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How to use
the 3rd LuCE
report
Anne-Marie Baird
Image: https://www.amazon.co.uk/Despicable-Minion-Dave-Desktop-Cutout/dp/B00DS3S6XO
First things
first…
Images: LuCE website and social media
Image: https://www.mirror.co.uk/news/weird-news/residents-wake-up-
surprise-after-6379572
Image: https://www.simpleconsign.com/blog/resale-business-
owner-blues/sad-minion-min/
Why?
Why not?
Image: https://davidavellan.com/getting-worse-time/breaking-barriers/
Why use the report?
• It is evidence based research
• Patient voice
• Real world data
• Covers a number of EU countries
What did we find?
Clinical Trials Report
• Desk based research (Lit review)
• Online survey for advocates (13 responses; 12 countries)
• Qualitative survey with specialists in lung cancer research (15 people)
• Online survey with patients (262 responses; 15 countries)
Clinical Trials Report
• The majority of respondents were aged between 56-65 years of age
(37%)
• Women accounted for 70% of total respondents
• Most of those who took part resided in Poland (19.5%), Italy (18.7%),
Denmark (9.9%) and Spain (9.2%)
• 50% did not fully understand what a clinical trial was
• 22% of respondents had never heard of clinical trials
• 11% of those surveyed had participated, or were actively participating
in a lung cancer clinical trial
Clinical Trials Report
• The Internet was the primary source used by patients to find trial
information (89%)
• Only 10% stated that they could always find the information they
needed
• Overall 80% wanted to find out more about clinical trials
• 75% believed that it would be beneficial for patients to work together
with researchers in the clinical trial development process
What did LuCE do?
Clinical Trials Report
November 2015 November 2016 November 2017
Images: LuCE website and social media
Clinical Trials Report
• Provided hard copies of report
• Shared across our website and social media
• Other languages
• Presentations (referenced)
• Submitted abstract to World Conference on Lung Cancer
Images: LuCE website and social media
Clinical Trials Report
• Made infographics of key findings
Images: LuCE website
What can our
members do?
How about….
• Your language
• Share link to full report on website/through social media
• E-newsletter
• Have printed copies to give members
How about….
• Share infographics
• Generate content
• Use data and images in your presentations/talks/letters
• Use it as a start off point:
• Background desk research
• Own surveys
How about….
• Basis for a webinar or information talk for your members
• Could use it as scope for a funding application
• Build on report for awareness days
• World Lung Cancer Day
• Lung Cancer Awareness Month
What other ways can
we use this report?
What are the
barriers to using it?
What can we do to
make it more useful
for industry?
Thank you!

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How to use the 3rd LuCE report