Virgil H. Simons presented on developing a global platform for prostate cancer advocacy. He discussed the disparities in prostate cancer incidence and outcomes around the world. While spending on prostate cancer treatment is increasing, barriers remain to implementing precision medicine and equitable research. There are also deficits in communication between patients and providers. Simons proposes engaging communities to conduct appropriate research and creating advocacy networks to influence policies that result in comprehensive cancer control programs. The goal is to achieve sustainable and equitable access to healthcare.
Mobile Clinics - Optimizing Access to Preventive CareMickelder Kercy
Mobile health clinics can enhance health care accessibility and quality in underserved communities. Immigration Policy change and new health care regulations are vital to long-term health care costs reduction and population health improvement.
This prep document partners with the video and is for participants attending ConC 2012 - it is presented by Camille Bonta for the workshops she will lead at the Fight Colorectal Cancer conference.
Mobile Clinics - Optimizing Access to Preventive CareMickelder Kercy
Mobile health clinics can enhance health care accessibility and quality in underserved communities. Immigration Policy change and new health care regulations are vital to long-term health care costs reduction and population health improvement.
This prep document partners with the video and is for participants attending ConC 2012 - it is presented by Camille Bonta for the workshops she will lead at the Fight Colorectal Cancer conference.
Barriers and Enablers Associated with Differentiated Models of ART Distributi...JSI
In an effort to expand access to antiretroviral treatment (ART), countries across sub-Saharan Africa have begun to implement and scale up differentiated approaches to ART distribution, particularly at the community level. These distribution models are typically designed to cater to stable adult patients and aim to bring ART closer to where patients live, which, in turn, serves to decongest clinics and reduce the overall strain on a country’s health system. While documentation on the results of these models exists, there is limited information on the specific barriers and enablers that have impacted the implementation of such models. This cross-country study describes various models of differentiated ART distribution and the barriers and enablers associated with their implementation.
The community models of ART distribution that were explored were: community adherence clubs, outreach and community distribution points.
It was concluded that While differentiated models of ART distribution aim to broaden patient access to ART, models that provide these services at the community level have additional challenges and considerations that should be assessed and planned for prior to implementation. Two important barriers seen across all countries assessed included stigma and poor linkage to care. Peer support and education for both patients and providers were noted as important drivers of the success of community models. Intensive education at the front-end of scale-up can help providers effectively market the community-level models and help patients pick a model that would work best for them. Understanding these barriers and enablers will help country programs effectively and efficiently implement differentiated models of ART distribution to fit varying contexts, and allow for rapid scale-up, resulting in expanded access to ART and the ability to better meet the demands of patients on ART on a global level.
This poster was presented at the Fifth Global Symposium on Health Systems Research in Liverpool in October by Nikki Davis.
Presentation to Ignite Columbus 4 about how social technologies can affect the transformation of health care from reactive medicine to medicine that is predictive, preventative, participatory, and personalized.
Presentation: Obamacare Conflict and Confusion: Pitfalls and Promise for Communicators
Presented by: Gil Bashe, Executive Vice President and Health Practice Director, Makovsky
The Affordable Care Act (ACA) has been lauded and lambasted for its economics, but there are much larger issues at stake that place communicators on the front line. Gil Bashe, Executive Vice President of the healthcare practice at Makovsky and a past member of the CMS Part D Working Group, will discuss data on patient priorities and what it means for pharma, payer, provider and patient advocacy communication professionals trying to maximize the entry of millions of new customers into the nation's health system.
Charlie Alfero, MA presents on financing for community health work.
Description
This workshop will report on the development of “CHISPAS” a Medicaid Community Health Worker service and payment model that is being piloted in New Mexico. CHISPAS provides PMPM (per member per month) for Basic Patient Support, Intensive Care Coordination and support policy, systems and environmental changes to improve health and reduce costs. It is a national model for providing an on-going financing / payment source for CHW services.
These slides are from my presentation at the APA PLC 2017. They address integrated behavioral healthcare, per member-per month payments, and preventive application of behavioral healthcare
UCHAPS PrEP Experiences from Jurisdictional Presentations, December 2013Office of HIV Planning
Jen Chapman, Co-Chair of the Philadelphia HIV Prevention Planning Group (HPG) presented on experiences with PrEP from different jurisdictions across the country at the March 2015 HPG meeting.
Advancing Healthcare In the Age of Technology - Marc Dean, MD, VIMA - TFSSVSee
A physician's view of how technology has failed healthcare practitioners, and what issues need to be addressed to avoid the same failures in telemedicine adoption - from the Telehealth Failures & Secrets To Success Conference: vsee.com/telehealth-failures-conference
Genomics: Shifting the Paradigm for Rare DiseasesHannes Smárason
As genomics is used more and supported by ever-more robust analysis and interpretation, its potential to offer a solution to rare disease diagnosis is truly game-changing.
Speaker presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 17-19, 2019 in Washington, DC. Find out more about this forum at www.usnewshot.com.
Overview of the Patient-Centered Outcomes Research Institute (PCORI), how PCORI views Patient-Centered Outcomes Research and how this is related to PCORI’s major funding mechanisms.
Barriers and Enablers Associated with Differentiated Models of ART Distributi...JSI
In an effort to expand access to antiretroviral treatment (ART), countries across sub-Saharan Africa have begun to implement and scale up differentiated approaches to ART distribution, particularly at the community level. These distribution models are typically designed to cater to stable adult patients and aim to bring ART closer to where patients live, which, in turn, serves to decongest clinics and reduce the overall strain on a country’s health system. While documentation on the results of these models exists, there is limited information on the specific barriers and enablers that have impacted the implementation of such models. This cross-country study describes various models of differentiated ART distribution and the barriers and enablers associated with their implementation.
The community models of ART distribution that were explored were: community adherence clubs, outreach and community distribution points.
It was concluded that While differentiated models of ART distribution aim to broaden patient access to ART, models that provide these services at the community level have additional challenges and considerations that should be assessed and planned for prior to implementation. Two important barriers seen across all countries assessed included stigma and poor linkage to care. Peer support and education for both patients and providers were noted as important drivers of the success of community models. Intensive education at the front-end of scale-up can help providers effectively market the community-level models and help patients pick a model that would work best for them. Understanding these barriers and enablers will help country programs effectively and efficiently implement differentiated models of ART distribution to fit varying contexts, and allow for rapid scale-up, resulting in expanded access to ART and the ability to better meet the demands of patients on ART on a global level.
This poster was presented at the Fifth Global Symposium on Health Systems Research in Liverpool in October by Nikki Davis.
Presentation to Ignite Columbus 4 about how social technologies can affect the transformation of health care from reactive medicine to medicine that is predictive, preventative, participatory, and personalized.
Presentation: Obamacare Conflict and Confusion: Pitfalls and Promise for Communicators
Presented by: Gil Bashe, Executive Vice President and Health Practice Director, Makovsky
The Affordable Care Act (ACA) has been lauded and lambasted for its economics, but there are much larger issues at stake that place communicators on the front line. Gil Bashe, Executive Vice President of the healthcare practice at Makovsky and a past member of the CMS Part D Working Group, will discuss data on patient priorities and what it means for pharma, payer, provider and patient advocacy communication professionals trying to maximize the entry of millions of new customers into the nation's health system.
Charlie Alfero, MA presents on financing for community health work.
Description
This workshop will report on the development of “CHISPAS” a Medicaid Community Health Worker service and payment model that is being piloted in New Mexico. CHISPAS provides PMPM (per member per month) for Basic Patient Support, Intensive Care Coordination and support policy, systems and environmental changes to improve health and reduce costs. It is a national model for providing an on-going financing / payment source for CHW services.
These slides are from my presentation at the APA PLC 2017. They address integrated behavioral healthcare, per member-per month payments, and preventive application of behavioral healthcare
UCHAPS PrEP Experiences from Jurisdictional Presentations, December 2013Office of HIV Planning
Jen Chapman, Co-Chair of the Philadelphia HIV Prevention Planning Group (HPG) presented on experiences with PrEP from different jurisdictions across the country at the March 2015 HPG meeting.
Advancing Healthcare In the Age of Technology - Marc Dean, MD, VIMA - TFSSVSee
A physician's view of how technology has failed healthcare practitioners, and what issues need to be addressed to avoid the same failures in telemedicine adoption - from the Telehealth Failures & Secrets To Success Conference: vsee.com/telehealth-failures-conference
Genomics: Shifting the Paradigm for Rare DiseasesHannes Smárason
As genomics is used more and supported by ever-more robust analysis and interpretation, its potential to offer a solution to rare disease diagnosis is truly game-changing.
Speaker presentation from U.S. News Healthcare of Tomorrow leadership summit, Nov. 17-19, 2019 in Washington, DC. Find out more about this forum at www.usnewshot.com.
Overview of the Patient-Centered Outcomes Research Institute (PCORI), how PCORI views Patient-Centered Outcomes Research and how this is related to PCORI’s major funding mechanisms.
Please share this slideshow with anyone who may be interested!
Watch all our webinars: https://www.youtube.com/playlist?list=PL4dDQscmFYu_ezxuxnAE61hx4JlqAKXpR
In this webinar:
● Discussion of the CADTH Symposium
● Recommendations for HTA improvements in Canada
● Audience Q&A
View the video: https://youtu.be/AJCOemf2r6Y
Follow our social media accounts:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Pinterest - https://www.pinterest.com/survivornetwork
YouTube - https://www.youtube.com/user/Survivornetca
On July 7, 2014, the Green Park Collaborative (GPC) of the Center for Medical Technology Policy (CMTP) and the Institute for Clinical and Economic Review (ICER) co-hosted a web conference to explore the evidence needed to demonstrate the effectiveness and value of new drugs to treat chronic hepatitis C (HCV) infection. Representatives from various stakeholder groups, including payers, patients, pharmaceutical industry, health technology assessment organizations, and regulatory bodies, presented and discussed this issue with a particular focus on:
1. The evidence generated for regulatory approval;
2. The evidence preferences of post-approval decision makers; and
3. Strategies to efficiently generate the additional evidence.
Each of the invited speakers gave a brief presentation followed by a question and answer session at the end of the presentations. Audience members had an opportunity to submit questions through a chat feature. The conference was moderated by Dr. Sean Tunis, Founder
and CEO of CMTP. More than 200 participants, including a variety of subject matter experts and stakeholder representatives, attended the web conference.
Video and webinar summary available here: http://www.cmtpnet.org/featured-projects/green-park-collaborative/gpc-usa-meetings/webinars/hepatitis-c-drugs-evidence-to-demonstrate-effectiveness-value
Edwina Rogers, executive director of Patient-Centered Primary Care Collaborative, began her presentation by highlighting the movement to advance medical homes.
With the U.S. being the number one in the world for the cost of healthcare and ranked number 37 in the quality category, something needs to change. Rogers discussed the broad stakeholder support and participation for the movement, as well as the incredible volunteer involvement. The four ‘centers’ include: the Center to Promote Public-Payer Implementation, the Center for Multi-Stakeholder Demonstration, the Center for eHealth Information Adoption and Exchange and the Center for Health Benefit Redesign and Implementation. Medical Homes will provide superb access to care, patient engagament in care, clinical information systems, care coordination, team care, patient feedback and publically available information.
Edwards explained that the Obama administration believes the medical homes concept is the best way to approach healthcare reform. The U.S. House of Representatives has showed great support for the movement and is helping develop and allocate funds for a five-year pilot program. She expressed her enthusiasm for the movement and her prediction that the medical home model is certainly the future of health care.
A complete version of Rogers’ presentation on the Patient-Centered Primary Care Collaborative is available online.
Please share this webinar with anyone who may be interested!
Watch all our webinars: https://www.youtube.com/playlist?list=PL4dDQscmFYu_ezxuxnAE61hx4JlqAKXpR
Cancer care is increasingly tailored to individual patients, who can undergo genetic or biomarker testing soon after diagnosis, to determine which treatments have the best chance of shrinking or eliminating tumours.
In this webinar, a pathologist and clinical oncologist discuss:
● how they are using these new tests,
● how they communicate results and treatment options to patients and caregivers, and
● how patients can be better informed on the kinds of tests that are in development or in use across Canada
View the video: https://youtu.be/_Wai_uMQKEQ
Follow our social media accounts:
Twitter - https://twitter.com/survivornetca
Facebook - https://www.facebook.com/CanadianSurvivorNet
Pinterest - https://www.pinterest.com/survivornetwork
YouTube - https://www.youtube.com/user/Survivornetca
With recent advances in Healthcare, Personalized medicine has become a buzzword. The customization of health care, based on DNA sequencing, patient's environmental information, can lead to more efficient treatments.
By integrating various sources of data, personalized medicine improves all aspects of healthcare from prevention to monitoring.
Deborah K. Armstrong, M.D., explains the newly-released patient guide for ovarian cancer patients, which was sponsored by the National Ovarian Cancer Coalition (NOCC).
1. Virgil H. Simons, MBA, MPA
Founder & President
The Prtate Net®
Virgil H. Simons, MPA
Founder & President
The Prostate Net
Prostate Net Europa
DEVELOPING A GLOBAL PLATFORM
FOR PROSTATE CANCER
ADVOCACY
Global Prostate Cancer
Disparities Conference
11 November, 2016
2. FINANCIAL DISCLOSURES
• Consultant to:
• U.S. Congressionally Directed Medical Research Program
• Northwestern University Medical Center Prostate Cancer SPORE
• Center for Clinical Research at Clark Atlanta University
• African Organization for Research and Training in Cancer
• Educational Grants received from:
• AbbVie
• Amgen
• Astellas
• Genentech
• Tokai
3. PCA IS A GLOBAL CONCERN
• Highest incidence of male cancer in U.S.; 2nd greatest
cause of death; declining overall but increasing in minority
populations(2)
• #1 diagnosed cancer in Europe; deaths have increased by
16% since 1995(1) ”despite widespread use of PSA
testing...”
• Sources: (1) World Health Organization; (2) American Cancer Society
4. THE EVOLVING SITUATION
• $11.9 Billion spent last year in the U.S. on disease management
• Costs will increase
• New diagnostic tests
• New therapeutic agents
• Increased price for traditional therapies
• New imaging protocols
• Aging population guarantees medical/pharma sales growth
5. STRIVING FOR “CENTRICITY”?
• The United States Institute of Medicine:
• “Providing care that is respectful of and
responsive to individual patient
preferences, needs, and values, and
ensuring that patient values guide all
clinical decisions.”
6. WHAT DO PATIENTS WANT?
• From the PatientView Global Advocate Group survey:
• A patient-centered strategy
• Fair pricing policies
• Better communication about clinical trial data
• Improved access to valuable new drugs
• Increase R&D investments in cancer treatment
• Provide high-quality useful products
• Insure patient safety
7. CORE PROBLEM IN HEALTH DISPARITY
RESEARCH
• Racial and ethnic minorities remain underrepresented
in clinical trials:
• >30% of U.S. population
• <17% of trial participation
8. “WE DON'T SEE THINGS AS THEY ARE,
WE SEE THEM AS WE ARE.”
― Anaïs Nin
9. BARRIERS TO “PATIENT CENTRICITY”
• Differing perspectives:
• Patients:
• Personal Benefit vs. Societal Benefit
• Outcomes vs. QoL
• Family expectations
• Providers:
• Optimizing patient care vs. financial realities
• Physician financial productivity goals
• Pharma:
• Maximizing shareholder returns
• Protocol acceptance by patients
• Regulatory mandates
10. CHALLENGE #1
• Barriers to Implementing Precision Medicine
• Biomarker Validation
• Diagnostic Testing Array:
• Genetic
• Prognostic
• Receptor Variants, e.g. CTCs
• Availability of Targeted Drugs
• Sequencing of Therapies
• Access to Clinical Trials
• Healthcare Center Consolidation
12. CHALLENGE #2
• Deficits in Communication
• Patient Understanding of Targeted Therapies
• Patient Understanding of Disease Prognosis Information
• Lack of Effective Feedback
• Patient Expectations
• Physician Empathy
• Rise of 2nd Opinion Services
• Increase in Personal and Professional Healthcare Technology Use
13. BARRIERS TO EQUITABLE RESEARCH
• Lack of knowledge about target communities
• Inappropriate communication / recruitment strategies
• Tools and outreach based on majority community protocols
• Lack of engagement with target communities
• White researchers conducting research based on white patient
performance standards
14.
15. REINFORCING THE MESSAGE
• In The Know” newsletter
• Current Online Viewership - >
100M/issue
• Broad spectrum content
• Audience diversification
• Consumers/patients
• Advocates
• Healthcare professionals
• Researchers
• International > 50 countries
17. CHALLENGE #3
• Financial Barriers / Pharma:
• Overall Increase in the Cost of Care
• Drug costs
• Geographic Pricing Differentials
• Government Price Negotiations
• Utilization of Biologics and Biosimilars
• Cost of Toxicity
• Implementation of QALY
18. MECHANISM OF ENGAGEMENT
• Engage the community:
• Clinical research CADRE
• Patient IRB participation
• On-going community educational/interventional activities
• Dialogue on research studies
• Community appropriate research needs assessments
19.
20. CORE STRATEGY
The basic underlining principle of outreach:
start where the client is -
outside on the streets and in the community!
21. MANDATE FOR CHANGE
• Create clinical advocacy, ““the effort to influence people…to create change, which in the context
of cancer control results in comprehensive policies and effective program implementation,
through various forms of persuasive communication.”
• World Health Organization
• Create a Vision for:
• What you want to represent to the community
• What audience you want to serve
• Implement long-term accountability
• Mutually beneficial engagement
• Patients as the central element of the research/marketing matrix
23. CREATING A NEW NETWORK
The Prostate Net
Core Distribution 51 countries:
8,000+ Website visits/month
1,200 Patient Support Group Leaders
1,000+ Public Health Workers
~ 6,000 Medical Oncologists
> 4,000 Urological Specialists
> 2,000 Cancer Researchers
Sponsors:
- Corporate
- Individual
Collaborating
Organizations
Participating
Medical/Research
Centers > 300
Government
Agencies
Community:
U.S., Europe, Africa
24. ESSENTIAL QUESTION ON CENTRICITY / ADVOCACY
• If we accept that healthcare must be a
sustainable and equitable right for the people in
our societies, how do we achieve that objective
in an environment more complex, more
economically hierarchical, and more expensive
overall?
26. CORE ISSUES IN PATIENT CENTRICITY
• Are we really providing an enhanced level of care?
• Is the capability of doctors to better care for patients
expanding?
• Are patients really integrated into all planning and
outcomes
• Or, are we merely increasing the scope and scale of
healthcare disparity?
27. THE REAL VOYAGE OF DISCOVERY
CONSISTS NOT IN SEEKING NEW
LANDSCAPES, BUT IN HAVING NEW EYES.
- Marcel Proust
