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Partnerships:
What is Needed; What is possible
Dr. Lisa Simpson
President and CEO
July 26, 2013
Lisa Simpson
I have documented that I have no
relevant financial relationships with
any commercial interests to disclose
o...
Outline
 Setting the context
 What is needed?
 What is possible?
AcademyHealth: Improving
Health & Health Care
AcademyHealth is a leading national organization serving the fields of healt...
Leveraging >5,200 Diverse, Expert
Members & Organizations
3
17 AcademyHealth Interest Groups
5
Trends & Demands
 Fiscal environment
– Health care: need for value
– Research: sequester!
 Demand for more timely, relev...
HSR 1.0
 Health services research is the multidisciplinary field
of scientific investigation that studies how social
fact...
HSR 2.0
 What works?
 For whom?
 Under what circumstances?
 At what cost?
 And once we know what works,
 How do we i...
Outline
 Setting the context
 Opportunities for consumer and patient
engagement
Patient/Consumer Engagement
 In care
 In transformation
– At the practice level
– At the system level
 In research
 In...
Patient/Consumer Engagement
 Patient centered outcomes research
 Community based participatory research
 Policy driven/...
A
Framework
for
Consumer
and Patient
Engagement
Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A
framework for...
A Framework for Consumer and
Patient Engagement (cont)
Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A
framew...
What is Possible?
 Partner with AcademyHealth
–Leadership Roles
–Funding Opportunities
–Meetings
–Fellowships/Scholarship...
What is Possible?
 Partner with AcademyHealth
–Leadership Roles
• Advisory Boards & Committees
• Program Committees
• Con...
What is Possible?
 Partner with AcademyHealth
–Leadership roles
–Funding Opportunities
• AcademyHealth/CUE Joint PCORI Su...
What is Possible?
 Partner with AcademyHealth
–Leadership Roles
–Funding Opportunities
–Meetings
• National Health Policy...
Conferences
 Health Policy Orientation
– October in Washington, DC
– Limited to 50 participants
 National Health Policy ...
What is Possible?
 Partner with AcademyHealth
–Leadership Roles
–Funding Opportunities
–Meetings
–Fellowships/Scholarship...
What is Possible?
 Partner with AcademyHealth
–Leadership Roles
–Funding Opportunities
–Meetings
–Fellowships/Scholarship...
AcademyHealth Advocacy
Interest Group
 Facilitate interaction of individuals around
specific topics around shared interes...
What is Possible?
 Connect &/ partner with
AcademyHealth
 Connect &/ partner with
AcademyHealth Members
What is Possible?
 Partner with AcademyHealth
Members
– Become an AcademyHealth member
organization (affiliate)
• Contact...
Research Partnership
 http://my.academyhealth.org/Home/
– Connect with over 5000 researchers about
areas of interest and ...
EDM Forum
 Electronic Data Methods
(EDM) Forum Goals
– Work with the community to
identify cross-cutting
• Challenges
• O...
In a Dynamic, Learning System;
Dissemination Must Address the Journey,
Not Just the Destination
 HSR and medical journals...
What is Possible?
 Connect &/ partner with
AcademyHealth
 Connect &/ partner with
AcademyHealth Members
Questions?
Lisa Simpson, MB, BCh, MPH, FAAP
President and CEO
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Panel: CUE in partnership- Lisa Simpson

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Panel: CUE in partnership- Lisa Simpson

  1. 1. Partnerships: What is Needed; What is possible Dr. Lisa Simpson President and CEO July 26, 2013
  2. 2. Lisa Simpson I have documented that I have no relevant financial relationships with any commercial interests to disclose or Conflicts of Interest (COIs) to resolve.
  3. 3. Outline  Setting the context  What is needed?  What is possible?
  4. 4. AcademyHealth: Improving Health & Health Care AcademyHealth is a leading national organization serving the fields of health services and policy research and the professionals who produce and use this important work. Together with our members, we offer programs and services that support the development and use of rigorous, relevant and timely evidence to: 1. Increase the quality, accessibility and value of health care, 1. Reduce disparities, and 2. Improve health. A trusted broker of information, AcademyHealth brings stakeholders together to address the current and future needs of an evolving health system, inform health policy, and translate evidence into action. 4
  5. 5. Leveraging >5,200 Diverse, Expert Members & Organizations 3 17 AcademyHealth Interest Groups 5
  6. 6. Trends & Demands  Fiscal environment – Health care: need for value – Research: sequester!  Demand for more timely, relevant research while maximizing rigor  Expanding volume and variety of electronic data (e.g. from EHRs)  Demand for consumer, patient, and other stakeholder involvement in all phases 6
  7. 7. HSR 1.0  Health services research is the multidisciplinary field of scientific investigation that studies how social factors, financing systems, organizational structures and processes, health technologies, and personal behaviors affect access to health care, the quality and cost of health care, and ultimately our health and well-being.  Its research domains are individuals, families, organizations, institutions, communities, and populations."
  8. 8. HSR 2.0  What works?  For whom?  Under what circumstances?  At what cost?  And once we know what works,  How do we implement it?
  9. 9. Outline  Setting the context  Opportunities for consumer and patient engagement
  10. 10. Patient/Consumer Engagement  In care  In transformation – At the practice level – At the system level  In research  In research enterprise
  11. 11. Patient/Consumer Engagement  Patient centered outcomes research  Community based participatory research  Policy driven/relevant research  Systems driven/relevant research
  12. 12. A Framework for Consumer and Patient Engagement Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A framework for patient and consumer engagement in Evidence Generation.” EDM Forum, AcademyHealth, August 2012.
  13. 13. A Framework for Consumer and Patient Engagement (cont) Source: Rein, A. Hamilton Lopez, M. Holve, E. Winkler, J. “A framework for patient and consumer engagement in Evidence Generation.” EDM Forum, AcademyHealth, August 2012.
  14. 14. What is Possible?  Partner with AcademyHealth –Leadership Roles –Funding Opportunities –Meetings –Fellowships/Scholarships –Advocacy
  15. 15. What is Possible?  Partner with AcademyHealth –Leadership Roles • Advisory Boards & Committees • Program Committees • Consumer-Patient-Research Roundtable
  16. 16. What is Possible?  Partner with AcademyHealth –Leadership roles –Funding Opportunities • AcademyHealth/CUE Joint PCORI Submission: Patient Consumer Research Academy (PCRA) submission
  17. 17. What is Possible?  Partner with AcademyHealth –Leadership Roles –Funding Opportunities –Meetings • National Health Policy Conference • Annual Research Meeting • Annual Delivery System Meeting • Annual EDM Forum Stakeholder Symposium
  18. 18. Conferences  Health Policy Orientation – October in Washington, DC – Limited to 50 participants  National Health Policy Conference (NHPC) – February 3-4, 2014 in Washington, DC – Nearly 700 attendees  Annual Research Meeting (ARM) – June 8-10, San Diego, CA – 2,400+ attendees anticipated
  19. 19. What is Possible?  Partner with AcademyHealth –Leadership Roles –Funding Opportunities –Meetings –Fellowships/Scholarships • Innovators in Residence
  20. 20. What is Possible?  Partner with AcademyHealth –Leadership Roles –Funding Opportunities –Meetings –Fellowships/Scholarships –Advocacy
  21. 21. AcademyHealth Advocacy Interest Group  Facilitate interaction of individuals around specific topics around shared interests  Cultivate “grassroots” community: • Planning and facilitating annual “advocacy institute” at ARM • Hosting 1-2 advocacy webinars per day • Participating in annual “Hill Day  Steering Committee meeting in December  To join IG: – Go to your my.academyhealth.org page, click “Join/Edit Interest Group Membership”
  22. 22. What is Possible?  Connect &/ partner with AcademyHealth  Connect &/ partner with AcademyHealth Members
  23. 23. What is Possible?  Partner with AcademyHealth Members – Become an AcademyHealth member organization (affiliate) • Contact jane.brookstein@academyhealth.org or call 202-292-6754
  24. 24. Research Partnership  http://my.academyhealth.org/Home/ – Connect with over 5000 researchers about areas of interest and research opportunities – Promote your skills, network – Search for funding opportunities
  25. 25. EDM Forum  Electronic Data Methods (EDM) Forum Goals – Work with the community to identify cross-cutting • Challenges • Opportunities • Research priorities – Provide opportunities for collaborative learning – Ensure widespread promotion of tools, techniques, and findings Join the Discussion Sign up at edmforum@academyhealth.org
  26. 26. In a Dynamic, Learning System; Dissemination Must Address the Journey, Not Just the Destination  HSR and medical journals focus on research results.  Not ideally designed for: – Process – Engaging non-research audiences – Discussion – Quick turnaround  Stakeholders increasingly perceive a need to rapidly disseminate “street knowledge”  eGEMS – “Electronic publications Generating Evidence and Methods to improve patient outcomes” – Papers, visualizations, and other media (audio/video) that provide guidance on the conduct of research and QI are invited – Submissions evaluated on usefulness; credibility; novelty – Facilitates discussion and collaboration
  27. 27. What is Possible?  Connect &/ partner with AcademyHealth  Connect &/ partner with AcademyHealth Members
  28. 28. Questions? Lisa Simpson, MB, BCh, MPH, FAAP President and CEO

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