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Final #ot24vx presentation


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This is thepresentation that I gave as part of the #OT24vx- the24 hour Virtual Exchange for OT in celebration of World OT day, which in 2011 was themed "Pay it Forward". It was hosted by the excellent OT4OT group, leaders in the use of Online Technology in the profession of Occupational Therapy.

My biography:

The link to the presentations with audio and video is here, please see presentation 18

All content is copyright, please get my permission to use this for teaching purposes and group work.

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Final #ot24vx presentation

  1. 1. Claire Jones
  2. 2. The Pubic Symphasis• “Lateral scissoring” can irritate a misaligned pubic symphasis.• Many activities create lateral scissoring motion, e.g. walking, running, climbing hills and stairs, carrying shopping or children unevenly.• Photo credit:
  3. 3.  “Volition, habituation and performance capacity are maintained and changed through what one does and what one thinks and feels about doing” p.27 “A shift in volition, habituation, performance capacity or the environment can alter the overall dynamics, leading to the emergence of something new” p.28Keilhofner, G. (2008) Model of Human Occupation, 4th ed.
  4. 4.  Volition  Environment: • Driven personality • Housing- • High pain threshold  Steep hill with no vehicle access • Pride in Joint breadwinner role  Carrying shopping up the Habituation hill • Very busy lifestyle  Often carrying toddler up the hill • Long hours on feet  Steep stairs in back-to-back • Used to running/ lifting/ housing carrying  House on three floors • Work-  Very busy M H Inpatient Ward
  5. 5.  Poor advice from GP and Midwife • outdated with reference to published research about PGP, • services under re-organisation led to use of locums without specialist expertise, • administrative and communication problems, • my pride- perhaps I didn’t state my case forcefully enough? Good advice from Doctor at work • recognised the problems with my gait and insisted I pursue the physio. referral, despite several unsuccessful attempts Finally, advice from Physio • Physio couldn’t believe I was still working with the level of injury Started OT on Wheels blog /
  6. 6.  “Occupational deprivation is...a state in which a person ...(is) unable to do what is necessary and meaningful in their lives due to external restrictions. Itis a state in which the opportunity to perform those occupations that have social, cultural and personal relevance is rendered difficult if not impossible.”(Whiteford, 2000)
  7. 7. •Side lying with kneesgripping pillow is mostcomfortable position•It is surprisingly difficultto do things in thisposition!•Started to usepainkillers andmindfulness to deal withpain
  8. 8.  Using services gave me valuable insight into the service user experience- things don’t always go the way we think they should! Took delivery of a bed-stick, two urinal bottles from OT- at last I can get out of bed independently! Blogged about attitudes of the staff and services I encountered, including Patient Transport If I can’t work the system, what hope has anybody? btw/ treated/
  9. 9.  DLA- Disability Living Allowance • Benefit in the UK for people to address the increased cost of living with disability • Very difficult process to claim, but necessary as a gatekeeper to other disability services Motability • Scheme in UK where part of DLA is sacrificed to provide independent transport
  10. 10.  Cried each night before going back up the stairs- it hurt so much Despairing about the future Hoping that after the birth I would recover quickly Blogged about problems in the home ats-the-access-to-my-house-like-rubbish-and- heres-too-much-information-about-how-it-is-in- the-house-too/
  11. 11.  Successful elective c- section Celebration shared through Social Media- #clairesbaby is born! Baby develops anaemia within first few hours of birth- soon becomes critically ill
  12. 12.  What is it? • Haemolysis leads to elevated bilirubin levels. After delivery, bilirubin is no longer cleared (via the placenta) from the neonates blood Symptoms • Jaundice increase within 24 hours after birth. Treatment is • Phototherapy • Exchange blood transfusion newborn
  13. 13.  #clairesbaby Tweets became huge source of support Agreed treatment: • Triple phototherapy • Fed baby expressed milk under phototherapy lamps
  14. 14. So happy she was goingto make it!! Allowed to resume breastfeeding And to pick her up for cuddles
  15. 15. Bathing baby in hospital breastfeeding room- partner needed to carry filled bath to table in order for me to participate in bathingLooking after baby from mybed- all dressing, nappychanging and feeding donein the same way.
  16. 16. PROBLEM SOLUTION Couldn’t open  Make friends with the heavy fire doors housekeepers, who from wheelchair- brought me meals and need access for tea! • Meals  Plan loo visits during • Toilet visiting hours when • Shower many people around to hold doors  Have daily shower when I have my own visitors
  17. 17. I want to go home, but  Handy grabdon’t know how I’ll  Toilet framemanage!  Urinals (downstairs and bedroom)  Bath seat  Shower seat  Perching stool (bathroom)  Bedstick  Trolley  Zimmer Frame
  18. 18.  Home Care helped to:  Blogs  Carry baby downstairs 1/23/the-woman-who-would-not-take- PADL off-her-shoes-in-which-i-discuss-my- disappointment-with-home-carers-lack- • Showering of-respect/ • Dressing bottom half  01/23/social-care-the-forgotten-public- • Emptying urinals service-in-which-i-discuss-the-lack-of- education-of-the-role-of-the-helping- DADL professions-in-our-primary-schools-at- key-stage-1/ • Hoovering  • Pegging out washing 09/23/a-funny-story-about-psychosis- in-which-i-discuss-occams-razor/ • Making a cup of tea  01/23/social-care-the-forgotten-public- • Ironing service-in-which-i-discuss-the-lack-of- education-of-the-role-of-the-helping- • Making bed professions-in-our-primary-schools-at- • Washing up key-stage-1/
  19. 19.  Still in pain, but healing from the birth now Still find side lying to be best relief from pain Parenting tasks very difficult-  Nappy changing  Couldn’t carry baby  Couldn’t bathe baby  Couldn’t use oven
  20. 20.  My set-up each morning- reducing trips up and down stairs- keep everything handy!
  21. 21.  Receiving services- not providing services! • Daily Home Care • Family aide 3x weekly • Social Services transport • Wheelchair Taxi going-out-maybe-or-maybe-not-in-which-i- discuss-problems-booking-out-the- wheelchair-taxi-service/ access-to-my-house-from-car/ • Physiotherapy • Perinatal Mental Health Support • GP • Pharmacy delivery
  22. 22.  Found online support networks to be invaluable Couldn’t get out to meet friends Couldn’t get to school Housebound, except when partner / wheelchair taxi took me for medical appts
  23. 23. Kubler-Ross  Impact on friendships:Cycle of grief  m/2011/09/19/so-good-to-see- you-back-on-your-feet-again-in-Denial-Anger-Bargaining-Grief- which-i-discuss-the-well- Acceptance meaning-but-misinformed- friend/ m/2011/01/23/life-changing-  injury-in-which-i-start-using-the- m/2011/02/14/a-little- kubler-ross-stages-of-grief- knowledge-is-a-dangerous- model/ thing-in-which-i-discuss- medical-student-syndrome/ m/2011/06/02/feeling-rotten- sucks/
  24. 24.  Starting to accept my situation- assessing how I lived my life before and after disability I didn’t miss my daughter’s Nativity- first Family outing!
  25. 25. Spirituality faith-and-healing-in-which-i-discuss-faith- healing-prayer-and-christianity/Family a-weekend-away/ childcare/ childcare-2-time-to-start-letting-go/
  26. 26.  Fit for work? Personalisation personalisation-in-adult-social-care-personal-budgets-and-how-i-still- cant-access-them/ Disablism scroungers-in-which-i-discuss-the-home-care-ladys-disablism/
  27. 27.  Pelvic Instability Network Scotland • Pelvic Partnership • Wikipedia •
  28. 28.  Kielhofner, G. (2008). Model of Human Occupation (4th ed.) Lippincott Williams and Wilkins. Baltimore. Kübler-Ross, E. (1969) On Death and Dying, Routledge. Cited on Wikipedia. Accessed 17.35 25/10/11[] Whiteford, G. E. (2000). Occupational deprivation: Global challenges in the new millennium. British Journal of Occupational Therapy, 63(5), 200–204. Haemolytic Disease of the Newborn. Wikipedia. Accessed 15.05 07/09/11[] Nhs local (2011)Women with pelvic girdle pain left in agony unnecessarily. Thursday 31st March. Accessed 15.05 07/09/11[]
  29. 29. Contact details can be instantly uploaded to your phone by scanning the QR code opposite.E: tech4health@gmail.comBlogs: Otonwheels.wordpress.comT: @claireotG: +claireot