This document summarizes the key findings from the 3rd LuCE (Lung Cancer Europe) clinical trials report. It discusses the report's methodology, including surveys of patients, advocates, and specialists across Europe. The summary highlights that most respondents were aged 56-65, women, and from several European countries. It also outlines barriers patients face in accessing clinical trial information and participating in trials. The document then discusses how LuCE has disseminated the report and makes recommendations for how advocacy groups can utilize the report findings.

1. How to use
the 3rd LuCE
report
Anne-Marie Baird
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2. First things
first…
Images: LuCE website and social media

3. Image: https://www.mirror.co.uk/news/weird-news/residents-wake-up-
surprise-after-6379572

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5. Why?
Why not?
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6. Why use the report?
• It is evidence based research
• Patient voice
• Real world data
• Covers a number of EU countries

7. What did we find?

8. Clinical Trials Report
• Desk based research (Lit review)
• Online survey for advocates (13 responses; 12 countries)
• Qualitative survey with specialists in lung cancer research (15 people)
• Online survey with patients (262 responses; 15 countries)

9. Clinical Trials Report
• The majority of respondents were aged between 56-65 years of age
(37%)
• Women accounted for 70% of total respondents
• Most of those who took part resided in Poland (19.5%), Italy (18.7%),
Denmark (9.9%) and Spain (9.2%)
• 50% did not fully understand what a clinical trial was
• 22% of respondents had never heard of clinical trials
• 11% of those surveyed had participated, or were actively participating
in a lung cancer clinical trial

10. Clinical Trials Report
• The Internet was the primary source used by patients to find trial
information (89%)
• Only 10% stated that they could always find the information they
needed
• Overall 80% wanted to find out more about clinical trials
• 75% believed that it would be beneficial for patients to work together
with researchers in the clinical trial development process

11. What did LuCE do?

12. Clinical Trials Report
November 2015 November 2016 November 2017
Images: LuCE website and social media

13. Clinical Trials Report
• Provided hard copies of report
• Shared across our website and social media
• Other languages
• Presentations (referenced)
• Submitted abstract to World Conference on Lung Cancer
Images: LuCE website and social media

14. Clinical Trials Report
• Made infographics of key findings
Images: LuCE website

15. What can our
members do?

16. How about….
• Your language
• Share link to full report on website/through social media
• E-newsletter
• Have printed copies to give members

17. How about….
• Share infographics
• Generate content
• Use data and images in your presentations/talks/letters
• Use it as a start off point:
• Background desk research
• Own surveys

18. How about….
• Basis for a webinar or information talk for your members
• Could use it as scope for a funding application
• Build on report for awareness days
• World Lung Cancer Day
• Lung Cancer Awareness Month

19. What other ways can
we use this report?

20. What are the
barriers to using it?

21. What can we do to
make it more useful
for industry?

22. Thank you!