SlideShare a Scribd company logo

Conference 4 - The patient experience in the development and implementation of National Plans for Rare Diseases in France

•Download as PPT, PDF•
•
EURORDIS - Rare Diseases Europe
EURORDIS - Rare Diseases Europe

"The patient experience in the development and implementation of National Plans for Rare Diseases in France" Christel Nourissier EURORDIS General Secretary & Member of the EU Comittee of Experts on Rare Diseases EUROPLAN advisor

Health & Medicine
1 of 10
The patient experience in the development and implementation of National Plans for Rare Diseases in France : EURORDIS Membership Meeting Amsterdam, May 14, 2011 www.eurordis.org Christel Nourissier EURORDIS General Secretary & Member of the EU Comittee of Experts on Rare Diseases EUROPLAN advisor
Painful years of hard work might now look like a success story… ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
1. No policy without us ,[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
1. No policy without us (II) ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14 2011
2. Not one single patient living with a rare disease should be denied access to diagnosis and care at an expert centre ,[object Object],[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
3. Collect and make the best use of our clinical data, DNA, and biological samples ,[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
4. Patients need innovation : coordinate and fund research ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
5. The French National Plans: A message of hope in an adverse economic context : ,[object Object],[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
5. A strong message of hope for patients not only in France, but all over Europe and the world ,[object Object],[object Object],[object Object],Amsterdam, May 14, 2011
All stakeholders agree that National plans in France improve the situation of patients Amsterdam, May 14, 2011

Recommended

Workshop 3 - "Feedback from the 15 National Conferences on Registries"
Workshop 3 - "Feedback from the 15 National Conferences on Registries" Workshop 3 - "Feedback from the 15 National Conferences on Registries"
Workshop 3 - "Feedback from the 15 National Conferences on Registries" EURORDIS - Rare Diseases Europe
 
Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...
Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...
Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...EURORDIS - Rare Diseases Europe
 
Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...
Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...
Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...EURORDIS - Rare Diseases Europe
 
Workshop 6 - "Training package on RD for medical students"
Workshop 6 - "Training package on RD for medical students"Workshop 6 - "Training package on RD for medical students"
Workshop 6 - "Training package on RD for medical students"EURORDIS - Rare Diseases Europe
 
Workshop 2 - "Presentation of the concept, definitions and terminology"
Workshop 2 - "Presentation of the concept, definitions and terminology" Workshop 2 - "Presentation of the concept, definitions and terminology"
Workshop 2 - "Presentation of the concept, definitions and terminology" EURORDIS - Rare Diseases Europe
 
Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...
Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...
Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...EURORDIS - Rare Diseases Europe
 
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...EURORDIS - Rare Diseases Europe
 
Workshop 6 - "BURQOL-RD"
Workshop 6 - "BURQOL-RD"Workshop 6 - "BURQOL-RD"
Workshop 6 - "BURQOL-RD"EURORDIS - Rare Diseases Europe
 

Recommended

Workshop 3 - "Feedback from the 15 National Conferences on Registries"
Workshop 3 - "Feedback from the 15 National Conferences on Registries" Workshop 3 - "Feedback from the 15 National Conferences on Registries"
Workshop 3 - "Feedback from the 15 National Conferences on Registries" EURORDIS - Rare Diseases Europe
 
Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...
Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...
Workshop 2 - "EURORDIS Policy recommendations based on EURORDIS Declaration, ...EURORDIS - Rare Diseases Europe
 
Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...
Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...
Workshop 4 - "Presentation of the RD Platform fact finding study on the trend...EURORDIS - Rare Diseases Europe
 
Workshop 6 - "Training package on RD for medical students"
Workshop 6 - "Training package on RD for medical students"Workshop 6 - "Training package on RD for medical students"
Workshop 6 - "Training package on RD for medical students"EURORDIS - Rare Diseases Europe
 
Workshop 2 - "Presentation of the concept, definitions and terminology"
Workshop 2 - "Presentation of the concept, definitions and terminology" Workshop 2 - "Presentation of the concept, definitions and terminology"
Workshop 2 - "Presentation of the concept, definitions and terminology" EURORDIS - Rare Diseases Europe
 
Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...
Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...
Workshop 5 - "Presentation of Social Challenges of RD patients in the Joint A...EURORDIS - Rare Diseases Europe
 
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...
Conference 1 - EURORDIS’ recommendations for National Plans, Yann le Cam, EUR...EURORDIS - Rare Diseases Europe
 
Workshop 6 - "BURQOL-RD"
Workshop 6 - "BURQOL-RD"Workshop 6 - "BURQOL-RD"
Workshop 6 - "BURQOL-RD"EURORDIS - Rare Diseases Europe
 
Workshop 4 - "EURORDIS Research Policy recommendation"
Workshop 4 - "EURORDIS Research Policy recommendation"Workshop 4 - "EURORDIS Research Policy recommendation"
Workshop 4 - "EURORDIS Research Policy recommendation"EURORDIS - Rare Diseases Europe
 
Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"EURORDIS - Rare Diseases Europe
 
Workshop 3 - "Presentation of the Epi-Rare project"
Workshop 3 - "Presentation of the Epi-Rare project"Workshop 3 - "Presentation of the Epi-Rare project"
Workshop 3 - "Presentation of the Epi-Rare project"EURORDIS - Rare Diseases Europe
 
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"EURORDIS - Rare Diseases Europe
 
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" EURORDIS - Rare Diseases Europe
 
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...EURORDIS - Rare Diseases Europe
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"EURORDIS - Rare Diseases Europe
 
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"EURORDIS - Rare Diseases Europe
 
Workshop 6 - "Feedback from the 15 National Conferences"
Workshop 6 - "Feedback from the 15 National Conferences"Workshop 6 - "Feedback from the 15 National Conferences"
Workshop 6 - "Feedback from the 15 National Conferences"EURORDIS - Rare Diseases Europe
 
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"EURORDIS - Rare Diseases Europe
 
Workshop 5 - "The Norwegian Model"
Workshop 5 - "The Norwegian Model" Workshop 5 - "The Norwegian Model"
Workshop 5 - "The Norwegian Model" EURORDIS - Rare Diseases Europe
 
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"EURORDIS - Rare Diseases Europe
 
Workshop 7 - "Folic acid prevents neural tubes defect"
Workshop 7 - "Folic acid prevents neural tubes defect"Workshop 7 - "Folic acid prevents neural tubes defect"
Workshop 7 - "Folic acid prevents neural tubes defect"EURORDIS - Rare Diseases Europe
 
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...EURORDIS - Rare Diseases Europe
 
Introduction to the breakout sessions & case studies presentations
Introduction to the breakout sessions & case studies presentationsIntroduction to the breakout sessions & case studies presentations
Introduction to the breakout sessions & case studies presentationsEUPATI
 
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...EUPATI
 
Jornadas #PatientInHTA · Iñaki Imaz
Jornadas #PatientInHTA · Iñaki ImazJornadas #PatientInHTA · Iñaki Imaz
Jornadas #PatientInHTA · Iñaki ImazInstituto Aragonés de Ciencias de la Salud - IACS
 
Session 25 andrzej_rys
Session 25 andrzej_rysSession 25 andrzej_rys
Session 25 andrzej_rysEURORDIS - Rare Diseases Europe
 
Session 3 yann_le_cam
Session 3 yann_le_camSession 3 yann_le_cam
Session 3 yann_le_camEURORDIS - Rare Diseases Europe
 
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016ipposi
 
Sesion 2 terkel 14 05 2010 (final)
Sesion 2 terkel 14 05 2010 (final)Sesion 2 terkel 14 05 2010 (final)
Sesion 2 terkel 14 05 2010 (final)EURORDIS - Rare Diseases Europe
 
Session 2 terkel_andersen
Session 2 terkel_andersenSession 2 terkel_andersen
Session 2 terkel_andersenEURORDIS - Rare Diseases Europe
 

More Related Content

What's hot

Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"EURORDIS - Rare Diseases Europe
 
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"EURORDIS - Rare Diseases Europe
 
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" EURORDIS - Rare Diseases Europe
 
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...EURORDIS - Rare Diseases Europe
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"EURORDIS - Rare Diseases Europe
 
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"EURORDIS - Rare Diseases Europe
 
Workshop 6 - "Feedback from the 15 National Conferences"
Workshop 6 - "Feedback from the 15 National Conferences"Workshop 6 - "Feedback from the 15 National Conferences"
Workshop 6 - "Feedback from the 15 National Conferences"EURORDIS - Rare Diseases Europe
 
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"EURORDIS - Rare Diseases Europe
 
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"EURORDIS - Rare Diseases Europe
 
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...EURORDIS - Rare Diseases Europe
 
Introduction to the breakout sessions & case studies presentations
Introduction to the breakout sessions & case studies presentationsIntroduction to the breakout sessions & case studies presentations
Introduction to the breakout sessions & case studies presentationsEUPATI
 
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...EUPATI
 
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016ipposi
 

What's hot (20)

Workshop 4 - "EURORDIS Research Policy recommendation"
Workshop 4 - "EURORDIS Research Policy recommendation"Workshop 4 - "EURORDIS Research Policy recommendation"
Workshop 4 - "EURORDIS Research Policy recommendation"
 
Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"Workshop 3 - "Presentation of the concept, definitions and terminology"
Workshop 3 - "Presentation of the concept, definitions and terminology"
 
Workshop 3 - "Presentation of the Epi-Rare project"
Workshop 3 - "Presentation of the Epi-Rare project"Workshop 3 - "Presentation of the Epi-Rare project"
Workshop 3 - "Presentation of the Epi-Rare project"
 
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
Workshop 2- "Feedback from the 15 National Conferences on Centres of Expertise"
 
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe" Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
Workshop 1 - "The EU tender on Newborn Screening for rare disordersin Europe"
 
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
Workshop 6 - "Sharing expertise: transfer of experience from patient organiza...
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop"
 
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
Workshop 4 - "Feedback from the 15 National Conferences on Research policy"
 
Workshop 6 - "Feedback from the 15 National Conferences"
Workshop 6 - "Feedback from the 15 National Conferences"Workshop 6 - "Feedback from the 15 National Conferences"
Workshop 6 - "Feedback from the 15 National Conferences"
 
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
Workshop 5 - "Feedback from the 15 National Conferences on social aspects"
 
Workshop 5 - "The Norwegian Model"
Workshop 5 - "The Norwegian Model" Workshop 5 - "The Norwegian Model"
Workshop 5 - "The Norwegian Model"
 
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
Workshop 7 - "EUROCAT Study on Prevention of Congenital Anomalies"
 
Workshop 7 - "Folic acid prevents neural tubes defect"
Workshop 7 - "Folic acid prevents neural tubes defect"Workshop 7 - "Folic acid prevents neural tubes defect"
Workshop 7 - "Folic acid prevents neural tubes defect"
 
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
Workshop 7 - "Presentation of the International Federation for Spina Bifida a...
 
Introduction to the breakout sessions & case studies presentations
Introduction to the breakout sessions & case studies presentationsIntroduction to the breakout sessions & case studies presentations
Introduction to the breakout sessions & case studies presentations
 
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
European Patients' Academy - Presentation at IMI Patient Focus Meeting on 12 ...
 
Jornadas #PatientInHTA · Iñaki Imaz
Jornadas #PatientInHTA · Iñaki ImazJornadas #PatientInHTA · Iñaki Imaz
Jornadas #PatientInHTA · Iñaki Imaz
 
Session 25 andrzej_rys
Session 25 andrzej_rysSession 25 andrzej_rys
Session 25 andrzej_rys
 
Session 3 yann_le_cam
Session 3 yann_le_camSession 3 yann_le_cam
Session 3 yann_le_cam
 
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
PPI Conference Galway - Dr Derick Mitchell - April 27th 2016
 

Similar to Conference 4 - The patient experience in the development and implementation of National Plans for Rare Diseases in France

Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...
Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...
Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...Canadian Organization for Rare Disorders
 
European Patients Academy - Presentation of Jan Geissler at EPF AGM
European Patients Academy - Presentation of Jan Geissler at EPF AGMEuropean Patients Academy - Presentation of Jan Geissler at EPF AGM
European Patients Academy - Presentation of Jan Geissler at EPF AGMjangeissler
 
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]cmid
 
European Union Action in the field of Rare Diseases
European Union Action in the field of Rare DiseasesEuropean Union Action in the field of Rare Diseases
European Union Action in the field of Rare DiseasesPlan de Calidad para el SNS
 
10-3. Rare disease registries. Samantha Parker (eng)
10-3. Rare disease registries. Samantha Parker (eng)10-3. Rare disease registries. Samantha Parker (eng)
10-3. Rare disease registries. Samantha Parker (eng)KidneyOrgRu
 
Dorica Norwegian Romanian (No Ro) Parternership For Progress In
Dorica Norwegian Romanian (No Ro) Parternership For Progress InDorica Norwegian Romanian (No Ro) Parternership For Progress In
Dorica Norwegian Romanian (No Ro) Parternership For Progress InMihaiela Fazacas
 
Norwegian Romanian (No Ro) Parternership For Progress In
Norwegian Romanian (No Ro) Parternership For Progress InNorwegian Romanian (No Ro) Parternership For Progress In
Norwegian Romanian (No Ro) Parternership For Progress InMihaiela Fazacas
 
EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...
EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...
EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...EUPATI
 
EUPATI’s framework on Informing the “health-interested” public about medicine...
EUPATI’s framework on Informing the “health-interested” public about medicine...EUPATI’s framework on Informing the “health-interested” public about medicine...
EUPATI’s framework on Informing the “health-interested” public about medicine...Nowgen
 
2021_AI4_health_HDH
2021_AI4_health_HDH2021_AI4_health_HDH
2021_AI4_health_HDHMathieuStell
 
EPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de LooEPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de LooMarc van Gurp
 

Similar to Conference 4 - The patient experience in the development and implementation of National Plans for Rare Diseases in France (20)

Sesion 2 terkel 14 05 2010 (final)
Sesion 2 terkel 14 05 2010 (final)Sesion 2 terkel 14 05 2010 (final)
Sesion 2 terkel 14 05 2010 (final)
 
Session 2 terkel_andersen
Session 2 terkel_andersenSession 2 terkel_andersen
Session 2 terkel_andersen
 
Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...
Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...
Daria Julkowska, E-Rare Net, Transforming Rare Disease Research through Trans...
 
European Patients Academy - Presentation of Jan Geissler at EPF AGM
European Patients Academy - Presentation of Jan Geissler at EPF AGMEuropean Patients Academy - Presentation of Jan Geissler at EPF AGM
European Patients Academy - Presentation of Jan Geissler at EPF AGM
 
Session 3 fons_gabreels
Session 3 fons_gabreelsSession 3 fons_gabreels
Session 3 fons_gabreels
 
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
2009 Convegno Malattie Rare Lipucci Di Paola [22 01]
 
European Union Action in the field of Rare Diseases
European Union Action in the field of Rare DiseasesEuropean Union Action in the field of Rare Diseases
European Union Action in the field of Rare Diseases
 
10-3. Rare disease registries. Samantha Parker (eng)
10-3. Rare disease registries. Samantha Parker (eng)10-3. Rare disease registries. Samantha Parker (eng)
10-3. Rare disease registries. Samantha Parker (eng)
 
Julio E. Celis-Investigar, educar, dialogar
Julio E. Celis-Investigar, educar, dialogarJulio E. Celis-Investigar, educar, dialogar
Julio E. Celis-Investigar, educar, dialogar
 
Dorica Norwegian Romanian (No Ro) Parternership For Progress In
Dorica Norwegian Romanian (No Ro) Parternership For Progress InDorica Norwegian Romanian (No Ro) Parternership For Progress In
Dorica Norwegian Romanian (No Ro) Parternership For Progress In
 
Norwegian Romanian (No Ro) Parternership For Progress In
Norwegian Romanian (No Ro) Parternership For Progress InNorwegian Romanian (No Ro) Parternership For Progress In
Norwegian Romanian (No Ro) Parternership For Progress In
 
EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...
EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...
EUPATI 2013 Conference: Vision on Patient involvement in medicines R&D: Here...
 
Workshop 6 - "Case study: Italian Training for MDs,"
Workshop 6 - "Case study: Italian Training for MDs,"Workshop 6 - "Case study: Italian Training for MDs,"
Workshop 6 - "Case study: Italian Training for MDs,"
 
Destitute Roma & access to healthcare
Destitute Roma & access to healthcareDestitute Roma & access to healthcare
Destitute Roma & access to healthcare
 
Sesion 2 segolene ayme eu krakow may 10
Sesion 2 segolene ayme eu krakow may 10Sesion 2 segolene ayme eu krakow may 10
Sesion 2 segolene ayme eu krakow may 10
 
EUPATI’s framework on Informing the “health-interested” public about medicine...
EUPATI’s framework on Informing the “health-interested” public about medicine...EUPATI’s framework on Informing the “health-interested” public about medicine...
EUPATI’s framework on Informing the “health-interested” public about medicine...
 
2021_AI4_health_HDH
2021_AI4_health_HDH2021_AI4_health_HDH
2021_AI4_health_HDH
 
Antoni Montserrat
Antoni MontserratAntoni Montserrat
Antoni Montserrat
 
Update: National Plans for Rare Diseases
Update: National Plans for Rare Diseases Update: National Plans for Rare Diseases
Update: National Plans for Rare Diseases
 
EPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de LooEPAD 2017 - Jan Willem Van de Loo
EPAD 2017 - Jan Willem Van de Loo
 

More from EURORDIS - Rare Diseases Europe

RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...EURORDIS - Rare Diseases Europe
 
RareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare diseaseRareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare diseaseEURORDIS - Rare Diseases Europe
 
Update on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.orgUpdate on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.orgEURORDIS - Rare Diseases Europe
 
RareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients GloballyRareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients GloballyEURORDIS - Rare Diseases Europe
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...EURORDIS - Rare Diseases Europe
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...EURORDIS - Rare Diseases Europe
 
Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...EURORDIS - Rare Diseases Europe
 
Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...EURORDIS - Rare Diseases Europe
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"EURORDIS - Rare Diseases Europe
 

More from EURORDIS - Rare Diseases Europe (17)

RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...RareConnect.org webinar How to use Twitter to build your online rare disease ...
RareConnect.org webinar How to use Twitter to build your online rare disease ...
 
RareConnect.org Update 2016
RareConnect.org Update 2016RareConnect.org Update 2016
RareConnect.org Update 2016
 
RareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare diseaseRareConnect.org webinar: How to start an awareness day for your rare disease
RareConnect.org webinar: How to start an awareness day for your rare disease
 
Living with TRAPS poll results
Living with TRAPS poll resultsLiving with TRAPS poll results
Living with TRAPS poll results
 
Pitt Hopkins syndrome community on RareConnect.org
Pitt Hopkins syndrome community on RareConnect.orgPitt Hopkins syndrome community on RareConnect.org
Pitt Hopkins syndrome community on RareConnect.org
 
The Value of Online Communities
The Value of Online CommunitiesThe Value of Online Communities
The Value of Online Communities
 
Updates to RareConnect.org in 2014
Updates to RareConnect.org in 2014Updates to RareConnect.org in 2014
Updates to RareConnect.org in 2014
 
Update on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.orgUpdate on the Mysasthenia Gravis community on RareConnect.org
Update on the Mysasthenia Gravis community on RareConnect.org
 
Surveys and polls: The RareConnect.org Experience
Surveys and polls: The RareConnect.org ExperienceSurveys and polls: The RareConnect.org Experience
Surveys and polls: The RareConnect.org Experience
 
RareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients GloballyRareConnect.org - Connecting Rare Disease Patients Globally
RareConnect.org - Connecting Rare Disease Patients Globally
 
Rare disease day 2011 highlights
Rare disease day 2011 highlightsRare disease day 2011 highlights
Rare disease day 2011 highlights
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...
 
Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...Results of Survey on the role of Patient Groups in Research and their priorit...
Results of Survey on the role of Patient Groups in Research and their priorit...
 
Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...Results of a survey on the role of Patient Groups in Research and their prio...
Results of a survey on the role of Patient Groups in Research and their prio...
 
Conference 3 "Outcomes of 15 National Conferences, "
Conference 3 "Outcomes of 15 National Conferences, "Conference 3 "Outcomes of 15 National Conferences, "
Conference 3 "Outcomes of 15 National Conferences, "
 
Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...Conference 5 - “Patient’s Experience in the Development and Implementation of...
Conference 5 - “Patient’s Experience in the Development and Implementation of...
 
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"
Workshop 3 - "Outcome of the RD Task Force and EPPOSI Workshop on registries"
 

Recently uploaded

Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...
Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...
Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...astropune
 
Call Girls Nagpur Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Nagpur Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Nagpur Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Nagpur Just Call 9907093804 Top Class Call Girl Service AvailableDipal Arora
 
Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...
Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...
Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...narwatsonia7
 
Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...
Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...
Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...narwatsonia7
 
Call Girls Cuttack Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Cuttack Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Cuttack Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Cuttack Just Call 9907093804 Top Class Call Girl Service AvailableDipal Arora
 
Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...
Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...
Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...narwatsonia7
 
Chandrapur Call girls 8617370543 Provides all area service COD available
Chandrapur Call girls 8617370543 Provides all area service COD availableChandrapur Call girls 8617370543 Provides all area service COD available
Chandrapur Call girls 8617370543 Provides all area service COD availableDipal Arora
 
High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...
High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...
High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...narwatsonia7
 
Russian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls Delhi
Russian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls DelhiRussian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls Delhi
Russian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls DelhiAlinaDevecerski
 
All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...
All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...
All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...Arohi Goyal
 
♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...
♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...
♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...astropune
 
Call Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on Delivery
Call Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on DeliveryCall Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on Delivery
Call Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on Deliverynehamumbai
 
Vip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls Available
Vip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls AvailableVip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls Available
Vip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls AvailableNehru place Escorts
 
The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...
The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...
The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...chandars293
 
💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...
💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...
💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...Taniya Sharma
 
Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...
Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...
Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...CALL GIRLS
 
Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...
Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...
Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...aartirawatdelhi
 
Call Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service AvailableDipal Arora
 
Premium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort Service
Premium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort ServicePremium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort Service
Premium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort Servicevidya singh
 
Call Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service AvailableDipal Arora
 

Recently uploaded (20)

Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...
Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...
Best Rate (Hyderabad) Call Girls Jahanuma ⟟ 8250192130 ⟟ High Class Call Girl...
 
Call Girls Nagpur Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Nagpur Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Nagpur Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Nagpur Just Call 9907093804 Top Class Call Girl Service Available
 
Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...
Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...
Top Rated Bangalore Call Girls Mg Road ⟟ 8250192130 ⟟ Call Me For Genuine Sex...
 
Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...
Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...
Bangalore Call Girls Nelamangala Number 7001035870 Meetin With Bangalore Esc...
 
Call Girls Cuttack Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Cuttack Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Cuttack Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Cuttack Just Call 9907093804 Top Class Call Girl Service Available
 
Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...
Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...
Bangalore Call Girls Hebbal Kempapura Number 7001035870 Meetin With Bangalor...
 
Chandrapur Call girls 8617370543 Provides all area service COD available
Chandrapur Call girls 8617370543 Provides all area service COD availableChandrapur Call girls 8617370543 Provides all area service COD available
Chandrapur Call girls 8617370543 Provides all area service COD available
 
High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...
High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...
High Profile Call Girls Coimbatore Saanvi☎️ 8250192130 Independent Escort Se...
 
Russian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls Delhi
Russian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls DelhiRussian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls Delhi
Russian Escorts Girls Nehru Place ZINATHI 🔝9711199012 ☪ 24/7 Call Girls Delhi
 
All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...
All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...
All Time Service Available Call Girls Marine Drive 📳 9820252231 For 18+ VIP C...
 
♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...
♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...
♛VVIP Hyderabad Call Girls Chintalkunta🖕7001035870🖕Riya Kappor Top Call Girl ...
 
Call Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on Delivery
Call Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on DeliveryCall Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on Delivery
Call Girls Colaba Mumbai ❤️ 9920874524 👈 Cash on Delivery
 
Vip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls Available
Vip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls AvailableVip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls Available
Vip Call Girls Anna Salai Chennai 👉 8250192130 ❣️💯 Top Class Girls Available
 
The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...
The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...
The Most Attractive Hyderabad Call Girls Kothapet 𖠋 6297143586 𖠋 Will You Mis...
 
💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...
💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...
💎VVIP Kolkata Call Girls Parganas🩱7001035870🩱Independent Girl ( Ac Rooms Avai...
 
Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...
Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...
Call Girls Service Surat Samaira ❤️🍑 8250192130 👄 Independent Escort Service ...
 
Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...
Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...
Night 7k to 12k Navi Mumbai Call Girl Photo 👉 BOOK NOW 9833363713 👈 ♀️ night ...
 
Call Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Coimbatore Just Call 9907093804 Top Class Call Girl Service Available
 
Premium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort Service
Premium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort ServicePremium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort Service
Premium Call Girls Cottonpet Whatsapp 7001035870 Independent Escort Service
 
Call Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service AvailableCall Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service Available
Call Girls Ludhiana Just Call 9907093804 Top Class Call Girl Service Available
 

Conference 4 - The patient experience in the development and implementation of National Plans for Rare Diseases in France

  • 1. The patient experience in the development and implementation of National Plans for Rare Diseases in France : EURORDIS Membership Meeting Amsterdam, May 14, 2011 www.eurordis.org Christel Nourissier EURORDIS General Secretary & Member of the EU Comittee of Experts on Rare Diseases EUROPLAN advisor
  • 2.
  • 3.
  • 4.
  • 5.
  • 6.
  • 7.
  • 8.
  • 9.
  • 10. All stakeholders agree that National plans in France improve the situation of patients Amsterdam, May 14, 2011