A047 Autonomy from choice in community care. Creative rehabilitation projects

1. Supporting autonomy and aspirational
thinking in young people with life
shortening conditions – the need for
choice
Claire Turnbull
October 2016

2. Introduction to CHAS and Transitions
 Hospice provider for babies, children and
young people in Scotland
 Family Support and CHAS at Home service
 Upper age limit 21yrs
 Transition Team Project
 Initial findings

3. Autonomy
 Independence or freedom of one’s thoughts
and actions
 Free will
 Self governing
 The state of existing or acting without others
 Capacity to make informed choices, free of
coercion

4. Aspirational Thinking
“Dream as if you'll live forever.
Live as if you'll die today”.
James Dean

5. What are the unique needs of young
people with life shortening conditions

6. Bringing about change
 Case examples/studies
 Consider the impact
 Increased confidence in young people

7. Future recommendations
 Evaluation
 Nurture creativity
 Support aspirational thinking - dream and
plan
 Improved choice in care settings & delivery
 Need for specialist resources
 Community Inclusion - growth
 Joint working critical