Health Talk Online is a website featuring over 60 collections of qualitative interviews about various health conditions and experiences. The interviews are conducted using narrative methods with diverse patients throughout the UK. Over 3,000 video and audio clips have been extracted from the interviews. The site is a resource for patients, caregivers, health professionals, and those developing healthcare policy and quality standards. Researchers at the University of Oxford conduct the interviews and analyze them to identify key themes. The full interview collections are also available for secondary analysis by other researchers and to inform healthcare improvement initiatives.

1. Sue
WWW.HEALTHTALKONLINE.ORG Ziebland
Health Experiences
Research Group
A RESOURCE FOR PATIENTS, NICE Dept Primary Health
Care
AND COMMISSIONING University of Oxford

2. WHAT DOES GOOD CARE LOOK LIKE FROM
THE PATIENTS PERSPECTIVE?
Representatives on committees, Walk throughs etc
Research with service users
Questionnaire surveys
Focus groups
Interviews (structured or in-depth)
Patients narratives
Blogs and online support groups and chat rooms
Patient feedback (big brother booths, PDAs, online ‘reputation sites’)
Patients experience websites: www.healthtalkonline.org
Secondary analysis of collections of narrative interviews

3. WHAT IS HEALTH TALK ONLINE?
Award winning multimedia websites www.healthtalkonline.org
and www.youthhealthtalk.org
Resources for patients and the public, carers, professionals in
practice and training, policy makers, NICE guidelines and QS
teams
Sites feature 60 (and growing) collections of qualitative
interviews illustrated with thousands of video and audio clips
from interviewson health experiences
Collaboration between DIPEx charity and the Health
Experiences Research group in University of Oxford

6. ABOUT THE RESEARCH METHODS
Stand alone qualitative interview studies (40-50 per
collection)
Narrative methods – unstructured and semi
structured sections
Diverse sample - interviews throughout UK
Thematic analysis – approx 25 topics and 300 video
audio and written clips each collection
Research findings disseminated via HTO and in peer
reviewed papers
Ziebland S, McPherson A. Making Sense of Qualitative Data Analysis with
illustrations from the DIPEx project. Medical Education 2006; 405-414

7. SECONDARY ANALYSIS OF THE INTERVIEW
COLLECTIONS
Archive of 60 health conditions each with 30-50 narrative interviews; interviews. All
copyrighted to U of Oxford for use in research, teaching, broadcasting etc – numerous
uses by other academic researchers
Learning, teaching and service improvement - (accelerated) Experienced based co-
design (with Glenn Robert)
Experienced based commissioning (with Georgina Craig Associates)
Feb- March 2011 - Laura Griffith secondment to NICE quality standards team to help
include patients experiences through her work on experiences of psychosis (now
launched on www.healthtalkonline.org
Secondary analysis (& further secondments) planned to use analysis of the full sets of
interviews to inform patients experiences aspects of 2011- 12 Quality Standards and
guidelines development

8. CONTACTS
Sue.ziebland@phc.ox.ac.uk (Research Director)
Phone 01865 289328
Suzanne.shale@phc.ox.ac.uk (Director of Learning and Teaching)
www.healthtalkonline.org
www.youthhealthtalk.org