Presentation by Prodromos Tsiavos (Senior Legal Advisor - ARC/ Director - Onassis Group) as delivered during the OpenAIRE Legal Policy Webinar series on May 4th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200429_OpenAIRE Legal Policy Webinar: GDPR and Sharing DataOpenAIRE
Presentation by Jacques Flores Dourojeanni (Research Data Management Consultant Utrecht University Library), as delivered during the OpenAIRE Legal Policy Webinar series on April 29th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200429_Research Data & the GDPR: How Open is Open? (updated version)OpenAIRE
Presentation by Prodromos Tsiavos (Senior Legal Advisor - ARC/ Director - Onassis Group) as delivered during the OpenAIRE Legal Policy Webinar series on April 29th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200429_Data, Data Ownership and Open ScienceOpenAIRE
Presentation by Thomas Margoni (Senior Lecturer in Intellectual Property and Internet Law, Co-director, CREATe, University of Glasgow) as delivered during the OpenAIRE Legal Policy Webinar series on April 29th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200504_Data, Data Ownership and Open ScienceOpenAIRE
Presentation by Thomas Margoni (Senior Lecturer in Intellectual Property and Internet Law, Co-director, CREATe, University of Glasgow) as delivered during the OpenAIRE Legal Policy Webinar series on May 4th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200504_OpenAIRE Legal Policy Webinar: GDPR and Sharing DataOpenAIRE
Presentation by Jacques Flores Dourojeanni (Research Data Management Consultant Utrecht University Library), as delivered during the OpenAIRE Legal Policy Webinar series on May 4th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
Regulation of Medical Research under European Data ProtectionDavid Erdos
Medical research provides unique and critical public benefits but also necessarily involves the processing of some of the most sensitive and private data - which European Data Protection is rightly concerned with safeguarding. Looking at the law across all European Economic Area (EEA) jurisdictions, this presentation outlines the barriers which application of default European data protection norms can pose to such work from requirements to obtain consent for sensitive personal data processing, to data subject notification rules and subject access. Drawing on a survey of Data Protection Authorities it also indicates that regulators are inclined to interpret the law strictly here although enforcement is often rather limited. The presentation then looks forward to the future under the General Data Protection Regulation (GDPR) arguing that the obstacles in the way of getting the law right here remain formidable and, in addition, there is a need for much greater engagement between DPAs and those involved in medical research. (N.B. These slides are based on talk given to the PHG Foundation at Hughes Hall on 13 October 2015 but have been updated in light of the finalization of the GDPR).
Legal and ethical considerations for sharing research dataOpenAIRE
Irena Vipavc Brar ( Social Sciences Data Archives / CESSDA)
Aimed at researchers in social sciences, but of interest for other fields as well, Irena Vipavc Brar gives an overview of the most important legal and ethical considerations when sharing research data. She discusses the implications of GDPR for scientific research, informed consent and ethical aspects of dealing with personal data, and legal issues.
Links: https://www.cessda.eu/Research-Infrastructure/Training/Expert-Tour-Guide-on-Data-Management
20200429_OpenAIRE Legal Policy Webinar: GDPR and Sharing DataOpenAIRE
Presentation by Jacques Flores Dourojeanni (Research Data Management Consultant Utrecht University Library), as delivered during the OpenAIRE Legal Policy Webinar series on April 29th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200429_Research Data & the GDPR: How Open is Open? (updated version)OpenAIRE
Presentation by Prodromos Tsiavos (Senior Legal Advisor - ARC/ Director - Onassis Group) as delivered during the OpenAIRE Legal Policy Webinar series on April 29th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200429_Data, Data Ownership and Open ScienceOpenAIRE
Presentation by Thomas Margoni (Senior Lecturer in Intellectual Property and Internet Law, Co-director, CREATe, University of Glasgow) as delivered during the OpenAIRE Legal Policy Webinar series on April 29th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200504_Data, Data Ownership and Open ScienceOpenAIRE
Presentation by Thomas Margoni (Senior Lecturer in Intellectual Property and Internet Law, Co-director, CREATe, University of Glasgow) as delivered during the OpenAIRE Legal Policy Webinar series on May 4th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
20200504_OpenAIRE Legal Policy Webinar: GDPR and Sharing DataOpenAIRE
Presentation by Jacques Flores Dourojeanni (Research Data Management Consultant Utrecht University Library), as delivered during the OpenAIRE Legal Policy Webinar series on May 4th 2020.
More information and recordings: https://www.openaire.eu/item/openaire-legal-policy-webinars
Regulation of Medical Research under European Data ProtectionDavid Erdos
Medical research provides unique and critical public benefits but also necessarily involves the processing of some of the most sensitive and private data - which European Data Protection is rightly concerned with safeguarding. Looking at the law across all European Economic Area (EEA) jurisdictions, this presentation outlines the barriers which application of default European data protection norms can pose to such work from requirements to obtain consent for sensitive personal data processing, to data subject notification rules and subject access. Drawing on a survey of Data Protection Authorities it also indicates that regulators are inclined to interpret the law strictly here although enforcement is often rather limited. The presentation then looks forward to the future under the General Data Protection Regulation (GDPR) arguing that the obstacles in the way of getting the law right here remain formidable and, in addition, there is a need for much greater engagement between DPAs and those involved in medical research. (N.B. These slides are based on talk given to the PHG Foundation at Hughes Hall on 13 October 2015 but have been updated in light of the finalization of the GDPR).
Legal and ethical considerations for sharing research dataOpenAIRE
Irena Vipavc Brar ( Social Sciences Data Archives / CESSDA)
Aimed at researchers in social sciences, but of interest for other fields as well, Irena Vipavc Brar gives an overview of the most important legal and ethical considerations when sharing research data. She discusses the implications of GDPR for scientific research, informed consent and ethical aspects of dealing with personal data, and legal issues.
Links: https://www.cessda.eu/Research-Infrastructure/Training/Expert-Tour-Guide-on-Data-Management
GDPR - Thoughts on the EU Data Protection Regulation, Research and LibrariesLIBER Europe
This presentation by Jonas Holm was part of the "Research Data Support Meets Disciplines: Opportunities & Challenges" workshop at LIBER's 2017 Annual Conference in Patras, Greece. For more information, see www.libereurope.eu
Introduction to EU General Data Protection Regulation: Planning, Implementati...Financial Poise
The GDPR changed the way the world collects, stores, and sends personal data.The GDPR is a broad EU regulation that requires businesses to protect the personal data of EU citizens, whether the business itself is in the EU or elsewhere. Since its implementation in 2018, companies that collect data on EU citizens must comply with strict rules for the protection of personal data or face heavy fines for non-compliance. This webinar will provide an overview of GDPR’s applicability and requirements, as well as how your organization may meet those standards.
To view the accompanying webinar, go to: https://www.financialpoise.com/financial-poise-webinars/introduction-to-eu-general-data-protection-regulation-planning-implementation-and-compliance-2021/
UK & EU Freedom of Information & Data Protection: Continuity & ChangeDavid Erdos
This presentation explores continuities and changes in the interface between freedom of information and personal information protection at pan-EU level and in the UK under the amended law of the Data Protection Act 2018 and Regulation 2018/1725. Comparing both regimes, it especially focuses on fairness and balancing, the requirement to demonstrate the "necessity" of processing, the position of the deceased and the relationship between disclosure, transparency and sensitive personal data rules.
Part of the "2016 Annual Conference: Big Data, Health Law, and Bioethics" held at Harvard Law School on May 6, 2016.
This conference aimed to: (1) identify the various ways in which law and ethics intersect with the use of big data in health care and health research, particularly in the United States; (2) understand the way U.S. law (and potentially other legal systems) currently promotes or stands as an obstacle to these potential uses; (3) determine what might be learned from the legal and ethical treatment of uses of big data in other sectors and countries; and (4) examine potential solutions (industry best practices, common law, legislative, executive, domestic and international) for better use of big data in health care and health research in the U.S.
The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School 2016 annual conference was organized in collaboration with the Berkman Center for Internet & Society at Harvard University and the Health Ethics and Policy Lab, University of Zurich.
Learn more at http://petrieflom.law.harvard.edu/events/details/2016-annual-conference.
The Case of Trade Secrets and Database Sui Generis Right in Marketing Operations, and the Ownership of Raw Data in Big Data Analysis
Paper presented at the Max Planck Institute's conference "Personal data in competition, consumer protection and IP law Towards a holistic approach?", held on 21 October 2016
rights and responsibilities
privacy by design strategies
privacy principles
privacy enhancing technologies (PETs)
big data concerns
private, shared and public - boundary transitions
data protection impact assessment (DPIA)
cross border data transfers
derogations for research
Guest lecture 11 - Dr. Marinos Papadopoulos' presentation for his lecture to students of Edith Cowan University, School of Business & Law (Perth, Australia) on all the key principles providing the basis for the protection of personal data in consideration of the GDPR Regulation in Europe and on the lawful processing principle.
GDPR and evolving international privacy regulationsUlf Mattsson
Convergence of data privacy principles, standards and regulations
General Data Protection Regulation (GDPR)
GDPR and California Consumer Privacy Act (CCPA)
What role does technologies play in compliance
Use Cases
Most businesses have valuable databases of information, such as client lists, customer lists, lists of prospects – as well as data about products, materials, financial, insurance and other information.
The introduction of GDPR has led more businesses to think about what rights they have in their data and in their databases. This area of law has changed significantly in recent years as a result of court decisions across Europe.
This short webinar provides you with the key information you need to identify, develop and protect these rights.
An introduction to the General Data Protection Regulation (GDPR) and its implications for research data management. Presentation given by Tim Rodgers of Imperial College London at the London Area Research Data meeting, held at the London School of Hygiene & Tropical Medicine on 17th Nov 2017.
Legal Guidelines regarding the Use of Electronic Patient Data. Do we need new Rules of the Game?. Van Overstraeten T. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)
GDPR - Thoughts on the EU Data Protection Regulation, Research and LibrariesLIBER Europe
This presentation by Jonas Holm was part of the "Research Data Support Meets Disciplines: Opportunities & Challenges" workshop at LIBER's 2017 Annual Conference in Patras, Greece. For more information, see www.libereurope.eu
Introduction to EU General Data Protection Regulation: Planning, Implementati...Financial Poise
The GDPR changed the way the world collects, stores, and sends personal data.The GDPR is a broad EU regulation that requires businesses to protect the personal data of EU citizens, whether the business itself is in the EU or elsewhere. Since its implementation in 2018, companies that collect data on EU citizens must comply with strict rules for the protection of personal data or face heavy fines for non-compliance. This webinar will provide an overview of GDPR’s applicability and requirements, as well as how your organization may meet those standards.
To view the accompanying webinar, go to: https://www.financialpoise.com/financial-poise-webinars/introduction-to-eu-general-data-protection-regulation-planning-implementation-and-compliance-2021/
UK & EU Freedom of Information & Data Protection: Continuity & ChangeDavid Erdos
This presentation explores continuities and changes in the interface between freedom of information and personal information protection at pan-EU level and in the UK under the amended law of the Data Protection Act 2018 and Regulation 2018/1725. Comparing both regimes, it especially focuses on fairness and balancing, the requirement to demonstrate the "necessity" of processing, the position of the deceased and the relationship between disclosure, transparency and sensitive personal data rules.
Part of the "2016 Annual Conference: Big Data, Health Law, and Bioethics" held at Harvard Law School on May 6, 2016.
This conference aimed to: (1) identify the various ways in which law and ethics intersect with the use of big data in health care and health research, particularly in the United States; (2) understand the way U.S. law (and potentially other legal systems) currently promotes or stands as an obstacle to these potential uses; (3) determine what might be learned from the legal and ethical treatment of uses of big data in other sectors and countries; and (4) examine potential solutions (industry best practices, common law, legislative, executive, domestic and international) for better use of big data in health care and health research in the U.S.
The Petrie-Flom Center for Health Law Policy, Biotechnology, and Bioethics at Harvard Law School 2016 annual conference was organized in collaboration with the Berkman Center for Internet & Society at Harvard University and the Health Ethics and Policy Lab, University of Zurich.
Learn more at http://petrieflom.law.harvard.edu/events/details/2016-annual-conference.
The Case of Trade Secrets and Database Sui Generis Right in Marketing Operations, and the Ownership of Raw Data in Big Data Analysis
Paper presented at the Max Planck Institute's conference "Personal data in competition, consumer protection and IP law Towards a holistic approach?", held on 21 October 2016
rights and responsibilities
privacy by design strategies
privacy principles
privacy enhancing technologies (PETs)
big data concerns
private, shared and public - boundary transitions
data protection impact assessment (DPIA)
cross border data transfers
derogations for research
Guest lecture 11 - Dr. Marinos Papadopoulos' presentation for his lecture to students of Edith Cowan University, School of Business & Law (Perth, Australia) on all the key principles providing the basis for the protection of personal data in consideration of the GDPR Regulation in Europe and on the lawful processing principle.
GDPR and evolving international privacy regulationsUlf Mattsson
Convergence of data privacy principles, standards and regulations
General Data Protection Regulation (GDPR)
GDPR and California Consumer Privacy Act (CCPA)
What role does technologies play in compliance
Use Cases
Most businesses have valuable databases of information, such as client lists, customer lists, lists of prospects – as well as data about products, materials, financial, insurance and other information.
The introduction of GDPR has led more businesses to think about what rights they have in their data and in their databases. This area of law has changed significantly in recent years as a result of court decisions across Europe.
This short webinar provides you with the key information you need to identify, develop and protect these rights.
An introduction to the General Data Protection Regulation (GDPR) and its implications for research data management. Presentation given by Tim Rodgers of Imperial College London at the London Area Research Data meeting, held at the London School of Hygiene & Tropical Medicine on 17th Nov 2017.
Legal Guidelines regarding the Use of Electronic Patient Data. Do we need new Rules of the Game?. Van Overstraeten T. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)
Adjusting to the GDPR: The Impact on Data Scientists and Behavioral ResearchersTravis Greene
Our presentation introduces the GDPR then gives a brief overview of key GDPR principles and explains how they are likely to affect data scientists and behavioral researchers.
Slides from Niall Rooney FP Logue presentation at Food & Drink Business Europe event at Citywest Dublin on 05/09/2019 - *For Information Only, Not Legal Advice*
The European General Data Protection Law (also known as EU-DSGVO) becomes effective as of May 25 and is of VITAL importance.
In the easiest sense it’s important as it involves fines of up to 2 million Euros or 4% of worldwide turnover (whatever scares you more). Fines not only come into play upon actual data loss, but already if data *could* get lost and for a variety of other reasons. This session covers the most important GDPR topics, both for companies in the European Union and for companies doing business with European companies or citizens. We will also be looking at whether it makes a difference if you are a one person shop or multinational business.
GDPR for public sector DPO's seminar, April 2018, ManchesterBrowne Jacobson LLP
From 25 May 2018 all public bodies must have a Data Protection Officer (DPO). The DPO must have ‘expert’ knowledge of both data protection law and practice. This session is directed at individuals within public sector organisations who will be acting as DPO, their deputies and those advising them.
Visit our website for more useful resources - https://www.brownejacobson.com/sectors-and-services/sectors/public-sector
From 25 May 2018 all public bodies must have a Data Protection Officer (DPO). The DPO must have ‘expert’ knowledge of both data protection law and practice. This session is directed at individuals within public sector organisations who will be acting as DPO, their deputies and those advising them.
Visit our website for more useful resources - https://www.brownejacobson.com/sectors-and-services/sectors/public-sector
From 25 May 2018 all public bodies must have a Data Protection Officer (DPO). The DPO must have ‘expert’ knowledge of both data protection law and practice. This session is directed at individuals within public sector organisations who will be acting as DPO, their deputies and those advising them.
Visit our website for more useful resources - https://www.brownejacobson.com/sectors-and-services/sectors/public-sector
From 25 May 2018 all public bodies must have a Data Protection Officer (DPO). The DPO must have ‘expert’ knowledge of both data protection law and practice. This session is directed at individuals within public sector organisations who will be acting as DPO, their deputies and those advising them.
Visit our website for more useful resources - https://www.brownejacobson.com/sectors-and-services/sectors/public-sector
Personal data: Legal Issues in Research Data Collection and Sharing by EUDAT ...EUDAT
| www.eudat.eu | v1.0, June 2014 - Protection of personal data is a major concern of many. The EU Data Protection Directive (95/46/EC) identifies it as any information relating to an identified or identifiable natural person. However, what exactly do we mean by processing of personal data? When is it lawful? Are there any special categories of personal data? What is consent? What are the obligations of the data controller? Download this presentation and find out.
Who is it for?: Researchers, Data Managers, General public.
General Data Protection Regulation comes into force across the EU on May 25, 2018. Investment fund complexes, distributors, fund administrators and depositaries with global reach will need to consider their controls and processes as they relate to personal data.
Our experts offer invaluable insight on:
- Main features of the regulation
- Obligations for the fund industry
- Practical guidance on “operationalizing” GDPR principles
This presentation outlines the General Data Protection Regulation ("GDPR") and the key changes that will be brought about as of 25th May 2018 - ISOLAS is pleased to offer assistance in conducting data audits and ensuring you are compliant before the deadline - the clock is ticking!
OpenAIRE Content Providers Community Call, November 4th, 2020
This call was focused on the PROVIDE future developments, functionalities wishlist and PROVIDE service in EOSC.
Was also an opportunity to share the most recent updates and novelties in the OpenAIRE Content Provider Dashboard, and to get feedback from community.
Recordings: https://youtu.be/wY4fOS767Us
Follow the Community activities at https://www.openaire.eu/provide-community-calls
OpenAIRE in the European Open Science Cloud (EOSC)OpenAIRE
Openness is the success factor for EOSC. OpenAIRE has been working in delivering an open access scholarly communication in Europe for the past 10 years and we now present how our work fits into the EOSC core developments
OpenAIRE Content Providers Community Call, October 7th, 2020
This call was focused on the OpenAIRE Broker Service, specifying how the service works to deploy the enrichment events to the Content Providers managers.
Was also an opportunity to share the most recent updates and novelties in the OpenAIRE Content Provider Dashboard, and to get feedback from community.
Recording: https://youtu.be/3sF4B58EGcs
Follow the Community activities at https://www.openaire.eu/provide-community-calls
OpenAIRE Content Providers Community Call, July 1st, 2020
This call was focused on Data Repositories namely the OpenAIRE Research Graph and Data Repositories, the OpenAIRE Content Acquisition Policy, and the Guidelines for Data Archive Managers.
Was also an opportunity to share the most recent updates and novelties in the OpenAIRE Content Provider Dashboard, and to get feedback from community.
Follow the Community activities at https://www.openaire.eu/provide-community-calls
OpenAIRE Content Providers Community Call. May 6th, 2020.
This Call focused the presentation of the new User Interface of Provide Dashboard and the presentation of 4 use cases using the Provide service.
Was also an opportunity to share the most recent updates and novelties in the OpenAIRE Content Provider Dashboard, and to get feedback from community.
Recording available here: https://youtu.be/J4m_ryRxtnY
COVID-19: Activities, tools, best practice and contact points in GreeceOpenAIRE
Presentation from the webinar organized by the Greek OpenAIRE and RDA Nodes (Athena RC) and Elixir-GR to inform participants of EU and national efforts, in collaboration with the following research organizations: Flemming, CERTH, HEAL-Link, Demokritos, Univ. of Athens (Medical School).
Presentation of the 2nd Content Providers Community Call, targeting the following topics: 1) OpenAIRE Content provider dashboard updates; Main topic: DSpace-CRIS for OpenAIRE: implementation of the CRIS guidelines and beyond; 3) Community questions & comments.
Presentation of the 2nd Content Providers Community Call, targeting the following topics: 1) OpenAIRE Content provider dashboard updates;
2) OpenAIRE aggregation and enrichment processes: specifications and good practices;
3) Community questions & comments.
Presentation of the 2nd Content Providers Community Call, targeting the following topics: 1) OpenAIRE infrastructure updates;
2) Main topic: OpenAIRE Broker Service;
3) Community questions & comments.
Presentation of the 2nd Content Providers Community Call, targeting the following topics: 1) OpenAIRE infrastructure updates;
2) Main topic: OpenAIRE Usage Statistics service: technical details and upcoming developments;
3) Community questions & comments.
Presentation of the 1st Content Providers Community Call, targeting the following topics:
1) OpenAIRE infrastructure updates;
2) Main topic: OpenAIRE Guidelines V4: specifications and implementation roadmap and use cases;
3) Community questions & comment.
Slides accompanying the OpenAIRE Research Graph consultation webinar as held on Janyary 30th 2020.
Presenter: Andrea Mannocci
Recording: https://youtu.be/PCwXMDQb3r8
Presenter: Prodromos Tsiavos
This OpenAIRE and EOSC-hub webinar covers Horizon 2020 rules and good practices approaches to addressing Open Data, Open Science and research results exploitation in Consortium Agreements and in Data Management Plans. It also specifically covers the issues of concern between Open Science and exploitation (patents, spin offs/ outs, confidentiality), business planning and licensing strategies.
Webinar page: https://www.openaire.eu/item/open-science-and-research-results-exploitation-friends-or-foes
Slide 1: Title Slide
Extrachromosomal Inheritance
Slide 2: Introduction to Extrachromosomal Inheritance
Definition: Extrachromosomal inheritance refers to the transmission of genetic material that is not found within the nucleus.
Key Components: Involves genes located in mitochondria, chloroplasts, and plasmids.
Slide 3: Mitochondrial Inheritance
Mitochondria: Organelles responsible for energy production.
Mitochondrial DNA (mtDNA): Circular DNA molecule found in mitochondria.
Inheritance Pattern: Maternally inherited, meaning it is passed from mothers to all their offspring.
Diseases: Examples include Leber’s hereditary optic neuropathy (LHON) and mitochondrial myopathy.
Slide 4: Chloroplast Inheritance
Chloroplasts: Organelles responsible for photosynthesis in plants.
Chloroplast DNA (cpDNA): Circular DNA molecule found in chloroplasts.
Inheritance Pattern: Often maternally inherited in most plants, but can vary in some species.
Examples: Variegation in plants, where leaf color patterns are determined by chloroplast DNA.
Slide 5: Plasmid Inheritance
Plasmids: Small, circular DNA molecules found in bacteria and some eukaryotes.
Features: Can carry antibiotic resistance genes and can be transferred between cells through processes like conjugation.
Significance: Important in biotechnology for gene cloning and genetic engineering.
Slide 6: Mechanisms of Extrachromosomal Inheritance
Non-Mendelian Patterns: Do not follow Mendel’s laws of inheritance.
Cytoplasmic Segregation: During cell division, organelles like mitochondria and chloroplasts are randomly distributed to daughter cells.
Heteroplasmy: Presence of more than one type of organellar genome within a cell, leading to variation in expression.
Slide 7: Examples of Extrachromosomal Inheritance
Four O’clock Plant (Mirabilis jalapa): Shows variegated leaves due to different cpDNA in leaf cells.
Petite Mutants in Yeast: Result from mutations in mitochondrial DNA affecting respiration.
Slide 8: Importance of Extrachromosomal Inheritance
Evolution: Provides insight into the evolution of eukaryotic cells.
Medicine: Understanding mitochondrial inheritance helps in diagnosing and treating mitochondrial diseases.
Agriculture: Chloroplast inheritance can be used in plant breeding and genetic modification.
Slide 9: Recent Research and Advances
Gene Editing: Techniques like CRISPR-Cas9 are being used to edit mitochondrial and chloroplast DNA.
Therapies: Development of mitochondrial replacement therapy (MRT) for preventing mitochondrial diseases.
Slide 10: Conclusion
Summary: Extrachromosomal inheritance involves the transmission of genetic material outside the nucleus and plays a crucial role in genetics, medicine, and biotechnology.
Future Directions: Continued research and technological advancements hold promise for new treatments and applications.
Slide 11: Questions and Discussion
Invite Audience: Open the floor for any questions or further discussion on the topic.
A brief information about the SCOP protein database used in bioinformatics.
The Structural Classification of Proteins (SCOP) database is a comprehensive and authoritative resource for the structural and evolutionary relationships of proteins. It provides a detailed and curated classification of protein structures, grouping them into families, superfamilies, and folds based on their structural and sequence similarities.
(May 29th, 2024) Advancements in Intravital Microscopy- Insights for Preclini...Scintica Instrumentation
Intravital microscopy (IVM) is a powerful tool utilized to study cellular behavior over time and space in vivo. Much of our understanding of cell biology has been accomplished using various in vitro and ex vivo methods; however, these studies do not necessarily reflect the natural dynamics of biological processes. Unlike traditional cell culture or fixed tissue imaging, IVM allows for the ultra-fast high-resolution imaging of cellular processes over time and space and were studied in its natural environment. Real-time visualization of biological processes in the context of an intact organism helps maintain physiological relevance and provide insights into the progression of disease, response to treatments or developmental processes.
In this webinar we give an overview of advanced applications of the IVM system in preclinical research. IVIM technology is a provider of all-in-one intravital microscopy systems and solutions optimized for in vivo imaging of live animal models at sub-micron resolution. The system’s unique features and user-friendly software enables researchers to probe fast dynamic biological processes such as immune cell tracking, cell-cell interaction as well as vascularization and tumor metastasis with exceptional detail. This webinar will also give an overview of IVM being utilized in drug development, offering a view into the intricate interaction between drugs/nanoparticles and tissues in vivo and allows for the evaluation of therapeutic intervention in a variety of tissues and organs. This interdisciplinary collaboration continues to drive the advancements of novel therapeutic strategies.
Professional air quality monitoring systems provide immediate, on-site data for analysis, compliance, and decision-making.
Monitor common gases, weather parameters, particulates.
Seminar of U.V. Spectroscopy by SAMIR PANDASAMIR PANDA
Spectroscopy is a branch of science dealing the study of interaction of electromagnetic radiation with matter.
Ultraviolet-visible spectroscopy refers to absorption spectroscopy or reflect spectroscopy in the UV-VIS spectral region.
Ultraviolet-visible spectroscopy is an analytical method that can measure the amount of light received by the analyte.
Earliest Galaxies in the JADES Origins Field: Luminosity Function and Cosmic ...Sérgio Sacani
We characterize the earliest galaxy population in the JADES Origins Field (JOF), the deepest
imaging field observed with JWST. We make use of the ancillary Hubble optical images (5 filters
spanning 0.4−0.9µm) and novel JWST images with 14 filters spanning 0.8−5µm, including 7 mediumband filters, and reaching total exposure times of up to 46 hours per filter. We combine all our data
at > 2.3µm to construct an ultradeep image, reaching as deep as ≈ 31.4 AB mag in the stack and
30.3-31.0 AB mag (5σ, r = 0.1” circular aperture) in individual filters. We measure photometric
redshifts and use robust selection criteria to identify a sample of eight galaxy candidates at redshifts
z = 11.5 − 15. These objects show compact half-light radii of R1/2 ∼ 50 − 200pc, stellar masses of
M⋆ ∼ 107−108M⊙, and star-formation rates of SFR ∼ 0.1−1 M⊙ yr−1
. Our search finds no candidates
at 15 < z < 20, placing upper limits at these redshifts. We develop a forward modeling approach to
infer the properties of the evolving luminosity function without binning in redshift or luminosity that
marginalizes over the photometric redshift uncertainty of our candidate galaxies and incorporates the
impact of non-detections. We find a z = 12 luminosity function in good agreement with prior results,
and that the luminosity function normalization and UV luminosity density decline by a factor of ∼ 2.5
from z = 12 to z = 14. We discuss the possible implications of our results in the context of theoretical
models for evolution of the dark matter halo mass function.
Richard's aventures in two entangled wonderlandsRichard Gill
Since the loophole-free Bell experiments of 2020 and the Nobel prizes in physics of 2022, critics of Bell's work have retreated to the fortress of super-determinism. Now, super-determinism is a derogatory word - it just means "determinism". Palmer, Hance and Hossenfelder argue that quantum mechanics and determinism are not incompatible, using a sophisticated mathematical construction based on a subtle thinning of allowed states and measurements in quantum mechanics, such that what is left appears to make Bell's argument fail, without altering the empirical predictions of quantum mechanics. I think however that it is a smoke screen, and the slogan "lost in math" comes to my mind. I will discuss some other recent disproofs of Bell's theorem using the language of causality based on causal graphs. Causal thinking is also central to law and justice. I will mention surprising connections to my work on serial killer nurse cases, in particular the Dutch case of Lucia de Berk and the current UK case of Lucy Letby.
20200504_Research Data & the GDPR: How Open is Open?
1. Open Science & GDPR
Basic Concepts and Cases
Dr. Prodromos Tsiavos
Senior Legal & Policy Adviser
ARC/ ΟpenAIRE
https://www.athena-innovation.gr/ptsiavos@athenarc.gr
2. Open Science and GDPR
1. What is GDPR
2. Key DP structure
3. The setting
4. How is scientific research defined
5. Purpose
6. Legal Basis
7. Exercising data subject rights
8. Cases
3. What is GDPR?
Regulation (EU) 2016/679 of the European Parliament and of the
Council of 27 April 2016 on the protection of natural persons with
regard to the processing of personal data and on the free movement of
such data, and repealing Directive 95/46/EC (General Data Protection
Regulation)
1
4. Key DP structure
Personal Data
Type of processing
Purpose
Legal Basis
Be careful with
special categories
(sensitive) of
personal data
Make sure that the
legal basis covers
purpose and
personal data
2
5. The setting
Research within an RPO: check legal and ethics framework
EU or other collaborative projects - check WPs re who is processing what and
why:
Ethics and Data Protection Requirements (at the point/ WP of processing)
National Law
3rd countries
Call conditions (e.g. ethics report/ DPIA)
Tenders
Are you a data processor or (co)controller)?
Who is the DPO in a project (check the Consortium and Grant Agreement)?
3
6. How is scientific research defined
Sources:
- Recitals: 26, 33, 50, 52, 53, 62, 65, 113, 156, 157, 159, 160, 161, 162
- Relevant articles: 5(1)(b), (e), 89 (1), (2), (3), 9(j), 14(5)(b), 17(3)(d), 21(6).
Most important article:
- Art. 89
4
7. Defining Scientific Research I: Definitions
• It falls under the broader public interest legal basis (though this is not the
only possible legal basis)
• Could be a form of further processing (e.g. when obtaining data from a
public source or e.g. the government)
• Need to be subjected to appropriate safeguards
• Technical and organizational measures are in place
• Focus on data minimization (use only necessary data)
• Means: pseudonymization (without affecting research objectives)
8. Defining Scientific Research II: Special Categories
• In relation to special categories of data (art.9), the processing:
• shall be proportionate to the aim pursued
• needs to respect the right to data protection
• needs to provide suitable and specific measures to safeguard the
fundamental rights and interests of the data subject
9. The purpose
Possible purposes:
Overall: scientific research (art. 89 GDPR)
Specific type of research
Further use/ exploitation
What happens when the purpose changes over time?
Legal basis? [e.g. from public task to consent / collection by a public hospital – secondary use
by researchers)
Am I covered by the legal basis?
5
10. Legal Basis
Mostly forms of public interest (needs to be specifically documented per
institution and research project)
Contract (tender)
Consent (specific research)
Could change from collection, to retaining to sharing. There always needs to be
one covering the purpose of processing.
6
11. • Vital Interest
• Public Interest
• Legal Obligation
• Contract
• Consent
• Legitimate Interest
No discretion
discretion
Decision: both parties
Decision: data controller
12. Trace the life cycle
Follow the data (use the DMP as your backbone)
Different types of data processing may have different purposes and legal bases
Always stay within the legal basis
13. Data management plan
(processing/ purposes/ legal basis)
Data collection
- From the data
subject
- From 3rd party
- From publicly
available sources
Data Management
- Read
- Write (update/
improve/ enrich)
- Preservation
- Erasure
- Access
Data Sharing
- 3rd Parties
- Data processor
- Further use
- Subject
- Publishing
Purpose Α
Public Hospital
Public Interest A
Purpose C
Research Performing
Organisation
Legal Obligation
Purpose D
Research Performing
Organisation
Consent
Purpose Β
Research Performing
Organisation
Public Interest B
14. Exercising data subject rights
Limitation of rights of the data subject (arts. 14(5)/17(3)/ 21(6) GDPR))
Scientific research/ statistical purposes/ archiving
Public interest
Technical and organizational measures (mostly pseudonymization)
Condition: “it is likely to render impossible or seriously impair the achievement of
the objectives of that processing”
Notices (proactive data subject information)
7
15. Limitations to data subject’s rights:
(I) information
• Information to be provided where personal data have not been obtained
from the data subject (art. 14(5)(b)
• Researchers are exempt when:
• The provision of such information proves impossible or would involve a
disproportionate effort
• Such obligations would render impossible or seriously impair
achievement of the objectives of scientific research
• The controller takes appropriate measures to protect the data subject’s
legitimate interests
16. Limitations to data subject’s rights:
(II) erasure
• Right to erasure (‘right to be forgotten’) (art. 17(3)(d)
• Researchers are exempt when:
• Such obligations would render impossible or seriously impair
achievement of the objectives of scientific research
17. Limitations to data subject’s rights:
(III) objection
• Right to object (art. 21(6)
• Researchers are exempt when:
• the processing is necessary for the performance of a task carried out
for reasons of public interest.
18. Limitations to data subject’s rights:
(IV) Member States Derogations
• Member State derogations in relation to data-subject rights:
• Right of access by the data subject (art.15)
• Right to rectification (art.16)
• Right to restriction of processing (art.18)
• Right to object (art.21)
19. Cases
• Harvesting personal data from publicly available sources
• Data sharing with 3rd countries (international collaborations) – model
licences
• Initial collection for legitimate interest – secondary research use –
notification process - objection process
• Balancing reuse of research data and the GDPR principles of accuracy and
data minimization
• Health data and GDPR protection
• Data Sharing Codes of Conduct
• GDPR application for small projects
8
20. Cases
• Harvesting personal data from publicly available sources
• Check the original purpose of processing
• Check the original legal basis for processing
• It is a form of allowed further processing (art.5(b))
• Need to provide the following information to the data subject (art.14(1),(2)):
1. the identity and the contact details of the controller and, where applicable, of the controller's
representative
2. the contact details of the data protection officer, where applicable;
3. the purposes of the processing for which the personal data are intended as well as the legal
basis for the processing;
4. The categories of personal data concerned;
5. The recipients or categories of recipients of the personal data, if any;
6. When there is data transfer to 3rd countries, reference to the appropriate or suitable
safeguards and the means to obtain a copy of them or where they have been made available.
7. from which source the personal data originate, and if applicable, whether it came from
publicly accessible sources;
8a
21. Cases
• Conditions for further processing (arts.6(4)) + 13(3) + 14(4) + 89(1)):
1. Legal basis Consent; or
2. Legal obligations (by Member States); or
3. There is a new legal basis; or
4. Examine whether further processing is compatible with the purpose for which the personal
data were original collected:
1. What is the link between original and further processing
2. Context
3. If special categories exist and how they are protected
4. Consequences for the data subjects
5. Safeguards (e.g. encryption and pseudonymization)
5. When information is collected by the data-subject or third party, inform the data subject
regarding the further processing (prior to it) and any other relevant information (art.13(3) and
art.14(4))
6. Pseudonymize (if it is for research) art. 89(1)
8b
22. Cases
Transfers to 3rd countries
• Items:
• Conditions (contract or legal act) art.28
• Notifications and notices (data subject rights information – access ) (arts.13(1)(f), 14(1)(f),
15(1), (2))
• Keep records (art.30)
• Use of Codes of Conduct (art.40)
• Explore certification schemes, seals and marks (art.42(2))
• See entire Chapter V (arts.44-50)
• Adequacy decision
• Appropriate Safeguards
• Binding corporate rules
• Authorization by Union Law
• See EC Standard Contractual Clauses (SCC)
• Standard contractual clauses for data transfers between EU and non-EU countries.
8c
23. Cases
Initial collection for legitimate interest – secondary research use – notification process -
objection process
• Form of further processing
• Need to notify the data subject
• Include all notification principles of art.14
• There needs to be a clear opt-out/ objection process in the notification document:
• URL for automated opt-out
• At least email
• Always documented and confirmed
8d
24. Cases
Further processing and accuracy – minimization
• Adhere to all conditions of further processing
• Remain accurate through notices and notification
• Use only what is needed for the research purpose
• Erase data once the required processing is over (or retain data under archiving purposes)
8e
25. Cases
Health data and GDPR
- Special category of data (art.9)
- Form of Further Processing
- Emphasis on the legal basis
8f
27. Cases
Personal data for small projects (excel rules…)
- Specify your research purpose and define data range
- Specify and document legal basis
- Manage and document consent
- Use DMP as your backbone
- Consult with your Ethics Committee and DPO
8h