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Self Organizing Genomes with Real Time Consent - DNA Guide
The document discusses the concept of self-organizing genomes and the advantages of real-time consent in the management of genetic data. It highlights the potential for a digital platform where individuals can upload and manage their genomes while controlling access to their information across various sectors, including health and ancestry. The text also addresses the challenges of regulation, privacy, and the need for consumer empowerment in navigating the rapidly evolving field of personalized medicine.
Self Organizing Genomes with Real Time Consent - DNA Guide
- 1. Self Organizing Genomeswith Real Time Consent Alice Rathjen, President, Founder alice@dnaguide.com DNA Guide, Inc. All rights reserved 2012
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- 3. The Evolution ofDigital Humanity Molecular Electronic Next Generation Social Networks Diagnostics Health Records Sequencing Pattern: Technologies People upload/create data and control who they share it with. 1992 2012
- 4. Imagine…. The power of Self- Organizing Genomes
- 5. The advantages of RealTime Consent
- 6. 2 Billion Genomesin Electronic 10 Years? Molecular Next Generation Social Networks Diagnostics Health Records Sequencing Technologies 2012 2022 Research Governments/Passports Electronic Health Records Patient Groups Ancestry Gaming (DNA Avatars) Biometric Access/ E-Commerce Online Identity Services Citizen Science Non-Govt Health Organizations Disaster Response / Epidemics
- 7. The Industries Problem... No Path to Market Genetic Data Explosion Huge investment in Personalized Medicine Sequencing Technologies and INSURANCE Molecular Diagnostics Consumers/ Pharma / Health Patients Clinical Services R&D Trials Regulation, Privacy, Ease of Use Will we see a Facebook for DNA or Biological DNS - where people choose an entity to register and host their genome?
- 8. Regulation www.DNAguide.com
- 9. Problem of Fearand Ignorance A T A T T A C G C G
- 10. The Patient HasChanged Doctor, it hurts Doc, I was born when I do this this way
- 11. New Path toMarket? C T G Those A Providing Consumer/ Valuable Patient Controls Information Access To Their and Services DNA via Real Get Rewarded Time Consent
- 12. Genome Browsers & Non-ScientificUsers (Mitochondria)
- 13. Solution is toManage Interpretation and Access Down to the Base Pair Level
- 14. Technology can EnableDynamic Regulation & Compliance Information Category Rating Quality of Science (Graded) A,B,C,D,F (by Scientific Community) W = Withdrawn I = Incomplete Medical Utility (Five Star Rating) (by Health Care Providers/ Payers) (Movie Rating) Viewing Risk E= (Genetic Counselors, Ethics) Everyone, PG = Physician Guidance R= Restricted
- 15. Building the Scaffoldingfor Future Personal Biological Data Grand Slam of Electronic Health Records Patient as Owner Map of Your Map of Your Security Token Genome Body DNA sample used to create “Google Maps” for your genome Medical records, images and patient centered universal with the ability to manage gene expression data to be health record based on real interpretation and access down to linked to a map of the your time consent. (Patient the DNA base pair level. Convert human body and to genomic submits DNA sample to prove $1,000 genome into 2 minute location. ownership , receives login to genome at the point of care. setup user accounts).
- 16. Navigating Genetic Data Privacy, Regulation and Ease of Use Alice Rathjen, President, Founder alice@dnaguide.com Method for preparing and using personal and genetic profiles DNA Guide, Inc. All rights reserved 2012