ICD-11 brings significant changes. Coders and HIM professionals need to be aware of those changes to best prepare their organizations for a smooth transition. Here’s what we know and what you can expect: https://www.agshealth.com/blog/overview-of-icd11/

1. Overview of ICD-
11
By AGS Health - December 21, 2022
Understanding ICD-11
International Classification of Diseases (ICD) is the global standard for
recording health information and causes of death. It is developed and updated
annually by the World Health Organization (WHO). ICD-11 was presented at
the World Health Assembly on March 25, 2019 and approved for
implementation on January 1, 2022, which means all countries have access to
it and the ability to implement ICD-11 in accordance with their own
timetables.
Clinicians, statisticians, and classification and IT experts from around the
world collaborated to develop the 11th edition, which was a first for ICD
development and extremely beneficial for the medical community. The
inclusion of these groups resulted in an increase in the number of diagnoses
from 14,400 in ICD-10 to 55,000 unique codes in ICD-11, giving researchers
and healthcare organizations access to more complete healthcare information.
Given the significant changes, the WHO has acknowledged many countries will
be slow to transition to ICD-11.
Each country can either adopt the code set as is or customize it to meet the
individual needs of their country’s healthcare reporting system. In the U.S.,
ICD is customized through clinical modifications (the CM in ICD-10-CM) to
allow it to be tied to provider reimbursements.

2. What is different with ICD-11?
ICD-10 is more than 25 years old. As such, there are major factors
contributing to the need for a new edition, including:
• Substantial advancements in medicine and the science of disease that
have occurred over the past 30 years
o ICD-10 is outdated both clinically and from a classification
perspective
o Substantial structural changes were needed to some chapters
o Changes could not be handled under the normal ICD-10 updating
mechanism
o Changes needed were well beyond a major update
• There was an increasing need for an electronic environment
• Need to capture more information, especially for morbidity use cases
Ultimately, the decision was made in 2007 to begin work on a new edition.
ICD-11 addresses gaps and problems, such as:
• Antimicrobial resistance - essentially missing in ICD-10
• HIV subdivisions - outdated detail in ICD-10
• Simplified Diabetes coding
• Skin cancer - melanoma types missing – basalioma missing in ICD-10
• Valve diseases - outdated structure, need by valve, less rheumatic
• Postprocedural conditions - clarify when using 19 and when not for
postprocedural
• Cancers with histopathology – ICD-O for cancer registries embedded
• External causes – better coding traffic accidents
Other major differences between ICD-10 and ICD-11 include:
• Codes look different – Alzheimer disease
o ICD-10 – G30
o ICD-11 – 8A20
• Simplified code structure

3. o Extension codes (e.g., temporality, severity, dimensions of injury
and external causes)
o Clustering of codes – combining 2 or more codes to describe a
diagnostic entity
• Some diseases changed locations
• Six new chapters
1. Diseases of blood and blood-forming organs
2. Disorders of the immune system
3. Conditions related to sexual health
4. Sleep-wake disorders
5. Extension codes
6. Traditional medicine
On February 11, 2022, the WHO claimed 35 countries were using ICD-11. In
the U.S., the implementation timeline is unknown; however, implementation
discussions are underway.
The eleventh revision contains around 17,000 unique codes, more than
120,000 codable terms and is entirely digital.

4. A Brief History of ICD
The first ICD edition was adopted by the WHO back in 1900, and it was used in
the U.S. for mortality between 1900-1909. It evolved over time and has
become a comprehensive classification system used in mortality, morbidity, as
well as case mix, quality measures, patient safety, and more. It’s used mainly
in primary care, secondary care, and research. ICD also records, reports, and
groups conditions. The most widespread use for ICD is for the cause of death
statistics or mortality. These statistics are used for research, public health
monitoring, evaluating health interventions, and planning follow-up health
care.
How was ICD-11 developed?
The classification system underwent a significant redesign, involving more
than 300 specialists from 55 countries and 30 workgroups. More than 10,000
proposals were submitted from around the world to the WHO for
consideration.
ICD-11 is a vast improvement on previous revisions. It reflects critical
advances in science and medicine, alarming classifications with the latest
knowledge of disease treatment and prevention – delivering more meaningful
clinical data than ever before.
These changes range from being more informational, technology-friendly, and
better able to support data collection and morbidity to lowering costs. WHO
wanted to bring ICD-11 into the 21st century and make it a completely digital
design and easily integrated with electronic health applications and
information systems. It does a better job of capturing quality and safe
healthcare data and is much more user-friendly. These advancements made
ICD-11 more intricate and comprehensive than its predecessors.

5. It is also capable of linking ICD-11 with other classifications, for example, the
International Classification of Functioning Disability and Health. For the first
time, ICD-11 will enable dual coding of traditional medicine diagnosis
alongside mainstream medicine and now also permits the generation of a
functioning score based on the WHO Disability, Assessment Schedule.
It will also be a multilingual reference already translated into English, Russian,
Chinese, Spanish, Arabic, and French.
ICD-11 in the U.S.
The Secretary of Health and Human Services (HHS) has given the U.S. an
expected implementation year of 2025. But, if a clinical modification is
needed, it could be postponed to 2027.
The National Center for Vital and Health Statistics (NCVHS) notes numerous
steps towards implementation:
• First, we need to evaluate the ICD-11 for U.S. purposes beginning in
2022.
• National Committee on Vital and Health Statistics hearings are needed
to discuss ICD-11 and make any required revisions.
• Then, the notice of proposed rulemaking from HHS needs to be
published in the Federal Register.
• Finally, the Final Rule would have to be published in the Federal
Register.
Not only does the above need to occur prior to computer system updates, but
coders have to be educated as well. As of now, the final implementation date
in the U.S. remains unknown.
Structural Changes
ICD-11 features several new chapters, including:

6. • Diseases of the immune system
• Sleep-wake disorders
• Conditions related to sexual health
• A new supplementary chapter, referred to as traditional medicine
conditions
The codes are presented in alphanumeric order, covering the range from
1A00.00 to ZZ9Z.ZZ. There is always a letter in the second position and a new
feature will be referred to as cluster coding. It is fully electronic and provides
access to 17,000 categories with over 100,000 medical diagnostic index terms.
There is also a foundational component. This data source for the production
and maintenance use of classification includes additional content that goes
beyond the traditional paper-based use of classification and links to other
classification terminology, which will be expanded in the future.
The stem codes of ICD-11 are organized in 26 chapters that follow the
traditional pattern of ICD, relating to etiology, the organ system, maternal
status, perinatal status, external causes, and factors influencing health status.
While stem codes may be reported alone, they may also be reported in
conjunction with an extension code or even other stem codes. And so, we’ll
see linking of codes, referred to as post-coordination, allows the codes to
describe documented conditions fully. The ability to post-coordinate codes
will help the code set to be organized and provide a way to capture all the
detail without exploding the code set with sometimes hundreds of additional
codes to include every combination.
Other Significant Changes: ICD-10 to ICD-11
In ICD-10, the chapter numberings were roman numerals. In ICD-11, it is
Arabic. We also have three character categories in ICD-10; in ICD-11, a
category is referred to as a “Stem Code” with four characters.
Both code sets have alphanumeric codes so you see a letter in the first
position and a number in the second, third, and fourth positions. In ICD-10,
the first character of the code is a letter, but in ICD-11, we see a code starting

7. with an “X” indicates an extension code, as well as the letters “O” and “I” are
omitted to prevent confusion with the numbers “0” and “1.”
The ICD-11 code set supports post-coordination and linking codes within the
code clusters.
Next Steps
Health organizations should identify someone to monitor industry updates
surrounding ICD-11. It’s important for HIM professionals to stay current
about ICD-11, which will help ensure a smooth transition.
With the exact implementation date in question, there’s much uncertainty
about how to plan and prepare. Right now, the best solution is to stay current
and keep teams updated.
AGS Health - Author
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Source of content: https://www.agshealth.com/blog/overview-of-icd11/