LiveWorkPlay (No Notes) Presentation To YAI Conference 2013
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LiveWorkPlay (No Notes) Presentation To YAI Conference 2013

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Session 25 Community Inclusion ...

Session 25 Community Inclusion
Julie Kingstone MEd
Keenan Wellar MA

From social programs to social change: building a welcoming community. Over a period of 4 years, the LiveWorkPlay organization engaged in a successful process of ‘de-programming’ by making a shift from congregated programs to authentic community-based supports and outcomes based on flexible and highly individualized person-centered planning.

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LiveWorkPlay (No Notes) Presentation To YAI Conference 2013 LiveWorkPlay (No Notes) Presentation To YAI Conference 2013 Presentation Transcript

  • (25) Community InclusionFrom social programs to social change:building a welcoming community.Keenan Wellar, MA and Julie Kingstone, MEdLiveWorkPlay (Ottawa, Canada)From 2008-2010, the LiveWorkPlay charitable organization engagedin a successful process of “de-programming” by making a shift fromcongregated programs to authentic community-based supports andoutcomes based on flexible and individualized person-centeredplanning. They have been living this new way of being for the pastthree years and will share what they have learned, with a particularfocus on life-changing outcomes for individuals who have anintellectual disability, as well as partnerships with citizens andorganizations in support of a more inclusive community.
  • 15,000It always seemsimpossibleuntil its done.Nelson Mandela100 MINUTES
  • PLEASE NOTE: YOU DO NOT NEED TO TAKE NOTES FROM SLIDES OR SOURCES CITED, WE AREMAKING THE PRESENTATION AND SOURCES AVAILABLE FROM THE FOLLOWING WEB PAGE:http://liveworkplay.ca/YAIAGENDAIntroduction: Neurodiversity & BeliefBackground: About UsLiveWorkPlay Background: The Early YearsThe Program YearsDe-Programming (Why Change?)Being The Change: Person-Centered & Community-BasedTools & Tips: Keeping Our Focus & Never Standing StillCommunications: How Sharing The Day To Day Is Building A MovementConclusion: Questions & Follow-Up
  • NEURODIVERSITYThe acceptance and embrace of people with cognitivedifferences is an idea whose time has come. Thesudden prominence of this term is an indication ofhow rapidly our field is evolving and howdramatically parents and practitioners are shapingthe public dialogue. What these change agents havein common is a determination to open minds longclosed to the potentials and possibilities of peopleonce dismissed because of their differentness.Remediating  Accommodating  Valuing
  • CONTEXTCountry: Canada (population 35 million)Province: Ontario (13 million)City: Ottawa (820,000) 7.5 hours north of NYC60% Funded by the Ontario Ministry of Communityand Social Services, our total annual budget $1 million(by budget we are one of the smaller of 16 agencies in Ottawa)Serving between 80-100 individuals per year11 full-time staff (some casual and part-time staff)120 volunteers not including contributions of family of the people we support (members)30+ employment partners (employers who have hired at least one of our members)30+ community partners (United Way, Rotary, YMCA, non-profit housing, etc.)Why 16 different agencies in a city of 820,000 it’s a strange history that has to do withdifferent disability populations and other factors but why LiveWorkPlay exists has to dowith dissatisfaction with the systems approach taken by most of those 16 agencies.
  • JUST WHO ARE THESE PEOPLE?199820072013
  • http://j.mp/ablastfrompast
  • What Did You Think Of Our Video?
  • Doing A Wrong Thing CanBe Immensely Popular
  • Prison of ProtectionProtect fromSexual InformationProtect fromSocietyProtect fromRelationshipsProtect fromDecision-MakingVulnerablePerson Adapted from:David Hingsburger(Google him)Abuse information:Dick Sobsey(Google him)
  • SCARCITY ABUNDANCE
  • Not about fixing people withintellectual disabilities sothey can be more normaland fit in with othersExclusion is everyone’s issueand as a community we mustall work together to bewelcoming and inclusiveSocial ServicesApproachSocial ChangeApproachWe have learned to appreciate thatpeople considered “different” oftenbring important contributions to society(e.g. racial differences) and there is lotsof work in progress (e.g. sexuality).Neurodiversity is at a very preliminarystage. How many people honestlybelieve that people with intellectualdisabilities truly BELONG (and will takeaction to back up that thought?).
  • “Some things have to be believed to be seen.”― Madeleine LEngle(A Wrinkle In Time)
  • When Dan Heath and his brother Chip startedtheir research for their best-seller Switch: Howto Change Things When Change Is Hard , thetwo of the most common comments theyheard about change were:“Change is hard.”“I hate change.”18
  • We Are Family
  • (Medical Model)Social Services(Community Model)Social ChangeDecisions = Paid Staff and/or FamilyEducation = Day Program/Special EdRecreation = Segregated ProgramEmployment = Sheltered WorkHome = Institutional SettingRelationships = Paid Staff and/or FamilyDecisions = Self-DirectedEducation = Inclusive Classrooms (All Ages)Recreation = Playing In Community (With Others)Employment = Work/Volunteerism (With Others)Home = House/Condo/ApartmentRelationships = Family, Friends, NeighboursUnpaid Support, Paid SupportTRANSFORMATIONA Transformative Journey
  • Thank you for choosing Acme Support Services, where we proudlyfacilitate individual independence through person-centered planning!Now, let me start by outlining the list of fixed choices available to you!
  • MOREFamilyFriendsColleaguesCo-WorkersClassmatesNeighboursSpouseONLY ASNEEDEDWorkersStaffDoctorPsychologistPsychiatristSocial WorkerHOW TO SUPPORT INCREASED SOCIAL CAPITALFOR PEOPLE WITH INTELLECTUAL DISABILITIES
  • An institution is any placein which people who havebeen labeled as having anintellectual disability areisolated, segregated and/orcongregated. An institutionis any place in which peopledo not have, or are notallowed to exercise, controlover their lives and theirday to day decisions. Aninstitution is not definedmerely by its size.Task force onDe-Institutionalization
  • Foundguilty ofa crimeAgainstsocietyFoundguilty ofhaving anintellectualdisability
  • Overall, the findings suggest thatacross datasets, people with IDDexperience greater levels ofunemployment, underemployment,low wages, and poverty compared tothose without disabilities.Beyond the moral and ethical issuesinvolved, how can we continue to fundsegregated programs with governmentfunds (tax dollars) when federal andstate laws (ADA, IDEA, Rehab Act, andmore) mandate non-discrimination,least restrictive environment, and otherbasis tenets which promote inclusion,equal access, and more?- Kathy Snow, disabilityisnatural.com“I WANT TO WORK”
  • “THIS IS TUESDAY NIGHT LEAGUE BOWLING. PLEASE COME BACK ONTHURSDAY NIGHT AND SIGN UP FOR SPECIAL NEEDS BOWLING.”BUT I’VE GOT A 180 AVERAGE!
  • Play collageNO DAYPROGRAM?WHAT WILLTHEY DOTO FILLTHEIRTIME?
  • We cannot solve our problemswith the same thinking weused when we created them.All that is valuable in human society depends upon theopportunity for development accorded the individual.Core value: people with intellectual (developmental) disabilities arevaluable contributors to community diversity and the human family.
  • Do staff want to perform like stars? Sure! But we don’t want to be your world.(Google Dave Hingsburger)
  • “Ottawas Race Weekend (May 28th - 29th) is a popular eventeach year (http://www.ncm.ca/). Andrea and I are interested intraining with a team of LiveWorkPlay members to participate in this funevent - either by walking or jogging the 2K, 5K, 10K, or half marathon.”
  • “I never thought from this I’d make such a goodfriend that I send texts to all day every day!”
  • “Agencies trying to create andsustain person-centred servicesbased in the communityare spectacularly more successfulat it than those agencies who believeit is impossible and refuse to try.”(Modified quote fromDr. Michael Kendrick)35
  • 36Some of what happened - by trying!
  • The bestInsurancefor thefuture is aRobustnetwork
  • The Day Program?THAT WAS EASY?A robust network ofwelcoming peopleand places thatincludes a home, ajob, friends, andenjoyable things to doin the community?For EACH and EVERYperson we support?HARD!But it’s supposed to be about doing what is right, not what is easy…
  • Progressing Towards the Mission?VisionA Community Where Everyone BelongsMissionHelping the community welcome people withintellectual disabilities to live, work, and play asvalued citizensImpactIncrease in levels of socialcapitalIncrease in levels of presenceto contribution in communityactivitiesIncreased personal incomeLIVEWORKPLAYRELATIONSHIPSSuccess rates implementingsupport plansDecreased reliance on ODSPImpact on employers,community venues, andneighbourhoods# 1:1 Matches Average Length 1:1 Match# members active incommunity venues# venues# gatekeepers developed# members employed# employers# new employers# gatekeepers developed# total affordable homes# housing partnerships# members supported# gatekeepers developed# Friendships# Fri Night VolunteersCitizenship reviews# Friday night activitiesSatisfaction questionnairesValuesCORE: People with intellectual disabilities are valuable contributors to the diversity of ourcommunity and the human family.LIVE, WORK, PLAYWith respect to: homes, health care, education, personal dignity, and personal privacy paid work at minimum wage or better, short-term unpaid work, and volunteer positions cultural and spiritual life, sports and recreation, political life, and the full range of humanrelationshipPeople with intellectual disabilities have the right to the removal of barriers preventing them fromexperiencing the community on an equal basis with other citizens.MEMBERSATISFACTIONOutcomesAre we progressing towards the mission?
  • youtube.com/liveworkplayvideo
  • PLEASE NOTE: YOU DO NOT NEED TO TAKE NOTES FROM SLIDES OR SOURCES CITED, WE AREMAKING THE PRESENTATION AND SOURCES AVAILABLE FROM THE FOLLOWING WEB PAGE:http://liveworkplay.ca/YAI