Overview of Patient Reported Outcomes in SAFTINet. Teleconference. 10 Feb 2011

1. Overview of Patient Reported
Outcomes in SAFTINet and the PEC
Marion R. Sills, MD, MPH
sills.marion@tchden.org
SAFTINet CER Project
SAFTINet

2. CER Study Question
 HEALTH CARE DELIVERY SYSTEM FACTORS, such as
the patient-centered medical home are important
to the CONTROL of
asthma (children, adults)
high blood pressure
hypercholesterolemia
PROCESSES OF
CARE
+
HEALTH CARE
DELIVERY SYSTEM
FACTORS
+ PATIENT FACTORS →
CHRONIC DISEASE
CONTROL

3. CER Study Question
 HEALTH CARE DELIVERY SYSTEM FACTORS, such as
the patient-centered medical home are important
to the CONTROL of
asthma (children, adults)
high blood pressure
hypercholesterolemia
PROCESSES OF
CARE
+
HEALTH CARE
DELIVERY SYSTEM
FACTORS
+ PATIENT FACTORS →
CHRONIC DISEASE
CONTROL
PRO

4. Patient Reported Outcome
(PRO)
 A questionnaire used in a clinical trial or a
clinical setting, where the responses are
collected directly from the patient

5. Sources of Disease Control
Measures
CHRONIC DISEASE
CONTROL Existing electronic health
record data
 Medicaid data, death files, etc.
 Patient-reported outcomes
(PROs)

6. PROs: Goals
 Screening
 Monitoring
 Feedback to patients
 Decision aid
 Facilitating team communications
 Evaluation of quality/outcomes
PRO

7. PROs in Asthma
 HEALTH CARE DELIVERY SYSTEM FACTORS, such as
the patient-centered medical home are important
to the CONTROL of
asthma (children, adults)
high blood pressure
hypercholesterolemia
PROCESSES OF
CARE
+
HEALTH CARE
DELIVERY SYSTEM
FACTORS
+ PATIENT FACTORS →
CHRONIC DISEASE
CONTROL
PRO

8. PROs in Asthma
 HEALTH CARE DELIVERY SYSTEM FACTORS, such as
the patient-centered medical home are important
to the CONTROL of
asthma (children, adults)
high blood pressure
hypercholesterolemia
PROCESSES OF
CARE
+
HEALTH CARE
DELIVERY SYSTEM
FACTORS
+ PATIENT FACTORS →
CHRONIC DISEASE
CONTROL
PRO
Existing data

9. PROs: Involving the PEC
 What PROs do you already measure?
 Who measures PROs and on which
patients?
 How do you measure it and how are PRO-
obtained data used by clinicians?
 When (and how often) do you measure it?
 Why do you measure it?

10. PROs: Involving the PEC
 What PROs do you already measure?
 Who measures PROs and on which
patients?
 How do you measure it and how are PRO-
obtained data used by clinicians?
 When (and how often) do you measure it?
 Why do you measure it?
online survey

11. Agenda items for future
meetings
 March 2: Research: Discussion of how partners
collect and document PROs, and barriers and
successes
 March 16: Technical: Use Cases
 April 6: Technical
 April 20: Research: Discussion of asthma PRO,
including relevant uses/goals, resources needed,
and potential barriers to implementation
 May 4: Technical
 May 18: Convocation in Colorado (tentative date)