The Whiteboard Initiative: Eliciting what matters most to people at end of life

1. ELICITING WHAT MATTERS
MOST TO PEOPLE
The Whiteboard Initiative
proof of concept
Kathy Kastner @kathykastner

2. Disclosure of Potential Conflicts of Interest:
I currently have not, or have not had in the
last two years, an affiliation, financial
interest or other interest with a corporation
or I am not receiving or have not received
remuneration or royalties or research grants
from a corporation.
Kathy Kastner

3. Invited as a Patient Expert in ‘end of life’ Education
•Patient Centered Outcomes Research Institute (U.S.) present
•WestPark Health Center: Palliative and Supportive Steering Committee 2014-2018
•Health Quality Ontario: Advisor on Palliative Care Standard
•International Conference on Communications in Healthcare (2017/2018)
•MedicineX - Stanford California, Health 2.0, Patients 2.0 (2013)
Presenter
•Institute for Healthcare Advancement – California (2018)
•International Shared Decision Making Conference (2019)
•Cancer and Primary Care Summit (2019)
•Medicine X Change - Stanford CA (2019)
•Hospice and Palliative Care Ontario (2017)
•International Conference on Public Health and Palliative Care (2017)
Author
•Death Kills…and other things I’ve learned on the Internet
TEDx:
•Exit Laughing (2013)
Kathy Kastner

9. Demographics
• 60% female, age 28 – 68
• 40% male, age 34 – 72 – Canada
– US
– Mexico
– UK
– Scotland
– Netherlands
– Sweden
– Australia
– Hong Kong

11. Themes
• feeling purposeful
– Reading, learning, serving
others, hiking biking
• attending to senses
– Birds, water, walking, hugs,
love, fresh air, sex
• being connected
– Listening, family,
socializing, laughing
• looking good
– Hair, full make-up, well-
dressed

12. Getting to ‘What Matters’
• Spread use in health
institutions
• Add Patient’s Whiteboard
picture to their health
records
• @MyBestEndings
instagram sparking
conversations
• Helping caregivers to feel
purposeful
• Encouraging creative
thinking

15. International Public Health and Palliative Care
Conference with Dr Alex Jadad
Kathy Kastner Kathyk@bestendings.com twitter @kathykastner
www.BestEndings.com
insta: @MyBestEndings