European Union Action in the field of Rare Diseases
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The document outlines the European Union's actions and priorities in the field of rare diseases. Key points include: - Establishing a definition of rare diseases and improving disease classification. - Supporting national plans and strategies for rare diseases in EU member states. - Developing networks of centers of expertise and establishing European reference networks. - Improving access to information, diagnosis, treatment and care for rare disease patients across Europe. - Accelerating research and ensuring access to orphan drugs for rare diseases.
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European Union Action in the field of Rare Diseases
- 1. European Union action in the field of Rare Diseases Gastein, 1st October 2009 Antoni Montserrat Moliner European Commission DG SANCO Health Information Unit
- 25. EU historical support to RD research Previous programmes: Promote cooperation, collaboration and knowledge building FP5: Total 47 RD projects, € 64 million ftp://ftp.cordis.europa.eu/pub/lifescihealth/docs/reprint_rec48300_rare_dis_060207.pdf
- 29. DG SANCO priorities on rare diseases Web site http://ec.europa.eu/health/ph_threats/non_com/rare_diseases_en.htm