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Social Work in Mental Health
ISSN: 1533-2985 (Print) 1533-2993 (Online) Journal homepage: http://www.tandfonline.com/loi/wsmh20
Perception of Mental Health Services among Black
Americans
Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA
& Blake Glomb BA
To cite this article: Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA
& Blake Glomb BA (2016): Perception of Mental Health Services among Black Americans, Social
Work in Mental Health, DOI: 10.1080/15332985.2015.1137257
To link to this article: http://dx.doi.org/10.1080/15332985.2015.1137257
Accepted author version posted online: 01
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Perception of Mental Health Services among Black
Americans
Corresponding Author:
Gina B. Gaston, PhD, LCSW
Assistant Professor
University of Illinois at Chicago
Jane Addams College of Social Work
1040 West Harrison, (M/C 309)
Chicago, Illinois 60607
ggasto3@uic.edu
Tara R. Earl, MSW, PhD
ICF International, Public Health and Survey Research, 3 Corporate Boulevard Northeast #370,
Atlanta, United States
tara.r.earl@gmail.com
Aslihan Nisanci, MSW, MA
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PhD Student
University of Illinois at Chicago
Jane Addams College of Social Work
1040 West Harrison, (M/C 309)
Chicago, Illinois 60607
anisan2@uic.edu
Blake Glomb, BA
MSW Student
University of Illinois at Chicago
Jane Addams College of Social Work
1040 West Harrison, (M/C 309)
Chicago, Illinois 60607
Abstract
As the Black Americans’ population becomes more diverse, it is important to extrapolate
differences amongst individuals who have historically been grouped as Black or African
American in the literature. This review systematically explores differences in the perceptions of
mental health services among Black Americans of African American, African, and Caribbean
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Black descent. Thirty studies were included in the analysis. The paucity of literature limited the
author’s ability to identify themes substantial themes for Africans and Caribbean Blacks, stigma,
discrimination, and racism mired the perceptions of mental health services for African
Americans. The findings underscored the need for more research to be able to adequately
identify and better understand important and nuanced differences in perceptions of mental health
within the Black American population. Implications for how to better serve Black Americans
through social work practice, intervention and prevention are discussed.
Keywords: African Americans, Africans, Caribbean Blacks, perceptions, mental health services,
stigma, discrimination, racism, Black Americans, Social work
INTRODUCTION
As the American population becomes more diverse, acknowledging important cultural
differences and perceptions of care amongst subgroups of people of African descent becomes
paramount (Lincoln, Chatters, Taylor, & Jackson, 2007; U.S. Census, 2011). Identifying as
“Black” in the United States can include a heritage of Caribbean or West Indian, African, or
another non-American descent. For the purposes of this paper, we focus on African Americans,
Africans and Caribbean Blacks. Collectively, Black Americans alone—not including Blacks of
multiple races—encompass about 13.2% of the U.S. population (U.S. Census 2014). Albeit not
easy to discern, within the Black American population, approximately 1.6 million (4%) identify
as being African (e.g. Ghanaian or Kenyan) and 1.7 million (4.4%) report as being of Caribbean
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Black decent (e.g., Haitian or Jamaican) (American Community Survey; Logan & Deane, 2003;
Migration Policy Institute, 2012).
While significant differences between African Americans and Caribbean Blacks on measures of
physical health have been widely reported (Singh & Siahpush, 2002; Read, Emerson, Taylor,
2005; Read, & Emerson, 2005), considerably less is known about variations in mental health,
despite a small, yet growing, body of evidence (Earl & Williams, 2008; Jackson et al., 2007). In
order to ensure equitable access to adequate care for Black Americans, it is important to
understand the complex role culture and diversity play within race. These factors impact how
symptoms of mental illness are expressed, understood and ultimately diagnosed (Earl, Fortuna,
Gao, Williams, Neighbors, Takeuchi, & Alegría, 2014). Understanding the impact of a person’s
cultural background on their perceptions about mental health treatment is especially important
given that, for some, seeking mental health care may not be something with which they are
familiar (World Health Organization, 2011); Migration Policy Institute, 2012; Miranda et al.,
2005). For example, as a result of the earthquake that crippled Haiti in 2010, the dearth of mental
health services and infrastructure within the country was brought to national attention and in
Africa less than 1% of the total healthcare budget is allocated to mental health (Bird et al., 2010).
Social workers comprise nearly half of the behavioral health care workforce therefore it is
essential for them to be trained in specialized skills to provide evidence-based behavioral health
services (Rosen, 2003; Walrath et al., 2006) that facilitate mental health care among this diverse
population. While there are common experiences across the Black American community, there is
also a great deal of heterogeneity that requires social workers and other mental health service
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providers to understand and be able to provide high quality care that is appropriately tailored to
the unique needs of their patients (Rosen, 2003).
SYSTEMTIC LITERATURE REVIEW APPROACH
In an effort to help the field better understand and disentangle important differences in
perceptions of mental health care within the Black American population We systematically
reviewed the literature using Medline, PsychInfo, Academic Search Complete, PubMed, Ebsco,
and Social Work Abstracts. Our search was guided by a combination of key words that focused
on mental health care, patient perceptions of mental health care and ethnic variations of Black
Americans. We specifically sought to include peer-reviewed articles because these are more
widely reviewed to inform clinical practice and service delivery. We included a broad range of
articles that were published between 2002 and 2014 and emphasized care and perceptions of
American and/or foreign-born Blacks who resided in the states. Examples of key words included,
mental health, perceptions of care and/or treatment, mental health, mental health communication,
patient and provider communication, culture competence, trauma, clinical encounter, and
communication styles. In order to discuss literature that represented the diversity within the
Black American population, we looked for articles that used the terms like, African American,
Black, African, Haitian, Jamaican, Dominican, Trinidad and Tobago, Afro Caribbean, Caribbean
Black, immigrant, and refugee.
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ANALYSIS STRATEGY
We used a three-step process to identify the studies that met our inclusion criteria. The
first step involved examining all studies that were (1) published in peer-reviewed journals, (2)
that were specifically focused on mental health, (3) recruited African Americans, Africans,
and/or Caribbean Black participants, and (4) included African and Caribbean Blacks (foreign- or
U.S.–born) who lived in the United States at the time of the study. Any differences between
foreign-born and U.S.–born Africans and Caribbean Blacks will be identified. Studies were
excluded from the review if results were not reported separately by race and nationality of the
participants. A total of 560 studies were reviewed. See Table 1 for the total number of studies
reviewed by population. Upon further examination, a total of 278 out of 560, met possible
inclusion in the study.
We were interested exclusively in studies that met at least one of two search criteria. Studies
must have examined: (1) the perceptions of mental health services among specific African and
Caribbean Black groups, and/or (2) the perceptions of mental health services among African
Americans. The review was expanded to include peer-reviewed studies published from January
2002 and December 2014.
The second step involved reviewing and employing thematic analysis of the 278 studies. Two
members of the team conducted independent reviews of the literature using the specified key
words as a guided framework. Matrixes were constructed and used by the researchers in order to
allow for study comparison and identification of emergent themes. The matrixes included the
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author(s), date of publication, methodology used, study participants inclusive of racial/ethnic
groups and nationality, location of the study to ensure individuals living in the U.S. were the
subject of the study, results, and study recommendations. The team members met weekly to
review and discuss their independent findings until they reached consensus.
Matrixes were then compiled and categorized according to African American, Caribbean Black,
and African participants. In the end, we found 30 studies that met the inclusion criteria. Twenty-
three of the studies examined African Americans’ perceptions of mental health care. See Table 2
for studies examining African Americans’ perceptions of mental health services. Two studies
examined perceptions of mental health services among Caribbean Blacks. Two studies examined
perceptions of mental health services among Africans living in the United States. Three studies
included mixed populations. See Table 3 for Caribbean Black, African, and mixed population
perceptions. The final step involved using the matrixes to identify emergent themes. Two raters
(the principal author and the PhD student) were used to identify themes. Raters independently
reviewed each study, wrote notes regarding possible themes, and met twice weekly until there
was agreement about emergent themes. The total review process took approximately 6 months to
complete.
EMERGENT THEMES
Two primary themes emerged that seemed to best describe the perceptions of mental health care
within the literature. The themes were: (1) perceptions that influenced service use and (2)
perceptions related to barriers to mental health help-seeking. Subthemes for African American
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participants are also displayed in Table 2. Subthemes and themes could not be identified for
African and Caribbean Blacks due to the paucity of studies found.
RESULTS
Overall, as shown in Tables 2 and 3, of the 30 studies reviewed, 23 focused on African
Americans, 2 focused Africans, 2 focused on Caribbean Blacks, and 3 included a combination of
Black Americans. There were a number of studies that met the inclusion criteria, informed
perceptions about mental health service use, discussed “African Americans” or “Blacks”, but did
not identify or discuss ethnicity or country of origin. Therefore, we present the findings in an
order that aligns with the number of available articles that were reviewed for each of the three
subgroups of Black Americans.
Perceptions of African American
Service Use and Access. African Americans’ negative perception of mental health and the
mental health system was identified as a barrier to service use. Their experiences of societal
discrimination may lead to skepticism and distrust of the mental health system (Copeland &
Snyder, 2010; Earl, Alegría, Mendieta, & Linhart, 2011). We identified three reasons for varying
service use among African Americans. A client’s trust in their provider was one important
reason; a service provider’s competence was a second theme found in the review and a client
feeling that they were respected by their provider were all common themes in service use among
African Americans.
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The importance of trust and comfort with the provider were common reasons across various
studies (Earl et al., 2011; Leis, Mendelson, Perry, & Tandon, 2011; Lindsey & Marcell, 2012;
Thompson, Dancy, Wiley, Perry, & Najdowski, 2011; Ward, 2005). African Americans
identified several dimensions of trust including the need for providers to be nonthreatening and
reassuring. It was important that providers be emotionally and personally accessible. Having
similar spiritual beliefs would also help the client trust their provider. Participants also preferred
their provider to have professional credibility, which was defined as having expertise, fame, and
being the same race (Mishra, Lucksted, Gioia, Barnet, & Baquet, 2009).
Ward (2005) found that clients were constantly evaluating the practitioner’s effectiveness on the
basis of years of education, training, and experience working with African Americans.
Confidentiality-related concerns negatively influenced client-provider relationships (Leis et al.,
2011; Lindsey & Marcell, 2012; Thompson et al., 2011). Findings indicate that clients were
concerned that the information they disclosed in therapy could be used against them in the court,
especially when treatment was court-mandated (Ward, 2005).
The desire to be respected and understood by the provider was a common theme across studies
(Copeland & Snyder, 2010; Earl et al., 2011; Leis et al., 2011; Mulvaney-Day, Earl, Diaz-
Linhart, & Alegria, 2011). For example, African American women were concerned that
clinicians would not understand the unique societal challenges they encountered (Copeland &
Snyder, 2010). In their analysis of African American, Latino and White patients’ preferences for
relational styles in encounters with mental health providers, Mulvaney-Day et al. (2011) found
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that African American clients specifically emphasized the provider’s listening skills. They
wanted to be understood and were appreciated as experts of their lived experiences.
Barriers to Mental Health Help-Seeking. After further examination, four subthemes were
identified as barriers to mental health help seeking: stigma; structural barriers such as poverty,
racism, discrimination; reliance on other coping mechanisms; and fear (Brown et al., 2010;
Barksdale & Molock, 2009; Conner et al., 2010a; Copeland & Snyder, 2011; Lindsey & Marcell,
2012; Leis et al, 2011; Mishra, Lucksted, Gioia, Barnet, & Baquet, 2009; Neighbors et al., 2009;
Richman, Kohn-Wood, & Williams, 2007; Thompson et al., 2011; Ward, Clark, & Heidrich,
2009; Ward & Heidrich, 2009).
Among structural barriers, African American women identified poverty, lack of health insurance,
unemployment, housing issues, and low education as barriers to mental health service use (Ward
et al., 2009). Copeland and Snyder (2010) found that low-income women were not seeking
mental health treatment largely because of economic stressors and stress from conflicting roles in
their lives. Richman et al. (2007) explored the impact of race, discrimination, and racial identity
on mental health service use among African Americans. They found that past discrimination and
identity were more important than education and income in explaining disparities in mental
health service use.
The perception of racism and stigma were also identified as major barriers to seeking mental
health information and services (Conner et al., 2010b; Mishra et al., 2009). Brown et al. (2010)
found that African Americans reported more negative attitudes toward mental health treatment
than Whites. Both African Americans and Whites internalized stigma, which led to negative
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attitudes about mental health. One study found that among African American women,
internalized stigma and not the perception of mental illness by their community was a major
factor influencing help-seeking (Ward & Heidrich, 2009). On the other hand, among young
African American males, negative community beliefs about mental health care were barriers to
seeking treatment (Lindsey & Marcell, 2012). Among African Americans in their late
adolescence, family norms toward mental health treatment were the strongest predictor of help-
seeking intentions (Barksdale & Molock, 2009).
Cultural perceptions that African Americans are “strong” and do need mental health treatment
was another barrier. Lindsey and Marcell (2012) found that young adult African American males
were engaging coping activities in isolation or were engaging in negative coping mechanisms
such as drug use instead of seeking mental health treatment. Ward et al. (2009) found that
African American women were not seeking help because of their belief that Black women “had
to be strong,” or because they believed that they could handle it on their own. Women were
relying on their informal support groups, religious coping, reading, normalizing mental health
problems, and/or denying mental health issues altogether. An analysis of the National Survey of
American Life (NSAL) documented that African American older adults underutilized mental
health services but may be due to a variety of reasons (Neighbors et al., 2009). For example,
cultural perceptions that African Americans are “strong” and do need mental health treatment
was a barrier. Additional contributors were the belief that depression was normal and that
seeking treatment was a sign of weakness (Conner et al., 2010).
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Fear also appeared to hinder access to mental health services for African Americans (Copeland
& Snyder, 2011; Leis et al, 2011; Lindsey & Marcell, 2012; Thompson et al., 2011). The fear of
breached confidentiality emerged as a barrier to treatment-seeking for young adult males in a
study by Lindsey and Marcell (2012). Women may also have unique fears, such as the fear of
losing their children should they seek treatment (Copeland & Snyder, 2011). Another concern
noted across studies was the negative attitude toward psychotropic drugs (Leis et al., 2011);
including fear of overmedication (Copeland & Snyder, 2011) or of side effects (Thompson et al.,
2011).
Perceptions of Caribbean Blacks
Examining a sample of 150 Haitian immigrants living in the United States, Schwartz, Bernal,
Smith, and Nicolas (2012) found that Haitians were more likely to seek help from family rather
than mental health professionals. Jackson et al. (2007) found that Spanish-speaking Haitians
were more likely to report satisfaction with mental health than respondents from the English-
speaking Caribbean.
Perceptions of Africans
Piwowarczyk et al. (2014) examined both concepts of mental illness in addition to attitudes and
beliefs about treatment and potential barriers to seeking mental health treatment among a sample
(n= 296) of Congolese and Somali men and women in the U.S. They found that mental health
concerns were often first dealt within the family. Commonly, faith based coping methods were
used to address mental health issues. Also, the role of formalized mental health was not well
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understood, intact, participants were hesitant to seek services due to issues such as stigma.
Through a phenomenological study by Ezeobel, Malecha, Landrum & Symes, (2010), which
examined perceptions of depression among 19 Nigerian women living in the U.S., stigma was
associated with seeking mental health services. They avoided such stigma by relying more on
religious coping mechanisms. Seeking mental health services was stigmatizing when specifically
being diagnosed with depression. Many participants reported being isolated from family after
being diagnosed with depression due to stigma. DeJesus and Earl (2014) explored the
perceptions of the quality of mental health care among Brazilians and Cape Verdeans. Cape
Verdean is located off the coast of Africa. Focus groups of 24 Brazilians and 24 Cape Verdeans
who received outpatient mental health treatment in the U.S. found that aspects of mental health
care were linked to psychosocial and environmental factors.
DISCUSSION
Given the potential depth and breadth of the ways in which culture can mediate the expression of
what might be considered psychotic-like experiences, the accuracy of diagnosis and efficacy of
treatment for psychotic disorders depends on the recognition of potential racial, ethnic and
cultural variations and influences on symptom presentation. Not attending to socio-cultural
influences, limits diagnostic accuracy and the quality of psychiatric care for those who are most
in need. The systematic review suggests that social workers must be aware of the myriad of
perceptions associated with barriers to mental health care among African Americans, Africans,
and Caribbean Blacks. For African Americans, perceptions about mental health services
appeared to be associated with two major themes—mental health help-seeking and service use.
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Barriers to service use and help-seeking for African Americans were associated with perceived
discrimination and racism in care, distrust, and practitioner factors such as the perception of
practitioner expertise and the perceived quality of their listening skills. The review also revealed
additional perceptions that specifically affected help-seeking among African American women
such as their own stress and the belief that seeking treatment was a reflection of personal
weakness. Limitations to this study include the lack of research exploring the perceptions of
mental health services among Africans and Caribbean Blacks is the significant gap in literature.
The limited amount of studies, which focused on specific groups of Africans and Caribbean
Blacks living in the U.S. coming from different cultural backgrounds are not available and
therefore a limitation to this study. The few studies found that explored the topic of mental health
services perceptions among Africans and Caribbean Blacks revealed some similarities among
African Americans, but also highlight cultural differences that require additional attention. It is
important for additional research to also extrapolate perceptions of mental health among Africans
from various countries
Implications for Social Work Practice, Intervention and Prevention
Diversity, Culture and Practice
Discrimination and racism increase African Americans’ and Caribbean Blacks’ risk for mental
health problems (Clark, Salas-Wright, Vaughn, & Whitfield, 2014) and adversely affect their
access to mental health care (Conner et al., 2010; Mishra et al., 2009; Richman et al., 2007). The
perception of discrimination and racism in mental health services for African Americans
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appeared to be a significant barrier to care. While the relationship between discrimination and
racism was less clear among Africans and Caribbean Blacks, social workers and other mental
health professionals should be cognizant of the experiential and historical differences that may
influence these perceptions.
Research suggests that the perception of discrimination and racism by African Americans stems
from a history of racism and discriminatory health and medical research practices inclusive of
medical experimentation in slavery, involuntary family planning sterilization, and the Tuskegee
Syphilis Study, which revealed unethical medical practices conducted by the United States
Public Health Service (Boulware et al., 2003; Washington, 2006). It is this legacy of
maltreatment that may influence perceptions of distrust, racism, and discrimination about mental
health by some African Americans. African Americans integrate experiences from previous
social or clinical interactions to appraise current clinical encounters (Earl et al., 2011) and
transfer experiences of perceived discrimination and racism to future relationships with
providers.
The relationship between perceived discrimination and satisfaction with mental health is less
clear for Caribbean Blacks. Jackson et al. (2007) found that Spanish-speaking Caribbean Blacks
and Haitian respondents are more satisfied with mental health and medical services than are
respondents from predominantly English-speaking parts of the Caribbean. In a seminal study
conducted by Eaton and Garrison (1992) it found that Haitians reported more discrimination and
less satisfaction with mental health and with life in the U.S. than Cuban refugees. The study
examined differences in psychopathology and use of the mental health system among 952 Cuban
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and Haitian refugees living in Florida. Additional research is needed to explore the possible
impact of discrimination and racisim on mental health services use among Caribbean Blacks and
Africans living in the U.S.
The review revealed one study conducted by Jackson et al. (2007), which found both African
Americans and Caribbean Blacks utilized formal mental health infrequently, but U.S.–born
individuals were more likely to receive care than first-generation immigrants. There is also a
need to explore the phenomenon of “the immigrant paradox” for Caribbean immigrants.
According to the immigrant paradox, the longer the immigrants stay in the U.S., the more mental
health problems they have (Suarez-Orozco, Todorova, & Qin, 2006). The relationship between
the generation status of immigrants on their perceptions and use of mental health status should be
further investigated. Miranda, Siddique, Belin, and Kohn-Wood (2005) found that Black women
born outside the United States (in Africa or the Caribbean) were less likely to screen positive for
depression. However, the longer they lived in the United States, the more likely they were to
screen positive for depression. Social workers should be aware of the impact of immigration on
the mental health risk of Caribbean Blacks. Additionally, more needs to be known about the
impact of immigration on mental risk and access among Africans living in the U.S. as well.
Social workers must pay attention to structural racism, its implications, and underlying
ideologies that foster discrimination against individuals (Viruell-Fuentes, Miranda, &
Abdulrahim, 2012). Social workers are mental health providers and can act as conduits and
facilitators of communication between patients and providers (Gaston, Gutierrez, & Nisanci,
2014). They should actively engage in dialogue with their clients and health care professionals in
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their practice settings about the everyday realities of African, African American, and Caribbean
Black clients that include experiences of racial discrimination and oppression.
The most salient cultural barrier found was stigma attached to mental health problems and
treatment among African Americans, Africans, and Caribbean Blacks. Research suggests that
stigma related to accessing and engaging in mental health treatment often discourages patients
from pursuing care (Hine, Howell, & Yonkers, 2008; Corrigan, 2004). Stigma is a well-
documented barrier for African Americans’ access to mental health care (Brown et al., 2010;
Conner et al., 2010b; Mishra et al., 2009). The pressure to be “strong” may be one factor that
perpetuates mental health stigma among African American women. For example, Ward et al.
(2009) found that the normalization of challenging life conditions and community pressure to be
a “strong Black person” decrease African Americans’ awareness of their need for treatment.
Social workers can challenge such issues related to stigma by educating clients and the
community about mental health (Kohli, 2012; Mishra et al., 2008). Secondly, attempting to
integrate family and other sources of support will aid in the treatment process (Schwartz, Bernal,
Smith, Nicholas, 2014). Educating clients and their support system can also serve to address
potential barriers to treatment (Kohli, 2012). Finally, social workers can also work individually
with clients to deconstruct narratives and reduce self-blame about mental health issues related to
maneuvering significant structural barriers such as poverty, lack of community resources,
unemployment/underemployment, and discrimination (Corrigan, 2004; Kohli, 2012; Misra,
2008; Mulvaney-Day, 2011).”
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It would also be important for scholars to explore whether a similar phenomenon exists among
Caribbean Blacks. To date, there is a paucity of research on Caribbean Blacks’ perceptions of
mental health and U.S.–based mental health services, even though they are the largest Black
immigrant population. We found no information on mental health perceptions among individuals
from Jamaica, the Dominican Republic, Trinidad and Tobago, and only two studies on those
from Haiti. Although it is unclear if this preference is related to stigma, one study on Haitians
residing in the United States shows that they prefer to seek assistance from family versus mental
health professionals, (Schwartz et al., 2012). Nadeem, Lange, Edge, Fongwa, Belin, & Miranda
(2007) found that, among a sample of 15,383 immigrant and U.S.–born Black and Latina
women, African and Caribbean immigrants were more likely to worry about stigma related to
mental health care. This raises concerns of stigma being an issue for Caribbean Blacks.
Some international studies also support this idea and associate stigma with reduced mental health
access among Caribbean’s. Youssef, Bachew, Bodie, Leach, Morris, and Sherma (2012) studied
knowledge and attitudes about mental illness among a sample of 673 individuals from university
campuses in Jamaica, Barbados, and Trinidad and Tobago and found that stigma is associated
with being diagnosed with schizophrenia and substance abuse. These findings suggest that
educational campaigns may be needed to reduce stigma and discrimination for individuals with
certain mental health issues. Similarly, Arthur, Hickling, Hickling-Robertson, Haynes-Robinson,
Abel, and Whitney (2010) in a study of 126 socioeconomically diverse individuals from
Kingston, Jamaica, found that barriers to mental health include perceptions of stigma, negative
associations of mental illness with “madness,” and avoidance. More research needs to explore if
stigma affects mental health use among Caribbean Blacks living in the U.S.
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The literature revealed only two studies on African immigrant perceptions of mental health in the
United States. While themes could not be generated, stigma appeared to influence perceptions of
mental health services (Ezeobele, 2010; Piwowarczyk et al., 2014). Similarly, in an international
study conducted in South Africa, Egbe et al (2014) found among a sample of 77 South African
mental health services users that stigma was perpetuated by family members, friends, employers,
community leaders and health providers. The authors suggested that mental health services
aimed at treating this population should integrate the patient’s support system and teach the
patient how to deal with internalized stigma. It is important for additional research to extrapolate
perceptions of mental health among Africans from various countries. The African continent is
rich in diversity; researchers and social workers need to continue to explore the specific needs of
African immigrants from specific countries.
Conclusion
It is important for social workers to help create an environment where mental health perception
barriers can be addressed by engaging in culturally specific practice. Multilayered and complex
factors appear to affect African Americans,’ Africans, and Caribbean Blacks’ access to and use
of mental health services. Diversity within the Black population calls for additional research that
explores perception barriers about mental health among African Americans, Africans, and
Caribbean Blacks. The increasing recognition of culture as an important factor in public health
and communication has the potential to contribute to the development of new and more effective
strategies to help eliminate health (Kreuter & McClure, 2004) and behavioral health disparities.
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Of concern was the limited number of studies that focused on specific groups of Africans and
Caribbean Blacks living in the U.S. Social workers need to be aware that African and Caribbean
clients might be coming from different cultural backgrounds and may be facing challenges that
stem from immigrant status and history. Behavioral health specialists should be clinically
trained, bi-lingual, and culturally competent social workers or psychologists (Manoleas, 2008).
In the end, the paucity of research that extrapolates intra-group diversity among Black
Americans in the U.S. underscores the need for a deeper understanding of this complex interplay
of attitudes, barriers, and other forces influencing perceptions of mental health services and
subsequent access to care.
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Table 1—Total of Number of Studies Reviewed,
Population
Total Number
of Studies
Reviewed
Studies Meeting
Search Criteria
Total included in the
Review
African Americans 345 197 23
Caribbean Blacks 121 42 2
Africans 38 7 2
Mixed Population 56 32 3
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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2002-2014
Study Research
Focus
Research
Design
Sample
Size
Population Key Findings Subthemes
Alvidrez
et. al.
2010
Examine
whether
stigma and
other
concerns
about
entering
treatment
had an
impact on
engagement
and service
use across 3
months.
Quantitative 42 African
Americans
African
American men
and those with
more education
perceived more
stigma in
mental health
care. However,
perceived
stigma was not
related to
treatment
engagement.
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Barksdale
and
Examine
whether
Cross-
sectional
219 African
Americans
Individually,
peer and family
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anuscript
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Molock,
2009
perceived
negative
peer and
family
norms
about help
seeking
influence
help-
seeking
intentions.
internet
survey
norms were
related to help-
seeking
intentions.
Individuals
with higher
negative family
norms had
lower help-
seeking
intention scores
(strongest
predictor).
Family
influence is a
unique
predictor for
African
Americans.
Brown et. Examine
level of
Telephone 449 African
American
The
internalization
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anuscript
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al. 2010 depressive
symptoms,
stigma and
treatment
related
attitudes
and
behaviors.
survey and
White.
of stigma is key
in the
development of
negative
attitudes
toward mental
health
treatment
among African
Americans.
Conner
et. al.
2010
Explore
attitudes
and beliefs
about
depression
and mental
health
treatment.
Qualitative 42 Older
adult
African
Americans
Barriers to
treatment were
perceptions of
depression
(“this is
normal”, not
recognizing
symptoms), the
African
American
experience
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
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anuscript
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(racism,
discrimination),
treatment
weakness and
last resort, and
negative
beliefs.
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anuscript
34
Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research
Focus
Research
Design
Sample
Size
Population Key Findings Subthemes
Conner
et al.,
2010
Examine
older adult
African
Americans
with
depression
perceptions
of barriers to
seeking
mental
health
treatment.
Qualitative 37 African
American
older
adults
Participants
reported fear of
stigma, mistrust
of mental health
treatment, lack
of access, sense
of being too old
to seek
treatment, and
the lack of
recognition of
mental health
symptoms due
to persistent
stress in the
community were
barriers to
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Subthemes
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anuscript
35
mental health
treatment
seeking.
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Copeland
and
Snyder
2011
Explore
barriers to
mental
health care
among
women that
sought care
for their
children, but
not
themselves.
Qualitative 64 African
American
women
Barriers to
seeking mental
health treatment
was the fear of
losing their
children,
economic
stressors, and
beliefs that
providers were
not trustful and
would
overmedicate
them.
Earl et.
al. 2011
Explore the
initial
interpersonal
Qualitative 25 African
American
patients
Patients have
previous within
and outside
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interactions
between
African
American
patients and
their non-
African
American
mental
health
providers.
and their
non-
African
American
providers
treatment
experiences
(discrimination,
mistrust, and
stereotyping)
that can lead to
healthy cultural
paranoia
(caution and
skepticism).
Facilitators of
good
interactions
were discussed.
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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research
Focus
Research
Design
Sample
Size
Population Key Findings Subthemes
Hines-
Martin et.
al. 2003
Examine
the barriers
to mental
health care
service use
among
low-
income
African
Americans.
Qualitative 24 African
Americans
Individual
barriers were
fear, denial,
economic, and
values.
Environmental
barriers were
family issues,
community,
and resources.
Institutional
barriers were
time,
limitations,
gatekeepers
and rules.
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Subthemes
Discrimination
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anuscript
38
Leis et. al.
2011
Explore
perceptions
of mental
health
services
and its
effect on
service use
among
clients
from a
home
visiting
program.
Qualitative 64 African
Americans
Overall,
perceptions of
mental health
services were
negative.
Negative
perceptions
included
beliefs that
providers gave
medications
without
listening,
concerns about
confidentiality,
suspicion
about
psychotherapy
and
psychotropic
drugs.
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
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anuscript
39
Leis, J. A.,
Mendelson,
T., Perry,
D. F., and
Tandon, D.
T., 2011
Explore
perceptions
of mental
health
services as
a barriers
to use
among
perinatal
African
American
women.
Qualitative 38
clients
26
staff
African
American
women
Perceptions of
mental health
were negative
with many
participants
believing that
stigma, lack of
confidentiality,
psychotropic
medication,
and
questionable
effectiveness
of
psychotherapy
was significant
barriers to
mental health
treatment
seeking.
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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research
Focus
Research
Design
Sample
Size
Population Key
Findings
Subthemes
Lindsey
and
Marcell,
2012
Explore
African
American
males’
perceptions
of help-
seeking for
mental
health.
Qualitative 27 Young
adult
African
American
men
Barriers to
mental
health
seeking were
engaging in
coping
activities in
isolation, at
the social
level (drug
use), and
negative
community
beliefs about
mental
health.
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
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anuscript
41
Mishra et.
al. 2009
Better
understand
mental and
illness
information
and service
delivery
preferences.
Qualitative 42 African
Americans
Providers
should be
non-
threatening,
credible,
accessible,
and
incorporate
spirituality in
treatment.
Stigma and
perceptions
of racism as
barriers to
seeking
treatment.
Mulvaney-
Day et. al.
2011
Examine
preferences
for
relational
Qualitative 51 African
American,
Latino,
and White.
No primary
differences
in major
preferences
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42
styles in
encounters
with mental
health
providers
among a
diverse
sample.
among
ethnic
groups.
However,
African
American
patients
believed it
was
important to
be
understood
and
respected as
experts.
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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research
Focus
Research
Design
Sample
Size
Populatio
n
Key Finding Subthemes
Murry,
Heflinger
, Suiter,
and
Brody,
2011
Examine
perception
s about
mental
health and
help-
seeking
among
rural
families of
adolescent
s with
mental
illness
Mixed
method
163
(survey)
21
(qualitativ
e
interviews
)
African
American
mothers
Preferences
for social
support were
family,
religious
institutions,
and school.
Stigma and
cultural
mistrust were
barriers to
help seeking.
Discriminatio
n
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Subthemes
Neighbor Examine Quantitativ 55 Older Mental health
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44
s et. al.
2009
mental
health
services
utilization.
e African
American
s
services were
underutilized.
Those who
were 65 and
older were
less likely to
receive
mental health
or general
medical
treatment
compared to
those under
the age of 65.
Participants
with a high
school
education or
higher were
more likely to
use mental
health
Discriminatio
n
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
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45
services.
Newhill
and
Harris,
2007
Explore
how
African
American
consumers
of mental
health
perceive
and
experience
disparities
in
accessing
and
utilizing
mental
health
services.
Qualitative 35 African
American
men and
women
Participants
reported that
the fear of
stigma was a
barrier to help
seeking.
Suggestions
to ameliorate
this issue
would be for
practitioners
to outreach
and engage
pastors and
their
congregations
. Another
barrier was
the shortage
of African
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anuscript
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American
psychiatrists
and therapist.
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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research Focus Research
Design
Sampl
e Size
Populatio
n
Key Findings Subthemes
Richman
et. al.
2007
Examine the
role of race,
discrimination
and racial
identity in
explaining
mental health
service
utilization.
Quantitativ
e
955 African
American
and
White
adults.
Past
discrimination
and identity
variables are
more
important than
structural
variables such
as education or
income in
explaining
mental health
utilization.
Discriminatio
n
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Subthemes
Sanders-
Thompso
n, Bazile,
Examine
beliefs
regarding
Qualitative 201 African
American
men and
Participants
associated the
term
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and
Akbar,
2004
psychotherapist
s,
psychotherapy,
and barriers to
seeking mental
health
treatment.
women psychotherapy
with stigma.
Psychologists
were perceived
to be White
male elitists
who were
unsympathetic,
uncaring, and
unavailable.
They preferred
the term
counseling.
Barriers to
treatment were
stigma,
financial costs,
and the lack of
recognition of
mental health
issues.
Discriminatio
n
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
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anuscript
49
Thompso
n et. al.
2011
Explore
participants’
past experience
and satisfaction
with mental
health services.
Qualitative 40 African
American
s mothers
and their
youths.
About half of
the mothers
dissatisfied
with services.
Group and
family therapy
was positively
regarded.
Dissatisfaction
centered on
medication
concerns, lack
of
professionalis
m,
confidentiality,
and poor
quality
treatment.
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Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research
Focus
Research
Design
Sample
Size
Population Key Findings Subthemes
Thurston
and
Phares,
2010
Examine
the
influence of
parents’
gender,
race, and
mental
health on
perceived
barriers and
attitudes
about
treatment.
Quantitative 194 African
American
and White
parents.
White parents
were not
significantly
different in
child-related
attitudes.
White parents
did perceive
fewer barriers
to treatment
utilization for
themselves and
their children
than did
African
American
Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
51
parents. Discrimination
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Ward
2005
Examine
African
American
client’s
subjective
experiences
in
counseling.
Qualitative 13 African
Americans
Participants
engaged in
continuous
assessment of
client-therapist
match
(salience of
Black identity,
confidentiality,
and similarity
in ideology
and
perspectives
about
parenting),
safety, and
previous
experience
working with
African
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
52
Americans.
Ward
and
Heidrich
2009
Examine
beliefs
about
mental
illness,
coping
behaviors,
and
treatment
seeking.
Exploratory,
cross-
sectional
survey.
185 African
American
women
83% reported
feeling
comfortable
talking to a
mental health
professional.
60% would not
be
embarrassed if
friends knew
they were
seeking mental
health
treatment.
However,
stigma was
significantly
related to
treatment
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
53
seeking.
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
54
Table 2—Summary of Studies that Explore African American Perceptions of Mental Health,
2003-2013
Study Research
Focus
Research
Design
Sampl
e Size
Population Key Findings Subthemes
Ward et.
al. 2009
Examine
beliefs about
mental
illness,
coping
behaviors,
barriers to
treatment
seeking.
Qualitative 15 African
American
women
Individual
level barriers
were more
prevalent than
systemic
barriers.
Treatment-
seeking
barriers
included poor
access to care
(agency and
socioeconomic
issues),
stigma, and
lack of
awareness of
Discriminatio
n
Stigma
Peer/Family
Support
Mistrust
Racism
Economic
stress
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
55
mental illness.
Ward,
Wiltshire
, Detry,
and
Brown,
2013
Examine
African
Americans’
beliefs about
mental
illness, help
seeking, and
coping
mechanisms
.
Quantitativ
e
272 African
American
men and
women
Participants
were not very
open to
acknowledgin
g
psychological
problems due
to stigma
concerns.
Participants
were
somewhat
open to
seeking help,
but preferred
religious based
coping
mechanisms.
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
56
Williams
et al.,
2007
Examine the
prevalence
of
psychiatric
disorders
among
Black
Caribbean
immigrants
and African
Americans.
Quantitativ
e
6082 African
Americans
,
Caribbean
Black, and
non-
Hispanic
Whites.
Compared to
African
American
men,
Caribbean
Black men had
higher risk for
psychiatric
disorders.
Haitian and
Spanish men
had lower
odds for mood
disorders than
men from
English-
speaking
Caribbean.
Third
generation
Caribbean
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
57
Blacks had
elevated rates
of psychiatric
disorders than
first and
second
generation.
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
58
Table 3— African and Caribbean Black Perceptions of Mental Health Services in the United
States, 2002-2014
Study Research
Focus
Research
Design
Sample
Size
Population Key Findings
Jackson et al.,
2007
Examine the
use and
correlates of
formal
psychiatric
services
between U.S
born and
immigrant
Caribbean
Blacks.
Quantitative 3570 Spanish-
speaking
Caribbean’s,
Haitians, and
English-
speaking
Caribbean’s.
Haitian
respondents were
more likely to
report satisfaction
for specialty
mental health and
African
Americans.
Caribbean Blacks
from English-
speaking
countries were
less likely than
those from
Spanish-speaking
Caribbean and
Haiti as less
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
59
helpful.
Schwartz,
Bernal, Smith,
and Nicolas,
2012
Examines
help-seeking
patterns of
behavior
among
Haitian
immigrants
living in the
U.S.
Quantitative 150 Haitian
immigrants
living in the
U.S.
Participants were
least likely to go
to professionals
for mental health
services.
Participants relied
upon family or
relatives
regardless of the
problem.
Piwowarczky
et al., 2014
Examined
both concepts
of mental
illness in
addition to
attitude and
beliefs about
treatment and
barriers to
Mixed
methods
344 Congolese
and Somali
immigrants
Mental health
concerns were
often dealt with in
the family. Faith
based coping was
used to address
mental health
concerns.
Formalized
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
60
seeking
treatment
among
Congolese
and Somali
men and
women living
in the U.S.
mental health
services in the
U.S. were not
well understood
by the sample.
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
61
Table 3— African and Caribbean Black Perceptions of Mental Health Services in the United
States, 2002-2014
Study Research Focus Research Design Sample
Size
Population Key Findings
Ezeobele
2010
Examined
perceptions of
depression
among Nigerian
immigrant
women living in
the U.S.
Phenomenological
study
19 Nigerian
immigrant
women
Stigma was a
major barrier to
seeking mental
health services.
Participants
reported being
isolated from
family after
being
diagnosed with
depression.
Religious
coping was
used more than
formalized
mental health
Downloadedby[blakeglomb]at06:5802February2016
Accepted
M
anuscript
62
services.
DeJesus
and Earl
2014
The aim of this
study was to
identify
indicators of
quality of mental
health care that
matter most to
two
underrepresented
immigrant
patient groups:
Brazilians and
Cape Verdeans.
Qualitative; focus
groups
24
Brazilians
and 24
Cape
Verdeans
Brazilians
and Cape
Verdeans
The
effectiveness of
mental health
care treatment
was related to
two categories
inclusive of the
therapeutic
relationship
and treatment
outcomes.
Downloadedby[blakeglomb]at06:5802February2016

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Mental Health Stigma pub1

  • 1. Full Terms & Conditions of access and use can be found at http://www.tandfonline.com/action/journalInformation?journalCode=wsmh20 Download by: [blake glomb] Date: 02 February 2016, At: 06:58 Social Work in Mental Health ISSN: 1533-2985 (Print) 1533-2993 (Online) Journal homepage: http://www.tandfonline.com/loi/wsmh20 Perception of Mental Health Services among Black Americans Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA & Blake Glomb BA To cite this article: Gina B. Gaston PhD, LCSW, Tara R. Earl MSW, PhD, Aslihan Nisanci MSW, MA & Blake Glomb BA (2016): Perception of Mental Health Services among Black Americans, Social Work in Mental Health, DOI: 10.1080/15332985.2015.1137257 To link to this article: http://dx.doi.org/10.1080/15332985.2015.1137257 Accepted author version posted online: 01 Feb 2016. Submit your article to this journal View related articles View Crossmark data
  • 2. Accepted M anuscript 1 Perception of Mental Health Services among Black Americans Corresponding Author: Gina B. Gaston, PhD, LCSW Assistant Professor University of Illinois at Chicago Jane Addams College of Social Work 1040 West Harrison, (M/C 309) Chicago, Illinois 60607 ggasto3@uic.edu Tara R. Earl, MSW, PhD ICF International, Public Health and Survey Research, 3 Corporate Boulevard Northeast #370, Atlanta, United States tara.r.earl@gmail.com Aslihan Nisanci, MSW, MA Downloadedby[blakeglomb]at06:5802February2016
  • 3. Accepted M anuscript 2 PhD Student University of Illinois at Chicago Jane Addams College of Social Work 1040 West Harrison, (M/C 309) Chicago, Illinois 60607 anisan2@uic.edu Blake Glomb, BA MSW Student University of Illinois at Chicago Jane Addams College of Social Work 1040 West Harrison, (M/C 309) Chicago, Illinois 60607 Abstract As the Black Americans’ population becomes more diverse, it is important to extrapolate differences amongst individuals who have historically been grouped as Black or African American in the literature. This review systematically explores differences in the perceptions of mental health services among Black Americans of African American, African, and Caribbean Downloadedby[blakeglomb]at06:5802February2016
  • 4. Accepted M anuscript 3 Black descent. Thirty studies were included in the analysis. The paucity of literature limited the author’s ability to identify themes substantial themes for Africans and Caribbean Blacks, stigma, discrimination, and racism mired the perceptions of mental health services for African Americans. The findings underscored the need for more research to be able to adequately identify and better understand important and nuanced differences in perceptions of mental health within the Black American population. Implications for how to better serve Black Americans through social work practice, intervention and prevention are discussed. Keywords: African Americans, Africans, Caribbean Blacks, perceptions, mental health services, stigma, discrimination, racism, Black Americans, Social work INTRODUCTION As the American population becomes more diverse, acknowledging important cultural differences and perceptions of care amongst subgroups of people of African descent becomes paramount (Lincoln, Chatters, Taylor, & Jackson, 2007; U.S. Census, 2011). Identifying as “Black” in the United States can include a heritage of Caribbean or West Indian, African, or another non-American descent. For the purposes of this paper, we focus on African Americans, Africans and Caribbean Blacks. Collectively, Black Americans alone—not including Blacks of multiple races—encompass about 13.2% of the U.S. population (U.S. Census 2014). Albeit not easy to discern, within the Black American population, approximately 1.6 million (4%) identify as being African (e.g. Ghanaian or Kenyan) and 1.7 million (4.4%) report as being of Caribbean Downloadedby[blakeglomb]at06:5802February2016
  • 5. Accepted M anuscript 4 Black decent (e.g., Haitian or Jamaican) (American Community Survey; Logan & Deane, 2003; Migration Policy Institute, 2012). While significant differences between African Americans and Caribbean Blacks on measures of physical health have been widely reported (Singh & Siahpush, 2002; Read, Emerson, Taylor, 2005; Read, & Emerson, 2005), considerably less is known about variations in mental health, despite a small, yet growing, body of evidence (Earl & Williams, 2008; Jackson et al., 2007). In order to ensure equitable access to adequate care for Black Americans, it is important to understand the complex role culture and diversity play within race. These factors impact how symptoms of mental illness are expressed, understood and ultimately diagnosed (Earl, Fortuna, Gao, Williams, Neighbors, Takeuchi, & Alegría, 2014). Understanding the impact of a person’s cultural background on their perceptions about mental health treatment is especially important given that, for some, seeking mental health care may not be something with which they are familiar (World Health Organization, 2011); Migration Policy Institute, 2012; Miranda et al., 2005). For example, as a result of the earthquake that crippled Haiti in 2010, the dearth of mental health services and infrastructure within the country was brought to national attention and in Africa less than 1% of the total healthcare budget is allocated to mental health (Bird et al., 2010). Social workers comprise nearly half of the behavioral health care workforce therefore it is essential for them to be trained in specialized skills to provide evidence-based behavioral health services (Rosen, 2003; Walrath et al., 2006) that facilitate mental health care among this diverse population. While there are common experiences across the Black American community, there is also a great deal of heterogeneity that requires social workers and other mental health service Downloadedby[blakeglomb]at06:5802February2016
  • 6. Accepted M anuscript 5 providers to understand and be able to provide high quality care that is appropriately tailored to the unique needs of their patients (Rosen, 2003). SYSTEMTIC LITERATURE REVIEW APPROACH In an effort to help the field better understand and disentangle important differences in perceptions of mental health care within the Black American population We systematically reviewed the literature using Medline, PsychInfo, Academic Search Complete, PubMed, Ebsco, and Social Work Abstracts. Our search was guided by a combination of key words that focused on mental health care, patient perceptions of mental health care and ethnic variations of Black Americans. We specifically sought to include peer-reviewed articles because these are more widely reviewed to inform clinical practice and service delivery. We included a broad range of articles that were published between 2002 and 2014 and emphasized care and perceptions of American and/or foreign-born Blacks who resided in the states. Examples of key words included, mental health, perceptions of care and/or treatment, mental health, mental health communication, patient and provider communication, culture competence, trauma, clinical encounter, and communication styles. In order to discuss literature that represented the diversity within the Black American population, we looked for articles that used the terms like, African American, Black, African, Haitian, Jamaican, Dominican, Trinidad and Tobago, Afro Caribbean, Caribbean Black, immigrant, and refugee. Downloadedby[blakeglomb]at06:5802February2016
  • 7. Accepted M anuscript 6 ANALYSIS STRATEGY We used a three-step process to identify the studies that met our inclusion criteria. The first step involved examining all studies that were (1) published in peer-reviewed journals, (2) that were specifically focused on mental health, (3) recruited African Americans, Africans, and/or Caribbean Black participants, and (4) included African and Caribbean Blacks (foreign- or U.S.–born) who lived in the United States at the time of the study. Any differences between foreign-born and U.S.–born Africans and Caribbean Blacks will be identified. Studies were excluded from the review if results were not reported separately by race and nationality of the participants. A total of 560 studies were reviewed. See Table 1 for the total number of studies reviewed by population. Upon further examination, a total of 278 out of 560, met possible inclusion in the study. We were interested exclusively in studies that met at least one of two search criteria. Studies must have examined: (1) the perceptions of mental health services among specific African and Caribbean Black groups, and/or (2) the perceptions of mental health services among African Americans. The review was expanded to include peer-reviewed studies published from January 2002 and December 2014. The second step involved reviewing and employing thematic analysis of the 278 studies. Two members of the team conducted independent reviews of the literature using the specified key words as a guided framework. Matrixes were constructed and used by the researchers in order to allow for study comparison and identification of emergent themes. The matrixes included the Downloadedby[blakeglomb]at06:5802February2016
  • 8. Accepted M anuscript 7 author(s), date of publication, methodology used, study participants inclusive of racial/ethnic groups and nationality, location of the study to ensure individuals living in the U.S. were the subject of the study, results, and study recommendations. The team members met weekly to review and discuss their independent findings until they reached consensus. Matrixes were then compiled and categorized according to African American, Caribbean Black, and African participants. In the end, we found 30 studies that met the inclusion criteria. Twenty- three of the studies examined African Americans’ perceptions of mental health care. See Table 2 for studies examining African Americans’ perceptions of mental health services. Two studies examined perceptions of mental health services among Caribbean Blacks. Two studies examined perceptions of mental health services among Africans living in the United States. Three studies included mixed populations. See Table 3 for Caribbean Black, African, and mixed population perceptions. The final step involved using the matrixes to identify emergent themes. Two raters (the principal author and the PhD student) were used to identify themes. Raters independently reviewed each study, wrote notes regarding possible themes, and met twice weekly until there was agreement about emergent themes. The total review process took approximately 6 months to complete. EMERGENT THEMES Two primary themes emerged that seemed to best describe the perceptions of mental health care within the literature. The themes were: (1) perceptions that influenced service use and (2) perceptions related to barriers to mental health help-seeking. Subthemes for African American Downloadedby[blakeglomb]at06:5802February2016
  • 9. Accepted M anuscript 8 participants are also displayed in Table 2. Subthemes and themes could not be identified for African and Caribbean Blacks due to the paucity of studies found. RESULTS Overall, as shown in Tables 2 and 3, of the 30 studies reviewed, 23 focused on African Americans, 2 focused Africans, 2 focused on Caribbean Blacks, and 3 included a combination of Black Americans. There were a number of studies that met the inclusion criteria, informed perceptions about mental health service use, discussed “African Americans” or “Blacks”, but did not identify or discuss ethnicity or country of origin. Therefore, we present the findings in an order that aligns with the number of available articles that were reviewed for each of the three subgroups of Black Americans. Perceptions of African American Service Use and Access. African Americans’ negative perception of mental health and the mental health system was identified as a barrier to service use. Their experiences of societal discrimination may lead to skepticism and distrust of the mental health system (Copeland & Snyder, 2010; Earl, Alegría, Mendieta, & Linhart, 2011). We identified three reasons for varying service use among African Americans. A client’s trust in their provider was one important reason; a service provider’s competence was a second theme found in the review and a client feeling that they were respected by their provider were all common themes in service use among African Americans. Downloadedby[blakeglomb]at06:5802February2016
  • 10. Accepted M anuscript 9 The importance of trust and comfort with the provider were common reasons across various studies (Earl et al., 2011; Leis, Mendelson, Perry, & Tandon, 2011; Lindsey & Marcell, 2012; Thompson, Dancy, Wiley, Perry, & Najdowski, 2011; Ward, 2005). African Americans identified several dimensions of trust including the need for providers to be nonthreatening and reassuring. It was important that providers be emotionally and personally accessible. Having similar spiritual beliefs would also help the client trust their provider. Participants also preferred their provider to have professional credibility, which was defined as having expertise, fame, and being the same race (Mishra, Lucksted, Gioia, Barnet, & Baquet, 2009). Ward (2005) found that clients were constantly evaluating the practitioner’s effectiveness on the basis of years of education, training, and experience working with African Americans. Confidentiality-related concerns negatively influenced client-provider relationships (Leis et al., 2011; Lindsey & Marcell, 2012; Thompson et al., 2011). Findings indicate that clients were concerned that the information they disclosed in therapy could be used against them in the court, especially when treatment was court-mandated (Ward, 2005). The desire to be respected and understood by the provider was a common theme across studies (Copeland & Snyder, 2010; Earl et al., 2011; Leis et al., 2011; Mulvaney-Day, Earl, Diaz- Linhart, & Alegria, 2011). For example, African American women were concerned that clinicians would not understand the unique societal challenges they encountered (Copeland & Snyder, 2010). In their analysis of African American, Latino and White patients’ preferences for relational styles in encounters with mental health providers, Mulvaney-Day et al. (2011) found Downloadedby[blakeglomb]at06:5802February2016
  • 11. Accepted M anuscript 10 that African American clients specifically emphasized the provider’s listening skills. They wanted to be understood and were appreciated as experts of their lived experiences. Barriers to Mental Health Help-Seeking. After further examination, four subthemes were identified as barriers to mental health help seeking: stigma; structural barriers such as poverty, racism, discrimination; reliance on other coping mechanisms; and fear (Brown et al., 2010; Barksdale & Molock, 2009; Conner et al., 2010a; Copeland & Snyder, 2011; Lindsey & Marcell, 2012; Leis et al, 2011; Mishra, Lucksted, Gioia, Barnet, & Baquet, 2009; Neighbors et al., 2009; Richman, Kohn-Wood, & Williams, 2007; Thompson et al., 2011; Ward, Clark, & Heidrich, 2009; Ward & Heidrich, 2009). Among structural barriers, African American women identified poverty, lack of health insurance, unemployment, housing issues, and low education as barriers to mental health service use (Ward et al., 2009). Copeland and Snyder (2010) found that low-income women were not seeking mental health treatment largely because of economic stressors and stress from conflicting roles in their lives. Richman et al. (2007) explored the impact of race, discrimination, and racial identity on mental health service use among African Americans. They found that past discrimination and identity were more important than education and income in explaining disparities in mental health service use. The perception of racism and stigma were also identified as major barriers to seeking mental health information and services (Conner et al., 2010b; Mishra et al., 2009). Brown et al. (2010) found that African Americans reported more negative attitudes toward mental health treatment than Whites. Both African Americans and Whites internalized stigma, which led to negative Downloadedby[blakeglomb]at06:5802February2016
  • 12. Accepted M anuscript 11 attitudes about mental health. One study found that among African American women, internalized stigma and not the perception of mental illness by their community was a major factor influencing help-seeking (Ward & Heidrich, 2009). On the other hand, among young African American males, negative community beliefs about mental health care were barriers to seeking treatment (Lindsey & Marcell, 2012). Among African Americans in their late adolescence, family norms toward mental health treatment were the strongest predictor of help- seeking intentions (Barksdale & Molock, 2009). Cultural perceptions that African Americans are “strong” and do need mental health treatment was another barrier. Lindsey and Marcell (2012) found that young adult African American males were engaging coping activities in isolation or were engaging in negative coping mechanisms such as drug use instead of seeking mental health treatment. Ward et al. (2009) found that African American women were not seeking help because of their belief that Black women “had to be strong,” or because they believed that they could handle it on their own. Women were relying on their informal support groups, religious coping, reading, normalizing mental health problems, and/or denying mental health issues altogether. An analysis of the National Survey of American Life (NSAL) documented that African American older adults underutilized mental health services but may be due to a variety of reasons (Neighbors et al., 2009). For example, cultural perceptions that African Americans are “strong” and do need mental health treatment was a barrier. Additional contributors were the belief that depression was normal and that seeking treatment was a sign of weakness (Conner et al., 2010). Downloadedby[blakeglomb]at06:5802February2016
  • 13. Accepted M anuscript 12 Fear also appeared to hinder access to mental health services for African Americans (Copeland & Snyder, 2011; Leis et al, 2011; Lindsey & Marcell, 2012; Thompson et al., 2011). The fear of breached confidentiality emerged as a barrier to treatment-seeking for young adult males in a study by Lindsey and Marcell (2012). Women may also have unique fears, such as the fear of losing their children should they seek treatment (Copeland & Snyder, 2011). Another concern noted across studies was the negative attitude toward psychotropic drugs (Leis et al., 2011); including fear of overmedication (Copeland & Snyder, 2011) or of side effects (Thompson et al., 2011). Perceptions of Caribbean Blacks Examining a sample of 150 Haitian immigrants living in the United States, Schwartz, Bernal, Smith, and Nicolas (2012) found that Haitians were more likely to seek help from family rather than mental health professionals. Jackson et al. (2007) found that Spanish-speaking Haitians were more likely to report satisfaction with mental health than respondents from the English- speaking Caribbean. Perceptions of Africans Piwowarczyk et al. (2014) examined both concepts of mental illness in addition to attitudes and beliefs about treatment and potential barriers to seeking mental health treatment among a sample (n= 296) of Congolese and Somali men and women in the U.S. They found that mental health concerns were often first dealt within the family. Commonly, faith based coping methods were used to address mental health issues. Also, the role of formalized mental health was not well Downloadedby[blakeglomb]at06:5802February2016
  • 14. Accepted M anuscript 13 understood, intact, participants were hesitant to seek services due to issues such as stigma. Through a phenomenological study by Ezeobel, Malecha, Landrum & Symes, (2010), which examined perceptions of depression among 19 Nigerian women living in the U.S., stigma was associated with seeking mental health services. They avoided such stigma by relying more on religious coping mechanisms. Seeking mental health services was stigmatizing when specifically being diagnosed with depression. Many participants reported being isolated from family after being diagnosed with depression due to stigma. DeJesus and Earl (2014) explored the perceptions of the quality of mental health care among Brazilians and Cape Verdeans. Cape Verdean is located off the coast of Africa. Focus groups of 24 Brazilians and 24 Cape Verdeans who received outpatient mental health treatment in the U.S. found that aspects of mental health care were linked to psychosocial and environmental factors. DISCUSSION Given the potential depth and breadth of the ways in which culture can mediate the expression of what might be considered psychotic-like experiences, the accuracy of diagnosis and efficacy of treatment for psychotic disorders depends on the recognition of potential racial, ethnic and cultural variations and influences on symptom presentation. Not attending to socio-cultural influences, limits diagnostic accuracy and the quality of psychiatric care for those who are most in need. The systematic review suggests that social workers must be aware of the myriad of perceptions associated with barriers to mental health care among African Americans, Africans, and Caribbean Blacks. For African Americans, perceptions about mental health services appeared to be associated with two major themes—mental health help-seeking and service use. Downloadedby[blakeglomb]at06:5802February2016
  • 15. Accepted M anuscript 14 Barriers to service use and help-seeking for African Americans were associated with perceived discrimination and racism in care, distrust, and practitioner factors such as the perception of practitioner expertise and the perceived quality of their listening skills. The review also revealed additional perceptions that specifically affected help-seeking among African American women such as their own stress and the belief that seeking treatment was a reflection of personal weakness. Limitations to this study include the lack of research exploring the perceptions of mental health services among Africans and Caribbean Blacks is the significant gap in literature. The limited amount of studies, which focused on specific groups of Africans and Caribbean Blacks living in the U.S. coming from different cultural backgrounds are not available and therefore a limitation to this study. The few studies found that explored the topic of mental health services perceptions among Africans and Caribbean Blacks revealed some similarities among African Americans, but also highlight cultural differences that require additional attention. It is important for additional research to also extrapolate perceptions of mental health among Africans from various countries Implications for Social Work Practice, Intervention and Prevention Diversity, Culture and Practice Discrimination and racism increase African Americans’ and Caribbean Blacks’ risk for mental health problems (Clark, Salas-Wright, Vaughn, & Whitfield, 2014) and adversely affect their access to mental health care (Conner et al., 2010; Mishra et al., 2009; Richman et al., 2007). The perception of discrimination and racism in mental health services for African Americans Downloadedby[blakeglomb]at06:5802February2016
  • 16. Accepted M anuscript 15 appeared to be a significant barrier to care. While the relationship between discrimination and racism was less clear among Africans and Caribbean Blacks, social workers and other mental health professionals should be cognizant of the experiential and historical differences that may influence these perceptions. Research suggests that the perception of discrimination and racism by African Americans stems from a history of racism and discriminatory health and medical research practices inclusive of medical experimentation in slavery, involuntary family planning sterilization, and the Tuskegee Syphilis Study, which revealed unethical medical practices conducted by the United States Public Health Service (Boulware et al., 2003; Washington, 2006). It is this legacy of maltreatment that may influence perceptions of distrust, racism, and discrimination about mental health by some African Americans. African Americans integrate experiences from previous social or clinical interactions to appraise current clinical encounters (Earl et al., 2011) and transfer experiences of perceived discrimination and racism to future relationships with providers. The relationship between perceived discrimination and satisfaction with mental health is less clear for Caribbean Blacks. Jackson et al. (2007) found that Spanish-speaking Caribbean Blacks and Haitian respondents are more satisfied with mental health and medical services than are respondents from predominantly English-speaking parts of the Caribbean. In a seminal study conducted by Eaton and Garrison (1992) it found that Haitians reported more discrimination and less satisfaction with mental health and with life in the U.S. than Cuban refugees. The study examined differences in psychopathology and use of the mental health system among 952 Cuban Downloadedby[blakeglomb]at06:5802February2016
  • 17. Accepted M anuscript 16 and Haitian refugees living in Florida. Additional research is needed to explore the possible impact of discrimination and racisim on mental health services use among Caribbean Blacks and Africans living in the U.S. The review revealed one study conducted by Jackson et al. (2007), which found both African Americans and Caribbean Blacks utilized formal mental health infrequently, but U.S.–born individuals were more likely to receive care than first-generation immigrants. There is also a need to explore the phenomenon of “the immigrant paradox” for Caribbean immigrants. According to the immigrant paradox, the longer the immigrants stay in the U.S., the more mental health problems they have (Suarez-Orozco, Todorova, & Qin, 2006). The relationship between the generation status of immigrants on their perceptions and use of mental health status should be further investigated. Miranda, Siddique, Belin, and Kohn-Wood (2005) found that Black women born outside the United States (in Africa or the Caribbean) were less likely to screen positive for depression. However, the longer they lived in the United States, the more likely they were to screen positive for depression. Social workers should be aware of the impact of immigration on the mental health risk of Caribbean Blacks. Additionally, more needs to be known about the impact of immigration on mental risk and access among Africans living in the U.S. as well. Social workers must pay attention to structural racism, its implications, and underlying ideologies that foster discrimination against individuals (Viruell-Fuentes, Miranda, & Abdulrahim, 2012). Social workers are mental health providers and can act as conduits and facilitators of communication between patients and providers (Gaston, Gutierrez, & Nisanci, 2014). They should actively engage in dialogue with their clients and health care professionals in Downloadedby[blakeglomb]at06:5802February2016
  • 18. Accepted M anuscript 17 their practice settings about the everyday realities of African, African American, and Caribbean Black clients that include experiences of racial discrimination and oppression. The most salient cultural barrier found was stigma attached to mental health problems and treatment among African Americans, Africans, and Caribbean Blacks. Research suggests that stigma related to accessing and engaging in mental health treatment often discourages patients from pursuing care (Hine, Howell, & Yonkers, 2008; Corrigan, 2004). Stigma is a well- documented barrier for African Americans’ access to mental health care (Brown et al., 2010; Conner et al., 2010b; Mishra et al., 2009). The pressure to be “strong” may be one factor that perpetuates mental health stigma among African American women. For example, Ward et al. (2009) found that the normalization of challenging life conditions and community pressure to be a “strong Black person” decrease African Americans’ awareness of their need for treatment. Social workers can challenge such issues related to stigma by educating clients and the community about mental health (Kohli, 2012; Mishra et al., 2008). Secondly, attempting to integrate family and other sources of support will aid in the treatment process (Schwartz, Bernal, Smith, Nicholas, 2014). Educating clients and their support system can also serve to address potential barriers to treatment (Kohli, 2012). Finally, social workers can also work individually with clients to deconstruct narratives and reduce self-blame about mental health issues related to maneuvering significant structural barriers such as poverty, lack of community resources, unemployment/underemployment, and discrimination (Corrigan, 2004; Kohli, 2012; Misra, 2008; Mulvaney-Day, 2011).” Downloadedby[blakeglomb]at06:5802February2016
  • 19. Accepted M anuscript 18 It would also be important for scholars to explore whether a similar phenomenon exists among Caribbean Blacks. To date, there is a paucity of research on Caribbean Blacks’ perceptions of mental health and U.S.–based mental health services, even though they are the largest Black immigrant population. We found no information on mental health perceptions among individuals from Jamaica, the Dominican Republic, Trinidad and Tobago, and only two studies on those from Haiti. Although it is unclear if this preference is related to stigma, one study on Haitians residing in the United States shows that they prefer to seek assistance from family versus mental health professionals, (Schwartz et al., 2012). Nadeem, Lange, Edge, Fongwa, Belin, & Miranda (2007) found that, among a sample of 15,383 immigrant and U.S.–born Black and Latina women, African and Caribbean immigrants were more likely to worry about stigma related to mental health care. This raises concerns of stigma being an issue for Caribbean Blacks. Some international studies also support this idea and associate stigma with reduced mental health access among Caribbean’s. Youssef, Bachew, Bodie, Leach, Morris, and Sherma (2012) studied knowledge and attitudes about mental illness among a sample of 673 individuals from university campuses in Jamaica, Barbados, and Trinidad and Tobago and found that stigma is associated with being diagnosed with schizophrenia and substance abuse. These findings suggest that educational campaigns may be needed to reduce stigma and discrimination for individuals with certain mental health issues. Similarly, Arthur, Hickling, Hickling-Robertson, Haynes-Robinson, Abel, and Whitney (2010) in a study of 126 socioeconomically diverse individuals from Kingston, Jamaica, found that barriers to mental health include perceptions of stigma, negative associations of mental illness with “madness,” and avoidance. More research needs to explore if stigma affects mental health use among Caribbean Blacks living in the U.S. Downloadedby[blakeglomb]at06:5802February2016
  • 20. Accepted M anuscript 19 The literature revealed only two studies on African immigrant perceptions of mental health in the United States. While themes could not be generated, stigma appeared to influence perceptions of mental health services (Ezeobele, 2010; Piwowarczyk et al., 2014). Similarly, in an international study conducted in South Africa, Egbe et al (2014) found among a sample of 77 South African mental health services users that stigma was perpetuated by family members, friends, employers, community leaders and health providers. The authors suggested that mental health services aimed at treating this population should integrate the patient’s support system and teach the patient how to deal with internalized stigma. It is important for additional research to extrapolate perceptions of mental health among Africans from various countries. The African continent is rich in diversity; researchers and social workers need to continue to explore the specific needs of African immigrants from specific countries. Conclusion It is important for social workers to help create an environment where mental health perception barriers can be addressed by engaging in culturally specific practice. Multilayered and complex factors appear to affect African Americans,’ Africans, and Caribbean Blacks’ access to and use of mental health services. Diversity within the Black population calls for additional research that explores perception barriers about mental health among African Americans, Africans, and Caribbean Blacks. The increasing recognition of culture as an important factor in public health and communication has the potential to contribute to the development of new and more effective strategies to help eliminate health (Kreuter & McClure, 2004) and behavioral health disparities. Downloadedby[blakeglomb]at06:5802February2016
  • 21. Accepted M anuscript 20 Of concern was the limited number of studies that focused on specific groups of Africans and Caribbean Blacks living in the U.S. Social workers need to be aware that African and Caribbean clients might be coming from different cultural backgrounds and may be facing challenges that stem from immigrant status and history. Behavioral health specialists should be clinically trained, bi-lingual, and culturally competent social workers or psychologists (Manoleas, 2008). In the end, the paucity of research that extrapolates intra-group diversity among Black Americans in the U.S. underscores the need for a deeper understanding of this complex interplay of attitudes, barriers, and other forces influencing perceptions of mental health services and subsequent access to care. References Anderson, L. M., Scrimshaw, S. C., Fullilove, M. T., Fielding, J. E., & Normand, J. (2003). Culturally competent healthcare systems: A systematic review. American Journal of Preventative Medicine, 24(3), 68-79. Arthur, C. M., Hickling, F. W., Hickling-Robertson, H., Haynes-Robinson, T., Abel, W., & Whitley, R. (2010). “Mad, sick, head nuh good”: Mental illness stigma in Jamaican communities. Transcultural Psychiatry, 47(2), 252-75. Barksdale, C.L., & Molock, S.D. (2009). Perceived norms and mental health help seeking among African American college students. Journal of Behavioral Health Services & Research, 36(3), 285-99. Downloadedby[blakeglomb]at06:5802February2016
  • 22. Accepted M anuscript 21 Bender, K., Kapp, S., & Hahn, S. A. (2011). Are case management services associated with increased utilization of adolescent mental health treatment? Children and Social Services Review, doi: 10.1016/j.childyouth.2010.08.025. Betancourt, J. R., Green, A. R., Carrillo, J. E., & Ananeh-Firempong, O. (2003). Defining cultural competence: A practical framework for addressing racial/ethnic disparities in health and health care. Public Health Report, 118(4), 293-302. Bird, P., et al., (2010). The MHAPP Research Programme Consortium. Increasing the priority of mental health in Africa: Findings from qualitative research in Ghana, South Africa, Uganda and Zambia. Health Policy Plan, 26, pp. 357–365. Brown, C., Conner, K. O., Copeland, V. C., Grote, N., Beach, S., Battista, D., & Reynolds, C. F. III. (2010). Depression stigma, race, and treatment seeking behavior and attitudes. Journal of Community Psychology, 38(3), 350-68. Boulware, L. E., Cooper, L. A., Ratner, L. E., LaVeist, T. A., & Powe, N. R. (2003). Race and trust in the health care system. Public Health Reports, 118(4), 358-365. Clark, T. T., Salas-Wright, C. P., Vaughn, M. G., & Whitfield, K. E. (2014). Everyday discrimination and mood and substance use disorders: A latent profile analysis with african americans and caribbean blacks. Addictive Behaviors, (40), 119-125. Conner, K. O., Lee, B., Mayers, V., Robinson, D., Reynolds, C. F., Albert, S., & Brown, C. (2010a). Attitudes and beliefs about mental health among African American older adults suffering from depression. Journal of Aging Studies, 24(4), 266-77. Downloadedby[blakeglomb]at06:5802February2016
  • 23. Accepted M anuscript 22 Conner, K. O., Copeland, V. C., Grote, N. K., Rosen, D., Albert, S., McMurray, M. L., et al. (2010b). Barriers to treatment and culturally endorsed coping strategies among depressed African American older adults. Aging and Mental Health, 14(8), 971-83. Copeland, V. C., & Snyder, K. (2011). Barriers to mental health treatment services for low- income African American women whose children receive behavioral health services: An ethnographic investigation. Social Work in Public Health, 26(1), 78-95. Corrigan, P. (2004). How stigma interferes with mental health care. American Psychologist, 59(7), 614-625. Earl, T. R., Fortuna, L. R., Gao, S., Williams, D. R., Neighbors, H., Takeuchi, D., & Alegría, M. (2014). An exploration of how psychotic-like symptoms are experienced, endorsed, and understood from the National Latino and Asian American Study and National Survey of American Life, Ethnicity and Health, doi: 10.1080/13557858.2014.921888 DeJesus, M. and Earl, T. R. (2014). Perspectives on quality mental health care from Brazilian and Cape Verdean outpatients: Implications for effective patient- centered policies and models of care International Journal of Qualitative Studies on Health and Well-being. doi. 10.3402/qhw.v9.22839. Earl, T. R., Alegría, M., Mendieta, F., & Linhart, Y. D. (2011). "Just be straight with me:" An exploration of black patient experiences in initial mental health encounters. Downloadedby[blakeglomb]at06:5802February2016
  • 24. Accepted M anuscript 23 American Journal of Orthopsychiatry, 81(4), 519-25. Earl, T., & Williams, D. (2008). Black Americans and mental health status: Complexities and New Developments in Handbook of African American Psychology, Neville, H. A., Tynes, B. M. and Utsey, S. O. (Eds). pp. 335-349. Eaton, W. W., & Garrison, R. (1992). Mental health in mariel Cubans and Haitian boat people. International Migration Review, 26(4), 1395-1415. Ezeobele, I., Malecha, A., Landrum, P., & Symes, L. (2010). Depression and nigerian born immigrant women in the united states: A phenomenological study. Journal of Psychiatric and Mental Health Nursing, 17, 193-201. Gaston, G. B., Gutierrez, S. M., & Nisanci, A. (2014). Interventions that retain african americans in hiv/aids research: Implications for social work practice and research. Social Work, 60(1), 35- 42. Hine, C. E., Howell, H. B., & Yonkers, K. A. (2008). Integration of medial and psychological treatment within the primary health care setting. Social Work in Health Care, doi: 10.1080/00981380801970244. Jackson, J. S., Neighbors, H. W., Torres, M., Martin, L. A., Williams, D. R., & Baser, R. (2007). Use of mental health services and subjective satisfaction with treatment among black Caribbean immigrants: Results from the National Survey of American Life. American Journal of Public Health, 97(1), 60-67. Downloadedby[blakeglomb]at06:5802February2016
  • 25. Accepted M anuscript 24 Kreuter, M. W., & McClure, S. M. (2004). The role of culture in health communication. Annual Review of Public Health, 25, 439-455. Leis, J.A., Mendelson, T, Perry, D.F., & Tandon, S.D. (2011). Perceptions of mental health services among low-income, perinatal African-American women. Women's Health Issues, 21(4), 314-19. Lincoln, K. D., Chatters, L. M., Taylor, R. J., & Jackson, J. (2007). Profiles of depressive symptoms among African Americans and Caribbean blacks. Social Science and Medicine, 65, 200-13. Lindsey, M.A., & Marcell, A.V. (2012). "We're going through a lot of struggles that people don't even know about": The need to understand African American males' help-seeking for mental health on multiple levels. American Journal of Men's Health, 6(5), 354-64. Logan, J. R. and Deane, G. (2003). Black Diversity of Metropolitan America. Albany, NY: University at Albany Lewis Mumford Center for Comparative Urban and Regional Research. Manoleas, P. (2008). Integrated primary care and behavioral health services for latinos: a blueprint and research agenda. Social Work in Health Care, 47(4), 438-454. Migration Policy Institute. (2012). A demographic profile of black Caribbean immigrants in the United States. Migration Policy Institute. http://www.migrationpolicy.org/pubs/cbi- caribbeanmigration.pdf. (Retrieved August 1, 2013). Downloadedby[blakeglomb]at06:5802February2016
  • 26. Accepted M anuscript 25 Miranda, J., Siddique, J., Belin, T. R., & Kohn-Wood, L. P. (2005). Depression prevalence in disadvantaged young black women: African and Caribbean immigrants compared to US born African Americans. Social Psychiatry and Psychiatric Epidemiology, 40, 253-58. Mishra, S. I., Lucksted, A., Gioia, D., Barnet, B., & Baquet, C. R. (2009). Needs and preferences for receiving mental health information in an African American focus group sample. Community Mental Health Journal, 45(2), 117-26. Mulvaney-Day, N.E., Earl, T.R., Diaz-Linhart, Y., & Alegría, M. (2011). Preferences for relational style with mental health clinicians: A qualitative comparison of African American, Latino and non-Latino White patients. Journal of Clinical Psychology, 67(1), 31-44. Nadeem, E., Lange, J. M., Edge, D., Fongwa, M., Belin, T., & Miranda, J. (2007). Does stigma keep poor young immigrant and u.s. born black and latina women from seeking mental health care? Psychiatric Services, 58(12), 1547-1554. Neighbors, H. W., Woodward, A. T., Bullard, K. M., Ford, B. C., Taylor, R. J., & Jackson, J. S. (2009). Mental health service use among older African Americans: The National Survey of American Life. American Journal of Geriatric Psychiatry, 16(12), 948-56. Piowowarczyk, L., Bishop, H., Yusuf, A., Mudymba, F., & Raj, A. (2014). Congolese and somali beliefs about mental health services. The Journal of Nervous and Mental Health, 202 (3), 209-216. Read J., Emerson M. O., & Tarlov, A. (2005). Implications of black immigrant health for U.S. racial disparities in health. Journal of Immigrant Health, 7, 205–212. Downloadedby[blakeglomb]at06:5802February2016
  • 27. Accepted M anuscript 26 Read J. G., & Emerson M. O. (2005). Racial context, black immigration and the us black/white health disparity. Social Forces, 84,181–199. Richman, L. S., Kohn-Wood, L. P., & Williams, D. R. (2007). The role of discrimination and racial identity for mental health service utilization. Journal of Social and Clinical Psychology, 26(8), 960-81. Rosen, A. (2003). Evidenced-based social work practice: Challenges and promise. Social Work Research, 27(4), 197-208. Schwartz, B., Bernal, D., Smith, L., & Nicolas, G. (2012). Pathways to understand help-seeking behaviors among Haitians. Journal of Immigrant Minority Health, doi: 10.1007/s10903-012- 9751-y. Singh, G. K., & Siahpush, M. (2002). Ethnic-immigrant differentials in health behaviors, morbidity, and cause-specific mortality in the United States: an analysis of two national databases. Human Biology, 74:83–109. Suárez-Orozco, C., Todorova, I., & Qin, D. B. (2006). The well-being of immigrant adolescents: A longitudinal perspective on risk and protective factors. The crisis in youth mental health: Critical issues and effective programs, vol. 2: Disorders in adolescence (pp. 53-83). Westport, CT, US: Praeger Publishers/Greenwood Publishing Group, Westport, CT. Retrieved from http://search.proquest.com.proxy.cc.uic.edu/docview/621089701?accountid=14552 Downloadedby[blakeglomb]at06:5802February2016
  • 28. Accepted M anuscript 27 Thompson, R., Dancy, B.L., Wiley, T.R., Perry, S.P., & Najdowski, C.J. (2011). The experience of mental health service use for African American mothers and youth. Issues in Mental Health Nursing, 32(11), 678-86. U.S. Census Bureau. (2014). Foreign-born populations from Africa: 2008-2012. Retrieved February 2, 2015 from http://www.census.gov/content/dam/Census/library/publications/2014/acs/acsbr12-16.pdf U.S. Census Bureau (2014). State and county quickfacts. Retrieved November 16, 2015 f from http://quickfacts.census.gov/qfd/states/00000.html. U.S. Census Bureau. (2011). The black population 2010. Washington, DC: U.S. Census Bureau. http://www.census.gov/prod/cen2010/briefs/c2010br-06.pdf. (Retrieved October 5, 2012). Vinh-Thomas P., Bunch, M. and Card M. (2003). A research based tool for indentifying and strengthening culturally competent and evaluation ready HIV/AIDS prevention programs. AIDS Education and Prevention, 5(6), 481-498. Viruell-Fuentes, E. A., Miranda, P. Y., & Abdulrahim, S. (2012). More than culture: Structural racism, intersectionality theory, and immigrant health. Social Science and Medicine, 75, 2099- 2106. Walrath, C. M., Sheehan, A. K., Holden, W., Hernandez, M., & Blau, G. (2006). Evidenced- based treatments in the field: A brief report on provider knowledge, implementation, and practice. Journal of Behavioral Health Sciences & Research, 33(2), 244-253. Downloadedby[blakeglomb]at06:5802February2016
  • 29. Accepted M anuscript 28 Ward, E.C., Clark, le O., & Heidrich, S. (2009). African American women's beliefs, coping behaviors, and barriers to seeking mental health services. Qualitative Health Research, 19(11), 1589-601. Ward, E.C., & Heidrich, S.M. (2009). African American women's beliefs about mental illness, stigma, and preferred coping behaviors. Research in Nursing and Health, 32(5), 480-92. Ward, E. C. (2005). Keeping it real: A grounded theory study of African American clients engaging in counseling at a community mental health agency. Journal of Counseling Psychology, 52(4), 471-81. Washington, H. (2006). Medical apartheid: The dark history of medical experimentation on black americans from colonial times to the present. Random House: New York, NY. World Health Organization (2011). Aims report on mental health systems in the caribbean region. Retrieved on February 15, 2015 from http://www.who.int/mental_health/evidence/mh_systems_caribbeans_en.pdf Youssef, F. F., Bachew, R., Bodie, D., Leach, R., Morris, K., & Sherma, G. (2012). Knowledge and attitudes towards mental illness among college students: Insights into the wider English- speaking Caribbean population. International Journal of Social Psychology, doi:10.1177/0020764012461236. Downloadedby[blakeglomb]at06:5802February2016
  • 30. Accepted M anuscript 29 Table 1—Total of Number of Studies Reviewed, Population Total Number of Studies Reviewed Studies Meeting Search Criteria Total included in the Review African Americans 345 197 23 Caribbean Blacks 121 42 2 Africans 38 7 2 Mixed Population 56 32 3 Downloadedby[blakeglomb]at06:5802February2016
  • 31. Accepted M anuscript 30 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2002-2014 Study Research Focus Research Design Sample Size Population Key Findings Subthemes Alvidrez et. al. 2010 Examine whether stigma and other concerns about entering treatment had an impact on engagement and service use across 3 months. Quantitative 42 African Americans African American men and those with more education perceived more stigma in mental health care. However, perceived stigma was not related to treatment engagement. Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Barksdale and Examine whether Cross- sectional 219 African Americans Individually, peer and family Downloadedby[blakeglomb]at06:5802February2016
  • 32. Accepted M anuscript 31 Molock, 2009 perceived negative peer and family norms about help seeking influence help- seeking intentions. internet survey norms were related to help- seeking intentions. Individuals with higher negative family norms had lower help- seeking intention scores (strongest predictor). Family influence is a unique predictor for African Americans. Brown et. Examine level of Telephone 449 African American The internalization Downloadedby[blakeglomb]at06:5802February2016
  • 33. Accepted M anuscript 32 al. 2010 depressive symptoms, stigma and treatment related attitudes and behaviors. survey and White. of stigma is key in the development of negative attitudes toward mental health treatment among African Americans. Conner et. al. 2010 Explore attitudes and beliefs about depression and mental health treatment. Qualitative 42 Older adult African Americans Barriers to treatment were perceptions of depression (“this is normal”, not recognizing symptoms), the African American experience Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 34. Accepted M anuscript 33 (racism, discrimination), treatment weakness and last resort, and negative beliefs. Downloadedby[blakeglomb]at06:5802February2016
  • 35. Accepted M anuscript 34 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sample Size Population Key Findings Subthemes Conner et al., 2010 Examine older adult African Americans with depression perceptions of barriers to seeking mental health treatment. Qualitative 37 African American older adults Participants reported fear of stigma, mistrust of mental health treatment, lack of access, sense of being too old to seek treatment, and the lack of recognition of mental health symptoms due to persistent stress in the community were barriers to Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Subthemes Downloadedby[blakeglomb]at06:5802February2016
  • 36. Accepted M anuscript 35 mental health treatment seeking. Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Copeland and Snyder 2011 Explore barriers to mental health care among women that sought care for their children, but not themselves. Qualitative 64 African American women Barriers to seeking mental health treatment was the fear of losing their children, economic stressors, and beliefs that providers were not trustful and would overmedicate them. Earl et. al. 2011 Explore the initial interpersonal Qualitative 25 African American patients Patients have previous within and outside Downloadedby[blakeglomb]at06:5802February2016
  • 37. Accepted M anuscript 36 interactions between African American patients and their non- African American mental health providers. and their non- African American providers treatment experiences (discrimination, mistrust, and stereotyping) that can lead to healthy cultural paranoia (caution and skepticism). Facilitators of good interactions were discussed. Downloadedby[blakeglomb]at06:5802February2016
  • 38. Accepted M anuscript 37 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sample Size Population Key Findings Subthemes Hines- Martin et. al. 2003 Examine the barriers to mental health care service use among low- income African Americans. Qualitative 24 African Americans Individual barriers were fear, denial, economic, and values. Environmental barriers were family issues, community, and resources. Institutional barriers were time, limitations, gatekeepers and rules. Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Subthemes Discrimination Downloadedby[blakeglomb]at06:5802February2016
  • 39. Accepted M anuscript 38 Leis et. al. 2011 Explore perceptions of mental health services and its effect on service use among clients from a home visiting program. Qualitative 64 African Americans Overall, perceptions of mental health services were negative. Negative perceptions included beliefs that providers gave medications without listening, concerns about confidentiality, suspicion about psychotherapy and psychotropic drugs. Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 40. Accepted M anuscript 39 Leis, J. A., Mendelson, T., Perry, D. F., and Tandon, D. T., 2011 Explore perceptions of mental health services as a barriers to use among perinatal African American women. Qualitative 38 clients 26 staff African American women Perceptions of mental health were negative with many participants believing that stigma, lack of confidentiality, psychotropic medication, and questionable effectiveness of psychotherapy was significant barriers to mental health treatment seeking. Downloadedby[blakeglomb]at06:5802February2016
  • 41. Accepted M anuscript 40 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sample Size Population Key Findings Subthemes Lindsey and Marcell, 2012 Explore African American males’ perceptions of help- seeking for mental health. Qualitative 27 Young adult African American men Barriers to mental health seeking were engaging in coping activities in isolation, at the social level (drug use), and negative community beliefs about mental health. Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 42. Accepted M anuscript 41 Mishra et. al. 2009 Better understand mental and illness information and service delivery preferences. Qualitative 42 African Americans Providers should be non- threatening, credible, accessible, and incorporate spirituality in treatment. Stigma and perceptions of racism as barriers to seeking treatment. Mulvaney- Day et. al. 2011 Examine preferences for relational Qualitative 51 African American, Latino, and White. No primary differences in major preferences Downloadedby[blakeglomb]at06:5802February2016
  • 43. Accepted M anuscript 42 styles in encounters with mental health providers among a diverse sample. among ethnic groups. However, African American patients believed it was important to be understood and respected as experts. Downloadedby[blakeglomb]at06:5802February2016
  • 44. Accepted M anuscript 43 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sample Size Populatio n Key Finding Subthemes Murry, Heflinger , Suiter, and Brody, 2011 Examine perception s about mental health and help- seeking among rural families of adolescent s with mental illness Mixed method 163 (survey) 21 (qualitativ e interviews ) African American mothers Preferences for social support were family, religious institutions, and school. Stigma and cultural mistrust were barriers to help seeking. Discriminatio n Stigma Peer/Family Support Mistrust Racism Economic stress Subthemes Neighbor Examine Quantitativ 55 Older Mental health Downloadedby[blakeglomb]at06:5802February2016
  • 45. Accepted M anuscript 44 s et. al. 2009 mental health services utilization. e African American s services were underutilized. Those who were 65 and older were less likely to receive mental health or general medical treatment compared to those under the age of 65. Participants with a high school education or higher were more likely to use mental health Discriminatio n Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 46. Accepted M anuscript 45 services. Newhill and Harris, 2007 Explore how African American consumers of mental health perceive and experience disparities in accessing and utilizing mental health services. Qualitative 35 African American men and women Participants reported that the fear of stigma was a barrier to help seeking. Suggestions to ameliorate this issue would be for practitioners to outreach and engage pastors and their congregations . Another barrier was the shortage of African Downloadedby[blakeglomb]at06:5802February2016
  • 48. Accepted M anuscript 47 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sampl e Size Populatio n Key Findings Subthemes Richman et. al. 2007 Examine the role of race, discrimination and racial identity in explaining mental health service utilization. Quantitativ e 955 African American and White adults. Past discrimination and identity variables are more important than structural variables such as education or income in explaining mental health utilization. Discriminatio n Stigma Peer/Family Support Mistrust Racism Economic stress Subthemes Sanders- Thompso n, Bazile, Examine beliefs regarding Qualitative 201 African American men and Participants associated the term Downloadedby[blakeglomb]at06:5802February2016
  • 49. Accepted M anuscript 48 and Akbar, 2004 psychotherapist s, psychotherapy, and barriers to seeking mental health treatment. women psychotherapy with stigma. Psychologists were perceived to be White male elitists who were unsympathetic, uncaring, and unavailable. They preferred the term counseling. Barriers to treatment were stigma, financial costs, and the lack of recognition of mental health issues. Discriminatio n Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 50. Accepted M anuscript 49 Thompso n et. al. 2011 Explore participants’ past experience and satisfaction with mental health services. Qualitative 40 African American s mothers and their youths. About half of the mothers dissatisfied with services. Group and family therapy was positively regarded. Dissatisfaction centered on medication concerns, lack of professionalis m, confidentiality, and poor quality treatment. Downloadedby[blakeglomb]at06:5802February2016
  • 51. Accepted M anuscript 50 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sample Size Population Key Findings Subthemes Thurston and Phares, 2010 Examine the influence of parents’ gender, race, and mental health on perceived barriers and attitudes about treatment. Quantitative 194 African American and White parents. White parents were not significantly different in child-related attitudes. White parents did perceive fewer barriers to treatment utilization for themselves and their children than did African American Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 52. Accepted M anuscript 51 parents. Discrimination Stigma Peer/Family Support Mistrust Racism Economic stress Ward 2005 Examine African American client’s subjective experiences in counseling. Qualitative 13 African Americans Participants engaged in continuous assessment of client-therapist match (salience of Black identity, confidentiality, and similarity in ideology and perspectives about parenting), safety, and previous experience working with African Downloadedby[blakeglomb]at06:5802February2016
  • 53. Accepted M anuscript 52 Americans. Ward and Heidrich 2009 Examine beliefs about mental illness, coping behaviors, and treatment seeking. Exploratory, cross- sectional survey. 185 African American women 83% reported feeling comfortable talking to a mental health professional. 60% would not be embarrassed if friends knew they were seeking mental health treatment. However, stigma was significantly related to treatment Downloadedby[blakeglomb]at06:5802February2016
  • 55. Accepted M anuscript 54 Table 2—Summary of Studies that Explore African American Perceptions of Mental Health, 2003-2013 Study Research Focus Research Design Sampl e Size Population Key Findings Subthemes Ward et. al. 2009 Examine beliefs about mental illness, coping behaviors, barriers to treatment seeking. Qualitative 15 African American women Individual level barriers were more prevalent than systemic barriers. Treatment- seeking barriers included poor access to care (agency and socioeconomic issues), stigma, and lack of awareness of Discriminatio n Stigma Peer/Family Support Mistrust Racism Economic stress Downloadedby[blakeglomb]at06:5802February2016
  • 56. Accepted M anuscript 55 mental illness. Ward, Wiltshire , Detry, and Brown, 2013 Examine African Americans’ beliefs about mental illness, help seeking, and coping mechanisms . Quantitativ e 272 African American men and women Participants were not very open to acknowledgin g psychological problems due to stigma concerns. Participants were somewhat open to seeking help, but preferred religious based coping mechanisms. Downloadedby[blakeglomb]at06:5802February2016
  • 57. Accepted M anuscript 56 Williams et al., 2007 Examine the prevalence of psychiatric disorders among Black Caribbean immigrants and African Americans. Quantitativ e 6082 African Americans , Caribbean Black, and non- Hispanic Whites. Compared to African American men, Caribbean Black men had higher risk for psychiatric disorders. Haitian and Spanish men had lower odds for mood disorders than men from English- speaking Caribbean. Third generation Caribbean Downloadedby[blakeglomb]at06:5802February2016
  • 58. Accepted M anuscript 57 Blacks had elevated rates of psychiatric disorders than first and second generation. Downloadedby[blakeglomb]at06:5802February2016
  • 59. Accepted M anuscript 58 Table 3— African and Caribbean Black Perceptions of Mental Health Services in the United States, 2002-2014 Study Research Focus Research Design Sample Size Population Key Findings Jackson et al., 2007 Examine the use and correlates of formal psychiatric services between U.S born and immigrant Caribbean Blacks. Quantitative 3570 Spanish- speaking Caribbean’s, Haitians, and English- speaking Caribbean’s. Haitian respondents were more likely to report satisfaction for specialty mental health and African Americans. Caribbean Blacks from English- speaking countries were less likely than those from Spanish-speaking Caribbean and Haiti as less Downloadedby[blakeglomb]at06:5802February2016
  • 60. Accepted M anuscript 59 helpful. Schwartz, Bernal, Smith, and Nicolas, 2012 Examines help-seeking patterns of behavior among Haitian immigrants living in the U.S. Quantitative 150 Haitian immigrants living in the U.S. Participants were least likely to go to professionals for mental health services. Participants relied upon family or relatives regardless of the problem. Piwowarczky et al., 2014 Examined both concepts of mental illness in addition to attitude and beliefs about treatment and barriers to Mixed methods 344 Congolese and Somali immigrants Mental health concerns were often dealt with in the family. Faith based coping was used to address mental health concerns. Formalized Downloadedby[blakeglomb]at06:5802February2016
  • 61. Accepted M anuscript 60 seeking treatment among Congolese and Somali men and women living in the U.S. mental health services in the U.S. were not well understood by the sample. Downloadedby[blakeglomb]at06:5802February2016
  • 62. Accepted M anuscript 61 Table 3— African and Caribbean Black Perceptions of Mental Health Services in the United States, 2002-2014 Study Research Focus Research Design Sample Size Population Key Findings Ezeobele 2010 Examined perceptions of depression among Nigerian immigrant women living in the U.S. Phenomenological study 19 Nigerian immigrant women Stigma was a major barrier to seeking mental health services. Participants reported being isolated from family after being diagnosed with depression. Religious coping was used more than formalized mental health Downloadedby[blakeglomb]at06:5802February2016
  • 63. Accepted M anuscript 62 services. DeJesus and Earl 2014 The aim of this study was to identify indicators of quality of mental health care that matter most to two underrepresented immigrant patient groups: Brazilians and Cape Verdeans. Qualitative; focus groups 24 Brazilians and 24 Cape Verdeans Brazilians and Cape Verdeans The effectiveness of mental health care treatment was related to two categories inclusive of the therapeutic relationship and treatment outcomes. Downloadedby[blakeglomb]at06:5802February2016