NHS England Learning Disability and Autism January Workshop

1. Who should know
what about you?

2. Hello!
Rachel Ashcroft Lloyd Page

3. Tell us about you!
NHS
staff
GP
Plan and
pay for
services
Social
care staff
Supporter
Expert by
Experience
Anyone
else?

4. Working together
• Listen to everyone’s ideas
• Use easy words and slow down – no jargon!
• Ask if there is something you do not understand
• Use your red card if there is jargon or it is too fast
Thanks 

5. What we will do in our workshop
• Talk about how doctors, nurses and
receptionists can find out about you
• Talk about what you would like them to know
about your support needs
• Talk about how this might help them give you
better care

6. We are talking about..
• Having a note on your health record to tell NHS staff
that you need extra help or support.
• The note on your record is called a flag.
• It could be seen by doctors and nurses and also
NHS reception staff.

7. The flag could tell NHS staff:
– About your disability and how it affects you
– What help and support you would need to use health
services
– What NHS staff can do to make things easier, for
example give you longer appointments

8. We want to find out what information
you would like to share?

9. An example
• Lloyd would like the receptionist to
know that he has a learning disability
so it takes a bit longer to explain things
to the doctor.
• They can then book him a double
appointment.
• Lloyd would like health staff (doctors
and nurses) to know who to contact if
he is taken into hospital.

10. Who needs to know ?
• Lloyd thinks that the receptionist does
not need to know that he supports
Chelsea 
• But it might be good for the nurse to
know this, so they can chat about
football if he gets nervous…..

11. Activity – what do people need to know
about you?
• What should receptionists know
about your support needs?
• What should health staff (doctors
and nurses) know about your
support needs?

12. On your tables please
• Talk about what you would like
receptionists and health staff to know
about you
• Talk about anything you do not want
them to know
• Write or draw your ideas on the cards

13. Feedback

14. Thank you!
Please add your ideas to the sticky
wall.

15. How can this information help you
get better care from NHS Staff?
Think about why this might make a
difference to you.
Please talk about it on your tables and
write down your ideas.

16. Any final questions?

17. Next Steps
Thank you so much for joining us!