Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

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Mubnii Morshed, from Women’s Health in Women’s Hands Community Health Centre in Canada, introduces a digital storytelling videos made by seven women representing different stakeholders within the HIV community.

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    Based on evaluation of digital storytelling screenings
  • what strategies or approaches have helped you to mobilize knowledge... 
  • Research Shouldn’t Sit on a Shelf: Stories of Strength, Action and Resilience from Women Living with HIV

    1. 1. Partners: Funders:
    2. 2. Agenda  Introduction to WCBR Project  Introduction to Digital Storytelling  Screening of 4 Videos  Q & A with Video Participants Panel  Group Discussion: Innovative Ideas for Knowledge Mobilization in Community Research
    3. 3. The WCBR Project Involving Ontario HIV-positive Women And Their Service Providers In Determining Their Research Needs And Priorities
    4. 4. The WCBR Project  Mixed method study funded by the Canadian Institute of Health Research (CIHR) between 2007 – 2010  Implementation team:  2 Principle investigators  5 Co-investigators  25 CAB members  12 women living with HIV as Peer Research Assistants  Think Tank of experts in between the two phases to determine direction for phase II
    5. 5. WCBR - Phase 1  15 focus groups were conducted with women living with HIV (n=104) across Ontario, Canada including:  Aboriginal, African/Caribbean, South Asian, Latina, sex worker, injection drug user, lesbian/bisexual/queer, and transgender women  5 cities: Toronto, Ottawa, Hamilton, Sudbury, Thunder Bay  Peer Research Assistants (PRAs) from targeted populations were trained as a component of study development and implementation  4 focus groups were also done with service provides and researchers (n=45) in Ottawa, Hamilton and Toronto
    6. 6. WCBR - Phase 2  A quantitative survey was developed to further investigate themes and priorities of women living with HIV  A total of 166 women ranging from 18 – 69 years of age  Three regions: Ottawa, Toronto, Southwestern Ontario 1. What is the influence of HIV-related stigma, gender-based discrimination and racial discrimination on quality of life, depression and access to care among Black, African, Caribbean and Canadian women? 2. What is the influence of social support and resilient coping on quality of life, depression and access to care among Black, African, Caribbean and Canadian women?
    7. 7. KTE Activities Range of KTE Activities targeted to multiple audiences: 1. Scientific community:  18 conference presentations  6 papers published in peer reviewed journal  1 paper in review  2 in preparation 2. Service providers and communities of women living with HIV  Community report  Forums – 7 done across Ontario 3. Multiple audiences  7 Digital Story Telling videos
    8. 8. Digital Storytelling What is it? Why did we choose it? How does it work?
    9. 9. What is Digital Storytelling? Digital storytelling combines the traditional art of storytelling with multimedia features such as: photography, animation, text, audio, voiceover, and video “New Folklore of the Digital Age”
    10. 10. Why Digital Stories?  Initial: ~25 min full video  Final: 7 digital storytelling videos (~3 mins each)  Individual vs. collective experiences in research  Reflexive Process  Using own voice – individual ownership of video  Social Media Strategy
    11. 11. How does it work? 1. Story Circle 2. Discussion/Feedback 3. Script Writing (3 min) 4. Storyboard/Plan 5. Voiceover 6. Gather photos/videos/art 7. Final Cut Express 8. Finish & Screen
    12. 12. Q & A with Panelists Carmen Logie Marvelous Muchenje Wangari Tharao
    13. 13. WCBR Study Report Website: www.whiwh.com
    14. 14. Digital Storytelling Videos Website: www.youtube.com/TorontoWHIWHCHC
    15. 15. WCBR Project Interactive Website (In progress) Features • Embedded Videos • Biographies • Final Report • Results + Themes • Updates/Events • Pre/Post Survey • Social Media • Discussion/Forum
    16. 16. 1. What are some challenges you find in mobilizing knowledge? 2. How can we facilitate research to action in CBR? (“now what?”) 3. Examples of innovative KTE strategies/projects 4. Breaking the stigma on HIV research – how can KTE help? Open Discussion Innovative Ideas for Knowledge Mobilization in Research
    17. 17. Thank You! Contact Information: Mubnii Morshed, MPH Research Coordinator Women’s Health in Women’s Hands CHC Toronto, Canada mubnii@whiwh.com

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