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NHS
                                        NHS Improvement


CANCER




              Transforming Inpatient Care
DIAGNOSTICS   Programme for Cancer Patients

              Meeting the challenge
HEART
              together... delivering care in
              the most appropriate setting
STROKE
              Supporting delivery...
Meeting the challenge together... delivering care in the most appropriate setting    3




Contents
Foreword                                                                          4

Introduction: Question: Why focus on cancer inpatients?                           5

Delivering care in the most appropriate setting                                   8
• National programme overview
• New models of care: Transforming Inpatient Cancer Care
• The Winning Principles

Testing, spreading and sustaining                                                 10

Step One:     Getting started                                                     10
              • Planning and engagement
              • Base-lining: Cancer Commissioning Toolkit
              • User involvement

Step Two:     Measuring quality that is fair,
              personalised, safe and effective                                    14

Step Three: Capturing the learning of testing,
            spread and sustainability                                             17

Useful resources                                                                  18




                                                                  www.improvement.nhs.uk/cancer
4       Meeting the challenge together... delivering care in the most appropriate setting




        Foreword
        The Cancer Reform Strategy set out the benefits both for patients and for the NHS of
        transforming inpatient care for cancer patients. Too many patients are being admitted as
        emergencies when, with suitable planning, alternative models of care could have been put in
        place. Once admitted, the length of stay is often unnecessarily prolonged because of failure
        to define and implement inpatient care pathways and because of delays in decision making.
        Better education for patients would lead to self management approaches which could also
        reduce unnecessary admissions.

        The Transforming Inpatient Care Programme, led by NHS Improvement – Cancer and the
        National Cancer Action Team, has been established to support local initiatives to improve
        inpatient care for cancer patients. Pilot sites are now starting to test new ideas working with
        partners in primary care and social care.

        ‘Meeting the challenge together... delivering care in the most appropriate setting’ has been
        designed to support the pilot sites but will also be of interest to other organisations attempting
        to reform inpatient care. It builds on the ‘four winning principles’ that were identified from
        previous testing. Key to the success of this phase of the programme will be spread and
        sustainability to achieve the maximum impact. It is vital that we capture learning from
        individual pilot sites, both about what does and what does not work, in order that the
        benefits are optimised as soon as possible.




        Mike Richards
        National Cancer Director




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting    5




Question: Why focus on cancer inpatients?
• Answer:    To ensure quality that is fair, personalised, safe and effective




• Answer:    To promote partnership working, the alignment of systems
             and combined leverage for improvement
• Answer:    Because it’s an area that’s had little attention




                                                                 www.improvement.nhs.uk/cancer
6           Meeting the challenge together... delivering care in the most appropriate setting




‘   My time in hospital
    was their time,
                                                                  QUESTION:
                         ’
    not mine.
    (User feedback)


    • Answer:           Because it matters                        Answer: There are some key interfaces
                        to patients                                       with the social care system

                                                                  Firstly, the whole system is acknowledged to be
      Andy’s reflections                                           currently unsustainable due to the gap between
                                                                  funding and demographic and demand pressures. The
      My name is Andy Millward. I am a 55 year old man,           Green Paper, currently in design phase, will be
      who was diagnosed in October 2004 with metastatic           addressing this. Whatever the answers, it can be
      prostate cancer, a form of site specific cancer that was
                                                                  assumed that funding will remain very tight.
      so advanced that I was only given eighteen months to
      two years to live. I am very fortunate, in that I have
      thus far been able to defeat that timetable and             Secondly, improving the inpatient experience does to
      prognosis, but the majority of my subsequent                some degree depend on social care, especially if there
      treatment has been successfully managed whilst at           are plans to reduce lengths of stay, move care closer
      home, which is very much where I, along with many           to home and support early discharge. Taking this
      others on similar cancer journeys, wish to be. I have       together with funding pressures, it will require whole
      had two hospital admissions since then, both via the        systems solutions involving social care, including
      emergency pathways at my local hospitals and both           ensuring that financial incentives work for social as
      admissions related primarily to severe pain. The
                                                                  well as primary/community care.
      process of accessing inpatient care was both difficult
      and traumatic for both my wife and I and
      unnecessarily burdensome, as we had to negotiate very       Thirdly, the Government’s Putting People First
      different processes and locations to eventually arrive at   (December 2007) transformation programme presents
      the oncology ward that could attend to my specific          the system with the challenge of transforming the
      difficulties.                                               way in which services are delivered to put control in
                                                                  the hands of service users and carers. By 2011 all
      I cannot fault the level of care offered as an
                                                                  service users of social care will have the right to use
      inpatient (and in line with many of the audits that I
      know have been carried out, some of my time was             individual budgets to choose how their care is
      spent unnecessarily on general medicine wards).             arranged, and those who fund their own care will be
      However, whilst recognising that staff who have             offered the same level of advice and support as those
      responsibility for us have serious considerations of risk   receiving state funding. In redesigning pathways,
      and clinical governance to consider, I think we as          account should be taken of how choice and control
      patients could be given more responsibility and             will operate for patients.
      innovative resources to manage more at home. From
      experience, I do also believe that I could very easily      Fourthly, each region now has coordinated
      have been discharged sooner, thereby shortening my
                                                                  arrangements for care and support improvement, with
      length of stay. This is the real challenge for all of us
      and I therefore warmly welcome the launch of the            Joint Improvement Partnerships overseeing
      national strategy on in-patient care and potential          programmes of work, and Regional Improvement and
      likely alternatives to managing cancer journeys like        Efficiency Partnerships allocating what funding there is
      my own away from hospital.                                  in a coordinated way. It is important that any health
      We also need to ensure that even if acute admission is      systems improvement work is able to link to these
      absolutely necessary – and not just a default position      new arrangements.
      of the system – that treatment and care in hospital is
      kept to an absolute minimum.                                Simon Williams
                                                                  Director of Community and Housing,
      Andy Millward,
                                                                  National Lead for Urgent Care
      Nottingham (September 2008)




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting    7




Why focus on cancer inpatients?
    Answer: A move from a care delivery
            chain to a whole care system
                                                               Why focus on cancer
    Delivering the next stage of the Cancer Reform             inpatients? This is
    Strategy will require increased levels of integrated
    working alongside substantial redesign of services to
    ensure that services are relevant and responsive to
                                                               no longer a question
    service users. Commissioners have a vital role in
    leading thinking on new services whilst supporting
                                                               but an opportunity
    providers to work together, innovate and think
    differently about the scale, scope and style of services   for action...
    which will be required outside of traditional settings.
    Commissioners will need to set out clear service
    strategies which focus on supporting an increase in
    for example self-management. This will undoubtedly
    create opportunities for new ideas and new providers
    in the area of cancer care.

    Andrew Donald
    Chief Operating Officer, Birmingham East & North PCT
    (September 2008)


    Answer: Care being delivered in the
            most appropriate setting and
            improving outcomes is a key
            commissioning role

    Doing this in a methodical and explicit way to develop
    new models of care brings acceptability and
    sustainability into consideration. Extending this work
    beyond secondary care and involving more
    stakeholders increases the complexity but the
    importance and potential benefits of this work make
    it worthwhile. A challenge faced by a PCT is working
    with the systems in place and developing new ways of
    commissioning new models.

    Philippa Muir
    Head of Specialist Commissioning
    and Clinical Networks, Oxfordshire PCT




                                                                         www.improvement.nhs.uk/cancer
8       Meeting the challenge together... delivering care in the most appropriate setting




        Delivering care in the most
        appropriate setting
        A programme of work has been established, supported by NHS Improvement and the Cancer Action
        Team, working with key organisations, users, charities and professional bodies. The overall programme
        covers six priority workstreams.




                                                                  Lead - (TBC)
                                                                                                   HES



             Lead - Cancer                                                                        Lead -
             Action Team                                                                         National
                                                                                                  Cancer
                                                                                                 Services
                                               Lead - Cancer                                     Analysis
                                               Action Team                                         Team




                                                                                 Lead - Cancer
                                                                                 Action Team




                               Lead - NHS
                              Improvement




                             This document focuses on
                             supporting the delivery of the
                             New Models of Care: Transforming
                             Inpatient Care.




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting      9




Winning Principles
Previous testing identified four winning principles that can improve length of stay management,
avert unnecessary admission, deliver care in the appropriate care settings, improve efficiency,
quality, promote value for money and importantly value the patients’ time.

                1. Unscheduled (emergency)
                   patients should be assessed               The task now is to:
                   prior to the decision to admit.
                                                             • Ensure that these winning
                   Emergency admission should be
                   the exception not the norm.                 principles are spread and
                                                               embedded across the NHS
                2. All patients should be on                 • Test new ideas with new
                   defined inpatient pathways                  partners such as primary
                   based on their tumour type                  and social care
                   and reasons for admission.
                                                             • Sustain proven improvements
                                                               to achieve maximum impact
                3. Clinical decisions should be
                   made on a daily basis to
                   promote proactive case
                   management.
                                                          www.improvement.nhs.uk/
                                                          winning_principles
                4. Patient and carers need to
                   know about their condition
                   and symptoms to encourage
                   self-management and to know
                   who to contact when needed.




                                                                     www.improvement.nhs.uk/cancer
10      Meeting the challenge together... delivering care in the most appropriate setting




        Testing, spreading and sustaining
        Step One: Getting Started

                                          Tip 1:
                                          Create a shared vision – time and effort spent in
                                          agreeing high quality and performance
                                          indicators at the start will enable the team to
                                          stay focussed.

                                          Tip 2:
                                          Keep the service users and carers central.

                                          Tip 3:
                                          Create co-production energy – work with
                                          an approach that encompasses professional,
                                          organisational and functional boundaries
                                          to create partnership environments.

                                                               Tip 4:
                                                              Define the workstream scope
                                                               – there are many project
                                                                initiation documents
                                                              available but it is worth
                                                            agreeing which one you are
                                                        going to adopt to ensure
                                          appropriate links are correctly made at the start.

                                          Tip 5:
                                          Test small step changes - one service user at a
                                          time makes the experience safe and controlled.

                                          Tip 6:
                                          Engage partners early in discussions. Make
                                          sure you are not just shifting existing services
                                          without the infrastructure to support and
                                          adding more unnecessary steps into the process.

                                          Tip 7:
                                          Use clinicians and leaders as a catalyst to
                                          improve care at all stages.

                                          Tip 8:
                                          Use and involve the local network service
                                          improvement team as a resource.

                                          Tip 9:
                                          Focus on really understanding the problem
                                          not jumping to the solution.




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting                          11




Good planning can inspire change
that leads to improvements
Planning
Leadership and        •   Identify the key people to be involved early on in the workstream.
engagement            •   Who are the key stakeholders?
                      •   Clinical and managerial leadership is critical to success.
                      •   Have you included data and informatics and finance, primary care and
                          social care?

Knowledge and         •   Establish the steering/working group.
skills – the basics   •   Has the group got the people with the knowledge and skills? Can they make the decisions?
                      •   Do they have service improvements skills?
                      •   Knowledge of heath and social care processes?
                      •   Is there service user Involvement?
                      •   Is their agreed local accountability and responsibility for delivery?
                      •   Knowledge of commissioning?
                      •   Information gathered from all perspectives (service users, staff,
                          commissioners, partnerships etc).

Planning the          • Identify, understand and define the ‘real’ problem not the solution.
improvement           • Review data to understand demand, activity and variation in performance.
workstream            • How are your improvements going to be measured and monitored?
                        Have you included qualitative and quantitative performance indicators?
                      • Match the collection of baseline data with the scope of the problem identified.
                      • Remember that no data will be perfect and beware of analysis paralysis
                        (collecting everything that tells you nothing).
                      • Break the data down into sections of information to help you identify
                        what needs to be collected and analysed.
                      • Look for the 80/20 rule (Pareto principle) this happens to 80% of our users;
                        focus on the 80% first, look for trends in retrospective data.
                      • Keep clinicians, leaders and key people involved.
                      • Identify (visioning) and design the ideas to tested.

Engagement with       • Seek and build continuous and meaningful engagement with the public
public and service      and service users, involve them in shaping services.
users                 • Have an understanding of different user engagement options, including
                        the opportunities, strengths, weaknesses and risks.
                      • Routinely invite service users and the public to respond to and comment on issues.
                      • Ensure that users and the public understand how their views will be used, which decisions
                        they will be involved in, when decisions will be made, and how they can influence improvement.

Test out your ideas   •   Communicate widely about ideas being tested.
                      •   Test the idea (maybe more than one testing cycle).
                      •   Capture results, benefits and measure the impact. Match across to your performance indicators.
                      •   Capture the learning (the things that work and those that didn’t documenting reasons why).
                      •   Communicate regularly with the whole team and partnerships - keep the message short and snappy.
                      •   Ensure identified ownership of action points.

Evaluation            •   Analyse the results and quantify the impact of actual and potential.
                      •   Identify benefits- e.g. quality, cost, outcomes.
                      •   Identify risks.
                      •   Evaluate the alternatives.
                      •   Make recommendations.
                      •   Build your business case on evidence.

Implementation –      •   Recommendations for implementation (provide the evidence that supports your testing).
spread and sustain    •   Commissioners want to see the evidence.
                      •   Celebrate your achievements.
                      •   Share the learning - publicise your work.
                      •   Prepare your spread/adoption strategy.
                      •   Include how you will measure sustainability.




                                                                                 www.improvement.nhs.uk/cancer
12      Meeting the challenge together... delivering care in the most appropriate setting




        Use a simple approach: Apply a practical framework for
        testing, spreading and sustaining



                                                                                                                YES
                   Analysis                                                                                                Is it the
                                           Identify the          Visioning
                Baseline from                                                             Testing Cycles              right solution to
                                         real root of the    What are you trying                                      address the real
            different perspectives           problem                                     Test out the idea’s
                                                                to achieve?                                               problem?
                                                                                                                 NO

                                                                                                                                      YES




                                                                Case for change
               Evaluate and            Implementation                                    Agree the redesign        Evaluation
                                                            Plan the implementation
            check sustainability      Implement the idea                                & implementation of    Evaluate the benefits
                                                            of the tested idea. Build    the improvements      What is the difference
                                                               the case for change




                                      Spread/Adoption
                                          Strategy




        Use available resources for gathering                                    The Cancer Commissioning Toolkit will
        baseline information                                                     help you to define who needs to be
                                                                                 engaged and define who will drive the
        The Cancer Commissioning Toolkit (CCT)                                   workstream – commissioning, primary
        The Cancer Reform Strategy (2007) identified better                      care, secondary care or social care
        information and stronger commissioning as two of the
        key drivers to achieve the goal that cancer services in                  You will still need to capture
        England should be amongst the best in the world. The                     a local baseline
        CCT is a one stop online library of key cancer                           To find out locally and to understand what
        information and data which can be easily accessed for                    lies beneath the numbers of the CCT.
        use. The Cancer Commissioning Tool provides the
                                                                                 To help you with local baselines a series
        starting point by providing useful baseline and
                                                                                 of questions have been developed into
        benchmarking information.
                                                                                 an inpatient checklist which is available
                                                                                 at the back of this document. Most of
                                                                                 this information should be available in
         The Cancer Commissioning Toolkit (CCT) inpatient                        your local organisations.
         chapter is divided into three key sections




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting           13




Capturing your baseline                                   The involvement of users can result in a
                                                          number of benefits for the organisation.
  • Find out why your length of stay is X and
    bed days Y                                            User involvement
  • Tip 1: Don’t look at the numbers of the CCT in        • Raises your awareness of the issues
    isolation from the whole improvement picture            that impact on service users
                     for the patient                      • Helps to clarify how health services can
                      • Tip 2: Don’t jump to solutions      be improved and redesigned
                      based on the numbers without        • Helps to identify issues and support
                                 identifying the real       their improvements to make the
                                  problem                   biggest impact for service user needs
                                • Tip 3: Think about:     • Challenges the professional views and
                   ‘How can you really manage               existing approaches to services.
                  length of stay if you do not know
                 what the right length of stay is?’
                  •Tip 4: Do not get complacent, if          User involvement - methods
                    you identify from the CCT data           • Questionnaire surveys
                     that you are in the higher or           • Satisfaction surveys
                    middle quartile - there is               • Interviewing
                  always room for improvement.               • Discovery interviews
                                                             • User diaries
                                                             • Focus groups
                                                             • Workshops
                                                             • Reader panels
Getting the user involved
                                                             • User panels
User involvement is increasingly becoming accepted           • Citizens’ juries
by planners, service providers and users. The need to        • Local 18 week patient experience
listen and act on the views of users and the public is         surveys.
an integral part of improving quality and delivery of
healthcare.

There are many different approaches to user               The inpatient test sites used a variety of
involvement; start by identifying what already exists     these methods, for example, patient
across the health community.                              satisfaction surveys were developed to
                                                          ensure that there were no adverse
                                                          effects on patient experience due to
  User involvement                                        changes in their pathways.
  • Patient Advice and Liaison Services (PALS)




                                                         ‘
  • Studying the complaints and compliments
  • Suggestion boxes and comments slips
  • Local organisational audit and national audit
                                                          I much preferred coming to
    e.g. Health Care Commission Annual Health             day care for my antibiotics
    Check, National Cancer Audit
  • Study the organisations website for                   as I was able to have my
    suggestions/comments. It is also worthwhile
    exploring what is currently happening in local
                                                          treatment early enough to
    areas to gain feedback from patients for              allow me to go home and
    example:




                                                                                                   ’
    • Patient and public involvement forums               care for my disabled wife.
    • Local Involvement Networks (LINKs)                  (Patient interview)
    • Patient groups: User groups, carer groups
      and disease support groups
    • Expert Patient Programmes                           www.improvement.nhs.uk/
    • Patient participation groups in primary care.
                                                          winning_principles
                                                                      www.improvement.nhs.uk/cancer
14      Meeting the challenge together... delivering care in the most appropriate setting




        Step Two: Measuring that quality is fair,
        personalised, safe and effective

                                          Tip 1:
                                          To be able to realise benefits - it is important to
                                          agree the measures (metrics or indicators) right
                                          at the start of the workstream with all partners.

                                          Tip 2:
                                          Measures (metrics/indicators) should reflect
                                          the whole performance spectrum:

                                          •   Quality and patient experience
                                          •   Efficiency and value for money
                                          •   Effectiveness and impact of improvements
                                          •   Alignment with national indicators across
                                              partnerships.

                                                              Tip 3:
                                                                Set up a data capture system
                                                                  for continuous monitoring
                                                                 of improvement at the start.

                                                               Tip 4:
                                                           Feedback regularly on the
                                                           improvements made.


                                          A true measure captures
                                          all the benefits that
                                          everyone can gain.




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting                       15




Identifying the potential alignment of national and local
indicators with Transforming Inpatient Care

‘Vital Signs’                             ‘National Indicators’                                   Cancer Reform
Indicators for progress against           Local Authority and Local Authority                     Strategy (CRS)
national/local priorities for PCTs        Partnerships for adult health and wellbeing             New Models
                                                                                                  Transforming
                                                                                                  Inpatient Care

Rates of hospital admissions for          Number of social care clients receiving self directed   Winning Principle 4
ambulatory care                           support per 100,000 population – designing the
                                          care and support package that best suits their
                                          specific needs

Proportion of people with long term       The percentage of people with a long-term               Winning Principle 4
conditions supported to be independent    condition supported to be independent and in
and in control of their condition         control of their condition

Patient experience of access to           Timeliness of social care assessments and social        Winning Principle 1
primary care                              care packages following assessment

Number of delayed transfers of care per   The average weekly rate of delayed transfers of         Winning Principle 1
100,000 population (aged 18 and over)     care from all NHS hospitals, acute and non-acute,       Winning Principle 2
                                          per 100,000 population aged 18 and over                 Winning Principle 3

Timeliness of social care assessment      The ability of the whole system to ensure               Winning Principle 3
and package                               appropriate discharge from hospital

Self reported experience of patients      Self reported experience of social care users           Winning Principle 4
and users                                 perceptions of services

Patients and user reported measures of    User reported measures of respect and dignity in        Winning Principle 3
respect and dignity in treatment          their treatment

Number of emergency bed days per          Number of emergency bed days per head of                Winning Principle 1
head of weighted population               weighted population

Ambulance conveyance rate to A&E

Proportion of all deaths that occur       Percentage of all deaths that occur at home - end       Winning Principle 4
at home                                   of life care, access to appropriate care enabling
                                          people to be able to choose to die at home

Percentage of patients receiving their    Waiting times targets                                   Winning Principle 2
first definitive treatment for cancer
within two months of urgent referral
for suspected cancer

Percentage of patients seen within 18                                                             Winning Principle 3
weeks for admitted pathways




                                                                               www.improvement.nhs.uk/cancer
16      Meeting the challenge together... delivering care in the most appropriate setting




        Remember, measures provide evidence                        Transforming Inpatient Care
        and motivate stakeholders:                                 has the potential of:

                                                                   • Reducing cancer bed days by 25%
        Providers are motivated to reduce
                                                                     per SHA
        length of stay and to release capacity.                    • Ensuring inpatient care for cancer does
                                                                     not exceed 12% of all inpatient bed
        PCTs are motivated to reduce                                 days (baseline CRS 2007)
        inappropriate admissions and bed                           • Ensuring costs do not exceed the
                                                                     2008 baseline
        days over trim points.
                                                                   • Reducing emergency admissions
                                                                     by 5%.
                             Patients do not want
                                 to be in a hospital               Capturing and measuring the quality,
                                  unnecessarily -                  efficiency and impact through the
                                                                   NHS Improvement microsite
                                   adding no value
                                    to their well being            The microsite will be one of a cluster of
                                  or treatment.                    specialised websites linked to the Cancer
                                                                   Commissioning Toolkit and the NHS
                                                                   Improvement website.

                                                                   The microsite is being developed to
                                                                   support the new models workstream. It
                                                                   will present specific information and data
                                                                   relating to the impact of testing, spread
                                Early intervention                 and the sustainability of the work being
                                                                   undertaken by the provider sites actively
                              by social care. Early
                                                                   involved the workstream.
                             supportive discharge
                            benefit - cost saving in               The microsite will be a ‘working web
                           the community - right                   space’ that will allow organisations to
                          support at the                           review their historic activity, scenario
                                                                   plan, quantify their assumptions and
                          right time.
                                                                   measure the actual and potential impact
                                                                   of their improvement ideas.

                                                                   The microsite will go live in January 2009
                                                                   and will continue to evolve and develop
                                                                   during 2009.




www.improvement.nhs.uk/cancer
Meeting the challenge together... delivering care in the most appropriate setting          17




Step Three: Capturing the learning for testing,
spread and sustainability
To enable the learning to be collated and shared,          3. Sustainability Checklist
three approaches have been developed, that together
can enhance the delivery of improvement across the         It is important to develop a plan for
new models workstream and build the momentum for           sustainability which ensures that we
spread. (The learning diary/spread planner and             create lasting improvements.
sustainability check list can be found in the back
pocket of this document).                                  The sustainability check list focuses on
                                                           some key questions to assist you in
1. The Testing Learning Diary                              developing your strategy.

Capturing the elements of the ‘Testing process’ (Aim,
Measures, Process and Impact) will help to support a
learning framework that will enable the key outcomes
of the ‘testing phase’ to be shared with the wider
NHS.

The Inpatient Learning Diary is a tool which collates
the learning from the testing, and helps to guide
the sites through the testing approach by a series
of questions. This is available on:
www.improvement.nhs.uk/improvementsystem.

To learn objectively from the whole process, the
project needs to be reviewed in order to establish
what has been accomplished, and to also learn from
what did not go so well. This will enable all
organisations involved to learn from the experience
and to share that learning with others.

2. Spread Planner

Success is often gauged by how quickly an idea is
rapidly adopted and spread. Having a spread strategy
can eliminate the gap between what is and what can
be. It promotes equity of service delivery in order that
all can gain from the benefits. The spread planner is a
guide to spreading the winning principles and other
outcomes and benefits from testing. It derives from
the experience of the early test sites, Institute for
Health Improvement (IHI) and the work of Everett
Rodgers (Diffusion of Innovation 2003).




                                                                      www.improvement.nhs.uk/cancer
18      Meeting the challenge together... delivering care in the most appropriate setting




        Useful resources
        Service Improvement Information
        • NHS Improvement, Transforming Inpatient Care, Winning Principles
          www.improvement.nhs.uk
        • Gold Standards Framework (GSF)
          www.goldstandardsframework.nhs.uk
        • Liverpool Care Pathway for the Dying Patient (LCP)
          www.lcp@mariecurie.org.uk
        • Palliative Care
          www.endoflife.nhs.uk

        Social Care Information
        • Adult Social Care: The Government’s Green Paper and the LGA’s Campaign
          www.lga.gov.uk/lga/aio/275402
        • Putting Patients First
          www.nationalhealthcouncil.org/initiatives/putting_patients.htm
        • High Impact Changes for Health & Social Care
          www.csip.org.uk/silo/files/hics-doc-11th-march.pdf
        • Care Support Independence: Meeting the needs of a changing society
          www.orderline.dh.gov.uk

        Health Information
        • Our NHS Our Future: High Quality Care for All (Lord Darzi)
          www.ournhs.nhs.uk
        • Cancer Reform Strategy
          www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/dh_08100
        • Cancer Commissioning Tool
          www.canceruk.net
        • Department of Health
          www.dh.gov.uk
        • World Class Commissioning
          www.dh.gov.uk/en/managingyourorganisation/commissioning/worldclasscommissioning/index.htm
        • Our Health, Our Care, Our Say
          www.dh.gov.uk/en/Healthcare/Ourhealthourcareoursay/index.htm
        • National Planning Guidance ‘Vital Signs’
          www.dh.gov.uk/publications

        User and Public Involvement
        • Department of Health (2004). Choose and Book
          www.chooseandbook.nhs.uk
        • Department of Health (2005). Creating a Patient Led NHS -
          Delivering the NHS Improvement Plan
          www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publications
          PolicyAndGuidanceArticle/fs/en?CONTENT_ID=4127453&chk=NXIecj
        • Department of Health (2006). Developing a Stronger Local Voice
          www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/
          PublicationsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4137040&chk=U6PSmq
        • Department of Health (2006). Reward & Recognition
          www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/
          PublicationsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4138523&chk=vDLLsV




www.improvement.nhs.uk/cancer
Acknowledgements
With our thanks to:
• All the Test Sites for their continuing
commitment to
  this national workstream
• Professor Mike Richards
• Simon Williams
• Andy Millward (User Representative)
• Philippa Muir
• Dr. Brian Cottier
• Andrew Donald
• Celia Ingham Clark, National Clinical Lead
• Cancer Action Team
• NHS Improvement Team: Dr Ann Driver,
  Angie Robinson, Marie Tarplee, Catherine
  Strong, Jim Farrell, Wendy Gray

For further information please contact:

Dr Ann Driver
Director, NHS Improvement
Email: ann.driver@improvement.nhs.uk
Tel: 07900 223142

Angie Robinson
National Improvement Lead, NHS Improvement
Email: angie.robinson@improvement.nhs.uk
Tel: 07900 223346

Marie Tarplee
National Improvement Lead, NHS Improvement
Email: marie.tarplee@improvement.nhs.uk
Tel: 0791 7233248
NHS
                                                                                NHS Improvement



CANCER




DIAGNOSTICS




HEART




STROKE



              NHS Improvement

              Formed in April 2008, NHS Improvement brings
              together the Cancer Services Collaborative
              ‘Improvement Partnership’, Diagnostics Service
              Improvement, NHS Heart Improvement Programme
              and Stroke Improvement into one improvement
              programme.

              With over eight years practical service improvement
              experience in cancer, diagnostics and heart, NHS
              Improvement aims to achieve sustainable effective
              pathways and systems, share improvement resources
              and learning, increase impact and ensure value for
              money to improve the efficiency and quality of
              NHS services.

              Working with clinical networks and NHS
              organisations across England, NHS Improvement
              helps to transform, deliver and build sustainable
              improvements across the entire pathway of care in
              cancer, diagnostics, heart and stroke services.




              NHS Improvement
              3rd Floor | St John’s House | East Street | Leicester | LE1 6NB
              Telephone: 0116 222 5184 | Fax: 0116 222 5101

              www.improvement.nhs.uk


              ©NHS Improvement 2008 | All Rights Reserved

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Meeting the challenge together... delivering care in the most appropriate setting

  • 1. NHS NHS Improvement CANCER Transforming Inpatient Care DIAGNOSTICS Programme for Cancer Patients Meeting the challenge HEART together... delivering care in the most appropriate setting STROKE Supporting delivery...
  • 2.
  • 3. Meeting the challenge together... delivering care in the most appropriate setting 3 Contents Foreword 4 Introduction: Question: Why focus on cancer inpatients? 5 Delivering care in the most appropriate setting 8 • National programme overview • New models of care: Transforming Inpatient Cancer Care • The Winning Principles Testing, spreading and sustaining 10 Step One: Getting started 10 • Planning and engagement • Base-lining: Cancer Commissioning Toolkit • User involvement Step Two: Measuring quality that is fair, personalised, safe and effective 14 Step Three: Capturing the learning of testing, spread and sustainability 17 Useful resources 18 www.improvement.nhs.uk/cancer
  • 4. 4 Meeting the challenge together... delivering care in the most appropriate setting Foreword The Cancer Reform Strategy set out the benefits both for patients and for the NHS of transforming inpatient care for cancer patients. Too many patients are being admitted as emergencies when, with suitable planning, alternative models of care could have been put in place. Once admitted, the length of stay is often unnecessarily prolonged because of failure to define and implement inpatient care pathways and because of delays in decision making. Better education for patients would lead to self management approaches which could also reduce unnecessary admissions. The Transforming Inpatient Care Programme, led by NHS Improvement – Cancer and the National Cancer Action Team, has been established to support local initiatives to improve inpatient care for cancer patients. Pilot sites are now starting to test new ideas working with partners in primary care and social care. ‘Meeting the challenge together... delivering care in the most appropriate setting’ has been designed to support the pilot sites but will also be of interest to other organisations attempting to reform inpatient care. It builds on the ‘four winning principles’ that were identified from previous testing. Key to the success of this phase of the programme will be spread and sustainability to achieve the maximum impact. It is vital that we capture learning from individual pilot sites, both about what does and what does not work, in order that the benefits are optimised as soon as possible. Mike Richards National Cancer Director www.improvement.nhs.uk/cancer
  • 5. Meeting the challenge together... delivering care in the most appropriate setting 5 Question: Why focus on cancer inpatients? • Answer: To ensure quality that is fair, personalised, safe and effective • Answer: To promote partnership working, the alignment of systems and combined leverage for improvement • Answer: Because it’s an area that’s had little attention www.improvement.nhs.uk/cancer
  • 6. 6 Meeting the challenge together... delivering care in the most appropriate setting ‘ My time in hospital was their time, QUESTION: ’ not mine. (User feedback) • Answer: Because it matters Answer: There are some key interfaces to patients with the social care system Firstly, the whole system is acknowledged to be Andy’s reflections currently unsustainable due to the gap between funding and demographic and demand pressures. The My name is Andy Millward. I am a 55 year old man, Green Paper, currently in design phase, will be who was diagnosed in October 2004 with metastatic addressing this. Whatever the answers, it can be prostate cancer, a form of site specific cancer that was assumed that funding will remain very tight. so advanced that I was only given eighteen months to two years to live. I am very fortunate, in that I have thus far been able to defeat that timetable and Secondly, improving the inpatient experience does to prognosis, but the majority of my subsequent some degree depend on social care, especially if there treatment has been successfully managed whilst at are plans to reduce lengths of stay, move care closer home, which is very much where I, along with many to home and support early discharge. Taking this others on similar cancer journeys, wish to be. I have together with funding pressures, it will require whole had two hospital admissions since then, both via the systems solutions involving social care, including emergency pathways at my local hospitals and both ensuring that financial incentives work for social as admissions related primarily to severe pain. The well as primary/community care. process of accessing inpatient care was both difficult and traumatic for both my wife and I and unnecessarily burdensome, as we had to negotiate very Thirdly, the Government’s Putting People First different processes and locations to eventually arrive at (December 2007) transformation programme presents the oncology ward that could attend to my specific the system with the challenge of transforming the difficulties. way in which services are delivered to put control in the hands of service users and carers. By 2011 all I cannot fault the level of care offered as an service users of social care will have the right to use inpatient (and in line with many of the audits that I know have been carried out, some of my time was individual budgets to choose how their care is spent unnecessarily on general medicine wards). arranged, and those who fund their own care will be However, whilst recognising that staff who have offered the same level of advice and support as those responsibility for us have serious considerations of risk receiving state funding. In redesigning pathways, and clinical governance to consider, I think we as account should be taken of how choice and control patients could be given more responsibility and will operate for patients. innovative resources to manage more at home. From experience, I do also believe that I could very easily Fourthly, each region now has coordinated have been discharged sooner, thereby shortening my arrangements for care and support improvement, with length of stay. This is the real challenge for all of us and I therefore warmly welcome the launch of the Joint Improvement Partnerships overseeing national strategy on in-patient care and potential programmes of work, and Regional Improvement and likely alternatives to managing cancer journeys like Efficiency Partnerships allocating what funding there is my own away from hospital. in a coordinated way. It is important that any health We also need to ensure that even if acute admission is systems improvement work is able to link to these absolutely necessary – and not just a default position new arrangements. of the system – that treatment and care in hospital is kept to an absolute minimum. Simon Williams Director of Community and Housing, Andy Millward, National Lead for Urgent Care Nottingham (September 2008) www.improvement.nhs.uk/cancer
  • 7. Meeting the challenge together... delivering care in the most appropriate setting 7 Why focus on cancer inpatients? Answer: A move from a care delivery chain to a whole care system Why focus on cancer Delivering the next stage of the Cancer Reform inpatients? This is Strategy will require increased levels of integrated working alongside substantial redesign of services to ensure that services are relevant and responsive to no longer a question service users. Commissioners have a vital role in leading thinking on new services whilst supporting but an opportunity providers to work together, innovate and think differently about the scale, scope and style of services for action... which will be required outside of traditional settings. Commissioners will need to set out clear service strategies which focus on supporting an increase in for example self-management. This will undoubtedly create opportunities for new ideas and new providers in the area of cancer care. Andrew Donald Chief Operating Officer, Birmingham East & North PCT (September 2008) Answer: Care being delivered in the most appropriate setting and improving outcomes is a key commissioning role Doing this in a methodical and explicit way to develop new models of care brings acceptability and sustainability into consideration. Extending this work beyond secondary care and involving more stakeholders increases the complexity but the importance and potential benefits of this work make it worthwhile. A challenge faced by a PCT is working with the systems in place and developing new ways of commissioning new models. Philippa Muir Head of Specialist Commissioning and Clinical Networks, Oxfordshire PCT www.improvement.nhs.uk/cancer
  • 8. 8 Meeting the challenge together... delivering care in the most appropriate setting Delivering care in the most appropriate setting A programme of work has been established, supported by NHS Improvement and the Cancer Action Team, working with key organisations, users, charities and professional bodies. The overall programme covers six priority workstreams. Lead - (TBC) HES Lead - Cancer Lead - Action Team National Cancer Services Lead - Cancer Analysis Action Team Team Lead - Cancer Action Team Lead - NHS Improvement This document focuses on supporting the delivery of the New Models of Care: Transforming Inpatient Care. www.improvement.nhs.uk/cancer
  • 9. Meeting the challenge together... delivering care in the most appropriate setting 9 Winning Principles Previous testing identified four winning principles that can improve length of stay management, avert unnecessary admission, deliver care in the appropriate care settings, improve efficiency, quality, promote value for money and importantly value the patients’ time. 1. Unscheduled (emergency) patients should be assessed The task now is to: prior to the decision to admit. • Ensure that these winning Emergency admission should be the exception not the norm. principles are spread and embedded across the NHS 2. All patients should be on • Test new ideas with new defined inpatient pathways partners such as primary based on their tumour type and social care and reasons for admission. • Sustain proven improvements to achieve maximum impact 3. Clinical decisions should be made on a daily basis to promote proactive case management. www.improvement.nhs.uk/ winning_principles 4. Patient and carers need to know about their condition and symptoms to encourage self-management and to know who to contact when needed. www.improvement.nhs.uk/cancer
  • 10. 10 Meeting the challenge together... delivering care in the most appropriate setting Testing, spreading and sustaining Step One: Getting Started Tip 1: Create a shared vision – time and effort spent in agreeing high quality and performance indicators at the start will enable the team to stay focussed. Tip 2: Keep the service users and carers central. Tip 3: Create co-production energy – work with an approach that encompasses professional, organisational and functional boundaries to create partnership environments. Tip 4: Define the workstream scope – there are many project initiation documents available but it is worth agreeing which one you are going to adopt to ensure appropriate links are correctly made at the start. Tip 5: Test small step changes - one service user at a time makes the experience safe and controlled. Tip 6: Engage partners early in discussions. Make sure you are not just shifting existing services without the infrastructure to support and adding more unnecessary steps into the process. Tip 7: Use clinicians and leaders as a catalyst to improve care at all stages. Tip 8: Use and involve the local network service improvement team as a resource. Tip 9: Focus on really understanding the problem not jumping to the solution. www.improvement.nhs.uk/cancer
  • 11. Meeting the challenge together... delivering care in the most appropriate setting 11 Good planning can inspire change that leads to improvements Planning Leadership and • Identify the key people to be involved early on in the workstream. engagement • Who are the key stakeholders? • Clinical and managerial leadership is critical to success. • Have you included data and informatics and finance, primary care and social care? Knowledge and • Establish the steering/working group. skills – the basics • Has the group got the people with the knowledge and skills? Can they make the decisions? • Do they have service improvements skills? • Knowledge of heath and social care processes? • Is there service user Involvement? • Is their agreed local accountability and responsibility for delivery? • Knowledge of commissioning? • Information gathered from all perspectives (service users, staff, commissioners, partnerships etc). Planning the • Identify, understand and define the ‘real’ problem not the solution. improvement • Review data to understand demand, activity and variation in performance. workstream • How are your improvements going to be measured and monitored? Have you included qualitative and quantitative performance indicators? • Match the collection of baseline data with the scope of the problem identified. • Remember that no data will be perfect and beware of analysis paralysis (collecting everything that tells you nothing). • Break the data down into sections of information to help you identify what needs to be collected and analysed. • Look for the 80/20 rule (Pareto principle) this happens to 80% of our users; focus on the 80% first, look for trends in retrospective data. • Keep clinicians, leaders and key people involved. • Identify (visioning) and design the ideas to tested. Engagement with • Seek and build continuous and meaningful engagement with the public public and service and service users, involve them in shaping services. users • Have an understanding of different user engagement options, including the opportunities, strengths, weaknesses and risks. • Routinely invite service users and the public to respond to and comment on issues. • Ensure that users and the public understand how their views will be used, which decisions they will be involved in, when decisions will be made, and how they can influence improvement. Test out your ideas • Communicate widely about ideas being tested. • Test the idea (maybe more than one testing cycle). • Capture results, benefits and measure the impact. Match across to your performance indicators. • Capture the learning (the things that work and those that didn’t documenting reasons why). • Communicate regularly with the whole team and partnerships - keep the message short and snappy. • Ensure identified ownership of action points. Evaluation • Analyse the results and quantify the impact of actual and potential. • Identify benefits- e.g. quality, cost, outcomes. • Identify risks. • Evaluate the alternatives. • Make recommendations. • Build your business case on evidence. Implementation – • Recommendations for implementation (provide the evidence that supports your testing). spread and sustain • Commissioners want to see the evidence. • Celebrate your achievements. • Share the learning - publicise your work. • Prepare your spread/adoption strategy. • Include how you will measure sustainability. www.improvement.nhs.uk/cancer
  • 12. 12 Meeting the challenge together... delivering care in the most appropriate setting Use a simple approach: Apply a practical framework for testing, spreading and sustaining YES Analysis Is it the Identify the Visioning Baseline from Testing Cycles right solution to real root of the What are you trying address the real different perspectives problem Test out the idea’s to achieve? problem? NO YES Case for change Evaluate and Implementation Agree the redesign Evaluation Plan the implementation check sustainability Implement the idea & implementation of Evaluate the benefits of the tested idea. Build the improvements What is the difference the case for change Spread/Adoption Strategy Use available resources for gathering The Cancer Commissioning Toolkit will baseline information help you to define who needs to be engaged and define who will drive the The Cancer Commissioning Toolkit (CCT) workstream – commissioning, primary The Cancer Reform Strategy (2007) identified better care, secondary care or social care information and stronger commissioning as two of the key drivers to achieve the goal that cancer services in You will still need to capture England should be amongst the best in the world. The a local baseline CCT is a one stop online library of key cancer To find out locally and to understand what information and data which can be easily accessed for lies beneath the numbers of the CCT. use. The Cancer Commissioning Tool provides the To help you with local baselines a series starting point by providing useful baseline and of questions have been developed into benchmarking information. an inpatient checklist which is available at the back of this document. Most of this information should be available in The Cancer Commissioning Toolkit (CCT) inpatient your local organisations. chapter is divided into three key sections www.improvement.nhs.uk/cancer
  • 13. Meeting the challenge together... delivering care in the most appropriate setting 13 Capturing your baseline The involvement of users can result in a number of benefits for the organisation. • Find out why your length of stay is X and bed days Y User involvement • Tip 1: Don’t look at the numbers of the CCT in • Raises your awareness of the issues isolation from the whole improvement picture that impact on service users for the patient • Helps to clarify how health services can • Tip 2: Don’t jump to solutions be improved and redesigned based on the numbers without • Helps to identify issues and support identifying the real their improvements to make the problem biggest impact for service user needs • Tip 3: Think about: • Challenges the professional views and ‘How can you really manage existing approaches to services. length of stay if you do not know what the right length of stay is?’ •Tip 4: Do not get complacent, if User involvement - methods you identify from the CCT data • Questionnaire surveys that you are in the higher or • Satisfaction surveys middle quartile - there is • Interviewing always room for improvement. • Discovery interviews • User diaries • Focus groups • Workshops • Reader panels Getting the user involved • User panels User involvement is increasingly becoming accepted • Citizens’ juries by planners, service providers and users. The need to • Local 18 week patient experience listen and act on the views of users and the public is surveys. an integral part of improving quality and delivery of healthcare. There are many different approaches to user The inpatient test sites used a variety of involvement; start by identifying what already exists these methods, for example, patient across the health community. satisfaction surveys were developed to ensure that there were no adverse effects on patient experience due to User involvement changes in their pathways. • Patient Advice and Liaison Services (PALS) ‘ • Studying the complaints and compliments • Suggestion boxes and comments slips • Local organisational audit and national audit I much preferred coming to e.g. Health Care Commission Annual Health day care for my antibiotics Check, National Cancer Audit • Study the organisations website for as I was able to have my suggestions/comments. It is also worthwhile exploring what is currently happening in local treatment early enough to areas to gain feedback from patients for allow me to go home and example: ’ • Patient and public involvement forums care for my disabled wife. • Local Involvement Networks (LINKs) (Patient interview) • Patient groups: User groups, carer groups and disease support groups • Expert Patient Programmes www.improvement.nhs.uk/ • Patient participation groups in primary care. winning_principles www.improvement.nhs.uk/cancer
  • 14. 14 Meeting the challenge together... delivering care in the most appropriate setting Step Two: Measuring that quality is fair, personalised, safe and effective Tip 1: To be able to realise benefits - it is important to agree the measures (metrics or indicators) right at the start of the workstream with all partners. Tip 2: Measures (metrics/indicators) should reflect the whole performance spectrum: • Quality and patient experience • Efficiency and value for money • Effectiveness and impact of improvements • Alignment with national indicators across partnerships. Tip 3: Set up a data capture system for continuous monitoring of improvement at the start. Tip 4: Feedback regularly on the improvements made. A true measure captures all the benefits that everyone can gain. www.improvement.nhs.uk/cancer
  • 15. Meeting the challenge together... delivering care in the most appropriate setting 15 Identifying the potential alignment of national and local indicators with Transforming Inpatient Care ‘Vital Signs’ ‘National Indicators’ Cancer Reform Indicators for progress against Local Authority and Local Authority Strategy (CRS) national/local priorities for PCTs Partnerships for adult health and wellbeing New Models Transforming Inpatient Care Rates of hospital admissions for Number of social care clients receiving self directed Winning Principle 4 ambulatory care support per 100,000 population – designing the care and support package that best suits their specific needs Proportion of people with long term The percentage of people with a long-term Winning Principle 4 conditions supported to be independent condition supported to be independent and in and in control of their condition control of their condition Patient experience of access to Timeliness of social care assessments and social Winning Principle 1 primary care care packages following assessment Number of delayed transfers of care per The average weekly rate of delayed transfers of Winning Principle 1 100,000 population (aged 18 and over) care from all NHS hospitals, acute and non-acute, Winning Principle 2 per 100,000 population aged 18 and over Winning Principle 3 Timeliness of social care assessment The ability of the whole system to ensure Winning Principle 3 and package appropriate discharge from hospital Self reported experience of patients Self reported experience of social care users Winning Principle 4 and users perceptions of services Patients and user reported measures of User reported measures of respect and dignity in Winning Principle 3 respect and dignity in treatment their treatment Number of emergency bed days per Number of emergency bed days per head of Winning Principle 1 head of weighted population weighted population Ambulance conveyance rate to A&E Proportion of all deaths that occur Percentage of all deaths that occur at home - end Winning Principle 4 at home of life care, access to appropriate care enabling people to be able to choose to die at home Percentage of patients receiving their Waiting times targets Winning Principle 2 first definitive treatment for cancer within two months of urgent referral for suspected cancer Percentage of patients seen within 18 Winning Principle 3 weeks for admitted pathways www.improvement.nhs.uk/cancer
  • 16. 16 Meeting the challenge together... delivering care in the most appropriate setting Remember, measures provide evidence Transforming Inpatient Care and motivate stakeholders: has the potential of: • Reducing cancer bed days by 25% Providers are motivated to reduce per SHA length of stay and to release capacity. • Ensuring inpatient care for cancer does not exceed 12% of all inpatient bed PCTs are motivated to reduce days (baseline CRS 2007) inappropriate admissions and bed • Ensuring costs do not exceed the 2008 baseline days over trim points. • Reducing emergency admissions by 5%. Patients do not want to be in a hospital Capturing and measuring the quality, unnecessarily - efficiency and impact through the NHS Improvement microsite adding no value to their well being The microsite will be one of a cluster of or treatment. specialised websites linked to the Cancer Commissioning Toolkit and the NHS Improvement website. The microsite is being developed to support the new models workstream. It will present specific information and data relating to the impact of testing, spread Early intervention and the sustainability of the work being undertaken by the provider sites actively by social care. Early involved the workstream. supportive discharge benefit - cost saving in The microsite will be a ‘working web the community - right space’ that will allow organisations to support at the review their historic activity, scenario plan, quantify their assumptions and right time. measure the actual and potential impact of their improvement ideas. The microsite will go live in January 2009 and will continue to evolve and develop during 2009. www.improvement.nhs.uk/cancer
  • 17. Meeting the challenge together... delivering care in the most appropriate setting 17 Step Three: Capturing the learning for testing, spread and sustainability To enable the learning to be collated and shared, 3. Sustainability Checklist three approaches have been developed, that together can enhance the delivery of improvement across the It is important to develop a plan for new models workstream and build the momentum for sustainability which ensures that we spread. (The learning diary/spread planner and create lasting improvements. sustainability check list can be found in the back pocket of this document). The sustainability check list focuses on some key questions to assist you in 1. The Testing Learning Diary developing your strategy. Capturing the elements of the ‘Testing process’ (Aim, Measures, Process and Impact) will help to support a learning framework that will enable the key outcomes of the ‘testing phase’ to be shared with the wider NHS. The Inpatient Learning Diary is a tool which collates the learning from the testing, and helps to guide the sites through the testing approach by a series of questions. This is available on: www.improvement.nhs.uk/improvementsystem. To learn objectively from the whole process, the project needs to be reviewed in order to establish what has been accomplished, and to also learn from what did not go so well. This will enable all organisations involved to learn from the experience and to share that learning with others. 2. Spread Planner Success is often gauged by how quickly an idea is rapidly adopted and spread. Having a spread strategy can eliminate the gap between what is and what can be. It promotes equity of service delivery in order that all can gain from the benefits. The spread planner is a guide to spreading the winning principles and other outcomes and benefits from testing. It derives from the experience of the early test sites, Institute for Health Improvement (IHI) and the work of Everett Rodgers (Diffusion of Innovation 2003). www.improvement.nhs.uk/cancer
  • 18. 18 Meeting the challenge together... delivering care in the most appropriate setting Useful resources Service Improvement Information • NHS Improvement, Transforming Inpatient Care, Winning Principles www.improvement.nhs.uk • Gold Standards Framework (GSF) www.goldstandardsframework.nhs.uk • Liverpool Care Pathway for the Dying Patient (LCP) www.lcp@mariecurie.org.uk • Palliative Care www.endoflife.nhs.uk Social Care Information • Adult Social Care: The Government’s Green Paper and the LGA’s Campaign www.lga.gov.uk/lga/aio/275402 • Putting Patients First www.nationalhealthcouncil.org/initiatives/putting_patients.htm • High Impact Changes for Health & Social Care www.csip.org.uk/silo/files/hics-doc-11th-march.pdf • Care Support Independence: Meeting the needs of a changing society www.orderline.dh.gov.uk Health Information • Our NHS Our Future: High Quality Care for All (Lord Darzi) www.ournhs.nhs.uk • Cancer Reform Strategy www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/dh_08100 • Cancer Commissioning Tool www.canceruk.net • Department of Health www.dh.gov.uk • World Class Commissioning www.dh.gov.uk/en/managingyourorganisation/commissioning/worldclasscommissioning/index.htm • Our Health, Our Care, Our Say www.dh.gov.uk/en/Healthcare/Ourhealthourcareoursay/index.htm • National Planning Guidance ‘Vital Signs’ www.dh.gov.uk/publications User and Public Involvement • Department of Health (2004). Choose and Book www.chooseandbook.nhs.uk • Department of Health (2005). Creating a Patient Led NHS - Delivering the NHS Improvement Plan www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/Publications PolicyAndGuidanceArticle/fs/en?CONTENT_ID=4127453&chk=NXIecj • Department of Health (2006). Developing a Stronger Local Voice www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/ PublicationsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4137040&chk=U6PSmq • Department of Health (2006). Reward & Recognition www.dh.gov.uk/PublicationsAndStatistics/Publications/PublicationsPolicyAndGuidance/ PublicationsPolicyAndGuidanceArticle/fs/en?CONTENT_ID=4138523&chk=vDLLsV www.improvement.nhs.uk/cancer
  • 19. Acknowledgements With our thanks to: • All the Test Sites for their continuing commitment to this national workstream • Professor Mike Richards • Simon Williams • Andy Millward (User Representative) • Philippa Muir • Dr. Brian Cottier • Andrew Donald • Celia Ingham Clark, National Clinical Lead • Cancer Action Team • NHS Improvement Team: Dr Ann Driver, Angie Robinson, Marie Tarplee, Catherine Strong, Jim Farrell, Wendy Gray For further information please contact: Dr Ann Driver Director, NHS Improvement Email: ann.driver@improvement.nhs.uk Tel: 07900 223142 Angie Robinson National Improvement Lead, NHS Improvement Email: angie.robinson@improvement.nhs.uk Tel: 07900 223346 Marie Tarplee National Improvement Lead, NHS Improvement Email: marie.tarplee@improvement.nhs.uk Tel: 0791 7233248
  • 20. NHS NHS Improvement CANCER DIAGNOSTICS HEART STROKE NHS Improvement Formed in April 2008, NHS Improvement brings together the Cancer Services Collaborative ‘Improvement Partnership’, Diagnostics Service Improvement, NHS Heart Improvement Programme and Stroke Improvement into one improvement programme. With over eight years practical service improvement experience in cancer, diagnostics and heart, NHS Improvement aims to achieve sustainable effective pathways and systems, share improvement resources and learning, increase impact and ensure value for money to improve the efficiency and quality of NHS services. Working with clinical networks and NHS organisations across England, NHS Improvement helps to transform, deliver and build sustainable improvements across the entire pathway of care in cancer, diagnostics, heart and stroke services. NHS Improvement 3rd Floor | St John’s House | East Street | Leicester | LE1 6NB Telephone: 0116 222 5184 | Fax: 0116 222 5101 www.improvement.nhs.uk ©NHS Improvement 2008 | All Rights Reserved