This document provides the schedule for a conference on amyotrophic lateral sclerosis (ALS). The conference will include presentations from doctors, nurses, respiratory therapists, speech therapists and others on topics ranging from communication devices, palliative care, respiratory management, genetic counseling and more. It will run from 7am to 7:30pm on Thursday, November 6, 2014, with sessions occurring simultaneously in different rooms throughout the day.

1. Thursday, November 6, 2014
7:00AM – 8:00AM Registration and Breakfast
8:00AM – 8:10AM Welcome
8:10AM – 8:30AM Opening Remarks Barbara Newhouse
8:30AM – 9:30AM Plenary Session. Dr. Richard Bedlack –Topic: ALSUntangled: Re-Opening The X-Files
9:30 AM – 9:45 AM Break
Grand Ballroom-Ballroom LevelSalons 1 & 2-Meeting LevelSalons 3 & 4-Meeting Level
9:45AM – 10:15AM
201ASpeaker: Krista Strait-Higgins, BA, MSW, LISW, ACSW
Low Tech Alternativ e/Augmentativ e Communication (AAC) Kit
Project: Adv ocacy , Education and Support.
10:15AM -- 10:45 M
201BSpeaker: Alisa Brownlee, ATP
Google Glass and the Potential Use f or People with ALS.
9:45AM – 10:45AM
202 Speaker: Jennifer Kennedy,MA, BSN, CHC
Hospice and Palliativ e Care f or a Patient with ALS: What Does It
Look Like?
9:45AM – 10:45AM
203Speaker: Jennifer Armstrong, RN, MSN, MHA
Optimizing Respiratory Care in ALS
10:50AM – 11:50AM
204Speaker:Lisa Bruening, M.S., CCC-SLP
AAC in Times of Change
10:50AM – 11:50AM
205Speaker: Gerri Sagan, LSW, CHP-SW
ALS: Liv ing with Change and Loss, f rom Diagnosis to Death
10:50AM – 11:20AM
206ASpeaker: Lee Guion MA, RRT, FAARC
An ounce of prev ention: Proactiv e approaches to lung health in
ALS
11:20AM – 11:50AM
206BSpeaker: Lee Guion MA, RRT, FAARC
Pulmonary Palliation
11:55AM– 1:00PM Lunch (tables arranged by discipline)
1:00PM – 2:00PM Unopposed Exhibit Time
2:00PM – 3:00PM
207 Speakers: Kevin Caves, ATP, RET, Jill Marcus, MA, CCC-SLP
and Meredith Nye, MS, CCC-SLP
Considerations when using alternate access f or AAC and computer
access
2:00PM– 2:30PM
208ASpeaker: James Durnil, M.Div.
Building Blocks of Resilience f or Prof essional Caregiv ers
2:30PM – 3:00PM
208BSpeaker: Sue Walsh,RN, MSN, ACNS-BC
An ev aluation of newly diagnosed patient needs: Lessons learned
f rom patients and families
2:00PM – 3:00PM
209 Speakers: Ray Onders, MD and Mary Jo Elmo,CNP
Diaphragm Pacing: What we hav e learned since the f irst implant
3:05PM– 4:05PM
210Speaker: Antoinette Verdone, MSBME, ATP
Mobile Dev ices - Access and Use f or PALS
3:05PM – 3:35PM
211ASpeaker: Beth Stephens, MA
The Utilization of a Communication and Treatment Pref erence
Assessment to Guide ALS Patient Care
3:35PM – 4:05PM
211BSpeaker: Linda Lorentzen, OTR/L
Helping Your Constituents Nav igate Lif e with ALS: An On-Line
Nav igation Tool
3:05PM – 4:05PM
212 Speaker: Donna (De De) Gardner, MSHP, RRT, FAARC
ALS and Airway Clearance (ALSAC) Is There a Best Therapy f or
Airway Clearance in Patients with ALS?”
4:10PM – 5:10PM
213Speakers: Jeannette D. Hoit, PhD, CCC-SLP and
Cassandra Faux, MS, CCC-SLP
Speech Management f or ALS: Ventilator-Based Interv entions and
Augmentativ e and Alternativ e Communication (AAC) Dev ices
4:10PM – 5:10PM
214Speaker: B. BartjaWachtel, LICSW, MHP
Meaningf ul: The Lif e Practice of Mindf ul Compassion with People
Liv ing with ALS
4:10PM – 4: 40PM
215A Speaker: J. Mark Barch, MS, RRT, RCP
Clinical applications of end-tidal CO2 monitoring in the ALS patient
in the home setting
4:40PM – 5:10PM
215B Speaker: Lisa Kinsley, MS, CGC
Genetic Counseling and ALS
6:00PM – 7:30PMExhibitor’s Wine Reception Exhibit Hall, Salons 5-8