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Welcome - 2019 CURE OM Symposium

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Melanoma Research Foundation CEO Kyleigh LiPira gives a brief overview of the history and mission of the MRF.

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Welcome - 2019 CURE OM Symposium

  1. 1. Kyleigh LiPira, MBA CEO April 6, 2019 CURE OM Initiative Patient & Caregiver Symposium Raleigh, NC
  2. 2. FOUNDER: DIANA ASHBY Diana founded the MRF after the third recurrence of her tumors and the loss of several friends to melanoma. She started to investigate alternative therapies and trials of promising new drugs to discover research was limited by funding. In accordance with Diana’s vision…by funding basic cancer research…we can make a difference in the lives of others. Her remarkable enthusiasm, hopeful vision and unique compassion for others lives on in the organization she founded to help find the cure for malignant melanoma. She worked night and day…finally stopping only when the cancer had taken her eyesight and her voice.” - Captain Jeff Ashby, NASA astronaut and Diana’s husband 5
  3. 3. To accelerate medical RESEARCH to find life-saving advances; To EDUCATE patients, caregivers, and the public about prevention, diagnosis and treatment; To serve as an ADVOCATE for the melanoma community, both cutaneous and rare subtypes 2 MISSION
  4. 4. 3 “Thank you for providing these life- saving publications. They have been extremely beneficial for our patients.” “Without these materials I would only be providing sunscreen educational information and basic skin cancer facts and these materials are extremely helpful for educating the public, especially during health fairs.” “I am the Melanoma Nurse Navigator at our hospital. Every new patient with a melanoma diagnosis receives material from MRF.” EDUCATION
  5. 5. 4 55 Representative Meetings ADVOCACY: HILL DAY 2019
  6. 6. REACH 5
  7. 7. SCIENCE & RESEARCH: CORE ACTIVITIES Grantmaking Scientific Initiatives – Creation of Resources •Breakthrough Consortium •Virtual Repository – Rare Subtype Focus, Ocular Melanoma – Scientific Topic Meetings, e.g., Brain Metastases Support to the Field – Society for Melanoma Research (SMR) Awards 5
  8. 8. SUMMARY OF GRANT PROGRAM 7 From 1998 to 2018, the MRF has awarded: • Spans 69 institutions in 26 states • Includes investigators at all stages in their career path
  9. 9. GRANT MECHANISMS 8 Types of Grants Purpose Eligibility Duration Medical Student Introduces students early in their career to clinical/ research opportunities under the mentorship of an investigator engaged in melanoma research Medical students at an accredited US medical school or institution 1 year Career Development Enables young researchers to generate the groundwork that can leverage additional grant funding from other funding bodies Junior investigators which include:  Postdoctoral fellows with less than five years of postdoctoral experience OR  A research associate, instructor, assistant professor or the equivalent. 2 years Established Investigator Encourages proven researchers to continue research on emerging challenges in melanoma Established researchers,mainly faculty with at least an Associate Professor appointment 2 years Team Encourages collaboration across academic disciplines in an institution or among multiple institutions A PI and at least one co-PI, ideally from different institutions 2 years
  10. 10. 2019 RESARCH GRANTS • Awarded 11 MRF Medical Student Awards • Awarded 1 MRFBC-BMS YI Research Team Award to Advance the Field of Translational Immuno-Oncology • Current MRF Grant RFP includes: – CURE OM Team Award – Established Investigator Awards (EIAs) – Career Development Awards (CDA) including specific CDAs on: • Pediatric Melanoma • Melanoma Brain Metastases – Specific topics of interest (STPs) include epigenetics, prevention, metastases, and response to treatment  Developing structured training to better support advocates in the grant review program 5
  11. 11. AREAS OF FUNDED RESEARCH (through traditional grant program only) 10
  12. 12. RESEARCH GRANT IMPACT (ROI) 5 As of August 2018, research grant funding from the MRF has resulted in: • This grant was the first one I was awarded after finishing my medical training, and tremendously helped me establish my academic career. Since then, 20 more grants (mostly as PI) were obtained and finished. (CDA Recipient) • The MRF grant was instrumental in helping us to advance our melanoma research program and to connect with the melanoma community. (EIA Recipient) • NIH-type funding mechanisms are not appropriate for the research proposed herein since it is the kind of research that is considered “risky” by study sections. Only visionary funds like the MRF can overcome the vicious cycle of “no preliminary data that demonstrate the concept/no funding” which we are all used to getting from the NIH review process. (EIA Recipient)
  13. 13. Grant Reviewer Focus Group Member Committee Member Patient Panels Advocate/ Spokesper son 12 PATIENT-CENTRIC
  14. 14. 13 Thank you Questions

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