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The Internet of Human Beings
July 30, 2013 | California
Biological Domains
& Big Data
Alice Rathjen, CEO, Founder DNA Guide
Alice Rathjen © 2013 -
How Genetic Data Will Force Health Records To Evolve
20232013
Research Institutes
Government IDs / Passports
Electronic Health Records
Biometric Access/ E-Commerce
Ancestry
Online Identity Services
Citizen Science
Patient Advocacy Sites
Non-Govt. Health Organizations
Disaster Response / Epidemics
Gaming (DNA avatars)
2 Billion Genomes in 10 Years
Will Transform Information Flows of the Web
Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars
The Current
Web
The Future
Web
Mobile Internet
of
Things
Search
E
Commerce
Social
Biological
Network -
Internet of
Human
Beings
The Old Web
Solving Health Care IT for the Future Web
Health Records Evolve Into Biological Domains
Exponential Growth in Data from the Body
Alice Rathjen © 2013 -
What Happens Once Genetic Data
is Added to a Health Record?
Health
Record
Genetic
Dataset
“Sticky”
Universal
Health
Record
Alice Rathjen © 2013 -
Health Data Becomes Identifiable
Big Data = Big Liability
Health
Record
Genetic
Dataset
De-
identified
Data
De-Identified
Data
Alice Rathjen © 2013 -
Solution : Health IT Network =
Biological Domain Registrar
Health
Record
Genetic
Dataset
Portable
Patient Health
Record
(patient picks
trusted
registrar)
Alice Rathjen © 2013 -
Real Time Consent
Future Health Record
Human = Node On The Network
Biometric
Map of the Body
Map of the Genome
Lifestyle, Environment
Patient Centric Bi-Directional Information Flow
Alice Rathjen © 2013 -
Mobile/Visual Maps of Body & Genome
 Information Organized
by Location & Time
 Patient Raw Data
Stored Separately
 Dynamic Interpretation
& Reports
 Easy Adoption
 Needs to be able to
Scale Indefinitely
Alice Rathjen © 2013 -
Dynamic Health Information Quality Rating
Quality of Science
Medical Utility
Viewing Risk
(Graded) A,B,C,D,F
W = Withdrawn , I = Incomplete(by Scientific Community)
(by Health Care Providers/ Payers)
E = Everyone
PG = Physician Guidance
R = Restricted
(Medical Ethics, Counselor)
Category Rating
(Five Star Rating)
(i.e.Movie Rating)
Alice Rathjen © 2013 -
Exponential
Growth
Patient Data
• Imaging
• Remote Sensors
• Cancer Tumor Analysis
• Drug Response
• Disease Risk
• Carrier Testing
• Life Style
• Environment
Alice Rathjen © 2013 -
User Accounts Biological Domains
Old Big Data vs. New Big Data
just data JUST DATA
Alice Rathjen © 2013 -
The Internet of Human Beings
July 30, 2013 | Sebastopol, California
Biological Domains & Big Data
Alice Rathjen, CEO, Founder DNA Guide
Patient Health Information with Real Time Consent
Alice Rathjen © 2013 -

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Biological Domains - The Internet of Human Beings as the New Big Data

  • 1. The Internet of Human Beings July 30, 2013 | California Biological Domains & Big Data Alice Rathjen, CEO, Founder DNA Guide Alice Rathjen © 2013 - How Genetic Data Will Force Health Records To Evolve
  • 2. 20232013 Research Institutes Government IDs / Passports Electronic Health Records Biometric Access/ E-Commerce Ancestry Online Identity Services Citizen Science Patient Advocacy Sites Non-Govt. Health Organizations Disaster Response / Epidemics Gaming (DNA avatars) 2 Billion Genomes in 10 Years Will Transform Information Flows of the Web Estimates by Alice Rathjen © 2013 - Potential Sources for Biological Domain Registrars
  • 3. The Current Web The Future Web Mobile Internet of Things Search E Commerce Social Biological Network - Internet of Human Beings The Old Web Solving Health Care IT for the Future Web Health Records Evolve Into Biological Domains Exponential Growth in Data from the Body Alice Rathjen © 2013 -
  • 4. What Happens Once Genetic Data is Added to a Health Record? Health Record Genetic Dataset “Sticky” Universal Health Record Alice Rathjen © 2013 -
  • 5. Health Data Becomes Identifiable Big Data = Big Liability Health Record Genetic Dataset De- identified Data De-Identified Data Alice Rathjen © 2013 -
  • 6. Solution : Health IT Network = Biological Domain Registrar Health Record Genetic Dataset Portable Patient Health Record (patient picks trusted registrar) Alice Rathjen © 2013 - Real Time Consent
  • 7. Future Health Record Human = Node On The Network Biometric Map of the Body Map of the Genome Lifestyle, Environment Patient Centric Bi-Directional Information Flow Alice Rathjen © 2013 -
  • 8. Mobile/Visual Maps of Body & Genome  Information Organized by Location & Time  Patient Raw Data Stored Separately  Dynamic Interpretation & Reports  Easy Adoption  Needs to be able to Scale Indefinitely Alice Rathjen © 2013 -
  • 9. Dynamic Health Information Quality Rating Quality of Science Medical Utility Viewing Risk (Graded) A,B,C,D,F W = Withdrawn , I = Incomplete(by Scientific Community) (by Health Care Providers/ Payers) E = Everyone PG = Physician Guidance R = Restricted (Medical Ethics, Counselor) Category Rating (Five Star Rating) (i.e.Movie Rating) Alice Rathjen © 2013 -
  • 10. Exponential Growth Patient Data • Imaging • Remote Sensors • Cancer Tumor Analysis • Drug Response • Disease Risk • Carrier Testing • Life Style • Environment Alice Rathjen © 2013 -
  • 11. User Accounts Biological Domains Old Big Data vs. New Big Data just data JUST DATA Alice Rathjen © 2013 -
  • 12. The Internet of Human Beings July 30, 2013 | Sebastopol, California Biological Domains & Big Data Alice Rathjen, CEO, Founder DNA Guide Patient Health Information with Real Time Consent Alice Rathjen © 2013 -