The document outlines the role of a clinical nurse specialist within an endometriosis team, including responsibilities like running nurse-led clinics, assisting in consultant clinics, providing postoperative care and support, collecting data, and more. It discusses how specialist nurses can reduce costs and wait times while enhancing patient care. Recommendations are provided to expand the nurse specialist's role, such as obtaining prescriptive authority and counseling skills.
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The Role of the Clinical Nurse Specialist within the Multi-professional Endometriosis Team - Ms Catherine Dean at #PANIendo
1. The Role of the Clinical Nurse Specialist
within the Multi-professional
Endometriosis Team
Ms Catherine Dean
Endometriosis Nurse Specialist, Truro
@PainAllianceNI
#PANIendo
3. The Role of The
Specialist Nurse
in
Endometriosis
4. Specialist Nurses
Are invaluable for people with long term
conditions
Save money through fewer hospital admissions
and GP appointments
Reduce post operative hospital stay times due to
enhanced support in the community
Provide faster access to appropriate
specialist/clinic thereby reducing waiting times
Free up Consultant Appointments
Provide direct specialist advice and management
to patients and families
Royal College of Nursing. Specialist Nurses.
Changing Lives, saving money.
5. Job Roles
Nurse
Led Clinic
Consultant Clinic
Telephone Clinic
Ward Work
Non Clinical Duties
6. Vetting Referrals to Nurse Led
Clinic
Prevent
booking of conditions other
than endometriosis i.e. endometrial
ablation
Prevent referrals to health
professional who does not have the
expertise and or skills to deal with
the problem
Reduce number of appointments for
remote referrals
7. Nurse Led Clinic
All day once weekly
1 hour new slots
30 minute follow up slots
To see all new referrals, both confirmed cases and women with
symptoms suggestive of endometriosis
Discussion re condition, previous investigations
Treatment (dependent on life stage, age, severity of symptoms
and impact on lifestyle, desire to conceive) CNS essential in
helping patient make choice
Perform Ultrasound Scan if necessary
Provide information on treatment and make recommendation to
GP if medical or hormone treatment chosen
Provide detailed information leaflet on benefits risks and
complications of surgery.
Follow up appointments to see post op patients at 6 months
9. Consultant Clinic
Review
patients at 3 months post op,
see new patients from out of county
and review follow up patients from
nurse led clinic
MDT meeting to establish those
requiring specialist input, bowel
specialist, urologist, pain team.
Patient Satisfaction survey
10. Ward work
Familiar reassuring face for patients
Accompany Consultant and laparoscopic trainee fellow in
the morning. Review patients in the afternoon to establish
whether fit for discharge
See pre op patients prior to surgery
See post op diagnostic patients to deliver findings
Liaise with urology department to have urological stents
removed
Arrange follow-up at 3 months in Consultant Clinic
Take contact details to make post op phone call 1 week
later
Provide education and support for nurses and other health
professionals
11. Non face to face contact
Telephone Contact
E mail contact
Contact of General Public through Trust website
Weekly meeting with secretary, check and sign
letters, deal with patient queries
Weekly meeting with Inpatient co ordinators to
discuss timing of operation, administration of
GnRH analogues and bowel prep
Input data onto BSGE database at initial
appointment, 6 months, 1 and 2 year follow up
by telephone/postal questionnaire
12. Endometriosis UK
Invaluable role in the support of women with endometriosis
as health professional and specialist centre not always
available
Provide link between sufferers and specialist centres
Plays a vital role in helping women and their families learn
to cope with endometriosis
Helpline provides information, as well as emotional support
and a listening ear
Online community allows women to connect with other
endometriosis sufferers in a safe, online community
In conjunction with the Royal College of Nursing and the
BSGE provide specialist training for nurses and help in
defining the ideal role
13. Cornwall Support Group
gives those affected by endometriosis the
opportunity to meet and share their experiences
with others who understand their situation
Invaluable asset to the Endometriosis Nurse
Specialist Role especially in raising awareness of
the condition, providing support for sufferers
when the nurse not available
Help in promoting Endometriosis Awareness
Week
Nurse attends meetings and fundraising events
14. Recommended Role Developments
Band 7 reflects responsibilities and autonomy
within the service
Non medical prescribing prevents delay in
treatment
Consent
Gynaecological physical examination skills
Engage in and promote endometriosis research
activity
The Royal College of Nursing and Endometriosis
UK believe the ideal role to be as above and act
as an Advanced Nurse Practitioner
Counselling Skills