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A Future Without Crisis:
 Adult Autism Services
        Reform
  Advocated for by Noël Scriffiny
Table Of Contents
• What’s Going on Now?...................................3
• Who’s Impacted?...............................................4
• How Much?........................................................5
• Solutions.............................................................6
• References..........................................................7
What’s Going on Now?
•   The focus of this presentation is on the impact of adult services
    for those whom have moderate to severe Autism Spectrum
    Disorder(ASD).


•   Autism Spectrum Disorder (ASD) rates are 10 times greater
    than they were fifteen years ago (The New Jersey Center for
    Outreach and Services for the Autism Community, 2006). .


•   Statistics released by the CDC, for 2009, state that 1 in every
    110 children has Autism Spectrum Disorder. Along with that,
    70% of the US population with ASD is under the age of 14
    (Lainer, 2010, p. 1).


•   With ASD on the rise majority of ASD population being under
    14, there will be a substantial increase in services needed as that
    population enters adulthood.


•   Overall, Vocational Rehabilitation(VR) services have reported a
    121 percent increase from 2002 to 2006 in Autism cases
    (Cimera, 2009).
                                                                          http://www.cdc.gov/ncbddd/autism/data.html
Who’s Impacted?
•   As childhood rates of ASD continue to climb, so will follow the adults rates with ASD. This will affect their
    ability to receive the services they need.


•   The following services will, if not already, we impacted:


    •   Housing(such as residential, supported living, and group homes)


    •   Vocational Rehabilitation Services(Assisting in job training/finding for people with disabilities)


    •   Qualified behavioral specialists


    •   Social Security- increased cost for adult services, i.e. housing


    •   Medicaid/Medical- increased cost for medical coverage


    •   Social Services-need for more adult social workers
How Much?
•   It is estimated that the “societal cost” for an individual with
    ASD is 3.2 million dollars over their lifetime along with 35
    billion for the entire population with the condition (Michael L.
    Ganz, 2007, p. 348).


•   Because many new types of services start at age 23-27, the
    startup cost of the services are high (Michael L. Ganz, 2007).


•   when the influx of children with ASD reach adulthood there will
    be a drastic increase in societal costs for the initial setup of
    adult services and evaluations.
                                                                       (Michael L. Ganz, 2007)




                                                                       A compromise between cost effectiveness
                                                                         and increased services to support the
                                                                        growing generation of adults with ASD
                                                                                   needs to be made.




            (Michael L. Ganz, 2007)
Solutions
                                                      •   Continued support of Intermediate Care
                                                          Facilities – Mental Retardation for severe
                                                          cases of ASD


                                                      •   Allocate housing funding to proposed group
                                                          home model with a residential size limit of 4-
                                                          receive the individualized support needed to
                                                          gain independent living skills


                                                      •   Increased group homes- stop long waiting
                                                          lists


                                                      •   Increase funding to Vocational Rehabilitation
                                                          services- more work means less cost
(Autism Services of Mecklenburg County, Inc.)


Let’s prepare for the the future, for a place to call home and an opportunity to gain
                                    independence.
References
Autism Services of Mecklenburg County, Inc. Residential Services. 2011. http://www.asmcinc.com/residential_supports.php.

Center for Disease Control and Prevention. (2010, June 24). Autsim Spectrum Disorders. Center for Disease Control and
Prevention: http://www.cdc.gov/ncbddd/autism/index.html

Cimera, R. (2009). The costs of services and employment outcomes achieved by adults with autism in the US. autism , 285–302.

Lainer, P. F. (2010). Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon. Journal of
Contemporary Psychotherapy , 37-45.

Michael L. Ganz, M. P. (2007). The Lifetime Distribution of the Incremental Societal Costs of Autism. Archives of Pediatrics and
Adolescent Medicine , 343-349.

The Legislative Blue Ribbon Commision on Autism. (2006, Spetember). A comprehesive service system for adults with autism
spectrum disorders. California State Senate: http://senweb03.senate.ca.gov/autism/documents/meetingsevents/
Revised_COMPREHENSIVE%20SERVICES%20FOR%20ADULTS.pdf

The New Jersey Center for Outreach and Services for the Autism Community. (2006). Meeting the needs of adults with Autism:
a blueprint for the future..

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Adult with ASD Services Reform

  • 1. A Future Without Crisis: Adult Autism Services Reform Advocated for by Noël Scriffiny
  • 2. Table Of Contents • What’s Going on Now?...................................3 • Who’s Impacted?...............................................4 • How Much?........................................................5 • Solutions.............................................................6 • References..........................................................7
  • 3. What’s Going on Now? • The focus of this presentation is on the impact of adult services for those whom have moderate to severe Autism Spectrum Disorder(ASD). • Autism Spectrum Disorder (ASD) rates are 10 times greater than they were fifteen years ago (The New Jersey Center for Outreach and Services for the Autism Community, 2006). . • Statistics released by the CDC, for 2009, state that 1 in every 110 children has Autism Spectrum Disorder. Along with that, 70% of the US population with ASD is under the age of 14 (Lainer, 2010, p. 1). • With ASD on the rise majority of ASD population being under 14, there will be a substantial increase in services needed as that population enters adulthood. • Overall, Vocational Rehabilitation(VR) services have reported a 121 percent increase from 2002 to 2006 in Autism cases (Cimera, 2009). http://www.cdc.gov/ncbddd/autism/data.html
  • 4. Who’s Impacted? • As childhood rates of ASD continue to climb, so will follow the adults rates with ASD. This will affect their ability to receive the services they need. • The following services will, if not already, we impacted: • Housing(such as residential, supported living, and group homes) • Vocational Rehabilitation Services(Assisting in job training/finding for people with disabilities) • Qualified behavioral specialists • Social Security- increased cost for adult services, i.e. housing • Medicaid/Medical- increased cost for medical coverage • Social Services-need for more adult social workers
  • 5. How Much? • It is estimated that the “societal cost” for an individual with ASD is 3.2 million dollars over their lifetime along with 35 billion for the entire population with the condition (Michael L. Ganz, 2007, p. 348). • Because many new types of services start at age 23-27, the startup cost of the services are high (Michael L. Ganz, 2007). • when the influx of children with ASD reach adulthood there will be a drastic increase in societal costs for the initial setup of adult services and evaluations. (Michael L. Ganz, 2007) A compromise between cost effectiveness and increased services to support the growing generation of adults with ASD needs to be made. (Michael L. Ganz, 2007)
  • 6. Solutions • Continued support of Intermediate Care Facilities – Mental Retardation for severe cases of ASD • Allocate housing funding to proposed group home model with a residential size limit of 4- receive the individualized support needed to gain independent living skills • Increased group homes- stop long waiting lists • Increase funding to Vocational Rehabilitation services- more work means less cost (Autism Services of Mecklenburg County, Inc.) Let’s prepare for the the future, for a place to call home and an opportunity to gain independence.
  • 7. References Autism Services of Mecklenburg County, Inc. Residential Services. 2011. http://www.asmcinc.com/residential_supports.php. Center for Disease Control and Prevention. (2010, June 24). Autsim Spectrum Disorders. Center for Disease Control and Prevention: http://www.cdc.gov/ncbddd/autism/index.html Cimera, R. (2009). The costs of services and employment outcomes achieved by adults with autism in the US. autism , 285–302. Lainer, P. F. (2010). Addressing the Needs of Adolescents and Adults with Autism: A Crisis on the Horizon. Journal of Contemporary Psychotherapy , 37-45. Michael L. Ganz, M. P. (2007). The Lifetime Distribution of the Incremental Societal Costs of Autism. Archives of Pediatrics and Adolescent Medicine , 343-349. The Legislative Blue Ribbon Commision on Autism. (2006, Spetember). A comprehesive service system for adults with autism spectrum disorders. California State Senate: http://senweb03.senate.ca.gov/autism/documents/meetingsevents/ Revised_COMPREHENSIVE%20SERVICES%20FOR%20ADULTS.pdf The New Jersey Center for Outreach and Services for the Autism Community. (2006). Meeting the needs of adults with Autism: a blueprint for the future..

Editor's Notes

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