SlideShare a Scribd company logo
Dealing with a Loved One with CJD

        October 15, 2011
   4th Annual CJD Conference
       Melbourne, Australia

     Brian S. Appleby, M.D.
Is CJD Different?


BEREAVEMENT
Stages of Grief




Kübler-Ross E. On Death and Dying 1973
Assumptive World


“…the strength of the emotional impact of an
unsettling experience seems to be related to
the extent of change it requires in a person’s
              assumptive world.”




         Frank JD & Frank JB. Persuasion & Healing 1961
Resources

•   CJD Support Network Group (AUS)
•   CJD Foundation (USA)
•   CJD Insight (USA)
•   CJD Support Network (UK)
•   A.I.En.P. (ITA)
•   CJD Support (JAP)
•   CJD Foundation (ISR)
•   MCJ-HCC (FRA)
BRIEF SUMMARY OF TODAY
Things aren’t always what they
           seem…
Perception accounts for a lot
Dealing with healthcare can be
          frustrating
We are in your corner!

More Related Content

Similar to Aus 2011 dealing with a loved one with cjd

פטריק קוריגן
פטריק קוריגןפטריק קוריגן
פטריק קוריגן
Beitissie1
 
BON Fireside Chat Mar 21 2023.pptx
BON Fireside Chat Mar 21 2023.pptxBON Fireside Chat Mar 21 2023.pptx
BON Fireside Chat Mar 21 2023.pptx
Maureen Trask
 
A J Cronin
A J CroninA J Cronin
A J Cronin
JULIE GEORGE
 
WFG REfresh - Dorice Horenstein: The Resilient Realtor
WFG REfresh - Dorice Horenstein: The Resilient RealtorWFG REfresh - Dorice Horenstein: The Resilient Realtor
WFG REfresh - Dorice Horenstein: The Resilient Realtor
Aaron Stelle
 
How to write an outline for a persuasive speech
How to write an outline for a persuasive speechHow to write an outline for a persuasive speech
How to write an outline for a persuasive speech
Laila Khalidah M Za'ba
 
David trickey
David trickeyDavid trickey
Lake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptx
Lake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptxLake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptx
Lake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptx
julesp4
 
Lake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdf
Lake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdfLake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdf
Lake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdf
julesp4
 
Love and peace with the world
Love and peace with the worldLove and peace with the world
Love and peace with the world
Jeanette C. Patindol
 

Similar to Aus 2011 dealing with a loved one with cjd (9)

פטריק קוריגן
פטריק קוריגןפטריק קוריגן
פטריק קוריגן
 
BON Fireside Chat Mar 21 2023.pptx
BON Fireside Chat Mar 21 2023.pptxBON Fireside Chat Mar 21 2023.pptx
BON Fireside Chat Mar 21 2023.pptx
 
A J Cronin
A J CroninA J Cronin
A J Cronin
 
WFG REfresh - Dorice Horenstein: The Resilient Realtor
WFG REfresh - Dorice Horenstein: The Resilient RealtorWFG REfresh - Dorice Horenstein: The Resilient Realtor
WFG REfresh - Dorice Horenstein: The Resilient Realtor
 
How to write an outline for a persuasive speech
How to write an outline for a persuasive speechHow to write an outline for a persuasive speech
How to write an outline for a persuasive speech
 
David trickey
David trickeyDavid trickey
David trickey
 
Lake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptx
Lake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptxLake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptx
Lake Tahoe Community College - M4MH - 10.10.23 - Final Slides.pptx
 
Lake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdf
Lake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdfLake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdf
Lake Tahoe Community College - M4MH - 10.10.23 - Presentation.pdf
 
Love and peace with the world
Love and peace with the worldLove and peace with the world
Love and peace with the world
 

More from applebyb

Creutzfeld-Jakob Disease: Diagnosis and Management of Prion Diseases
Creutzfeld-Jakob Disease: Diagnosis and Management of Prion DiseasesCreutzfeld-Jakob Disease: Diagnosis and Management of Prion Diseases
Creutzfeld-Jakob Disease: Diagnosis and Management of Prion Diseases
applebyb
 
Ahuja gr young onset dementia
Ahuja gr young onset dementiaAhuja gr young onset dementia
Ahuja gr young onset dementia
applebyb
 
Update on Clinical Research in Dementia
Update on Clinical Research in DementiaUpdate on Clinical Research in Dementia
Update on Clinical Research in Dementia
applebyb
 
The Frontotemporal Dementias
The Frontotemporal DementiasThe Frontotemporal Dementias
The Frontotemporal Dementias
applebyb
 
Introduction to States of Research and Clinical Trials
Introduction to States of Research and Clinical TrialsIntroduction to States of Research and Clinical Trials
Introduction to States of Research and Clinical Trials
applebyb
 
Prion disease: A Rare Phenomena
Prion disease: A Rare PhenomenaPrion disease: A Rare Phenomena
Prion disease: A Rare Phenomena
applebyb
 
Clinical Assessment & Management of Prion Disease
Clinical Assessment & Management of Prion DiseaseClinical Assessment & Management of Prion Disease
Clinical Assessment & Management of Prion Disease
applebyb
 
Celebrating Hope
Celebrating HopeCelebrating Hope
Celebrating Hope
applebyb
 
Ccf neuro res rapidly progressive dementia 2013 03-27
Ccf neuro res rapidly progressive dementia 2013 03-27Ccf neuro res rapidly progressive dementia 2013 03-27
Ccf neuro res rapidly progressive dementia 2013 03-27
applebyb
 
Georgetown University Hospital Dept of Medicine Grand Rounds
Georgetown University Hospital Dept of Medicine Grand RoundsGeorgetown University Hospital Dept of Medicine Grand Rounds
Georgetown University Hospital Dept of Medicine Grand Rounds
applebyb
 
Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3
Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3
Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3
applebyb
 
Talks what gçös new with cjd and related early onset
Talks what gçös new with cjd and related early onsetTalks what gçös new with cjd and related early onset
Talks what gçös new with cjd and related early onset
applebyb
 
Cjdfgrcincinnati2009 7-19-090722141427-phpapp02
Cjdfgrcincinnati2009 7-19-090722141427-phpapp02Cjdfgrcincinnati2009 7-19-090722141427-phpapp02
Cjdfgrcincinnati2009 7-19-090722141427-phpapp02
applebyb
 
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
applebyb
 
Healthy Brain Aging
Healthy Brain AgingHealthy Brain Aging
Healthy Brain Aging
applebyb
 
Diagnosis of Creutzfeldt-Jakob Disease
Diagnosis of Creutzfeldt-Jakob DiseaseDiagnosis of Creutzfeldt-Jakob Disease
Diagnosis of Creutzfeldt-Jakob Disease
applebyb
 
Frontotemporal Dementia: An Overview
Frontotemporal Dementia: An OverviewFrontotemporal Dementia: An Overview
Frontotemporal Dementia: An Overview
applebyb
 
Cc cjdf gr 2012 8-13
Cc cjdf gr 2012 8-13Cc cjdf gr 2012 8-13
Cc cjdf gr 2012 8-13
applebyb
 

More from applebyb (18)

Creutzfeld-Jakob Disease: Diagnosis and Management of Prion Diseases
Creutzfeld-Jakob Disease: Diagnosis and Management of Prion DiseasesCreutzfeld-Jakob Disease: Diagnosis and Management of Prion Diseases
Creutzfeld-Jakob Disease: Diagnosis and Management of Prion Diseases
 
Ahuja gr young onset dementia
Ahuja gr young onset dementiaAhuja gr young onset dementia
Ahuja gr young onset dementia
 
Update on Clinical Research in Dementia
Update on Clinical Research in DementiaUpdate on Clinical Research in Dementia
Update on Clinical Research in Dementia
 
The Frontotemporal Dementias
The Frontotemporal DementiasThe Frontotemporal Dementias
The Frontotemporal Dementias
 
Introduction to States of Research and Clinical Trials
Introduction to States of Research and Clinical TrialsIntroduction to States of Research and Clinical Trials
Introduction to States of Research and Clinical Trials
 
Prion disease: A Rare Phenomena
Prion disease: A Rare PhenomenaPrion disease: A Rare Phenomena
Prion disease: A Rare Phenomena
 
Clinical Assessment & Management of Prion Disease
Clinical Assessment & Management of Prion DiseaseClinical Assessment & Management of Prion Disease
Clinical Assessment & Management of Prion Disease
 
Celebrating Hope
Celebrating HopeCelebrating Hope
Celebrating Hope
 
Ccf neuro res rapidly progressive dementia 2013 03-27
Ccf neuro res rapidly progressive dementia 2013 03-27Ccf neuro res rapidly progressive dementia 2013 03-27
Ccf neuro res rapidly progressive dementia 2013 03-27
 
Georgetown University Hospital Dept of Medicine Grand Rounds
Georgetown University Hospital Dept of Medicine Grand RoundsGeorgetown University Hospital Dept of Medicine Grand Rounds
Georgetown University Hospital Dept of Medicine Grand Rounds
 
Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3
Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3
Determinants of-survival-time-in-human-prion-diseases-1233685082975925-3
 
Talks what gçös new with cjd and related early onset
Talks what gçös new with cjd and related early onsetTalks what gçös new with cjd and related early onset
Talks what gçös new with cjd and related early onset
 
Cjdfgrcincinnati2009 7-19-090722141427-phpapp02
Cjdfgrcincinnati2009 7-19-090722141427-phpapp02Cjdfgrcincinnati2009 7-19-090722141427-phpapp02
Cjdfgrcincinnati2009 7-19-090722141427-phpapp02
 
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
Biomarkersinpriondisease2010 4-5-100405151856-phpapp02
 
Healthy Brain Aging
Healthy Brain AgingHealthy Brain Aging
Healthy Brain Aging
 
Diagnosis of Creutzfeldt-Jakob Disease
Diagnosis of Creutzfeldt-Jakob DiseaseDiagnosis of Creutzfeldt-Jakob Disease
Diagnosis of Creutzfeldt-Jakob Disease
 
Frontotemporal Dementia: An Overview
Frontotemporal Dementia: An OverviewFrontotemporal Dementia: An Overview
Frontotemporal Dementia: An Overview
 
Cc cjdf gr 2012 8-13
Cc cjdf gr 2012 8-13Cc cjdf gr 2012 8-13
Cc cjdf gr 2012 8-13
 

Aus 2011 dealing with a loved one with cjd