The Progeria Family Circle is a European organization that supports children with Progeria and their families since 1997. It aims to (1) provide information and support to individual families, (2) facilitate annual meetings between families, and (3) support medical care and research for Progeria.

1. progeria family circle European organisation for children with Progeria since 1997 *

3. 4 4 1 4 3 4 1 1 2 number of children in 2010 26 +7 +1 +1 +1 +1 +2 2 +1

4. 9 10 4 4 7 5 4 1 5 number of children since 1997 60 1 1 2 1 1 1 1 3

8. annual meetings

9. annual meetings

10. annual meetings

12. support medical care and research

15. When you speak about ‘me’, what are you referring to? When you speak about ‘I’, what is that “I”? From a young age, I have had death be a part of my daily way of thinking. We think we have a certain amount of time as a human beings, and we try to put these destiny parts into that. Mortality is, we forget that this is a timely thing, and it’s so quick: words are just spoken, and it’s gone already. And what we term as ‘good’ and ‘love’ is basically understanding as well is the knowledge of all things. It’s all illusive, you just have now basicly. Tell me who you are.. what is it that fills you every moment? What is it that causes you to act and react? And why do you like what you like? Why do you view certain things as beautiful, or not? But yet: as you speak, the vibration and influence of those words can stick and go in the mind of somebody else as receiving it, and it can actually come into fysical existence in something else, years from now.