Hull 2017

1. The role of specialist services in
supporting families during end of life
care

2. Obstacles to supporting parents in
EoLC
• Sensitive and emotive
• Professionalisation of EoLC process
• Prioritising other aspects of EoLC
• Parents contribution overlooked?
• Lack of research

3. Seven C’s (GSF)
1. Communication
2. Co-ordination of Care
3. Control of symptoms
4. Continuity
5. Continued Learning
6. Carer and relative support
7. Care of the dying
(www.goldstandards.nhs.uk)

4. Caroline

5. Danny, Lillian & Caroline

6. Key Themes
• Extended parenting role
• Degenerative illness
• Complimentary Care
• Different perspectives

7. The impact of losing an adult child
“To bury one of our children is a tragedy few of
us can envision, no matter how well schooled in
the grief process we may be. What happens to
parents who have raised their child only to lose
one in his or her adult life?”
http://www.havenofnova.org/articles/parents_in_grief/adult_child.pdf

8. The impact of losing an adult child
“When the
child died, the parents lost the very essence of
what gave meaning to their lives.”
http://www.havenofnova.org/articles/parents_in_grief/adult_child.pdf

9. History
• Normal childhood
• Sub Acute Sclerosing Panencephalitis
• Co-dependency
• Move to Heatherstones

10. Care Planning
• Advance Care Plan Meeting
• 7 C’s
• Sharing information
• End of Life Care Pathways

11. Supporting the family
• Listening
• Working in partnership
• Respecting feelings, opinions
• Creating opportunities

12. Summary
• Giving equal emphasis to care / relative
support in EoLC
• Working in partnership
• Family support
• After Care
• Interpersonal skills
• Continued learning
• Further research

13. After Care