Health Datapalooza 2013: Datalab - David Forrest
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Watch the webinar here: http://www.screencast.com/t/6E1ZgTOb
Deven McGraw, Partner at Manatt, Phelps & Phillips, discussed privacy and security concerns in regards to the liberation and usage of health data. There is enormous potential to glean valuable insights from large data sets of health (and health-related) information - but the collection and use of health information for analytics purposes raises privacy and security concerns. Solution of these issues is key to realizing the benefits of health big data. This presentation will focus primarily on some of the regulatory challenges to learning uses of clinical and administrative claims data but also touch on challenges to big data analytics in other contexts (for example, government data and data collected by consumer-facing commercial entities like mobile health apps, social networking sites, search engines, and other personal health tools).
Discover more health data resources on our website at http://www.healthdataconsortium.org/Addressing Privacy and Security Concerns to Unlock Insights in Big Data in He...
Addressing Privacy and Security Concerns to Unlock Insights in Big Data in He...Health Data Consortium
Watch the webinar here: http://www.screencast.com/t/a43QB5zqjP5
Damon Davis, Director of the Health Data Initiative at the U.S. Department of Health and Human Services, discussed HHS' new Health Data Strategy and Execution Plan. Since the Department of Health and Human Services (HHS) launched its efforts to make the vast array of data resources it curates openly available for public consumption in 2010, the data available in HealthData.gov catalog has grown exponentially. HHS’s efforts to release data for the purpose of sparking innovations in healthcare and the delivery of human services is known as the Health Data Initiative (HDI). The mission of HDI is to help improve health, healthcare, and the delivery of human services by harnessing the power of data and fostering a culture of innovative uses of data in public and private sector institutions, communities, research groups, and policy making arenas.
Discover more health data resources on our website at http://www.healthdataconsortium.org/The HHS Health Data Initiative (HDI) Strategy & Execution Plan with Damon Davis
The HHS Health Data Initiative (HDI) Strategy & Execution Plan with Damon DavisHealth Data Consortium
Watch the webinar here: http://encore.meetingbridge.com/MB005418/140528/
Webinar transcript: http://hdc.membershipsoftware.org/Files/webinars/HDC-PwC%20NIH%20&%20PCORI%20Webinar%20Transcript%205_28_14.pdf
Patient-Centered Outcomes Research Institute (PCORI) Executive Director Joe Selby, MD, MPH; National Institutes of Health (NIH) Director and PCORI Board of Governors member Francis Collins, MD, PhD; and NIH Associate Director for Data Science Philip Bourne, PhD discussed new and emerging trends in big data for health, including:
- How researchers, patients, clinicians, and others are forging new models for data-sharing.
- Leveraging the quantity, variety, and analytic potential of health-related data for research and practice.
- Addressing patients’ perspectives, needs, and concerns in creating new opportunities for innovation and translational science.
- Exciting initiatives such as PCORnet, the National Patient-Centered Clinical Research Network initiative that PCORI is now helping to develop, and related open data and technology efforts such - as the NIH Health Systems Collaboratory and Big Data to Knowledge (BD2K) initiative.
Discover more health data resources on our website at http://www.healthdataconsortium.org/From Research to Practice - New Models for Data-sharing and Collaboration to ...
From Research to Practice - New Models for Data-sharing and Collaboration to ...Health Data Consortium
Watch the webinar here: http://www.screencast.com/t/0lATKYlJ8
Dr. Chris Boone, then-VP in Avalere’s Evidence Translation and Implementation Practice, discussed clinical trial data transparency and considerations for governance and open data sharing. Clinical trials are extremely valuable as the primary data source for seeking regulatory approval of products. Historically, regulatory agencie have been the sole recipients of clinical trial data, butthere has been a recent push from various stakeholder groups to open access to clinical trial data to non-regulatory researchers as an act of ethical responsibility to patients, a contribution to public health, and a demonstrated commitment to advancing the science. Some of the barriers include developing a sound approach for de-identifying patient data, adopting universal clinical trial data format, and managing the proactive and non-selective access and security of clinical data once collected. Dr. Boone discusses rationales and benefits/risks of clinical trial transparency, responsible use of publicly sharing this data, barriers and legal implications, and reasonable data sharing models.
Discover more health data resources on our website at http://www.healthdataconsortium.org/Clinical Trial Data Transparency: Explaining Governance for Public Data Sharing
Clinical Trial Data Transparency: Explaining Governance for Public Data SharingHealth Data Consortium
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Trackurhealth is an application specifically designed for person having Thalassaemia. In case of thalassemic person it is important to keep a track of their general health and tests. This application helps the patient to keep a check on their health condition with time. It includes various trackers like Test Tracker, Reports Tracker, Medicines Tracker, Treatment Tracker, Foods Tracker, Exercise Tracker, that helps doctor as well as patient during consultation.Trackurhealth an application for assisting person with thalassaemia condition.
Trackurhealth an application for assisting person with thalassaemia condition.Trackurhealth Global Limited
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Deven McGraw, Partner at Manatt, Phelps & Phillips, discussed privacy and security concerns in regards to the liberation and usage of health data. There is enormous potential to glean valuable insights from large data sets of health (and health-related) information - but the collection and use of health information for analytics purposes raises privacy and security concerns. Solution of these issues is key to realizing the benefits of health big data. This presentation will focus primarily on some of the regulatory challenges to learning uses of clinical and administrative claims data but also touch on challenges to big data analytics in other contexts (for example, government data and data collected by consumer-facing commercial entities like mobile health apps, social networking sites, search engines, and other personal health tools).
Discover more health data resources on our website at http://www.healthdataconsortium.org/Addressing Privacy and Security Concerns to Unlock Insights in Big Data in He...
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Watch the webinar here: http://www.screencast.com/t/a43QB5zqjP5
Damon Davis, Director of the Health Data Initiative at the U.S. Department of Health and Human Services, discussed HHS' new Health Data Strategy and Execution Plan. Since the Department of Health and Human Services (HHS) launched its efforts to make the vast array of data resources it curates openly available for public consumption in 2010, the data available in HealthData.gov catalog has grown exponentially. HHS’s efforts to release data for the purpose of sparking innovations in healthcare and the delivery of human services is known as the Health Data Initiative (HDI). The mission of HDI is to help improve health, healthcare, and the delivery of human services by harnessing the power of data and fostering a culture of innovative uses of data in public and private sector institutions, communities, research groups, and policy making arenas.
Discover more health data resources on our website at http://www.healthdataconsortium.org/The HHS Health Data Initiative (HDI) Strategy & Execution Plan with Damon Davis
The HHS Health Data Initiative (HDI) Strategy & Execution Plan with Damon DavisHealth Data Consortium
Watch the webinar here: http://encore.meetingbridge.com/MB005418/140528/
Webinar transcript: http://hdc.membershipsoftware.org/Files/webinars/HDC-PwC%20NIH%20&%20PCORI%20Webinar%20Transcript%205_28_14.pdf
Patient-Centered Outcomes Research Institute (PCORI) Executive Director Joe Selby, MD, MPH; National Institutes of Health (NIH) Director and PCORI Board of Governors member Francis Collins, MD, PhD; and NIH Associate Director for Data Science Philip Bourne, PhD discussed new and emerging trends in big data for health, including:
- How researchers, patients, clinicians, and others are forging new models for data-sharing.
- Leveraging the quantity, variety, and analytic potential of health-related data for research and practice.
- Addressing patients’ perspectives, needs, and concerns in creating new opportunities for innovation and translational science.
- Exciting initiatives such as PCORnet, the National Patient-Centered Clinical Research Network initiative that PCORI is now helping to develop, and related open data and technology efforts such - as the NIH Health Systems Collaboratory and Big Data to Knowledge (BD2K) initiative.
Discover more health data resources on our website at http://www.healthdataconsortium.org/From Research to Practice - New Models for Data-sharing and Collaboration to ...
From Research to Practice - New Models for Data-sharing and Collaboration to ...Health Data Consortium
Watch the webinar here: http://www.screencast.com/t/0lATKYlJ8
Dr. Chris Boone, then-VP in Avalere’s Evidence Translation and Implementation Practice, discussed clinical trial data transparency and considerations for governance and open data sharing. Clinical trials are extremely valuable as the primary data source for seeking regulatory approval of products. Historically, regulatory agencie have been the sole recipients of clinical trial data, butthere has been a recent push from various stakeholder groups to open access to clinical trial data to non-regulatory researchers as an act of ethical responsibility to patients, a contribution to public health, and a demonstrated commitment to advancing the science. Some of the barriers include developing a sound approach for de-identifying patient data, adopting universal clinical trial data format, and managing the proactive and non-selective access and security of clinical data once collected. Dr. Boone discusses rationales and benefits/risks of clinical trial transparency, responsible use of publicly sharing this data, barriers and legal implications, and reasonable data sharing models.
Discover more health data resources on our website at http://www.healthdataconsortium.org/Clinical Trial Data Transparency: Explaining Governance for Public Data Sharing
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Health Datapalooza 2013: Datalab - David Forrest
- 1. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 1 HEALTHDATA.GOV ROADMAP HEALTH DATA PALOOZA! JUNE 3, 2013
- 2. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE Healthdata.gov Roadmap David ForrestDavid.Forrest@hhs.gov @DavidForrest
- 3. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 3 Healthdata.gov – Phase 1 Early March 2012
- 4. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 4 Healthdata.gov – Phase 1 David! We need an awesome new Healthdata portal.
- 5. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 5 Healthdata.gov – Phase 1 Oh, we need it by June 6th for Palooza! Cool? Great!
- 6. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 6 Healthdata.gov – Phase 1
- 7. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 7 Healthdata.gov – Phase 1
- 8. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE 8 Healthdata.gov – Three Dimensions 3 Audiences 3 Speeds 3 Goals
- 9. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE Healthdata.gov – Audiences Internal Publishers Academics / Researchers Developers / Entrepreneurs
- 10. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE Healthdata.gov – Speeds Web 1.0 Web 2.0 Web 3.0
- 11. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE Healthdata.gov – Goals - Phase 4 + Discovery Programmatic Access Create “Linkages” - Simplify publishing - Get more data! - Create taxonomy - Improve search - Catalog API - Blog - Social distribution - Focus on API’s - CKAN Data store - JSON/RDF/XML - Federate! - Health Knowledge Graph - Celebrate the SME! - Build a data marketplace - Share our work - Participate in relevant communities (Stack Overflow)
- 12. HEALTH ANDHUMAN SERVICES DOMAIN IT PROGRAM MANAGEMENT OFFICE Healthdata.gov Roadmap David ForrestDavid.Forrest@hhs.gov @DavidForrest