The document discusses designing solutions to improve pediatric asthma adherence by engaging children and creating positive family dynamics through storybooks that build a relationship between the child and their medical mask and involve parents in a meaningful way through family storytelling. Initial concepts of immersive role-play and stimulating the child's imagination evolved through prototyping into storybooks that fit into family lifestyles and assigned parents a role next to their child.

1. Designing for
Pediatric Asthma Adherence
MedicineX, Stanford September, 28-30, 2012
Rouja Pakiman Lucie Richter
MFA User Experience & Interaction Design Design Research, Senior Lecturer
California College of the Arts California College of the Arts

2. The Reality for Millions of Children, Every Day

3. Families Struggle Adhering to the Prescribed Treatments

4. Asthma Prevalence*
1. 20% ER visits
2. 13 Million missed school days
3. Annual healthcare costs: $50 billion**
4. Annual costs per person: $3,259
* CDC, Vital Signs: Asthma Prevalence, US, 2001- 2009
** Cost of asthma management in children & adults combined

5. believe
reinforce frame
act know
prompt
The Adherence Loop, IDEO 2007

6. believe
reinforce frame
act prompt know
Facilitated Adherence in Pediatrics 2012

7. The Current
Daily Nebulizer Experience

8. The child
fights back
... but then gives
in & gets board

9. Design Principle
->Engage the child

10. Parents struggle
to love their
fighting child
... but they
empathize with
their child

11. Design Principle
->Create Positive Family Dynamics

12. Parents feel
guilty of torturing
their child
... but do it to
provide good care

13. Design Principle
->Assign a meaningful role to
the parents

14. Design Principles 1.0
1. Engage the child
2. Create positive family dynamics
3. Assign a meaningful role to the parents

15. Design Principles 1.0
1. Engage the child
2. Create positive family dynamics
3. Assign a meaningful role to the parents

16. Design Principles 1.0
1. Engage the child
2. Create positive family dynamics
3. Assign a meaningful role to the parents

17. Design Process
feedback
Product
ideate prototype or
Service
iterate

18. Probe A
Role-play to
engage the child

19. In which roles
do people use masks to
get help with breathing
outside of medical
treatment?
Immersive Role-play Experience

20. In which roles
do people use masks to
get help with breathing
outside of medical
treatment?

21. - She wanted more
accessories, scenes
and set-ups
- He wanted more action
and challenges
Augmented Snorkeler & Astronaut

22. How might we...
1. create an appropriate bedtime activity?
2. counter the stimulating side effects ?
3. make it sustainable?
4. involve the parents proactively?

23. How might we...
1. create an appropriate bedtime activity?
2. counter the stimulating side effects ?
3. make it sustainable?
4. involve the parents proactively?

24. How might we...
1. create an appropriate bedtime activity?
2. counter the stimulating side effects ?
3. make it sustainable?
4. involve the parents proactively?

25. How might we...
1. create an appropriate bedtime activity?
2. counter the stimulating side effects ?
3. make it sustainable?
4. involve the parents proactively?

26. Storybooks

27. Interactive Role-play Storybook

28. Iterate
Discovery!

29. Series of Small Studies

30. The Plastic Mask: the Most Intimate Part of the Experience

31. Children Have Great Imagination

32. Even a Princess Can Have Asthma!

33. Storybook credit: Sue Redding

34. Text appears in the presence of the mask

35. Text appears in the presence of the mask

36. The mask becomes the child’s magic wand

37. Probe B
Family Storytelling

38. Parents Already Read Stories to Their Children

39. Parents Participate

40. Parents Contribute to the Content of the Stories

41. Each Marker Represents a Particular Storybook

42. Discoveries During Prototyping:
1. From immersive role-play concept to storybooks
2. From stimulating the child’s imagination to
creating a relationship between the child & the mask
3. From parents watching the child to parents taking
the seat next to their child

43. Discoveries During Prototyping:
1. From immersive role-play concept to storybooks
2. From stimulating the child’s imagination to
creating a relationship between the child & the mask
3. From parents watching the child to parents taking
the seat next to their child

44. Discoveries During Prototyping:
1. From immersive role-play concept to storybooks
2. From stimulating the child’s imagination to
creating a relationship between the child & the mask
3. From parents watching the child to parents taking
the seat next to their child

45. Design Principles 2.0
1. Engage the child
2. Create positive family dynamics
3. Assign a meaningful role to the parents
4. Design a sustainable program
5. Fit into family lifestyle
6. Build a relationship between the child & the device

46. Design Principles 2.0
1. Engage the child
2. Create positive family dynamics
3. Assign a meaningful role to the parents
4. Design a sustainable program
5. Fit into family lifestyle
6. Build a relationship between the child & the device

47. Design Principles 2.0
1. Engage the child
2. Create positive family dynamics
3. Assign a meaningful role to the parents
4. Design a sustainable program
5. Fit into family lifestyle
6. Build a relationship between the child & the device

48. Magic Mask: not a silver bullet in managing asthma

49. Q & A