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Rare Disease Day  2011
Past events 2008 : RD as a Public Health Priority  (overarching theme x 4 years) “ A rare day for special people” 2009 : Patient-centred care  “ Patient Care: A Public Affair!” 2010: Bridging Patients and Research “ Patients & Researchers: Partners for Life!”’
2011 ,[object Object],[object Object],[object Object],[object Object],[object Object]
Participating Countries ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Countries that participated in RDD 2008-11
National Alliances ,[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],RDD website
 
4th edition Theme: Rare Diseases &  Health Inequalities Slogan: “ RARE BUT EQUAL”
RDD website ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Logo and slogan
 
 
« Rare but Equal » ,[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Friends of RDD
Friends of RDD
[object Object],[object Object],[object Object],[object Object],Social networks
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Creating momentum for National Plans
Reports, surveys ,[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],Country highlights - France
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Country highlights - Hungary
Italy ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Spain ,[object Object],[object Object],[object Object]
Romania ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],More highlights - USA
[object Object],[object Object],[object Object],USA
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],Even the Pope acknowledged Rare Disease Day
Federations ,[object Object],[object Object],[object Object]
European event ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
Venue Residence Palace International Press Center, Brussels … two steps aways from EC and EP
European event ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
European event ,[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object],[object Object]
[object Object],[object Object]
European event ,[object Object],[object Object],[object Object],[object Object]
Media coverage ,[object Object],[object Object],[object Object],[object Object],Yahoo Health   Les Echos The Independent And more than  2000 on-line press clippings

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Rare disease day 2011 highlights

  • 2. Past events 2008 : RD as a Public Health Priority (overarching theme x 4 years) “ A rare day for special people” 2009 : Patient-centred care “ Patient Care: A Public Affair!” 2010: Bridging Patients and Research “ Patients & Researchers: Partners for Life!”’
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  • 9. 4th edition Theme: Rare Diseases & Health Inequalities Slogan: “ RARE BUT EQUAL”
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  • 33. Venue Residence Palace International Press Center, Brussels … two steps aways from EC and EP
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