Casa Angelman is an NGO in Argentina that assists families of children with Angelman Syndrome. It provides an intensive therapeutic program over 4 days to evaluate and assist affected children while advising and supporting their parents. It also trains therapists and serves as a reference for information about Angelman Syndrome in Spanish-speaking countries.

1. CASA ANGELMAN
NGO that gathers and assists families with children that
have Angelman Syndrome in Argentina, with an approach
that considers not only the physical and mental aspects but
also the spiritual.
Place of education and training for professionals and
medical staff from all over the country.
Reference forum for Angelman Syndrome diffusion in
Spanish speaking countries.
ABOUT ANGELMAN SYNDROME
Neuro-genetic disorder in chromosome 15, with a difficult
diagnosis that is usually confused with autism or brain
paralysis.
Physical characteristics: mental delay, oral language
absence, motor ataxia, epilepsy, happy appearance, pale
skin.
Emotional characteristics: sociable, love water, always
seeking funny things, naughty attitude and smiley.

2. OUR ANGELMAN SYNDROME NUMBERS
1 in 15000 births
3000 estimated cases in Argentina
Of which, only 20% have been diagnosed.
280 families now inter-connected.
90% of the families live far away from urban centers with
lack of information and assistance.

3. INTENSIVE THERAPEUTIC PROGRAM
(I.T.P)
During 4 days, our professional team evaluates and assists
the child, giving at the same time advice and stability to the
parents.
We train therapists that accompany the parents to assure
the continuity of the treatment.
Furthermore, Casa Angelman offers a place to stay and
spend the night to families and therapist that travel from
other provinces or countries.
36 families are accommodated per year in the house to
receive treatment and orientation.
19 professionals from different areas integrate our
therapeutic team.
60 therapists receive training during this program per year.
¾ of medical and therapeutic fees are financed by Casa
Angelman.

4. COMPLEMENTARY THERAPEUTIC ACTIVITIES
Casa Angelman receives, on a daily basis, children and
teenagers with Angelman syndrome, PDD (pervasive
developmental disorder), Down Sindrome and similar
pathologies.
We offer therapies that are essential to boost our children
capacities and that are not present in the official curricula of
special education.
12 Therapeutic Areas: phonoaudiology, occupational and
sensorial therapy, Dog assessed occupational therapy,
kinesiology, osteopathy, nutrition, reflexology, yoga, art-
therapy, music-therapy, horse assessed therapy, singing
bowl therapy.
50 children assist weekly
70% of the children receive a grant for lack of coverage.

5. EDUCATIONAL CENTER
In Casa Angelman we are taking firm steps in the
construction of a holistic educational center for special
treatments.
In order to maintain our goal, we need the
help and support of each and everyone of
you.