NHS England Learning Disability and Autism January Workshop

1. Summary Care Records:
Get better health care

2. Hello!
Rachel Ashcroft Lloyd Page

3. Tell us about you!
NHS
staff
GP
(Doctor)
Plan and
pay for
services
Social
care staff
Support
worker
Expert by
Experience
Anyone
else?

4. Working together
• Listen to everyone’s ideas
• Use easy words and slow down – no jargon!
• Ask if there is something you do not understand
• Use your red card if there is jargon or it is too fast
Thanks 

5. We are talking about..
• What a Summary Care Record is
• Why it is important
• How you can use it to get support with your
health

6. Let’s start with a quiz!

7. Has anyone here visited a health
service recently that is not your GP?
For example – walk-in clinic, hospital….

8. Were you asked questions about your
health, for example what medicines
you take?

9. Was it harder to answer those questions
with medical staff who don’t know you?

10. Did they look up any information about
you on the computer?

11. Finally – put your hand up if you have a
Summary Care Record?

12. Thank you!

13. About Summary Care Records
• Most people have a Summary Care Record
• It is created by your GP, on their computer
• It can be seen by staff across the NHS
• It has basic information about your health

14. What is on a Summary Care Record?
• Your Summary Care Record is a snapshot of
your health
• It has what medicines you take
• It has any allergies you have
• It has any medicines might make you unwell

15. Summary Care Records….
Make sure healthcare staff
know how to treat you if they
do not know you.

16. How is it different to a hospital passport?
• A hospital passport explains what support you need if
you go into hospital.
• Summary Care Records are on NHS computers, so
health staff can see information about you before you
get health care in a different place
• Staff can read your record if you need care in a hurry
and don’t have your hospital passport with you.
• This could be ambulance staff and accident and
emergency staff.

17. Why is a Summary Care Record
important?
• You might need to see a doctor or nurse who
does not know you
• It can help them see your information straight
away on a computer
• It can stop them making a mistake, because they
can see your medicines and allergies
• This is really important in an emergency, as they
might not be able to talk to you

18. An example – Rachel’s Summary
Care Record
• Rachel is allergic to Penicillin
• This is a medicine that is used to treat infections.
• If Rachel gets an infection, she will not be able to
take penicillin
• It is important that hospital staff know this, so
they do not give her penicillin

19. Here is the BIG NEWS
• You can have extra information put on your
Summary Care Record
• This can be really helpful if you have a learning
disability, autism or both
• This is so that medical staff know a bit more
about your support needs
• It is your choice to add this extra information.
• You have to ask your GP practice to do it.

20. What information can be added?
• Your illnesses or health conditions
• Operations or vaccinations you have had
• How you would like to be treated
• What reasonable adjustments you might need
• Who to contact to find out more about you

21. An example
• This is Rob and Emma.
• They work for NHS Digital.
• They are going to tell us about how this
extra information can be really helpful.
• They will tell us about a man called
Lawrence.

22. Lawrence’s Story
• Lawrence is a middle aged man with a
moderate learning disability.
• He has difficulty hearing, his speech can be
difficult to understand and he gets anxious
with people that he does not know.
• His sister is his next of kin and is very
involved in his care.

23. Lawrence goes to the GP
• Lawrence has an annual health check at his GP
practice.
• Important information from his hospital passport
is added to his GP record.
• The GP writes down that Lawrence is scared of
needles and loves football.
• After talking with Lawrence and his sister, they
decide to create a Summary Care Record with
extra information.

24. Lawrence goes to A & E
• Six months later, he is brought to A&E with a
carer.
• He has not eaten food for a few days and is
clutching at his chest.
• The doctors look at Lawrence’s Summary Care
Record. It shows contact details for his sister.
• It shows medicine that he has had recently and
that he has been treated for gastritis.

25. Lawrence gets treated
• Lawrence does not want a blood test at first.
• He agrees in the end because the doctor uses
anaesthetic cream and chats about football.
• The blood test shows that he is anaemic.
• His sister supports him to have more tests.
• He has a gastric ulcer. He starts treatment and
can go home.

26. Example!

27. Activity – tell us your views!
• On your tables, there is an easy read guide
about Summary Care Records.
• We want to know what you think about it.
• Do you have any ideas to make it better?
• There is someone on your table to help you.
• Please write any ideas down.

28. Feedback

29. Fact Finders
• On your table there is an envelope.
• Inside is a fact about Summary Care Records.
• Please can you read it together in your group.
• Can you think of a fun way of telling the rest of
the group this fact?
• You have 5 minutes!

30. Feedback

31. Question time….
• This is your chance to ask any questions you
have about Summary Care Records
• There are experts in the room who can help!

32. Thank you for joining in!