Cancer
 Private health care - Spire

14. Venues
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Social enterprise & local community buildings
Training & conference centres
Cancer information centres
Hospital education centres
Hotels

15. Challenges & learning
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Unfamiliar organisation and product
HCPs are busy
Local LWDM - out of area courses more challenging
Local champion(s) to promote/recruit
Rural versus central venues
Ensure adequate lead-in time
Central administration
Unpredictable client circumstances

16. Bookings for external courses
September 2012 to October 2013
600
569
500
Number of bookings
400
392
300
200
177
100
41
0
Total no. bookings
No. attendees
No. cancellations
No. clients accessing
follow-on services

17. Overall course attendance
September 2012 to October 2013
Very good attendance
(9 or more)
Good attendance
(7 or 8)
Adequate attendance
(5 or 6)
Low attendance
(4 or less)

18. Patient experience
“I attended the Living Well course in January 2013 in Hull. I
believe that it was the first Living Well course to be held in
the City. I have to admit that I had never heard of Penny
Brohn Cancer Care and I had to do a little research on line
beforehand. Although I didn’t know it at the time, I was
about to embark on an inspirational journey of discovery and
I am so thankful that I was given the opportunity to do so. If
the course had not been offered in the North, I don’t think I
would ever have learned about Penny Brohn Cancer Care
and it’s complementary support.”

19. Funding
 18 month project May 2012 to Oct 2013
 Funding for minimum of 32 courses
 Aim to deliver 40 courses if additional funding secured

20. Funding of external Living Well courses
September 2012 to October 2013
12
10
Number of courses
8
6
4
2
0
Midlands
North
South West
Seed funding
London & South
East
Partnership or new funding
South Coast
Scotland

21. Funding of external Living Well courses
November 2013 onwards
6
5
Number of courses
4
3
2
1
0
Midlands
North
South West
Seed funding
London & South East
Partnership or new funding
South Coast

22. External Living Well course costs

23. Number of courses
Living Well courses began in January 2010
By end
 October
 August
 October
2011
2012
2013
45 courses
100 courses
223 courses

24. Regional Living Well courses
Carolyn Foster-Richards
North
Cottingham
Hull
Sheffield
Stoke-on-Trent
Stafford
Sutton Coldfield
Nicky Bancroft
Midlands
Nuneaton
Birmingham
Chesham
Coventry
Harrow
Leamington Spa
Hackney
Supriya More
London & South East
Westminster
Forest of Dean
Isleworth
Cheltenham
South West
Ascot
Swindon
Yeovil
Southampton
Isle of Wight
Chichester
Purley
Croydon
Portsmouth
Kathy Adams/Moira Bremner
South Coast

25. Patient experience
“The Living Well course has shown me how I can help and
support myself physically, emotionally and spiritually. It has
placed me on a pathway of learning and understanding and
allowed me to make choices which have had a positive
benefit on my health and which keep my body and mind
well.…. And the best thing is, I feel amazing.
Cancer has made a massive impact on my life. So has
Penny Brohn Cancer Care”.