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A view from a sibling:

Facilitating experiences for visitors with autism.


Leila Chapman
KCA London


                             leilas@kcalondon.com
Who I am:

Twelve years experience in operating and creating
visitor experiences

Started career at the Science Museum, London

Part of the KCA London partnership
Who I am not:

A doctor

A psychologist

A pathologists

A therapist…
What’s the big deal?

New data suggests 1 in 110 children have a ASD
(National Centre on Birth Defects and Developmental Disabilities)
The potential to provide positive experiences

Huge potential for science centres, Museum and
attractions to provide inclusive, engaging and life
enhancing experiences for people with autism and
their families.
What am I going to talk about:

What autism is

Common difficulties for people with autism

Characteristic behaviours for people with autism

What we can do

Hints and tips
What is autism?

A lifelong developmental disability that affects how a
person communicates with, and relates to, people
around them.

Also affects how they make sense of the world around
them.

‘..the world is a mass of people, places
and events which I struggle to make
sense of’.
What is autism?

Spectrum condition – may share characteristics, but
condition will affect them in different ways.
ASD
What is autism?
Common areas of difficulty
Common areas of difficulty

Characteristics vary from one person to another but
generally divided into three main groups:

•Difficulty with social communication

•Difficulty with social interaction

•Difficulty with social imagination.
Social Communication
Difficulty with verbal and non verbal language.

Many have a very literal understanding of language,
thinking people mean exactly what they say.

Find it difficult to understand:
• Facial expressions or tone of voice
• Jokes or sarcasm
• Idioms, metaphors and figurative speech.

‘My teacher told me to pull my socks up.
I bent down and did just that.’
‘The sign said remain seated. That’s why I did not get
off the bus.’
Social Communication
Mathematics and physics may appeal to people with
ASD:

“Communicating science concepts is easy – everyone
speaks the same language. When you go to a foreign
country people make an effort to speak clearly and
without ambiguities, because they know that if they
don't, you may not understand.”

           Michael Barton, It’s Raining Cats and Dogs
Social Communication

Some people may not speech, or have limited speech.

May understand what other people say to them, but
prefer to use alternative means of communication
themselves:

•Makaton
•Picture Exchange Communication symbols (PECS)
•Noises
•Repetitive movements
Social Communication
Social Communication

Others will have great language skills, but may find it
hard to understand the give-and-take of conversations.

Echolalia.

Talking at length about their own interests – and
nothing else.

Little or no eye contact.

Preoccupied with a thought or object.
Social Communication
Social Communication
2002 study (NAS, UK) explored why Thomas the Tank
Engine is so popular with children with autism and Asperger
syndrome:

•Characters have friendly faces, often with exaggerated
expressions.
•Expressions are set for some time, and often accompanied by
simple narration explaining the emotion (‘Thomas was sad’)
•The characters play predictable roles.
•The narration is calm and clear, and changes are
'signposted' clearly.
•The stop-action photography allows the background and scenery
to remain still, allowing for greater focus on the "big picture" with
less distraction.
How can you support social communication for
people with autism?

Think about the language you use in graphics and
presentations: be clear, consistent, and give time to
process.

Be creative with communication – icons, images, body
language, colour.

Makaton!

Patience, kindness.
Work hard to make links to the everyday
– systems learning.
How can you support social communication for
people with autism?

Video labels for mechanical exhibits.
Social Interaction

Socialising doesn’t come naturally – we have to learn
it.

People with autism often have difficulty recognising or
understanding other people’s emotions or feelings, and
expressing their own.
Social Interaction
They may:

•Not understand the unwritten social rules, such as
standing too close to other people.

•Appear to be insensitive.

•Prefer to spend time alone.

•Do not seek comfort.

•‘Inappropriate’ behaviour.
Social Interaction

Common to exhibit unusual behaviours or interests.

Repetitive behaviours also common:
•Hand flapping, rocking, jumping up and down;

•Compulsory behaviours: Arranging items in a certain
order or manner;

•Ritualistic behaviours that are limited in focus, such as
a certain object or television programme.

May want to make friends: but don’t know how.
How can you support social interaction for
people with autism?

Train your staff – visitors will take their lead.

Provide a space where they can take a break from the
hub of activity.

Multiuser exhibits can break barriers to interacting with
others.

Popular items or objects (trains, buses):
trail opportunities?
How can you support social interaction for
people with autism?


What exhibits operate use repetitive movements?
Social Imagination

Allows us to understand and predict other people’s
behaviour, make sense of abstract ideas, imagine
situations outside of immediate routine.

For people with autism, it can be hard to:
•Understand and interpret other people’s thoughts,
feelings and actions;
•Predict what will happen next;
•Understand the concept of danger or threats;
•Engage in imaginative play;
•Prepare for change and plan for the future;
•Cope in new or unfamiliar situations.
How can you support social imagination for
people with autism?

Be extra aware of danger or risk on gallery.

Avoid terms such as ‘imagine’ or put ‘yourself in place
of’…

Think about props and gallery extensions – what objects
or tools can help connect science principles to everyday
life?
How can you support social imagination for
people with autism?

Ask descriptive questions based on sensory discoveries:
‘is it rough or smooth?’, ‘is it new or old?’, ‘is it heavy or
light?’… will encourage investigation.
Characteristic behaviours

Vary from one person to another, but common
behaviours are:

•Love of routines

•Sensory sensitivity

•Special interests

•Learning disabilities
Love of routines

‘One young person with autism attended a day service.
He would be dropped off by taxi, walk up to the door of
the day service, knock on it and be let in.

One day, the door opened before he could knock and
a person came out, rather than go in through the open
door, he returned to the taxi and began his routine
again.’
Love of routines

May prefer a fixed daily routine so that they know what
is going to happen in a confusing and unpredictable
world.

Coming to your attraction rather than following normal
routine can be an ordeal in itself!

Can cope better if prepared in advance.
You are coming to Mishkat!
Mishkat is about energy. We use energy to
watch television, drive cars and cook food.
Energy is all around us. We can capture
energy from the sun, wind, water and from the
heat under the ground.
You can explore where energy comes from and
how we use it at Mishkat.
You will be met by our friendly hosts at
reception. They will keep your bags and coats
safe and show you where the toilets are.
In the Group Space, you will meet our
Facilitators. They are here to help you discover
about energy.
You can fly a plane, send a rocket into space,
make a hot air balloon float into the air... there
are lots of fun things for you to do and see!
In the Energy Hall, there is a wavy table for you
to touch and play with.
You will also go into Powering Our Future,
where there are lots of things fo you to touch
and explore.
Sensory sensitivity

‘Peter loves dancing at parties. But attending a party
make him anxious, as he is terrified that there will be
balloons. For weeks beforehand, he will cover his ears
with his hands and shout ‘bang!’”

People with autism may experience sensory sensitivity
in one or more of the five senses.
Sensory sensitivity
A person’s senses are either intensified
(hypersensitive) or under-sensitive (hypo-sensitive).

Hypersensitive:

A person with autism may find certain background
sounds unbearably loud or distracting – it can cause
anxiety or even physical pain.

Sensory stimulating places may be too overwhelming.
Sensory sensitivity
Eureka! Children’s Museum Break to Play project
Sensory sensitivity
Provides a welcoming environment for children with
ASD and their parents, carers and siblings, in what
would otherwise be a challenging environment.

Sessions offer families the chance to play together with
additional support from the Eureka! team.

First programme took place on Saturday mornings

Experiences were tailored to the needs of their family.

Ear defenders offered to explore the galley.
Sensory sensitivity
Hypo-sensitive

May not feel pain or extremes of temperature.

Some may rock, spin, flap hands to stimulate
sensation, help with balance and posture or deal with
stress.

May also find it harder to use their body awareness
system, making it difficult to avoid obstructions, stand
at appropriate distances or carry out fine motor tasks.



.
Sensory sensitivity




.
Special interests
Many people with autism have intense special
interests.

Can change overtime, or be lifelong.

May be unusual…




.
Special interests

Interest can be channelled into subject areas:

Buses – Transport
Rubbish – Recycling
Pebbles – Geology




.
Final thoughts

Don’t leave out the siblings or parents!

Be creative with communications.

Invest in staff.

Create an ethos of empathy not sympathy.

Consider the entire visitor experience – pre visit,
queuing, on gallery trails..
Final thoughts

Don’t be afraid to ask questions.

Children of autism grown and become autistic adults.

Although there are characteristics, they are individuals.

No substitute for kindness and patience.
.
Thank you!




leilas@kcalondon.com
.

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KCA London presentation - making experiences accessible for visitors with autism

  • 1. A view from a sibling: Facilitating experiences for visitors with autism. Leila Chapman KCA London leilas@kcalondon.com
  • 2. Who I am: Twelve years experience in operating and creating visitor experiences Started career at the Science Museum, London Part of the KCA London partnership
  • 3. Who I am not: A doctor A psychologist A pathologists A therapist…
  • 4.
  • 5. What’s the big deal? New data suggests 1 in 110 children have a ASD (National Centre on Birth Defects and Developmental Disabilities)
  • 6. The potential to provide positive experiences Huge potential for science centres, Museum and attractions to provide inclusive, engaging and life enhancing experiences for people with autism and their families.
  • 7. What am I going to talk about: What autism is Common difficulties for people with autism Characteristic behaviours for people with autism What we can do Hints and tips
  • 8. What is autism? A lifelong developmental disability that affects how a person communicates with, and relates to, people around them. Also affects how they make sense of the world around them. ‘..the world is a mass of people, places and events which I struggle to make sense of’.
  • 9. What is autism? Spectrum condition – may share characteristics, but condition will affect them in different ways. ASD
  • 11. Common areas of difficulty
  • 12. Common areas of difficulty Characteristics vary from one person to another but generally divided into three main groups: •Difficulty with social communication •Difficulty with social interaction •Difficulty with social imagination.
  • 13. Social Communication Difficulty with verbal and non verbal language. Many have a very literal understanding of language, thinking people mean exactly what they say. Find it difficult to understand: • Facial expressions or tone of voice • Jokes or sarcasm • Idioms, metaphors and figurative speech. ‘My teacher told me to pull my socks up. I bent down and did just that.’ ‘The sign said remain seated. That’s why I did not get off the bus.’
  • 14. Social Communication Mathematics and physics may appeal to people with ASD: “Communicating science concepts is easy – everyone speaks the same language. When you go to a foreign country people make an effort to speak clearly and without ambiguities, because they know that if they don't, you may not understand.” Michael Barton, It’s Raining Cats and Dogs
  • 15. Social Communication Some people may not speech, or have limited speech. May understand what other people say to them, but prefer to use alternative means of communication themselves: •Makaton •Picture Exchange Communication symbols (PECS) •Noises •Repetitive movements
  • 17. Social Communication Others will have great language skills, but may find it hard to understand the give-and-take of conversations. Echolalia. Talking at length about their own interests – and nothing else. Little or no eye contact. Preoccupied with a thought or object.
  • 19. Social Communication 2002 study (NAS, UK) explored why Thomas the Tank Engine is so popular with children with autism and Asperger syndrome: •Characters have friendly faces, often with exaggerated expressions. •Expressions are set for some time, and often accompanied by simple narration explaining the emotion (‘Thomas was sad’) •The characters play predictable roles. •The narration is calm and clear, and changes are 'signposted' clearly. •The stop-action photography allows the background and scenery to remain still, allowing for greater focus on the "big picture" with less distraction.
  • 20. How can you support social communication for people with autism? Think about the language you use in graphics and presentations: be clear, consistent, and give time to process. Be creative with communication – icons, images, body language, colour. Makaton! Patience, kindness. Work hard to make links to the everyday – systems learning.
  • 21. How can you support social communication for people with autism? Video labels for mechanical exhibits.
  • 22. Social Interaction Socialising doesn’t come naturally – we have to learn it. People with autism often have difficulty recognising or understanding other people’s emotions or feelings, and expressing their own.
  • 23. Social Interaction They may: •Not understand the unwritten social rules, such as standing too close to other people. •Appear to be insensitive. •Prefer to spend time alone. •Do not seek comfort. •‘Inappropriate’ behaviour.
  • 24. Social Interaction Common to exhibit unusual behaviours or interests. Repetitive behaviours also common: •Hand flapping, rocking, jumping up and down; •Compulsory behaviours: Arranging items in a certain order or manner; •Ritualistic behaviours that are limited in focus, such as a certain object or television programme. May want to make friends: but don’t know how.
  • 25. How can you support social interaction for people with autism? Train your staff – visitors will take their lead. Provide a space where they can take a break from the hub of activity. Multiuser exhibits can break barriers to interacting with others. Popular items or objects (trains, buses): trail opportunities?
  • 26. How can you support social interaction for people with autism? What exhibits operate use repetitive movements?
  • 27. Social Imagination Allows us to understand and predict other people’s behaviour, make sense of abstract ideas, imagine situations outside of immediate routine. For people with autism, it can be hard to: •Understand and interpret other people’s thoughts, feelings and actions; •Predict what will happen next; •Understand the concept of danger or threats; •Engage in imaginative play; •Prepare for change and plan for the future; •Cope in new or unfamiliar situations.
  • 28. How can you support social imagination for people with autism? Be extra aware of danger or risk on gallery. Avoid terms such as ‘imagine’ or put ‘yourself in place of’… Think about props and gallery extensions – what objects or tools can help connect science principles to everyday life?
  • 29. How can you support social imagination for people with autism? Ask descriptive questions based on sensory discoveries: ‘is it rough or smooth?’, ‘is it new or old?’, ‘is it heavy or light?’… will encourage investigation.
  • 30. Characteristic behaviours Vary from one person to another, but common behaviours are: •Love of routines •Sensory sensitivity •Special interests •Learning disabilities
  • 31. Love of routines ‘One young person with autism attended a day service. He would be dropped off by taxi, walk up to the door of the day service, knock on it and be let in. One day, the door opened before he could knock and a person came out, rather than go in through the open door, he returned to the taxi and began his routine again.’
  • 32. Love of routines May prefer a fixed daily routine so that they know what is going to happen in a confusing and unpredictable world. Coming to your attraction rather than following normal routine can be an ordeal in itself! Can cope better if prepared in advance.
  • 33. You are coming to Mishkat!
  • 34. Mishkat is about energy. We use energy to watch television, drive cars and cook food.
  • 35. Energy is all around us. We can capture energy from the sun, wind, water and from the heat under the ground.
  • 36. You can explore where energy comes from and how we use it at Mishkat.
  • 37. You will be met by our friendly hosts at reception. They will keep your bags and coats safe and show you where the toilets are.
  • 38. In the Group Space, you will meet our Facilitators. They are here to help you discover about energy.
  • 39. You can fly a plane, send a rocket into space, make a hot air balloon float into the air... there are lots of fun things for you to do and see!
  • 40. In the Energy Hall, there is a wavy table for you to touch and play with.
  • 41. You will also go into Powering Our Future, where there are lots of things fo you to touch and explore.
  • 42. Sensory sensitivity ‘Peter loves dancing at parties. But attending a party make him anxious, as he is terrified that there will be balloons. For weeks beforehand, he will cover his ears with his hands and shout ‘bang!’” People with autism may experience sensory sensitivity in one or more of the five senses.
  • 43. Sensory sensitivity A person’s senses are either intensified (hypersensitive) or under-sensitive (hypo-sensitive). Hypersensitive: A person with autism may find certain background sounds unbearably loud or distracting – it can cause anxiety or even physical pain. Sensory stimulating places may be too overwhelming.
  • 44. Sensory sensitivity Eureka! Children’s Museum Break to Play project
  • 45. Sensory sensitivity Provides a welcoming environment for children with ASD and their parents, carers and siblings, in what would otherwise be a challenging environment. Sessions offer families the chance to play together with additional support from the Eureka! team. First programme took place on Saturday mornings Experiences were tailored to the needs of their family. Ear defenders offered to explore the galley.
  • 46. Sensory sensitivity Hypo-sensitive May not feel pain or extremes of temperature. Some may rock, spin, flap hands to stimulate sensation, help with balance and posture or deal with stress. May also find it harder to use their body awareness system, making it difficult to avoid obstructions, stand at appropriate distances or carry out fine motor tasks. .
  • 48. Special interests Many people with autism have intense special interests. Can change overtime, or be lifelong. May be unusual… .
  • 49. Special interests Interest can be channelled into subject areas: Buses – Transport Rubbish – Recycling Pebbles – Geology .
  • 50. Final thoughts Don’t leave out the siblings or parents! Be creative with communications. Invest in staff. Create an ethos of empathy not sympathy. Consider the entire visitor experience – pre visit, queuing, on gallery trails..
  • 51. Final thoughts Don’t be afraid to ask questions. Children of autism grown and become autistic adults. Although there are characteristics, they are individuals. No substitute for kindness and patience. .