David King: Rare Disease Day 2016 Conference
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Rare Disease Day 2016 Conference: Day 1
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David King: Rare Disease Day 2016 Conference
- 1. Rare Alliance Canada International Impact David King, PhD Shire March 9,2016
- 2. 2 Players Involved Health Economists Academic Researchers Industry Regulatory Agencies Payers Rare Disease Patients Policy MakersClinical Experts Successful Rare Disease Treatment
- 3. 3 Why do we need to talk? Perspective What is a meaningful endpoint? Value Coordination Disease Understanding Research Breakthroughs Ensuring Access Diagnosis
- 4. 4 IRDiC International Rare Disease Research Consortium Working to bring 200 new rare disease treatments by 2020 International with a long history of Canadian involvement Adapt-Smart Private-public consortium Address drivers, opportunities and obstacles to adaptive pathways for earlier access Green Park Collaborative Multi-stakeholder forum looking at ways to incorporate real world data into development EUPATI IMI initiative involving 33 institutions Educate patients on drug development and registration Existing Collaborations
- 5. 5 • Brings all players to the table • Work towards a common understanding • Build a sustainable solution • Regulatory framework that provides a common reference point Benefits For Canada
- 6. 6 • A single integrated message • Highlights the scientific expertise found in Canada • Brings Canadian biotech to the forefront • Provides a potential roadmap for other countries International