www.stutteringhelp.org • 800-992-9392 • www.tartamudez.org T HE S TUTTERING F OUNDATION A Nonprofit Organization SUMMER 2009 Since 1947... Helping Those Who Stutter Research on Electronic Devices: Preliminary ResultsBy Anne L. Foundas, M.D. andEdward G. Conture, Ph.D. National Stuttering Awareness Week Developmental stuttering has alifetime incidence (i.e., percent- May 11-17age of adults who stuttered atsome point) of nearly 5% and is one of the more y of NFL common develop- mental speech dis- Pho tos cou rtes orders. Although the disorder sig- nificantly im- pacts the academ- ic, emotional, so- Anne L. cial and vocation- Foundas, M.D. al achievements, development and potential of indi- viduals who stut- Chargers Star Darren Sproles ter, important Breaks Records On and Off the Field questions remain Darren Sproles, the Stuttering Off the field, he’s reached a regarding factors Foundation’s spokesman for record-breaking number of kids that cause, exac- National Stuttering Awareness and adults who stutter with a erbate and/or Week, posted the second-best message of help. In fact, the Edward G. Conture, Ph.D. maintain stutter- yard gain in Chargers post-sea- Foundation’s Web site, ing. Likewise, the son history in a January 3 game www.stutteringhelp.org, hasefficaciousness of various treat- against the Colts. He also became recorded more than 2 million hitsments for stuttering remains a the player with the third most in the four weeks leading up tosource of vigorous debate as well yards of any player in a single the May 11th awareness week.as investigation. Among such post-season game in NFL history. Continued on page 6 Continued on page 2 The Impact of ADHD on Stuttering Therapy By Joseph Donaher, Ph.D., studies have shown that stut- but research has suggested The Center for Childhood tering runs in families and that both may be causal fac- Communication, that approximately 70% of tors for some individuals The Children’s Hospital the variance in liability to who stutter, especially those of Philadelphia stutter can be accounted for with no family history of through inheritable factors1,2. stuttering3,4. Furthermore, it The role of genetic factors The contribution of congeni- has been suggested that in the onset and maintenance tal factors and early neuro- when no genetic component of stuttering has received con- logical incidents has been is present, adults who stutter siderable attention. Multiple less thoroughly investigated Continued on page 4 Joseph Donaher, Ph.D.
THE STUTTERING2 www.stutteringhelp.org FOUNDATION 800-992-9392George Cooley Research Continued from front page fications, the audiometric (e.g., frequency characteristics) proper- treatments, altered-auditory feed- Remembered back (AAF) has received consid- ties of the SpeechEasy as well as erable attention in recent years. its potential influence on stuttering 1931-2009 in AWS. Specifically, we have at- With advances in digital tech- Longtime Stuttering Foundation nology, one such AAF device, tempted to assess how this deviceBoard member George Cooley the SpeechEasy, has been designed influences stuttering in adults withpassed away on and marketed to treat stuttering. persistent developmental stutter-Feb. 20, 2009. This small de- ing (PDS) as George and his vice is worn like well as the ex-wife, Jeanette, a hearing aid and tent to whichfounded Mercury can be adjusted device settingsPrinting Company in terms of de- and the use ofin Memphis, layed auditory the device in thewhere George feedback (DAF) left versus therevolutionized as well as fre- right ear con-Stuttering Found- George Cooley quency altered Testing the electronic device. tributes to thisation materials - everything from feedback (FAF) influence.books to brochures to posters and parameters, and volume. To date, eleven participants (PDSnewsletters. According to the SpeechEasy’s as- = 7, Controls = 4) have been exam- “George knew everything sociated marketing literature, such ined without the device in placethere was to know about the AAF adjustments of the auditory (baseline), with the device in placeprinting business and was also a sidetone for speech mimic the ef- but not on, with the device in placesuperlative teacher,” said Jane fects of choral reading. Results of using manufacturer-suggested andFraser. “Not a day goes by that I empirical studies can be taken to manufacturer-independent settings,don’t put to use something he suggest that this device is effective and in each ear independently.taught me.” for at least some adults who stutter Reading, narrative, and conversa- George was committed to help- (AWS; References 1-6). tional speech-language productioning others who stutter and is sore- We have recently initiated an were examined for each partici-ly missed by all who were fortu- empirical study to characterize, in- pant. For this initial study, we lim-nate enough to know him and dependent of manufacturer speci- ited our sample to right-handedwork with him over the years. K men ages 20 to 40 years who do (PDS) and do not (controls) stutter. Individual performance profiles were examined in relation to Annual Audit of Foundation baseline output and results were The annual audit of the fund raising are very low, and computed as a proportion of ut- Stuttering Foundation financial since we are fortunate to have an terances (stuttering events in the reports for 2008 was recently endowment which more than first 300 syllables in each speak- completed by the accounting covers our overhead expenses, ing condition). firm of Cannon and Company, donors can be assured that their Preliminary findings indicate Certified Public Accountants, gifts will go directly to support that the device has more influence Memphis, Tenn. Following is a our program services. on stuttering frequency during nar- recap of funds and expenditures The Foundation is a 501(c)(3) ration and reading than during for the year. private operating foundation which conversational speech but that this The 3.5% of expenditures for expends its funds on its own pro- effect interacts with which ear the administration and general ex- grams and operations and does not device is worn on. That is, some penses and the 7/10 of 1% for make grants to other institutions. participants exhibited more effect Funds expended for: with the device in the left versus Creation, production, printing and distribution right ears. As has been shown with of educational materials . . . . . . . . . . . . . . . . . . . . . . . . . . . . . $567,362 . . . . . . . 37.8% previous studies, there is also con- Public information and education . . . . . . . . . . . . . . . . . . . . . . . . . 336,805 . . . . . . . 22.4% Educational symposia for professionals . . . . . . . . . . . . . . . . . . . . . .184,657 . . . . . . . . 12.3% siderable variation among partici- Research on causes/treatment of stuttering and therapy . . . . . . . . . 261,958 . . . . . . . . 17.4% pants. The extent to which the Maintain Web site and toll-free information hotline . . . . . . . . . . . . . . . 88,293 . . . . . . . . . 5.9% placebo effect can account for at Total for Program Services:. . . . . . . . . . . . . . . . . . . . . . . $1,439,075 . . . . . . 95.8% Other expenditures: least some of these findings is still Administration and general . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .53,276 . . . . . . . . . 3.5% under investigation. Fund-raising expense . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10,208 . . . . . . . . 0.7% In summary, our preliminary Total Expenditures: . . . . . . . . . . . . . . . . . . . . . . . . . . . . $1,502,559 . . . . . . . 100% Continued on page 3
THE STUTTERINGSUMMER 2009 FOUNDATION 800-992-9392 3Research Continued from page 2results appear to indicate that theSpeechEasy device can influence PSAs Produce a Harveststuttering during at least reading The Foundation has been News & Financialand narration, but that there is con- hearing from readers acrosssiderable individual variation in its America … in rural areas aseffect. It is thought important to de- well as suburbs and large citiestermine whether specific settings, … through the medium ofear placement or other biological fruit, vegetable, and crop farm-factors impact users’ response to ing magazines. Reaching athe device. Preliminary findings varied group of people in rural,were taken to suggest that changes often isolated areas is particu-in stuttering, at least for some larly rewarding.adults who stutter, may be related Other magazines and newspa-to changes in speech-language pers featured here have donated amonitoring, something impacted record-breaking number of pub-by AAF devices like the Speech lic service ads to the Foundation.Easy. These findings do seem to Farming & Agriculturesupport the need to further studywhy this AAF device impacts stut- Time, The New York Post,tering for some but not other PDS. Fortune, Technical Analysis of Editor’s note: The Stuttering Stocks and Commodities, GeorgiaFoundation is pleased to support Trend, The Philadelphia Inquirer,this new research. and the Pittsburg Tribune-Review.References1. Armson J, Kiefte M, Mason J, De Croos D.(2006) The effect of SpeechEasy on stutteringfrequency in laboratory conditions. J Fluency SportsDisord. 31:137-152.2. Armson J, Kiefte M. (2008) The effect ofSpeechEasy on stuttering frequency, speech rate, & Styleand speech naturalness. J Fluency Disord.33:120-134.3. Kalinowski, J. (2003). Self-reported efficacyof an all in-the-ear-canal prosthetic device to in-hibit stuttering during one hundred hours of uni-versity teaching. Disability and Rehabilitation,25, 107–111. Corn & Soybean Digest, American4. ODonnell JJ, Armson J, Kiefte M. (2008) The ef- Vegetable Grower, Greenhousefectiveness of SpeechEasy during situations of dailyliving. J Fluency Disord. 2008; 33:99-119. Grower, Western Fruit Grower,5. Stuart, A., Kalinowski, J., Rastatter, M. P., and Soybean Digest.Saltuklaroglu, T., & Dayalu, V. (2004).Investigations of the impact of altered auditoryfeedback in-the ear devices on the speech of peo- Healthple who stutter: Initial fitting and 4-month followup. International Journal of Language &Communication Disorders, 39, 93–113.6. Stuart, A, Kalinowski, J, Saltuklaroglu, T, &Guntupalli, VK. (2006). Investigations of the im-pact of altered auditory feedback in-the-ear de-vices on the speech of people who stutter: One-year follow-up. Disability and Rehabilitation,28, 757–765. K The American Journal of Public Health, JAMA, American Journal of Nursing and Dentistry Today. AARP magazine, Redbook,Read Around the World Seventeen, New York Stuttering Foundation press re- Technical Times Magazine, ESPN,leases can be read worldwide! In Good Housekeeping,fact, one article about V.P. Joe and Avenue Calgary.Biden’s struggles with stutteringwas published in Equatorial 3Sound & Vision and PopularGuinea, the only Spanish-speak- Photography.ing country in Africa. K
THE STUTTERING4 www.stutteringhelp.org FOUNDATION 800-992-9392 ADHD speech-language pathologist’s Continued from front page Stuttering are more likely to present with in- scope of practice to suggest whether a family should or should and Singing creased ADHD-like characteristics possibly as a result of underlying not pursue pharmacological inter- vention, any significant changes By Lisa Scott, Ph.D. neurological factors 3. in stuttering behaviors should be While research linking reported to the medical Answering young reader’s stuttering with ADHD is lim- team. The team can then de- question … see page 8 ited at best, preliminary re- termine whether to discon- We don’t know for sure why ports suggest that the preva- tinue the medication, alter people don’t stutter when they lence of ADHD among chil- the dosage or switch to sing, but it’s probably a combi- dren who stutter is signifi- a different medication. nation of reasons: cantly higher than in the Unfortunately, there are few 1. When you sing, you take general population5,6. studies describing the effects breaths in between measures. Thus, research is needed of ADHD medications on This means that the number of to better understand this re- stuttering and much of the words you say on one breath is lationship in an attempt to clinical management must be very specific. When you talk, on identify risk factors, man- done on an ad-hoc basis. the other hand, you can take agement strategies and Lastly, speech-lan- breaths wherever you want in the possible neurological For more information guage pathologists sentence. Sometimes, people underpinnings of each on ADHD and should have a thorough who stutter have a hard time disorder. However, a stuttering, download understanding of ADHD keeping their air going, so it more pressing need re- this free brochure at and resources for fami- makes talking harder. lates to the clinical www.stutteringhelp.org. lies and professionals. 2. Different parts of our brains management of chil- An excellent starting help us think or act in special dren who stutter who present with point is the brochure, ADHD and ways. Most people’s center for diagnosed ADHD or with subclini- Stuttering by the Stuttering music is on the right side of their cal levels of ADHD-like traits. Foundation. Additionally, therapists brains, but the speech center is The speech-language patholo- can utilize online resources like The on the left side of the brain. This means that the “controls” are dif- gist, working as part of a coordinat- Stuttering Homepage and Children ferent for talking versus singing. ed multidisciplinary team, must and Adults with Attention Deficit 3. Another idea that might ex- consider the impact that ADHD Disorders – CHADD. By keeping plain why people don’t stutter traits could have on an individual’s the lines of communication open be- when they sing has to do with ability to succeed in therapy. For tween all team members, the speech- how much you have to think of example, children with ADHD fre- language pathologist can increase words on your own. When you quently struggle with monitoring carry-over and retention of the mate- are talking, you have to have an their behaviors on-line, especially rial presented in therapy while limit- idea, then pick out the words when challenged with time pres- ing the frustration and anxiety that you’re going to use to tell some- sure7. Thus, a child with concomi- too often hinders progress. one else your idea, then get your tant stuttering and ADHD may find 1. Felsenfeld, S., Kirk, K.M., Zhu, G., Statham, D.J., muscles and air going to be able it difficult to effectively monitor his Neale, M.C., & Martin, N.G. (2000). A study of the genet- ic and environmental etiology of stuttering in a selected to say the words. When you sing, speech and make corrections at the twin sample. Behavioral Genetics. Sep;30(5):359-66. someone else has already thought moment of stuttering. In this case, 2. Yairi, E., Ambrose, N., & Cox N. (1996). Genetics of stuttering: a critical review. up all the words and it’s not your the child may fully understand Journal of Speech, Language, Hearing Research. Aug;39(4):771-84. own idea, another good reason what to do but his struggling would 3. Alm, P., A., & Risberg, J. (2007). Stuttering in that sining is easier than talking. be related to consistently using adults: The acoustic startle response, temperamental traits, and biological factors. Journal of Communication We hope this helps answer what he knows in real-life situa- Disorders. 40, 1-41. 4. Poulos, M., & Webster, W. (1991). Family history your question! K tions. Unfortunately, this could be as a basis for subgrouping people who stutter. Journal of Speech and Hearing Research. 34, 5-10. misinterpreted as the child not 5. Healey, E., C., & Reid, R. (2003). Tutorial on wanting to use his strategies or Stuttering and ADHD. Journal of Fluency Disorders. Volume 28, Number 2. lacking motivation. 6. Biederman, J., Faraone, S.V., Spencer, T., Wilens, T., Norman, D., Lapey, K.A., Mick, E., Lehman, B.K., & As part of a new clinical study, Speech-language pathologists Doyle, A. (1993). Patterns of psychiatric comorbidity, cog-researchers will test whether pago- must also monitor for any nition, and psychosocial functioning in adults with atten- tion deficit hyperactivity disorder. American Journal ofclone, an investigational medication changes in stuttering which could Psychiatry. Dec; 150(12): 1792-8. 7. Van Meel, C.S., Heslenfeld, D.J., Oosterlaan, J., &for stuttering, may offer a way to be due to the use of psychostimu- Sergeant, J.A. (2007). Adaptive control deficits in atten-achieve more fluent speech. lant medication which remains tion-deficit/hyperactivity disorder (ADHD): the role of error processing. June 30;151(3):211-20. More details are available at the most common intervention for 8. Zuyekas, S., Vitiello, B., & Norguist, G. (2006). Recent trends in stimulant medication use among U.S. children.www.StutteringStudy.com. K ADHD8. While it is out of the American Journal of Pyschiatry. April; 163(4): 574-577. K
THE STUTTERINGSUMMER 2009 FOUNDATION 800-992-9392 5 Eastern Workshop attendees Therapy has given me a great their children learn is an incredi-were contacted six months after way to find out what my clients bly valuable tool, as well astheir 5-day training to see how have been doing since our last training the parents to focus oneach of them is using their training session to move themselves for- the things that are going right.”in working with people who stutter. ward. I really like how the ques- “The parents had been so dis-Here’s what they had to say … tioning leads them to solutions.” couraged in previous attempts at “It has been an eye opening ex- “I use the rating scale that the therapy, and fully believed theyperience for my clients when they clients do by themselves all the time were doing everything wrong.start identifying their Negative since it seems to give the client own- Their apparent confidence as par-Automatic Thoughts and the im- ership on what they are or are not ents grew remarkably through thepact it has on their stuttering. The doing to move themselves forward. time of our Solution Focusedcognitive model is also used to ad- The positive approach fits so well.” Therapy. They adore the specialdress specific problems along with “The best experience with the times with the child who stutters astheir fear and anxiety to break down Parent Child Interactive Therapy well as with his brother. The childthe ineffective safety net they had has been with a young boy. The re- decreased stuttering considerably.previously created and develop an sults have really been two-fold ... He’s getting direct therapy noweffective replacement.” and his parents are con- “I always start my ther- tinuing special times atapy sessions with ‘What home. All are movingare your best hopes for well toward their goals.”today?’ which has been “What I have seen to beshown to be such a high- most effective in my usely effective tool to ad- of Parent Childdress their needs.” Interactive Therapy is “The focus on posi- how the parents are nowtive behaviors and theuse of ‘special times’ Six Months Later ... feeling empowered rather than helpless byhas provided the most frequent and his fluency has stabilized and mom looking at what interaction strate-positive feedback from parents of feels more confident about stutter- gies help their child to become moremy preschoolers. It’s been such a ing therapy. During the video pro- fluent. Integrating ‘descriptivepleasure to see the relief on their cess, several ‘lightbulb/aha’ mo- praise’ and ‘special time’ have beenfaces simply because they can now ments occurred as we noticed what effective tools for parents.”shift focus from stopping disfluen- was working. The ability to work “I find myself asking ‘And howcy to examining the fluent times.” on one homework idea each week would that make a difference?’ and “The way Parent Child made the plan feel manageable to ‘What else?’ in most of my conver-Interactive Therapy is presented is her. When she identified ways to sations, including those with col-exceptional--parents have told me build his confidence, allowed him leagues, student teachers and familytime and time again how ‘special to problem solve situations with- members. It sure beats ‘Well, I thinktime’ not only helps to achieve flu- out her interference, and learned to you should ... blah, blah, blah.’ Ient speech, but gives them the op- follow his lead in play, the fluency have a long way to go with this butportunity to feel the burden and significantly increased. She also am in happy mode about it all.”worry lifted from their shoulders learned to talk openly about his Editor’s note: Your donationsand revel in a truly special interac- fluency.” help to fund workshops like this onetion with their child.” “Helping parents learn how to each year and in return hundreds of “The Solution Focused Brief take responsibility in helping people who stutter are helped. K Paperless e-Catalog Available Stepping up with the newest for specific products, bookmark, technology, the Stuttering make notes, and even link direct- Foundation launched its e- ly to the Foundation’s Web store Catalog this spring. to order by clicking on any item. You can load it on your desk- If you would like to receive the top, browse through the pages, e-Catalog link, just let us know - zoom on items of interest, search email@example.com. K
THE6 www.stutteringhelp.org STUTTERING 800-992-9392 FOUNDATION Volunteers Make a Difference Carol Ecke, helped by Connie Dugan, man Charlie Osborne, seconded by Erin the Illinois state Dyer, volunteer for the SFA booth at convention booth for the the Wisconsion state convention. Stuttering Foundation. Kavita Kaul and her student Nick wowed the audience of attendees at the Virgina state convention. Dorothy Olson, April Brown Kudos to the many volunteers who and Carol give generously of their time and en- Schaefer visit Carl Dell and Carol Ecke ergy in working exhibit booths the booth. with a copy of his semi- across the country! Some volunteers nal book, Treating the like SLPs Charlie Osborne and available at the Wisconsin and School-Age Child Who Kavita Kaul not only work in the Virginia conventions. Stutters. booth but also give input into what Susan Hamilton, of Washington materials to send to the convention, state, is always a first-rate volunteer Foundation from the many attendees, physically set up the booth, organize as she helps get the word out about many of whom remembered founder, additional workers, and help man the the newest products on stuttering Malcolm Fraser. I also got feedback booth throughout the event! treatment at the all-day Tacoma- on how our materials are helping Charlie and Kavita contacted the NSA workshop. their clients.” Foundation and asked if they could Terri Jones of the Foundation’s “Professional boother” and booster volunteer for their state conventions. Memphis office reported, “It was a Carol Ecke continues her enthusiastic Thanks to them - materials were privilege to represent SFA at the Mid- convention schedule and relates how South Conference . I enjoyed hearing exciting it is for her to have SLPs and stories of the early days of the students volunteering in the booth alongside of her. K Terri Jones brought SFA Carol Ecke products to the University worked her of Memphis NSSLHA magic to get Conference. the Stuttering Foundation booth ready at Susan Hamilton in Tacoma, Wash., conferences in California. where Dr. Tricia Zebrowski presented an all-day workshop on fluency.Sproles Continued from front page lates, “I have been working on my “We’ve been inundated with re- stuttering for 54 years and stillquests for the new poster featuring havent conquered it, although I con- NFL trol it well enough to host a weekly starDarren “jumping off the page,” radio talk show, conduct television runningsaid Pat Hamm at the SFA backMemphis office. “We’ve never interviews and accept regular public Darrenseen this kind of response before.” speaking engagements.” Sproles Newspaper editor Akwasi Evans For him, as for so many others, is featuredrequested a copy of the new poster Darren Sproles stands out as an on thisfor his office in Austin, Texas. He re- outstanding role model. K new poster.
THESUMMER 2009 STUTTERING 800-992-9392 7 FOUNDATIONChecklist Reaches Pediatricians The American Academy ofPediatrics will incorporate theStuttering Foundation Checklistfor Referral in their upcoming available not only to more than2010 PREP Self Assessment pub- 30,000 pediatric residents but alsolication. It is a compilation of to all AAP subscribers throughclinically relevant review ques- print, online and CD-Rom.tions and critiques based on the As a result, thousands of youngAAP Content Specifications for children who experience disfluen-Maintenance of Certification. cies will be helped in a more time- The checklist will be made ly manner. K Malcolm Fraser Community Service June Campbell answers ques- Award Presented in Memphis tions during a conference of Pediatric Nurse Practitioners. By Cara Donahue cant contribution to the field of communication disorders. Each year the Malcolm Fraser This year’s award recipient, Pediatric Nurse Community Service Award is Cindy Myers, as the mother of a presented by the Mid-South child with special needs, is an ad- Practitioners Conference on Communicative vocate for not only her daughter, Undeterred Disorders to an individual in the but other children with disabili- Memphis community as a tribute ties in the Memphis area who are by Economy to a man who contributed greatly also communicatively delayed. Pediatric Nurse Practitioners to the field of com- A few years ago, flocked to San Diego from municative disor- Cindy created both a throughout the country for ders, namely in the social skills group their Annual Conference. field of stuttering. and a Sunday School June Campbell visited with Malcolm Fraser, group at Hope practitioners from more than 18 together with his Presbyterian Church states, including Massachusetts, brother, was one of as a way to give these Georgia, Illinois, Arkansas, the early founders of children the opportu- Utah, Florida, New Hampshire, the NAPA Genuine nity to build commu- Minnesota and Texas. Parts Company in nication skills. Laura Some nurses stopped by to Atlanta in 1928. He Martin and several share how the Foundation’s used the money from University of literature has helped their pa- auto parts stock to Memphis speech tients, others were students start the Stuttering pathology students who had not yet been exposed Foundation of Cindy Myers (right) commented, “Cindy to the literature or Web site America. Today the with her daughter has shown passion and others shared how they Foundation reaches Gabriella, and Becky and commitment used books and brochures in people in 126 coun- Jones, NSSLHA while organizing Nursing Education programs. tries, and Mr. president. these programs. She June noted, “Some of my Fraser’s book, Self has spent countless favorite conversations were Therapy for the Stutterer, has hours working to provide chil- with children joining their helped countless numbers of people dren with an accepting environ- mothers at the conference. who struggle with stuttering. ment where they can develop They enjoyed asking ques- The Malcolm Fraser Community communication skills at their tions about stuttering, sharing Service Award honors his many ac- own pace.” about children they know who complishments and unselfishness Cindy’s selfless attitude and stutter and looking at SFA’s and is given to an individual who dedication exemplify the ideals books Trouble at Recess and like Mr. Fraser has made a signifi- consistent with Mr. Fraser’s. K Sometimes I Just Stutter.” K
THE STUTTERING 8 FOUNDATION www.stutteringhelp.org 800-992-9392Dear SFA: Reader ResponseSend letters to SFA, P.O. Box 11749, Memphis, TN 38111-0749 or e-mail firstname.lastname@example.org.Like a roller coaster sometimes I just want to pull my ter. To me, nothing is wrong with it. Dear SFA: hair out. My stuttering usually is And I don’t care what people think My name is Britney, and I’m 8 when I start to get really excited or about my stuttering.years old. I have been stuttering really nervous. Damiansince I was 5 years old. When I Lizette Cache, Okla.start to stutter my mom tells me Cache, Okla.to think about what I’m going to Editor’s Note: See page 4 for a Stuttering feels like a ballsay before I talk. Every time I reply from Dr. Lisa Scott. Dear SFA:stutter it feels like a roller My name is Jabaree. I’vecoaster because when I been stuttering for 6 yearsstutter the roller coaster and I’m through with it!goes bump, bump, bump. My stuttering feels like aThat is why stuttering feels basketball. When the balllike a roller coaster to me. bounces, I feel like I can’tI get frustrated a lot be- get my words out. And whencause when my cousins I shoot the ball, I drag mytease me I start to stutter a words out. Dragging mylot. But sometimes I try words and sliding are thenot to think about the teas- best ways I use to not stuttering and I try to calm down. as much. Some kids ask meI tell them to stop teasing why I talk like that, and I tellme because that will make them I stutter.me stutter even more. And Joel (left) and Shawn, 10-year-old twins, cele- Most of them are mynow I’m starting to get bet- brated Pi Day by memorizing more than 150 friends, and they don’tter. One of the things I digits of Pi between the two of them. Pi Day is tease me. When I getlearned in speech is about celebrated by math enthusiasts around the teased, I try to ignore it andeye contact. I am glad I am world on March 14, which is taken from the I don’t get mad.in this speech class be- first three digits of the equation and happens to In all I’m OK and I likecause I am starting to get be Einstein’s birthday. Shawn, who has been my life.better at not stuttering. stuttering since a young age, has been doing JabareeBritney, 8 adult puzzles since he was 5 years old. Pamona, Calif.Pomona, Calif. Going down the road Speech teacher helpsSinging question Dear SFA: Dear SFA: Dear SFA: My name is Greg. I’m 9 years Hi, my name is Derrik. I block My name is Lizette. I would love old and in the third grade. I think sometimes. I feel OK about myto tell you about my stuttering. stuttering is like a car on a road. speech. I repeat stuff a lot, butSometimes I get really frustrated If you stutter, you are going too sometimes I don’t repeat a lot. I goand other times I’m calm. You see fast. If you don’t stutter, you go get help from my speech teacher. II hate it when people try and help where you want to go and you feel blocking is a little OK.me and say “slow down” or “what don’t get a ticket. Derrikdid you say?” It just makes me Greg, 9 Hanover, Pa.think more about stuttering and Hanover, Pa.that’s when I get nervous and tend Making friendsto stutter even more. Stuttering is OK Dear SFA: I love to sing, and my friends will Dear SFA: My name is Evan and I am 11ask me, “Why don’t you stutter My name is Damian and I stutter. years old. I stutter like all the otherwhen you sing?” That’s where I get Sometimes I am mad because kids who write to the Stutteringstuck. I don’t know what to say. when I am reading at school some Foundation. I repeat my words but Yes, I do accept who I am and I say “hurry up” and sigh, and I that’s OK now because I go toknow that no one is perfect, but don’t like that. But it is OK to stut- speech class and I’ve improved so Continued on page 11
THE STUTTERING FOUNDATION 800-992-9392 9SUMMER 2009 First picture: “This is how I feel when I stutter... It feels like I’m going up a steep hill. I’m forcing myself to go up when I stutter. When I finally get up, I try to stop myself because I’m going down too fast. I may trip and fall,” writes Nicholas, 6th grader from Henrico, Va. Second picture: “This is how I feel when I use my strategies... The best way to go up a hill during a stuttering block... easy pace, taking adequate time, don’t rush, steady rhythm in speech, sliding down easily (I don’t trip and fall). “If the voice box and mouth make “This is a picture of me giving my presentation. The you stutter, then the brain will get stuttering ghost doesn’t let me talk right,” writes rid of the bump. If the brain can’t Ambrosia, 8, of Pittsburgh, Pa. “I use my strategies to do it, then you will have to get rid scare the ghost away. When I was in first grade I had of it yourself. Another way is to to give a presentation on a flying squirrel. I was shy speak slowly,” writes Hunter. because I was afraid that I would get stuck on my words. My teacher had to do it for me. It’s okay to get stuck on words sometimes. Now that I use my pull-outs, I don’t stutter as much when I am talking to people.” 3Sometimes when we stutter we feel like we are trapped in a box,” writes J. from Brooklyn, N.Y. “Sometimes when you stutter you feel nervous and forget the way to come out of the stutter.”
800-992-9392 I’m so very proud of all of you. You have Mrs. S. has been remembering helped me to I was nervous to use your speech really improve when I started helpers! Keep up my speech. speech. I thought I the good work. would be teased. I was wrong. Chris Mrs. S. Isaac FOUNDATION STUTTERING In speechTHE class I’m Speech learning how class has to make the helped me. “S” sounds. Max Hunter I like speech class. My speech is much smoother than before. Max Zackary www.stutteringhelp.org I am learning to These computerized drawings use less bumps in my speech. I learned to use many speech were created by students in helpers in therapy. My Mrs. S’ speech class. speech is so much smoother. 10
THE STUTTERING FOUNDATION 11SUMMER 2009 800-992-9392 Dear SFA, When you remember to My name is Chris and I am use your speech helpers, you can hit a home run!!! in the fifth grade. I have been going to speech ther- apy since kindergarten. I have learned different ways I remembered to use my to help my speech. When I speech helpers. use them, my speech is not Home bumpy. When I forget to Run! use them my speech is bumpy. Chris I hate it when people You’re make fun welcome. You’re of me. welcome. By Isaac By Max Thank you guys for standing up for me. By Chris Do you have a letter, drawing, or poem you would like published? Please send it to us with your name, phone number, age, and signed parent permission form. Mail to: The Stuttering Foundation, 3100 Walnut Grove Road, Suite 603 Memphis, TN 38111-0749. By MaxwellLetters Continued from page 8 old. I stutter. I think that stuttering is What should I do? not bad at all. Sometimes people Dear SFA:much. I’ve gotten teased by a lot of tease me. I ignore it because no onekids. When I get teased, it’s like My name is Makayla. I am 8 is perfect and no one will ever be years old. I’m like my daddy be-getting punched in the face. The perfect.kids who teased me are now my cause he stutters too. People make Naftali, 8 fun of me. When people make funfriends because I forgave them. Far Rockaway, N.Y.What I ask for from a friend is for of me I get sad because I feel badthem to treat me the way they want for stuttering. I was wondering what Things that help should I do if someone makes fun ofto be treated. Dear SFA: Through the years, stuttering has- me? What did the other kids do? My name is Cherrelle. I attend Makayla, 8n’t pushed me back from playing Fairfield Court Elementary. Whensports and doing activities. Its actu- E-mail I am talking, sometimes I start toally pushed me forward and al- stutter a little bit. When I’m withlowed me to tell my friends about my speech therapist, it’s like I Editor’s Note: Be sure to readmy stuttering. never stutter. I never stutter when I the letters in this newsletter from Thank you Stuttering Foundation read something. When she closes other children who have ideasfor supporting all the kids in the book, I start to stutter. When I about teasing. Remember to notAmerica. And, remember, there is stutter, first I’ll stop then I’ll start let the teasing get you down andno perfect speech. All the perfect over and make up a little rhythm to to stay calm. Its okay to let othersspeech you could get is confidence the speech. When I’m with my know teasing hurts and to askand it is all from the heart. family, I stutter a lot. But now I’m them to stop.Evan, 11 used to stuttering around people. If Another good resource isStevenson Ranch, Calif. you stutter, it is OK. Just tap your Sometimes I Just Stutter. In it, leg and start on your sentence. It every time 9-year old Mark isIgnore teasing will really help. teased, he just grins and says, Dear SFA: Cherrelle, “Come back when you can stutter My name is Naftali. I am 8 years Richmond, Va. better than I do!” K
THE STUTTERING12 www.stutteringhelp.org FOUNDATION 800-992-9392 B ues legends have Even stuttering B.B. King B.B. King and John Lee Hooker with words. Never could express my- However, he had role models who have much in common. Born in self the way I wanted. My mind stuttered. His Uncle Major was a se- Mississippi only a few years fights my mouth, and thoughts get vere stutterer and King wrote of apart, both are considered among stuck in my throat. Sometimes they him, “Probably because I stuttered the best blues gui- stay stuck for seconds or even too, the way he suffered with his tarists of all-time. minutes. As a child, I stut- speech broke my heart and made me Both King and tered. What was inside could- love him even more. There was a Hooker have been n’t get out. I’m still not real silent bond between us. Unlike oth- inducted into The fluent. I don’t know a lot of ers, I could feel what he wanted to Rock and Roll Hall good words. If I were wrong- say and sometimes said it for him.” of Fame. However, fully accused of a crime, I’d His great-grandfather, Pop what the public Davidson, who had been a may not know is slave, was a major influ- that they have an- ence on King’s life and also other thing in com- stuttered. King’s admiration mon: stuttering. for his great-grandfather B.B. King was helped him accept his own born Riley B. King in 1925. stuttering. When discussing Listed as number three on their stuttering bond in his Rolling Stone’s list of the 100 autobiography, King wrote greatest guitarists of all-time, of his great-grandfather, King’s career and accomplish- “Sometimes I wondered ments are legendary, yet his about Pop’s stuttering, stuttering has received scant which unlike Uncle attention over the years. Major’s, frustrated him like B.B. stuttered from the time crazy; I wondered if a he was a child. According to speech impediment has to Everyday I Sing the Blues: The do with a boiled-up fury in- Story of B.B. King by David side. Why did I stutter? Shirley, while in grade school Classmates were cruel and King attended the lively called me stupid, Pentecostal church services, and teasing me some- it was there that he discovered thing fierce. But I he had a special gift for music. never saw anyone People were amazed that he tease Pop could sing so beautifully without have a tough time explaining Davidson.” stuttering. The church’s pastor con- my innocence. I’d stammer and Countless times tended that it was the Holy Ghost stumble and choke up until the in his life, King who sang so gracefully through judge would throw me in jail. has stated that B.B.’s throat when the young lad Words aren’t my friends. Music singing was al- joined the choir. is. Sounds, notes, rhythms. I ways easier than In his 1996 autobiography, Blues talk through music.” speaking. He claims that his stut- All Around Me: The Autobiography King faced the typical difficulties tering has decreased over the of B.B. King, King wrote, “I struggle faced by many children who stutter. years but is always there. K
THE STUTTERING SUMMER 2009 FOUNDATION 800-992-9392 13many things in commonJohn Lee Hooker John Lee Hooker, born in 1915, when telling stories against himself.also took refuge in music at an This good natured form of self-early age as he struggled with stut- parody is evident in Hooker’s clas- To list all of the accom-tering. In the biography sic 1953 song “Stuttering Blues.” plishments of these twoBoogie Man: The In 1980, Hooker appeared famed blues guitaristsAdventures of John and sang in the now classic would be a major task.Lee Hooker in the movie, The Blues Brothers. B.B. King and John LeeAmerican Twentieth As a result, the look of John Hooker have an infiniteCentury, author number of CDs avail-Charles Shaar able on Amazon.comMurray states, and to say that the“Hooker sounds as two are well repre-if he has $100,000 sented on YouTube isworth of sophisti- an understatement. Itcated digital good- is disheartening toies built in his chest think that the generaland his throat. Yet public does not knowhis voice is quiet and muted, its that the two greatesttonal richness offset by a resid- blues guitarists of all-ual stammer and blurred by the time shared the com-deepest alluvial accents of the mon bond of stutter-Mississippi Delta.” ing and that their Murray also writes about speech problemshow so many people do im- were responsible forpressions of Hooker and that leading them tohis stuttering is a big part of it. music at an early age“Anybody who tells you an and on their way toanecdote about John Lee international super-Hooker as a young man – stardom.and Buddy Guy is the cur-rent champ, by a very shorthead indeed, of the HookerImpressionists League – Belushi’s character,will inevitably end up mim- Jake Blues, was di-icking his characteristic rectly influenced bystutter.” Also, Bernard Hooker’s trademarkBesman, the producer who first sunglasses and soul patch.recorded Hooker, claims that the Though his stuttering reducedprimary reason for his decision was to some degree in his adult life,that he was intrigued by the sce- Hooker is remembered bynario of a man who stuttered when friends as putting them at easehe spoke, but not when he sang. about his stuttering by being Reportedly in a spirit of self-parody, able to poke fun at his speech inHooker used an exaggerated stutter a soft way. K
THE STUTTERING FOUNDATION 3100 Walnut Grove Road, Suite 603 P.O. Box 11749 • Memphis, TN 38111-0749 #Over the Side by Richard Wells, USN #Current Issues in Stuttering Research #Speakeasy Symposium XXVII, May 1-3, AFJ and USMC Merchant. 2008. For more and Practice by Nan Bernstein Ratner andNews Briefs2009, in Saddle Brook, NJ. For more infor- information, e-mail email@example.com. John Tetnowski. 2006. Lawrence Erlbaummation, contact Bob Gathman at 201-262- #Stuttering Stan Takes a Stand by Artie Associates, Mahwah, NJ.0895 or e-mail firstname.lastname@example.org. Knapp. 2008. Available at www.amazon.com. # Begaiement: Intervention preventive #FRIENDS, the National Organization of # Practical Intervention for Early precoce chez le jeune enfant by Anne MarieYoung People Who Stutter, July 23-26, Childhood Stammering by Elaine Kelman Simon et al. 2005. Available from the2009, Tampa, Fla., www.friendswho and Alison Nicholas. (2008) Speechmark Association Parole Begaiement,stutter.org. Publishing, Ltd. Milton Keynes, U.K., www.begaiement.org. # National Stuttering Association www.speechmark.net. #Les begaiements: Histoire, psychologie,Conference - July 8 - 12, 2009, Scottsdale, #Stammering, Advice for All Ages by Renee evaluation, varietes, traitements by AnneAriz., www.westutter.org. Byrne and Louise Wright. (2008), Sheldon Van Hout and Francoise Estienne. Published #ELSA’s 7th Youth meeting - July 25-31, Press, London, www.sheldonpress.co.uk. by Masson, S.A., 120 boulevard Saint2009, Settle, England, e-mail #Speak Freely: Essential Speech Skills Germain, 75280 Paris Cedex 06, France.email@example.com. for School-Age Children Who Stutter by #Forty Years After Therapy: One Man’s # 6th World Congress on Fluency Mark Allen, Ph.D., (2007) Speak Freely Story by George Helliesen, M.A. AvailableDisorders - International Fluency Publications, Evanston, IL, www.cfst.com. from Apollo Press, Inc., 800-683-9713 orAssociation, Aug. 5-8, 2009, Rio de Janeiro, #Stuttering: An Integrated Approach to www.apollopress.com.Brazil, www.theifa.org. Its Nature and Treatment, Third Edition by #Sharing the Journey: Lessons from my #BSA National Conference, Sept. 11- Barry Guitar. 2006. Available from Students and Clients with Tangled Tongues13, 2009, at the Harrow campus of the Lippincott, Williams & Wilkins, 800-638- by Lon Emerick, Ph.D., available from theUniversity of Westminster, London, 3030, www.LWW.com. Stuttering Foundation at 800-992-9392.www.stammering.org. #Beyond Stammering, Revised edition by #Stuttering: Its Nature, Diagnosis, and #International Stuttering Awareness Day David Maguire. (2008) Souvenir Press, Treatment, by Edward G. Conture, Ph.D.,Online Conference - Oct. 1 - 22, 2009. Freely London. published by Allyn & Bacon, Needhamavailable and linked starting Oct. 1 at # Stuttering Recovery Personal and Heights, MA. (781) 433-8410.www.stutteringhomepage.com. Empirical Perspectives by Dale F. # Successful Stuttering Management # American Speech-Language and Program, Second Edition, by Dorvan Williams. 2006. Available from LawrenceHearing Association Convention - Nov. 19- Breitenfeldt, Ph.D., published by EWU Erlbaum Associates, Mahwah, NJ,21, 2009, New Orleans, La., www.asha.org. Press, Cheney, WA, (509) 235-6453. www.erlbaum.com. # Synergistic Stuttering Therapy: A #14th Speak Easy Convention, Australian #Speech Therapy for the Severe OlderSpeak Easy Association - Feb. 18-21, 2010, Holistic Approach by Sister Charleen Adolescent and Adult Stutterer: A Program Bloom and Donna K. Cooperman.Sydney, Australia, www.speakeasy.org.au. for Change by George Helliesen. 2006. Published by Butterworth Heineman, Available from Apollo Press, Newport News, Woburn, MA. Books on Stuttering or Related Topics: VA, 800-683-9713, www.apollopress.com. #Stuttering Intervention: A CollaborativeBooks #Only When I Talk by Bob Hubbert. 2007. #The Child and Adolescent Stuttering Journey to Fluency Freedom by David TAvailable online at www.amazon.com. Treatment and Activity Resource Guide by Allen Shapiro, published by Pro-Ed, Peter Ramig and Darrell Dodge. 2005. Austin, Texas. he Stuttering Foundation Available from Thomson Delmar Learning, K of America is a tax-exempt Clifton Park, NY. This newsletter is published quarterly. Please organization under section # Early Childhood Stuttering: For e-mail address changes and story ideas to 501(c)(3) of the Internal Clinicians by Clinicians by Ehud Yairi and firstname.lastname@example.org. Revenue Code and is classified Nicoline Grinager Ambrose. 2005. as a private operating founda- Available from ProEd, Austin, TX, and Volume18, Issue 2 tion as defined in section 4942(j)(3). Charitable contributions www.amazon.com. Renee Shepherd . . . . . . . . Editor/Writer and bequests to the Foundation are #50 Great Activities for Children Who Scot Squires . . . . . . . . . . . . . . . . Designer tax-deductible, subject to limitations Stutter by Peter Reitzes. 2006. Available from Special thanks to Joan Warner, Patty Reed, under the Code. Pro-Ed, Austin, TX, www.proedinc.com. Susie Hall, Pat Hamm, Lisa Hinton, and Terri Jones.