Bar-Cohen - Effectively Representing the Advocate Perspective in Advisory Settings

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Effectively Representing the Advocate Perspective in Advisory Settings Annette Bar-Cohen, MA, MPH Executive Director, Center for NBCC Advocacy Training National Breast Cancer Coalition

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Beginner level introduction to the underlying principles and concepts required for meaningful patient and public engagement. Following this session, attendees should be able to: Describe theoretical and practical principles of inclusive, authentic, and meaningful engagement of people with lived experience in health research; Access resources to improve their knowledge of patient and public engagement practices; and Participate in intermediate level PE Lunchtime Learning sessions.

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Evidence shows that clinicians are less likely to engage young women in shared decision-making about contraception, compared to older women. A more patient-centered approach to contraceptive counseling for youth could improve birth control satisfaction and continuation. In collaboration with Bedsider.org, we developed 'MyBirthControl', a tablet-based decision-support tool. MyBirthControl begins with interactive education about all contraception options in an engaging visual format and moves into a values-clarification quiz, producing personalized feedback. It ends with a printout detailing the user's questions and preferences, which can be used during clinical visits facilitating shared decision-making. MyBirthControl was developed iteratively, with feedback from diverse young women patient stakeholders. Our partner, Bedsider.org, plans to make MyBirthControl freely available to clinics across the country. The potential value of the tool encouraged us to conduct a randomized control trial to test its effect on patient-centered outcomes such as contraceptive continuation and contraceptive counseling experiences.

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