Young adults with serious mental
illness: The developmental needs of
         a service population




                Michaela I. Fissel
                Central Connecticut State University
Deinstitutionalization
   Deinstitutionalization was a policy initiative that restructured the
   mental health service system at the federal and state levels, shifting
    delivery of services into a community-based setting (GAO, 2008).

       –
   1955 559,000patients in psychiatric institutions*

              1960 – 90% of state psychiatric institutions
            closed*
                         1990s – 70,000patients remained
                         institutionalized*

    Policy makers focused on restructuring the mental health system at the
   highest level, resulting in the majority of community based-services being
     designed using a clinical approach and for the chronic patients of the
                              1960s (Bachrach, 1984).

*Lamb, Bachrach, &Kass (1992)
                                  michaela.fissel@gmail.com
For the new cohort of young adults
 experiencing the onset of serious
 mental illness, diagnosis does not
 mean a lifetime of hospitalization
            (Bachrach, 1984)      .




             michaela.fissel@gmail.com
Introduction
Currently, young adulthood is defined as ranging from
approximately 18 through 25 years of age (GAO, 2008). The
main objective while transitioning throughout those years is to
achieve adulthood (Arnett, 2000).

Achievement of adulthood is measured by criteria, including:
•graduation,
•employment,
•education,
•living situation,
•relationships
•parenthood (Gralinksi-Bakker, Hauser, Billings, Allen, Lyons, Melton, 2005).

                               michaela.fissel@gmail.com
Introduction Continued
 Recently, a study found that the number of criteria achieved by
    the average 30-year-old in 2001, had been achieved by
                25 in the early ‘70s (Henig, 2010).

This finding indicates that the trend in the achievement of
adulthood has been extended five years, over one generation.

Currently, there are two major bodies of literature that describe
characteristics and outcomes associated with the transitional
stage ranging from 18 through 25 years of age.

    Characteristics                                   Outcomes of
                                   and
    of the Cohort                                     Populations
                          michaela.fissel@gmail.com
The Cohort
    Literature on emerging adulthood primarily uses a
developmental approach to theorize and describe the broad
        characteristics of the 18 through 25 cohort
                       (Arnett, 2000).



                    Populations
   The second body of research describe young adult
 populations found within the emerging adult cohort by
    comparing differencesbetween the outcomes of
                 populations (GAO, 2008).

                      michaela.fissel@gmail.com
Investigating the Cohort
    Using a Developmental Approach
The successful transition through emerging adulthood
is indicated by a positive trend
in the progressive achievement
of criteria (Kins&Beyers, 2010).


                                           Marriage




                      michaela.fissel@gmail.com
Serious Mental Illness
A population reported to experience significant differences in the
achievement of criteria, are young adults who experience symptoms
of serious mental illness (GAO, 2008; Gralinksi-Bakker, Hauser, Billings, Allen, Lyons,
Melton, 2005; Rosenberg, 2008).


In 2008 the U.S. Government Accountability Office reported that
   2.4 million young adults (6.5%) experienced symptoms of
           mental illness during the past year (GAO, 2008).
Literature on this population measures the impact of serious mental
illness on the developmental transition into adulthood by comparing
outcomes and observing trends between young adults and the general
emerging adult cohort (Gralinksi-Bakker, Hauser, Billings, Allen, Lyons, Melton, 2005).

     Research has found that serious mental illness is highly
  associated with negative outcomes for young adults (GAO, 2008).
                                  michaela.fissel@gmail.com
Outcomes
Lower educational achievement (Suvisaari, et. al., 2009):
 •Significantly lower rates of high-school graduate
 (19% difference) (GAO, 2008)
 •Significantly lower rates of enrollment in postsecondary education
  (19% difference) (GAO, 2008)


As well as:
 •Higher rates of unemployment(Suvisaari, et. al., 2009)
 •Higher rates of homelessness (GAO, 2008)
 •Higher rates of unplanned pregnancies (GAO, 2008)
 •Two times more likely to be involved in the juvenile or criminal
  justice system (Manteuffel, Stephens, Sondheimer, & Fisher, 2000).
                                michaela.fissel@gmail.com
Consistency in the Literature
 Outcomes used within the clinical field to determine the
impact of serious mental illness mirror the developmental
  Criteriawhich mark the transition to adulthood for the
                     general cohort.


Based on this relationship, the negative trend in
outcomes for young adults with serious mental illness
indicates that the criteria of adulthood is under-
achieved within this population.


                      michaela.fissel@gmail.com
Services and Supports in
               Connecticut
  Agencies, Organizations, and Groups throughout
 Connecticut offer specific programming that includes
services that are tailored to the unique developmental
 needs of youth and young adults with mental health
           and/or substance related disorders.
 Think about how each of these programs have
   helped you reach and maintain recovery.
Are services and supports addressing the intrinsic
 needs that have been identified by the emerging
    adult cohort to mark their transition into
                   adulthood?
Department of Mental Health and
       Addiction Services
First put into practice in 1998, and is already found within 16
                 communities across Connecticut.
 The DMHAS YAS program includes clinical, residential,
   social recreational, vocational services, and life skills
    development. These services are provided by trained
       professionals using evidence-based approaches.
PROGRAMS USE A… Wrap-Around
                     Person-Centered
                    Recovery-Orientated
                      Comprehensive
                     Trauma Sensitive … APPROACH
Youth & Young Adult Programming
   Active Minds of UCONN
   Advocacy Unlimited Super Advocates Program
   Birmingham Group Health Services
   Bridges of Milford
   Capitol Region Mental Health Center
   Casey Family Services
   Center for Human Development
   Central Access & Student Development
   Community Mental Health Affiliates
   Community Health Resources
   Connecticut Turning to Youth & Families
   Continuum, Inc.
                   michaela.fissel@gmail.com
Youth & Young Adult Programming
Focus on Recovery United
Greater Bridgeport Community Mental Health Center
Institute of Living
Prime Time House
River Valley Services
Rushford
Specialized Treatment for Early Psychosis (YALE)
South East Mental Health Authority
United Children & Family Services
United Services
Western Connecticut Mental Health Center – Torrington
Western Connecticut Mental Health Center – Waterbury



                      michaela.fissel@gmail.com
Barriers to Recovery in Connecticut
In a recent qualitative study funded by the J. Walter Bissell
Foundation, NAMI-Connecticut identified four key barriers to
recovery experienced by youth and young adults across the
state:
• HOUSING: homelessness and supportive housing
  restrictions for young people; along with
• EDUCATION: financial limitations that restrict young
  people from continuing on to complete post secondary
  education
• ACCESS: lack of tailored programming that is offered
  within separate space or location that provides the
  opportunity for young people to seek, achieve, and
  maintain recovery among their peers.
• TRANSPORTION: themichaela.fissel@gmail.com transportation with
                    high cost of
Present Ecology of Need
The under-achievement of young adults with serious mental
illness suggests that mental health services are not effectively
meeting the unique needs of the cohort(GAO, 2008).
Consideration for the unique developmental transition of the
emerging adult cohort presents a class of variables that can be
targeted for early-intervention.
The need for tailored services has been acknowledged within
the literature since the beginning of community-based care
(Bachrach, 1984; Mercer-McFadden, Drake, Brown, & Fox, 1997),

and more recently the need for mental health services to reflect
the unique developmental criteria of the present cohort,
continues to be identified throughout the literature (GAO, 2008; Mercer-
McFadden, Drake, Brown, & Fox, 1997; Rosenburg, 2008).

                                   michaela.fissel@gmail.com
Help Take Connecticut to the Next Level!
 It is undeniable that there are systematic barriers
 engrained throughout the services and programs
currently offered to youth and young adults across
                    Connecticut.
 These barriers limit a young person’s ability to
     seek, achieve and maintain recovery.

     WHAT CAN BE DONE TO
  ELIMINATE THESE BARRIERS?
                    michaela.fissel@gmail.com
• Working diligently as a leader within the
  recovery community to make the possibility of
  recovery available to every young person who
  seeks it.
• Building a network of young people who
  can lead advocacy across the state at the
  local, regional, and state levels.
• Using our experiences to influence change
                  michaela.fissel@gmail.com

The developmental needs of a young adult service population

  • 1.
    Young adults withserious mental illness: The developmental needs of a service population Michaela I. Fissel Central Connecticut State University
  • 2.
    Deinstitutionalization Deinstitutionalization was a policy initiative that restructured the mental health service system at the federal and state levels, shifting delivery of services into a community-based setting (GAO, 2008). – 1955 559,000patients in psychiatric institutions* 1960 – 90% of state psychiatric institutions closed* 1990s – 70,000patients remained institutionalized* Policy makers focused on restructuring the mental health system at the highest level, resulting in the majority of community based-services being designed using a clinical approach and for the chronic patients of the 1960s (Bachrach, 1984). *Lamb, Bachrach, &Kass (1992) michaela.fissel@gmail.com
  • 3.
    For the newcohort of young adults experiencing the onset of serious mental illness, diagnosis does not mean a lifetime of hospitalization (Bachrach, 1984) . michaela.fissel@gmail.com
  • 4.
    Introduction Currently, young adulthoodis defined as ranging from approximately 18 through 25 years of age (GAO, 2008). The main objective while transitioning throughout those years is to achieve adulthood (Arnett, 2000). Achievement of adulthood is measured by criteria, including: •graduation, •employment, •education, •living situation, •relationships •parenthood (Gralinksi-Bakker, Hauser, Billings, Allen, Lyons, Melton, 2005). michaela.fissel@gmail.com
  • 5.
    Introduction Continued Recently,a study found that the number of criteria achieved by the average 30-year-old in 2001, had been achieved by 25 in the early ‘70s (Henig, 2010). This finding indicates that the trend in the achievement of adulthood has been extended five years, over one generation. Currently, there are two major bodies of literature that describe characteristics and outcomes associated with the transitional stage ranging from 18 through 25 years of age. Characteristics Outcomes of and of the Cohort Populations michaela.fissel@gmail.com
  • 6.
    The Cohort Literature on emerging adulthood primarily uses a developmental approach to theorize and describe the broad characteristics of the 18 through 25 cohort (Arnett, 2000). Populations The second body of research describe young adult populations found within the emerging adult cohort by comparing differencesbetween the outcomes of populations (GAO, 2008). michaela.fissel@gmail.com
  • 7.
    Investigating the Cohort Using a Developmental Approach The successful transition through emerging adulthood is indicated by a positive trend in the progressive achievement of criteria (Kins&Beyers, 2010). Marriage michaela.fissel@gmail.com
  • 8.
    Serious Mental Illness Apopulation reported to experience significant differences in the achievement of criteria, are young adults who experience symptoms of serious mental illness (GAO, 2008; Gralinksi-Bakker, Hauser, Billings, Allen, Lyons, Melton, 2005; Rosenberg, 2008). In 2008 the U.S. Government Accountability Office reported that 2.4 million young adults (6.5%) experienced symptoms of mental illness during the past year (GAO, 2008). Literature on this population measures the impact of serious mental illness on the developmental transition into adulthood by comparing outcomes and observing trends between young adults and the general emerging adult cohort (Gralinksi-Bakker, Hauser, Billings, Allen, Lyons, Melton, 2005). Research has found that serious mental illness is highly associated with negative outcomes for young adults (GAO, 2008). michaela.fissel@gmail.com
  • 9.
    Outcomes Lower educational achievement(Suvisaari, et. al., 2009): •Significantly lower rates of high-school graduate (19% difference) (GAO, 2008) •Significantly lower rates of enrollment in postsecondary education (19% difference) (GAO, 2008) As well as: •Higher rates of unemployment(Suvisaari, et. al., 2009) •Higher rates of homelessness (GAO, 2008) •Higher rates of unplanned pregnancies (GAO, 2008) •Two times more likely to be involved in the juvenile or criminal justice system (Manteuffel, Stephens, Sondheimer, & Fisher, 2000). michaela.fissel@gmail.com
  • 10.
    Consistency in theLiterature Outcomes used within the clinical field to determine the impact of serious mental illness mirror the developmental Criteriawhich mark the transition to adulthood for the general cohort. Based on this relationship, the negative trend in outcomes for young adults with serious mental illness indicates that the criteria of adulthood is under- achieved within this population. michaela.fissel@gmail.com
  • 11.
    Services and Supportsin Connecticut Agencies, Organizations, and Groups throughout Connecticut offer specific programming that includes services that are tailored to the unique developmental needs of youth and young adults with mental health and/or substance related disorders. Think about how each of these programs have helped you reach and maintain recovery. Are services and supports addressing the intrinsic needs that have been identified by the emerging adult cohort to mark their transition into adulthood?
  • 12.
    Department of MentalHealth and Addiction Services First put into practice in 1998, and is already found within 16 communities across Connecticut. The DMHAS YAS program includes clinical, residential, social recreational, vocational services, and life skills development. These services are provided by trained professionals using evidence-based approaches. PROGRAMS USE A… Wrap-Around Person-Centered Recovery-Orientated Comprehensive Trauma Sensitive … APPROACH
  • 13.
    Youth & YoungAdult Programming Active Minds of UCONN Advocacy Unlimited Super Advocates Program Birmingham Group Health Services Bridges of Milford Capitol Region Mental Health Center Casey Family Services Center for Human Development Central Access & Student Development Community Mental Health Affiliates Community Health Resources Connecticut Turning to Youth & Families Continuum, Inc. michaela.fissel@gmail.com
  • 14.
    Youth & YoungAdult Programming Focus on Recovery United Greater Bridgeport Community Mental Health Center Institute of Living Prime Time House River Valley Services Rushford Specialized Treatment for Early Psychosis (YALE) South East Mental Health Authority United Children & Family Services United Services Western Connecticut Mental Health Center – Torrington Western Connecticut Mental Health Center – Waterbury michaela.fissel@gmail.com
  • 15.
    Barriers to Recoveryin Connecticut In a recent qualitative study funded by the J. Walter Bissell Foundation, NAMI-Connecticut identified four key barriers to recovery experienced by youth and young adults across the state: • HOUSING: homelessness and supportive housing restrictions for young people; along with • EDUCATION: financial limitations that restrict young people from continuing on to complete post secondary education • ACCESS: lack of tailored programming that is offered within separate space or location that provides the opportunity for young people to seek, achieve, and maintain recovery among their peers. • TRANSPORTION: themichaela.fissel@gmail.com transportation with high cost of
  • 16.
    Present Ecology ofNeed The under-achievement of young adults with serious mental illness suggests that mental health services are not effectively meeting the unique needs of the cohort(GAO, 2008). Consideration for the unique developmental transition of the emerging adult cohort presents a class of variables that can be targeted for early-intervention. The need for tailored services has been acknowledged within the literature since the beginning of community-based care (Bachrach, 1984; Mercer-McFadden, Drake, Brown, & Fox, 1997), and more recently the need for mental health services to reflect the unique developmental criteria of the present cohort, continues to be identified throughout the literature (GAO, 2008; Mercer- McFadden, Drake, Brown, & Fox, 1997; Rosenburg, 2008). michaela.fissel@gmail.com
  • 17.
    Help Take Connecticutto the Next Level! It is undeniable that there are systematic barriers engrained throughout the services and programs currently offered to youth and young adults across Connecticut. These barriers limit a young person’s ability to seek, achieve and maintain recovery. WHAT CAN BE DONE TO ELIMINATE THESE BARRIERS? michaela.fissel@gmail.com
  • 18.
    • Working diligentlyas a leader within the recovery community to make the possibility of recovery available to every young person who seeks it. • Building a network of young people who can lead advocacy across the state at the local, regional, and state levels. • Using our experiences to influence change michaela.fissel@gmail.com