Word of Mouth Mammogram e-Network: a Social Media enabled client and practitioner collaboration
•Download as PPTX, PDF•
1 like•154 views
How women were recruited to participate in research about Social Media and using Social Media
Recommended
Recommended
More Related Content
What's hot
What's hot (20)
Viewers also liked
Similar to Word of Mouth Mammogram e-Network: a Social Media enabled client and practitioner collaboration
Similar to Word of Mouth Mammogram e-Network: a Social Media enabled client and practitioner collaboration (20)
Recently uploaded
Recently uploaded (20)
Word of Mouth Mammogram e-Network: a Social Media enabled client and practitioner collaboration
- 1. Word of Mouth Mammogram e-Network (WOMMeN) hub: a Social Media enabled client and practitioner collaboration
- 2. Mammographers Cathy Hill, Geraldine Shires, Shaheeda Shaikh, Julie Stein Hodgins, Bev Scragg Clients Jo Taylor, Liz Morton University Academics Dr Leslie Robinson (PI), Dr Alex Fenton, Dr Marie Griffiths, Dr Julie Wray, Dr Adam Galpin, Dr Jo Meredith, Dr Claire Mercer, Cathy Ure (PhD student) Word of Mouth Mammogram e-Network (WOMMeN) hub: Social Media enabled client and practitioner collaboration 89 women on a ‘private’ Facebook User Design Group
- 3. Why? • Own work – Women feel poorly informed/prepared – Results in anxiety > increased perception of pain – Prefer Word of Mouth methods to printed materials • Ofcom statistics on media use1 • NHS communication strategy2 1. Ofcom (2015) Adults’ Media Use and Attitudes Report 2. DoH (2012) The Power of Information: putting all of us in control of the health and care information we need
- 4. 1. Initiate & collaborate 2. Explore 3. Recruit participants 4. On-line data collection 5. Data analysis 6. Write-up 7. Disseminate ‘Open’ publicity ‘Open’ publicity ‘Closed’ User Design Team (participants) Project management ‘Closed’ User Design Team (participants)
- 5. 89 participants service users and practitioners on Facebook A ‘post’ is a the introduction of a new thread A ‘comment’ is a response to a post 206 Posts 1124 comments 570 likes 67 active members
- 6. Participants can join in as and when it is convenient to them...and they did!
- 7. Thematic Framework Analysis Screening in general Screening in breast Mammogram procedure Mammog’s Other health professionals Clients Others Themes (n =52) Groups
- 8. Thematic Framework Analysis Features women want: • Communication with other women • Communication with health professionals • Personal experience balanced with evidence base • Key topics – Screening in general (all) – Screening for breast cancer (all) – Risks, false positives, DCIS (health professionals mainly) – After the mammogram, results (clients mainly) – The mammogaphic examination (mammographers mainly) – Breast health, self-examination (all)
- 10. Features: patient and practitioner forums (47 members signed up so far) Links to our Twitter and Facebook accounts
- 11. Features: Patient experience blogs
- 12. Information
- 13. Summary • Patient information designed by users is fit for purpose • Social Media effective and convenient for recruiting participants and collecting data
- 14. Acknowledgements: 89 women in the Facebook User Design Group
Editor's Notes
- I’m delighted to have the opportunity to tell you about the development of the Word of Mouth Mammogram e Network, WoMMwN for short. This is an on-line information and social networking hub all about breast screening in the UK. The presentation will concentrate on both the process of development and the outcome which is the hub itself
- It is important to point out this was a project which involved collaboration between practitioners, clients and academics. Some of these formed part of a core research team, meeting face to face on a monthly basis. However, as you will see there were 89 women (clients and breast screening health professionals) recruited to a private Facebook User Design Group
- The rational for the hub came from an earlier piece of work in which we explored women’s experiences of compression and pain. From this it emerged that women felt generally unprepared and uninformed for their examination. They did not feel current patient information was adequate and instead resorted to word of mouth methods, talking to their friends and relatives. This, was around 2013, which coincided with the emergence of social media as a means of gaining health information as reported by ofcom and advocated in the NHS communication strategy.
- We felt it important that to improve information we needed to incorporate social networking into an information hub. We also felt it important to include users (practitioners and clients in the design of the hub) However, we realised it would be difficult to bring a large number of women together face-to-face. We therefore engaged them through social media. This schematic shows how we ended up using social media at all the stages of the research project, selecting the most appropriate platform for the task. In terms of recruiting participants we used a wide range of possible social media channels where women of the breast screening age group might exist and we invited them to participate. We then brought them into a private or closed facebook group to discuss breast screening and what they might want in the WoMMeN hub One advantage of this is that we can use freely available tools to undertake data analysis on participation metrics, one such is called Grytics
- The Grytics analysis showed that between March 2015 and September 2015 (approx 6 months) we had a very engaged community of women talking about breast screening. As well as providing us with information to inform the final hub this gave us confidence that the idea of social networking for breast screening was a good idea
- So the user design group was very engaged. Grytics showed us they were engaged all days and all hours of the day. This supports our use of social media as a research tool for gathering data from people who can’t attend face-to-face.
- Quantitative data is not relevant for informing the hub, only to show that the research process was working We had to analyse the 1124 posts to identify what women talked about and therefore what should be on the hub. Two researchers independently identified the themes and then arrived at a consensus of 52 themes or topics. A framework analysis also enabled us to split the topics into ‘cases’ to identify who talked about the themes, were they important to all or just certain groups. This would help us to determine whether the final hub should have separate areas for different groups
- In terms of features: Users did support the need to talk to other women on line Clients and practitioners felt there should be a ‘practitioner’ voice present to provide balance However, all were keen that experiences (good and bad) should be acknowledged. In terms of information, of the 52 themes, these were the ones most talked about and the groups. This supports the need for a separate practitioner space on the WoMMeN hub.
- So here is the final hub and address. Let me highlight a number of features to demonstrate how the research has informed the hub
- Features for discussion feature strongly. There is an open hub for practitioners and clients A separate hub just for practitioners There are also links and feeds to and from our WoMMeN Twitter and Facebook accounts for women who don’t want to register on a the hub forum
- There are patient experience blogs
- There is an information link to the topics identified in the themes. We have not created new information, except where it did not exist, but we have curated the best of what is already on the internet, e.g the BSP links.
- In summary we believe we have provided a resource which compliments that which is provided by the BSP. We have made sure it is fit for purpose by including users in its design We have demonstrated that social media can be successfully employed in research which involves users. We will spend the next year promoting the hub and have already employed a digital marketing expert to do this for us. We intend to carry out a detailed evaluation of the effectiveness of the hub.
- Thank you for listening and thank you to our 89 women on the user design group.