ENCA 2016 - Genoa - Sophie Ainsworth
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A focus group was held in October 2015 with 5 young people sharing their experiences with invisible illnesses in schools, such as being treated as "the ill kid", not being allowed to use disabled facilities, and teachers not making an effort to understand their rare conditions or communicate limitations to other staff. An information workshop was then held in April 2016 to develop informational packs on invisible illnesses for schools, which would include tips, games, accessible toilet signs, health passports, communication strategies, and fundraising ideas. Next steps are to review content, pursue financing, produce and distribute the packs, complete a website, and promote inclusive education.
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This document discusses using a Pointless-style quiz game show to make library induction sessions for new undergraduate students more engaging and memorable. Student feedback found traditional sessions were boring and information overload. The author developed a quiz where teams answer library questions to find the "pointless" answer unknown to others. Initial concerns were alleviated as information specialists and students found it fun. Future plans include balancing information and games while improving follow up activities.Freshmen Parent Meeting 2016
This document provides information from Xavier High School's Freshman Parent Information Night. It summarizes key topics that were presented including the school's campus ministry programs, activities programs, health promotion center, guidance program, freshman orientation, and expectations for student behavior. It outlines ways for parents to get involved and highlights some of the challenges of freshman year of high school. The presentation emphasizes the school's mission and provides reminders about registration and upcoming events.
Loraine Kennedy: Coaching skills
The document discusses coaching skills presented at the Eaquals International Conference from April 16-18, 2015. It defines coaching as a developmental process where an individual receives support to achieve a specific goal. Coaching differs from mentoring in that coaches use questioning and listening to help individuals reach their full potential, while mentors act as advisors suggesting new paths. To be coachable, a person needs to be a learner, thinker, honest reflector, open-minded, problem solver, forward thinker, risk taker, and take responsibility. The document lists skills for coaches including different levels of directing, advising, and supporting individuals. It emphasizes high-level listening skills and provides an example coaching conversation to practice over
Pshepresentation12
This document provides an overview of a lecture on PSHE (Personal, Social, Health and Economic education). The lecture aims to explain the rationale for PSHE, offer a framework for evaluating PSHE resources, and share examples of good PSHE practice. It discusses challenges teachers face in delivering PSHE and why it is an important subject. It also provides examples of effective PSHE lessons and resources, including a case study of a lesson using the DVD "Pleasureland" that generated thoughtful class discussions.
Signposting workshop
Here are 3 potential services you could choose:
1. Student Counselling
2. AccessAbility Centre
3. Careers Service
Get creative with how you present the key information!
Let me know if you have any other questions.
Making Sense of Working with Professionals
The document outlines a session about strengthening relationships with professionals for families with children who have special needs. It discusses introducing the Wraparound team and their values in providing whole family support. The session will cover experiences with professionals, how relationships affect children, defining good relationships, and tips for handling conflict, such as keeping organized records. The Wraparound team can provide support attending meetings, understanding processes, and connecting families to other resources.
early-childhood-education-.ppt
The document discusses the needs of young children and the important role of caregivers in meeting those needs. It outlines that children need assistance meeting their physical, emotional, social, psychological, and cognitive needs. Caregivers are responsible for providing love, care, nurturance, ensuring safety and health, engaging in activities like play, and meeting the child's developmental needs. The document also provides developmental milestones and "red flag alerts" that indicate a child may need further evaluation, as well as information on quality early childhood programs and resources.
Marie Delaney: Inclusion of all – is it possible? Myths and realities.
This document discusses inclusion in education and some myths and realities around inclusion. It addresses why inclusion is important both morally and legally according to international agreements. It defines inclusion as supporting all students to feel like they belong and participate in learning. The document also discusses defining special educational needs, challenges of inclusion including unconscious bias, objections to inclusion, and strategies for good teachers in inclusive classrooms. It provides perspectives on medical versus social models of disability and the importance of teacher well-being in creating inclusive schools.
A cup of tea with Dilshani Dissanayake
On Thursday 27th of April in the penultimate episode of the R2A webinar series, Dilshani Dissanayake a member of the Faculty of Medicine at the University of Colombo shared her experiences of participating in writing clubs and communicating medical research. Dilshani spoke about her participation in the AuthorAID programme, run by INASP, which focuses on peer to peer mentoring to improve science communications and research promotion.
Transition clinic postcard
The Cleveland Clinic Foundation operates a free Transition Clinic to assist young adults ages 14 and older with special health care needs as they transition to adulthood. The Transition Clinic provides educational resources, tools to promote independence, and help setting personal goals. It also connects patients to Ohio and national support services to aid their transition process. For more information, patients can contact the clinic's social worker.
Why being Active Together matters: Increasing sportWhy being Active Together ...
This presentation will explore the benefits of getting active through first person experience, as well as discuss the very real challenges/barriers to participation that currently exist. The Active Together project looks to address many barriers to participation and utilizes Ambassadors as mentors to increase awareness and provide vital ‘first contact’ for persons who are wanting to gain access to new sporting opportunities; 2 important additional steps outlined in Canadian Sport for Life, Long Term Athlete Development (CS4L-LTAD) guidelines. Services and supports will be discussed such as a new community resource hub, outreach presentations and a special focus on AODA Customer Service Training with an emphasis on Sport and Recreation providers. The Active Together project is a cross disability project that draws strength from multiple community partners.
Practical Participation–practical hints and tips to help you to involve child...
CYP IAPT 2014 National Conference
Run by young people, this will be a practical workshop with tools that delegates can take away and use in their own area, with a focus on the participation priorities.
Thinking about adoption? Here's a roadmap
Wondering why the adoption process seems so intense?
This webinar will explain the process, the children who wait and what you can do to prepare yourself.
Helen Oakwater, adoptive parent, international trainer and author explains the why and how of the process and will expand your thinking about the epic adventure that is required to be and survive as an adoptive parent to a children who experienced abuse and/or neglect before they were placed for adoption.
School Approaches and Strategies - Dr Catherine Carroll - SENJIT
School Approaches and Strategies - Dr Catherine Carroll - SENJITSwiss Cottage Development and Research Centre
Road Map for Life 2015
Whole school approaches and strategies to support the achievement of Looked After ChildrenChild Abuse (State Update)
This document provides information on child abuse and neglect for mandated reporters. It defines mandated reporters as those working in child services, schools, and other organizations serving children. It outlines four categories of abuse - physical, sexual, emotional abuse, and neglect. For each category, it lists potential indicators of abuse and examples of abusive behaviors. The document emphasizes that mandated reporters have a duty to report any reasonable suspicions of abuse and outlines prevention strategies like strengthening parenting and family support systems.
Education for All; Teaching students with intensive needs in the internationa...
The International School Bangkok has just opened its doors to six students with intensive needs. In this presentation, delegates will hear about the journey ISB took to educating ALL students, regardless of academic ability, and why this presenter believes that all schools can and should be doing the same. Lori will share how her classroom is set up, programs and curriculums used to promote learning and independence, and show videos of her room in action.
Narrowing the gap sarah creasey - room e - workshop 1
This presentation aims to showcase the range of strategies that might be employed to close gaps in achievement and to improve the attendance of vulnerable groups.
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Is library induction “Pointless”? A quiz based approach to motivate students ...
Is library induction “Pointless”? A quiz based approach to motivate students ...
Marie Delaney: Inclusion of all – is it possible? Myths and realities.
Marie Delaney: Inclusion of all – is it possible? Myths and realities.
Why being Active Together matters: Increasing sportWhy being Active Together ...
Why being Active Together matters: Increasing sportWhy being Active Together ...
Practical Participation–practical hints and tips to help you to involve child...
Practical Participation–practical hints and tips to help you to involve child...
School Approaches and Strategies - Dr Catherine Carroll - SENJIT
School Approaches and Strategies - Dr Catherine Carroll - SENJIT
Education for All; Teaching students with intensive needs in the internationa...
Education for All; Teaching students with intensive needs in the internationa...
Narrowing the gap sarah creasey - room e - workshop 1
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ENCA 2016 - Genoa - Dieter Wiek
The document discusses the activities of EULAR PARE (European League Against Rheumatism Patient Research Partner). It outlines PARE's objectives of raising awareness of rheumatic and musculoskeletal diseases, supporting patient organizations, educating patient representatives, and enhancing patient involvement. It describes two of PARE's main programs - the Knowledge Transfer Programme, which funds collaboration projects between organizations, and the Engagement Programme, which aims to improve quality of life for people with rheumatic diseases through national organizations. It provides examples of other activities including an annual conference, writing competition, newsletter, and involvement in research initiatives.
ENCA 2016 - Genoa - Anton Gruss
KOURIR is a French non-profit association established in 1992 to support parents and children with juvenile idiopathic arthritis (JIA) and other pediatric rheumatic diseases. It has around 400 members, mainly parents, and raises funds through membership fees and events to support families, increase awareness of JIA, and promote research. The association provides information and resources to families and medical professionals, participates in advocacy events, and offers services like a helpline, conferences, and outings for children affected by JIA.
ENCA 2016 - Genoa - Annelies Hoeskstra
This document summarizes the experiences of patients transitioning from pediatric to adult rheumatology care in the Netherlands. Most university hospitals in the Netherlands facilitate a transition process where patients have one or more joint appointments with both their pediatric and new adult rheumatologist starting around ages 16-18. These transitions are meant to increase patient confidence by allowing them to meet the new adult doctor before fully transitioning. The document describes the author's own positive transition experience and quotes from other patients, some of whom felt they needed more than one joint appointment to feel fully prepared. It outlines some of the key differences between pediatric and adult clinics that the transition helps patients adjust to.
ENCA 2016 - Genoa - Wendy Costello
ENCA is a non-profit organization that works to support associations for juvenile idiopathic arthritis (JIA) across Europe. ENCA gathers information from medical associations and doctors, shares it with associations worldwide, and disseminates medical knowledge to parents and healthcare systems. ENCA also helps fund research projects and works closely with PRES and PRINTO on conferences and studies. Through collaboration, ENCA has increased knowledge of JIA and created a network for organizations and families to access expertise.
ENCA 2016 - Genoa - Carine Wouters
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ENCA 2016 - Genoa - Kirsten Minden
This document summarizes transition and problems with transition in rheumatology in Germany. It finds that there are several reasons for deficits in healthcare provision for young people, including a shortage of adult rheumatologists, a lack of transitional care programs, and a lack of government policies to support transition. Research has found that many young people feel their transition to adult healthcare was not well-prepared or planned. Efforts are underway to address these issues through the development of transition resources and guidelines to improve coordination and continuity of care for young people living with rheumatic diseases.
ENCA 2016 - Genoa - JD Cohen Sonia Tropé
This document discusses the development of a video game called AJIKO aimed at children suffering from Juvenile Idiopathic Arthritis (JIA). It was created using an ADDIE pedagogical model of analysis, design, development, implementation, and evaluation. A steering committee decided on the game format, themes, and pedagogical messages to convey about the hospital process, treatments, exams, and rehabilitation through skill games and quizzes. The game was developed using the Unity engine to be accessible on computers, smartphones and tablets. It takes place in a hospital setting and features two child avatars to help players identify with the characters. AJIKO is the first serious game dedicated to JIA and
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There is increasing confidence that cell therapies will soon play a role in the treatment of autoimmune disorders, but the extent of this impact remains to be seen. Early readouts on autologous CAR-Ts in lupus are encouraging, but manufacturing and cost limitations are likely to restrict access to highly refractory patients. Allogeneic CAR-Ts have the potential to broaden access to earlier lines of treatment due to their inherent cost benefits, however they will need to demonstrate comparable or improved efficacy to established modalities.
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ENCA 2016 - Genoa - Sophie Ainsworth
- 1. Raising Awareness of Invisible Illnesses in Schools and Education
- 2. Focus group 1 • October 2015 held at Alder Hey Hospital in Liverpool • 5 young people sharing their experiences
- 3. ‘Constantly ask questions I don’t like’ ‘Treated as ‘the ill kid’’ ‘Not allowed to use the disabled lift’ ‘Told I was ‘skiving’ PE lessons’ ‘Made no effort to understand my rare condition’ ‘Didn’t communicate to other members of staff what was wrong’
- 4. Workshop Day – 9th April 2016
- 6. Where we are now Pack content: • Top tips • Interactive games • Accessible toilet sign • Health passport • Communication strategies • Fundraising ideas
- 7. Next Steps • Content review – November 26th • Financing and fundraising • Production and distribution • Completion of website • Promotion @raiiseuk Raiise raiiseuk@hotmail.com
- 8. Thank you!