William HIndin speaks of personal experience as both a patient with a serious disease and as a caregiver.

1. William Hindin
Speaker-Patient Advocacy
Being Your Own Healthcare Advocate
William Hindin is a Musical Director/Performer who has lived in New York City since 1978. In 2011, he
unexpectedly had to step away from his career to return to the Midwest to care for his ailing father, and
then remained to care for his elderly mother until her passing in 2015. During the intervening years he
learned (in many cases the “hard” way), the complexities our health care system. He became a strong
advocate for his mother in her final years, interfacing and leading a valuable team of doctors, nurses,
health care agencies, therapists, Medicare representatives, social workers, case managers, rehabilitation
facilities and hospice agencies.
For over ten years, he has been a volunteer with the Immune Deficiency Foundation as a patient of
Primary Immune Deficiency Disease. He has participated in many aspects of volunteerism and advocacy
including patient education, peer-to-peer support and counseling, in-person lobbying of national
representatives in Washington D.C., speaking at Plasma Center organization meetings, meeting donors
and staff at Blood Donation Centers, speaking at educational seminars directed to medical staffs
increasing awareness of Primary Immune Deficiency Disease, participation in NY Gubernatorial and NYC
Mayoral awareness Proclamations, and organizing and creating entertainment for four IDF National
Conferences.
As a result of his journey, Mr. Hindin is a passionate and educated consumer of healthcare who is focused
on imparting positive and empowering attitudes to fellow caregivers and healthcare consumers. His
communication style consists of helpful information, humor, anecdotal examples of advocacy, and the
warmth of someone who has “been there” through the challenges that we all face dealing in today’s
healthcare environment.
His more than 35 years performing before large audiences gives him the ability to communicate
comfortably with his audiences in a very personal way.
At the end of each presentation and workshop, participants will feel empowered and confident in making
decisions regarding their own health care management. They will feel that they have the tools to answer
the important questions they have in the current complex healthcare environment.
THE ISSUE
Many of us find ourselves in a serious quandary when our health or the health of a friend or
relative suddenly takes a serious turn for the worse. Sometimes, we are thrown into end-of-life
caregiving for a loved one. In such stressful times, administering to medical and social needs
can become overwhelming. Am I equipped to make the informed choices necessary on such
short notice? How do I handle contradictory information, confusing explanations and
emotionally devastating challenges? What are my options? Which is the best choice? What is
the best path forward? Am I doing the right thing? Who is there for me when I cry,
“ I need help!”

2. William Hindin
Speaker-Patient Advocacy
William S. Hindin
752 West End Ave. #7H
New York, NY 10025
212-222-7755
www.williamhindin.com
bill@williamhindin.com
PRESENTATIONS
Advocating for Your Health
• Responsibilities of being your own health care advocate
• Assembling your health care team
• Understanding the function of your health care team
• Strategies in advocating for your own healthcare
• How to avoid the WIM (“Woe Is Me”) trap
Your Health Care Rights and How to Use Them
• What to do if you disagree with your treatment plan
• Understanding your rights
• Legal documentation for your healthcare
• How to educate yourself regarding your healthcare
• Dealing with Medicare, your insurance company,
hospitals and health care agencies
• Resources available for your healthcare education and
advocacy
Breakout Group Workshops
• Role-playing exercises
• Scenarios to work through
• Sharing of personal experiences of each participant
• Follow-up discussions and feedback
Mr. Hindin has been a
featured presenter for:
Immune Deficiency
Foundation National
Conference
Immune Deficiency
Foundation patient
outreach meetings
Baxalta BioLife
Plasma Centers
Plasma LLC,
Independent Plasma
Association
PACT Workshop
Speech at BioLife Center
Sheboygan, WI

3. Immune Deficiency Foundation (IDF) volunteer 2005-2017
IDF Volunteer Leadership Conference
2006
2008
2010
2011
PACT Workshop-NJ 2012
2011 IDF National Conference entertainment producer Scottsdale, AZ
2013 IDF National Conference entertainment producer Baltimore. MD
2015 IDF National Conference entertainment producer New Orleans, LA
IDF Capitol Hill Advocacy Day
2008
2009
2010
2012
2016
NY State Governor and NYC Mayoral PI Awareness month proclamations
2010
2011
2012
2013
2014
Speeches
2016
Grifols 2016-02-09 Brookfield WI
Biolife awards meeting-Green Bay 2016-05-04 benefits of PI treatment
https://www.youtube.com/watch?v=sbjL_EEhXkY&t=273s
IDF-NYC patients meeting 2016-03-19 Living with PI
https://www.youtube.com/watch?v=upXbELsBQVY&t=20s
IDF- MA 2016-06-19 panel discussion patients regional support meeting
https://www.youtube.com/watch?v=kIUINb-KpGA&t=38s
Member-Toastmasters 2016
William Hindin
Speaker-Patient Advocacy

4. Plasma center visits/education presentation to staff / meeting-thanking donors
BioLife Sheboygan WI 2012, 2014
Biolife Gurnee, IL 2016
Grifols plasma donation center Raleigh, NC 2012
2019-02-21 IG Living Magazine Blog article “What’s in the Glass?”
http://www.igliving.com/BlogEngine/post/what-s-in-the-glass.aspx
2019-09-19 Grifols sales and marketing annual meeting “My Story of Living with
PI”
William S. Hindin
752 West End Ave. #7H
New York, NY 10025
212-222-7755
www.williamhindin.com
bill@williamhindin.com