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DO ASK, DO TELL.  How to query patients about race and ethnicity Yiscah Bracha, MS 1 ; Kevin Larsen, MD 2 1 Center for Urban Health, Minneapolis Medical Research Foundation and University of Minnesota,  2 Hennepin County Medical Center.  ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Experiment showed  the best way to ask at HCMC: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Results ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Researchers use the data that providers obtain: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Some ruminations and conclusions: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],What worked, what didn’t: HCMC Experiment ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Conflicts revealed Data and disparities: ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],A PROPOSAL Question 1:   “ What race do most people think you are?” Response choices:  OMB categories plus Hispanic Question 2:   “ How do you think of yourself?” Response choices:  Open-ended, locally specific, evolving dynamically Patient identity questions Marital status Race or ethnicity  Religious preference Race or ethnicity Language(s) Birthplace Querying methods for race/ethnicity 1. Race? (OMB list + Hispanic) 2. Ethnicity? (Open-ended) Method Three 1. Race? (OMB list +  White Hispanic  Black Hispanic) 2. Ethnicity? (Open-ended) Method Four 1. Ethnicity? (Open-ended) 2. Race? (OMB list) 1. Hispanic?  (y/n) 2. Race? (OMB list) 3. Ethnicity? (Open-ended)   Method Two Method One 92.3 94.9 100.0 85.5 Answered ethnicity Q (%) 1.2 1.0 0.9 1.1 Average administration time (mins) 2.6 0.0 3.6 21.1 No answer to race Q (%) 92.3 100.0 87.5 78.9 Chose from available responses to race Q (%) Four Three Two One 39 59 56 76 Interviews (n) Method Outcomes of Interest Self-identity Behavior & beliefs shared with cultural group Biological Biology, physiology Ascribed identity Adverse discrimination by others Data required Source of adverse disparities

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Do Ask, Do Tell.

  • 1.