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Health as a Social Movement
#PeoplePoweredHealth
Social movements are one of the
most effective forms of pressure on
health and care systems
“What does the NHS expect? For people
to camp outside of hospital?”
One way to get social movements
wrong is to see them everywhere
Charles Tilly, preeminent sociologist
What can we learn from social
movements that have scaled?
“We cannot understand social
movements unless we understand
how they spread”
Vision: what change do you want to SEE?
Actions: what can people DO?
Diffusion of social movements
Diffusion of social movements
CULTURAL
CHASM
Diffusion of social movements
CULTURAL
CHASM
OpenNotes movement
A small change in how we manage notes
can bring about a cultural change in how
health care is delivered and experienced
Impact to date
1. Adoption by 7 million patients internationally
2. Cultural change in medical practice
3. Clinically rele...
Adverse Childhood Experiences
(ACEs) movement
“My patient said,
being overweight is
SAFE.”
- Dr. Vincent Felitti
10 adverse childhood experiences
NEGLECTABUSE HOUSEHOLD DYSFUNCTION
Health issues
Unhealthy behaviours
The correlations
86%
of U.S. healthcare costs
spent on people with >1
chronic condition
$5.8 T
estimated impact of the
social costs and los...
Training teachers and students about
ACEs and toxic stress over 10 years
66% decrease in youth arrests for violent
crime, ...
Growing leaders and recruiting spokespeople
Resolving conflicting approaches within movements
Crafting a unified message
I...
“People in power are people.”
“Don’t start a social movement, join one.”
“You need to get to the point where you are
so exhausted by a problem that you are
willing to dedicate everything to a sol...
30+ movement leaders
10+ social movements
10+ countries
Dr. Nadine Burke,
Founder of Center for
Youth Wellness
#PeoplePoweredHealth
“Remember, people in power are people.”
ACEs are common
PREVENTION SOCIAL
MOVEMENTS
HIV/AIDS
Disability rights
Tobacco control
Breast cancer
Rare disease
End-of-life/palliative care
Global mental health
Ope...
“If you think this is anything less than a
human rights movement, think again…
the smoking fight took 60 years.”
A HEALTH SOCIAL MOVEMENT IS:
promote resist
or
Why is this issue ripe for a movement?
1. Childhood trauma is stigmatised
2. There are deep cognitive biases to break
amon...
Empathises with people and communities
Mobilises people and resources
Pressures systems to change
Orbits existing systems
...
A new model of engagement
Social
Movements
The NHS,
Health & Care
Organisations
A healthy tension: How might the NHS engag...
One path to institutionalisation
EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo
EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo
EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo
EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo
EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo
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EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo

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EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo

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EdgeTalk June 2017: From Me to We – The Future of the NHS as a Social Movement - Jacqueline del Castillo

  1. 1. Health as a Social Movement
  2. 2. #PeoplePoweredHealth
  3. 3. Social movements are one of the most effective forms of pressure on health and care systems
  4. 4. “What does the NHS expect? For people to camp outside of hospital?”
  5. 5. One way to get social movements wrong is to see them everywhere Charles Tilly, preeminent sociologist
  6. 6. What can we learn from social movements that have scaled?
  7. 7. “We cannot understand social movements unless we understand how they spread”
  8. 8. Vision: what change do you want to SEE? Actions: what can people DO?
  9. 9. Diffusion of social movements
  10. 10. Diffusion of social movements CULTURAL CHASM
  11. 11. Diffusion of social movements CULTURAL CHASM
  12. 12. OpenNotes movement
  13. 13. A small change in how we manage notes can bring about a cultural change in how health care is delivered and experienced
  14. 14. Impact to date 1. Adoption by 7 million patients internationally 2. Cultural change in medical practice 3. Clinically relevant benefits: improved patient safety, medication adherence, patient recall 4. Potential to save healthcare costs
  15. 15. Adverse Childhood Experiences (ACEs) movement
  16. 16. “My patient said, being overweight is SAFE.” - Dr. Vincent Felitti
  17. 17. 10 adverse childhood experiences NEGLECTABUSE HOUSEHOLD DYSFUNCTION
  18. 18. Health issues Unhealthy behaviours
  19. 19. The correlations
  20. 20. 86% of U.S. healthcare costs spent on people with >1 chronic condition $5.8 T estimated impact of the social costs and lost earnings associated with child maltreatment in US alone The economics of prevention
  21. 21. Training teachers and students about ACEs and toxic stress over 10 years 66% decrease in youth arrests for violent crime, saving more than $1.4 billion
  22. 22. Growing leaders and recruiting spokespeople Resolving conflicting approaches within movements Crafting a unified message Institutions ‘getting in our way’ Applying pressure to current institutions and systems People starting too many movements Limited funding for movement activity Ensuring the right ‘voices’ within a movement Incorporating evaluation methods for social movements
  23. 23. “People in power are people.”
  24. 24. “Don’t start a social movement, join one.”
  25. 25. “You need to get to the point where you are so exhausted by a problem that you are willing to dedicate everything to a solution”
  26. 26. 30+ movement leaders 10+ social movements 10+ countries
  27. 27. Dr. Nadine Burke, Founder of Center for Youth Wellness
  28. 28. #PeoplePoweredHealth
  29. 29. “Remember, people in power are people.”
  30. 30. ACEs are common
  31. 31. PREVENTION SOCIAL MOVEMENTS
  32. 32. HIV/AIDS Disability rights Tobacco control Breast cancer Rare disease End-of-life/palliative care Global mental health Open data movement Adverse childhood experiences Complementary & alternative medicine Alzheimer’s disease
  33. 33. “If you think this is anything less than a human rights movement, think again… the smoking fight took 60 years.”
  34. 34. A HEALTH SOCIAL MOVEMENT IS: promote resist or
  35. 35. Why is this issue ripe for a movement? 1. Childhood trauma is stigmatised 2. There are deep cognitive biases to break amongst medical practitioners 3. Research uptake has been low, especially in healthcare 4. Pathways to solutions now exist 5. People are mobilizing around the issue
  36. 36. Empathises with people and communities Mobilises people and resources Pressures systems to change Orbits existing systems Waves in intensity over time Experiments with new ideas Rages and roars for issues that matter Self-governs its own activities A social movement EMPOWERS
  37. 37. A new model of engagement Social Movements The NHS, Health & Care Organisations A healthy tension: How might the NHS engage with social movements most productively?
  38. 38. One path to institutionalisation

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