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The Goal is
Citizenship
Talk by Simon Duffy in
Helsinki on 20th May 2014
• What citizenship really means?
• Why it is important?
• Why people with intellectual disabilities
are great citizens?
• The challenge of citizenship to services
and systems?
• Citizenship does not mean having
a passport
• Citizenship does not mean
everybody being the same
Citizenship means being equal and different.
Citizens are respected and valued for all their
differences. Everybody doesn’t need to be the
same.
We each make our own unique contribution to
community life. It is being members of our
community that makes us equal.
It is only by our
making our own
unique contribution
to community that
our equality
through membership
becomes possible.
Citizens have rights, including the right to get the
help they need to be a citizen.
Citizens have duties, including the duty to help
others be a citizen.
Citizens are free. We live our own life, our own
way, but as part of a community.
A fair society makes
citizenship possible
for everyone by
creating the right
balance between
rights, duties and
freedoms.
Citizenship is important because it
means being treated with respect
and dignity…
Citizens are equal AND different
I met recently with a group of people with intellectual disabilities in Derbyshire, near
my home in England:
Travel - 19 out of 20 had a regular holiday, travelled and saw new things
Family - 18 out of 20 people were in active contact with their families
Neighbourliness - 17 out of 20 got on well with their neighbours
Friendships - 16 out of 20 said they had good friends
Hobbies - 12 out of 20 had hobbies or interests, from thimble-collecting to fishing
Work - 10 out of 20 had a job
Fun - 10 out of 20 had fun regularly, went to the shops, dancing, theatre or pubs
Learning - 10 out of 20 people were active in adult education, attended classes,
we’re learning new skills
Politics - 10 out of 20 voted at the last election, many were active in attempting to
improve local services
Voluntary work - 4 out of 20 were doing some kind of voluntary work
All people with
intellectual disabilities
can be full citizens…
They are often amongst
the very best citizens
Everyone can be a citizen.
We don’t need spoken language. We don’t need
to be clever. We don’t need to be the same as
everyone else.
A fair society is where every one of us can be a
full citizen. In a fair society everyone works
together.
Everyone is included. Everyone is free. Everyone
has rights. Everyone has duties.
Sometimes people face barriers to citizenship
Prejudice, silly rules, thoughtlessness or
carelessness can make it hard for us to achieve
citizenship
Sometimes it takes work to help somebody be a
citizen
But everyone can be a citizen
1. Purpose - set our own direction
2. Freedom - take charge of our own life
3. Money - have enough to live on
4. Home - have a place where we belong
5. Help - get real help from other people
6. Life - get stuck in and make a difference
7. Love - find friendship, love and family
There are 7 keys to citizenship
Key 1: Purpose
Citizens have lives that are meaningful. They
have a sense of purpose.
But sometimes we find ourselves living a life
without meaning.
This often happens when other people take
control, exploit us or boss us around.
We can lose our sense of purpose
1. Don’t believe in ourselves - we forget that we have
talents, skills and gifts.
2. Waste - we waste our time, our talents and our money.
3. Alone - we may think that no one cares about us.
4. Cut off - we become isolated, unable to join in with
things.
5. Lose hope - we stop believing that things can get
better.
1. Gifts - have faith in our unique gifts and find
ways to share them.
2. Resources - make the best of everything we’ve
got.
3. People - find the people who believe in us and
who help us find our way.
4. Community - find meaning by joining in with
things that matter to us.
5. Hope - follow our dreams and don’t play safe -
life is for living.
To find our sense of purpose
Do we understand what it takes to help
people find their own purpose?
How does this fit with our institutional
history and our institutional services?
Key 2: Freedom
Citizens are free; but sometimes that freedom is
lost.
People with disabilities, especially people who
don’t communicate with words, often find that
other people take control of their lives.
1. No control - other people make our decisions
for us.
2. No confidence - we don’t feel we can say what
we want.
3. No ideas - we don’t know our options, we just
accept what we’re given.
4. No communication - people don’t know how to
communicate with us.
5. No decisions - nothing gets done, things just
keep going round in circles.
We can lose our freedom
1. Control - remember we have the right to be in
control of our own life.
2. Voice - learn to speak our minds and get help
to speak out.
3. Options - get good advice, get information and
find out all our options.
4. Listen - we need people to listen, to really
understand what we are saying.
5. Decisions - we may need a good representative
or support with decisions.
To gain our freedom
Are people free?
Do we give people control?
“We are obliged to surrender to the will of the strong. Big companies,
cities and municipalities decide what is best for us. This is about
power. Why do I feel a lack of power in my own life?” Sami Helle,
before the European Parliament
Key 3: Money
Citizens need money, at least enough to allow us
to live with dignity and security.
Too many people, especially disabled people,
find themselves living in poverty.
1. Poor - we might not even have enough to live
on.
2. Trapped - it can feel risky to try and earn money
or save it.
3. Dependent - we may have to put up with the
things other people choose for us.
4. Abused - other people can take advantage of
us using our money as if it were theirs.
5. Fearful - we can feel we’ve got nothing to fall
back on.
We can lack the money we need
1. Rights - we should all have an entitlement to
enough money to live on.
2. Earn - we may be able to find work to earn
more money.
3. Use - we should be able to use our money
flexibly, to get the best out of it.
4. Manage - we may need help to manage our
money well.
5. Save - we all need savings, something to fall
back on.
To get the money we need
Why do people not control
the money for their support?
Key 4: Home
Citizens belong. They have their own place, a
home where they are safe and secure, in a
community that’s right for them.
Many disabled people, find themselves living with
their families too long, or stuck in care homes.
1. No privacy - we might not be free to do our
own thing, get grumpy or let off steam.
2. Wrong place - we can end up in the wrong
community, not where we want to live.
3. Shut off - we can be locked in, not able to invite
people in or share our home.
4. Wrong people - we can end up living with
people we don’t like or who abuse us.
5. No rights - we can find ourselves with no real
housing rights, at other’s mercy.
Not every home is a real home
1. Private - home is where we can unwind - do
our own thing - with no worries.
2. Belong - it is best to live somewhere where we
belong, that works for our whole life.
3. Invite - we should be able to invite our
neighbours, friends and family round.
4. Safe - we should be able to live with people we
like and never have to live in fear.
5. Secure - we should have strong rights and not
fear that we will easily lose our home.
Real homes are our homes
Why do people not share
the same housing rights as
other citizens?
Why can people not buy
their own homes and live
with who they choose?
Key 5: Help
Citizens need help. Everyone needs help. Help is
good.
But many disabled people are too dependent on
those who help them. They get help at the price
of freedom. This is bad help.
1. Controlling - sometimes people don’t really help
us to do what is important to us.
2. Dependent - sometimes we are left weaker and
more reliant on others.
3. Segregated - sometimes we get cut out of
ordinary life.
4. Wrong - sometimes there’s no fit and the
person offering help is just wrong for us.
5. Abuse - some people can even abuse their
power over us.
Bad help harms us
1. Support - good help gives us what we need to
achieve our own plans.
2. Teach - good help keeps us learning and
making the best of our abilities.
3. Connect - good help links us to other people
and builds bridges into community life.
4. Respect - good help is respectful, it is given in a
spirit of equality and mutual benefit.
5. Champion - good help means having someone
to look out for us.
Good help leaves us stronger
Why do people not get
support from people they
choose?
You can individualise everything
Key 6: Life
Citizenship is about making a difference. We do
this by getting involved and helping make our
community be a better place.
But many disabled people are excluded from
community life.
1. Bored - we end up bored, living without
purpose.
2. Not valued - nobody finds out what we have to
offer because we’re not part of it.
3. False - some of us end up in services that are
just strange copies of ordinary life.
4. Lonely - without community we make no friends
and we can lose the friends we have.
5. Disconnected - without connections we are
weaker and our options are limited.
No community means no life
1. Join - we will find lots more going on in our
community if we look.
2. Work - our community needs us, there are
always plenty of things we can do to help.
3. Fun - find the places where we are happy, we
can laugh and relax, have fun.
4. Together - being part of the community is how
we meet other people and make friends.
5. Power - together we can achieve so much
more than on our own.
Community is where life is
Community is where life
happens…
Why do too many people
miss out?
Key 7: Love
The most important thing in the world is love.
Love exists even when citizenship is missing, but
true citizenship strengthens the force of love in
the world.
Disabled people can love and be loved just like
everyone else. But sometimes the world makes it
harder.
1. Abused - we can be abused, made to have sex
or be hurt in other ways.
2. Broken - we can lose our families and miss out
on the chance to have children.
3. Lonely - we can have no real friends, even
when we are surrounded by other people.
4. Missing out - we can miss out on sex and the
chance to be someone’s lover.
5. Closed in - we can be closed in, unwilling to
love, frightened of giving to the world.
It’s hard to live a life without love
1. Self-respect - we mustn’t let other people hurt,
use or abuse us.
2. Family - we can be part of a family, we have the
right to have our own family.
3. Friends - we can find real friends, people who
value us for who we really are.
4. Lovers - we are a full human being who should
be allowed to have affection and sex.
5. Giving - we can give love to the world and to
other people.
Love is always possible
Services don’t need
to be sterile
My Mum: “You’ve
missed out sex…”
Wendy: “You’ve
missed out sex…”
Action for citizenship
We are people who have
just woken up to the fact
that for decades we have
been digging a deep hole
for ourselves.
This is good.
But we must also recognise
that people who have been
digging a hold may not
always know how best to
get out of that hole.
Positive change
means doing things
differently:
Innovation and
creativity
These seem like
Finnish strengths
Citizenship is for everyone.



We’re all equal.



We’re all different.

We’re all citizens.

Let’s make it happen.
Dive in!
The Goal is Citizenship © Simon Duffy 2014
Published by The Centre for Welfare Reform
http://www.www.centreforwelfarereform.org

On Twitter follow:

@simonjduffy and @cforwr

For more information about citizenship join our
Citizenship for All project. Just go to:

http://www.keystocitizenship.com

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The Goal is Citizenship

  • 1. The Goal is Citizenship Talk by Simon Duffy in Helsinki on 20th May 2014
  • 2. • What citizenship really means? • Why it is important? • Why people with intellectual disabilities are great citizens? • The challenge of citizenship to services and systems?
  • 3. • Citizenship does not mean having a passport • Citizenship does not mean everybody being the same
  • 4. Citizenship means being equal and different. Citizens are respected and valued for all their differences. Everybody doesn’t need to be the same. We each make our own unique contribution to community life. It is being members of our community that makes us equal.
  • 5. It is only by our making our own unique contribution to community that our equality through membership becomes possible.
  • 6. Citizens have rights, including the right to get the help they need to be a citizen. Citizens have duties, including the duty to help others be a citizen. Citizens are free. We live our own life, our own way, but as part of a community.
  • 7. A fair society makes citizenship possible for everyone by creating the right balance between rights, duties and freedoms.
  • 8. Citizenship is important because it means being treated with respect and dignity… Citizens are equal AND different
  • 9. I met recently with a group of people with intellectual disabilities in Derbyshire, near my home in England: Travel - 19 out of 20 had a regular holiday, travelled and saw new things Family - 18 out of 20 people were in active contact with their families Neighbourliness - 17 out of 20 got on well with their neighbours Friendships - 16 out of 20 said they had good friends Hobbies - 12 out of 20 had hobbies or interests, from thimble-collecting to fishing Work - 10 out of 20 had a job Fun - 10 out of 20 had fun regularly, went to the shops, dancing, theatre or pubs Learning - 10 out of 20 people were active in adult education, attended classes, we’re learning new skills Politics - 10 out of 20 voted at the last election, many were active in attempting to improve local services Voluntary work - 4 out of 20 were doing some kind of voluntary work
  • 10. All people with intellectual disabilities can be full citizens… They are often amongst the very best citizens
  • 11. Everyone can be a citizen. We don’t need spoken language. We don’t need to be clever. We don’t need to be the same as everyone else. A fair society is where every one of us can be a full citizen. In a fair society everyone works together. Everyone is included. Everyone is free. Everyone has rights. Everyone has duties.
  • 12. Sometimes people face barriers to citizenship Prejudice, silly rules, thoughtlessness or carelessness can make it hard for us to achieve citizenship Sometimes it takes work to help somebody be a citizen But everyone can be a citizen
  • 13. 1. Purpose - set our own direction 2. Freedom - take charge of our own life 3. Money - have enough to live on 4. Home - have a place where we belong 5. Help - get real help from other people 6. Life - get stuck in and make a difference 7. Love - find friendship, love and family There are 7 keys to citizenship
  • 14.
  • 16. Citizens have lives that are meaningful. They have a sense of purpose. But sometimes we find ourselves living a life without meaning. This often happens when other people take control, exploit us or boss us around.
  • 17. We can lose our sense of purpose 1. Don’t believe in ourselves - we forget that we have talents, skills and gifts. 2. Waste - we waste our time, our talents and our money. 3. Alone - we may think that no one cares about us. 4. Cut off - we become isolated, unable to join in with things. 5. Lose hope - we stop believing that things can get better.
  • 18. 1. Gifts - have faith in our unique gifts and find ways to share them. 2. Resources - make the best of everything we’ve got. 3. People - find the people who believe in us and who help us find our way. 4. Community - find meaning by joining in with things that matter to us. 5. Hope - follow our dreams and don’t play safe - life is for living. To find our sense of purpose
  • 19.
  • 20. Do we understand what it takes to help people find their own purpose? How does this fit with our institutional history and our institutional services?
  • 21.
  • 23. Citizens are free; but sometimes that freedom is lost. People with disabilities, especially people who don’t communicate with words, often find that other people take control of their lives.
  • 24. 1. No control - other people make our decisions for us. 2. No confidence - we don’t feel we can say what we want. 3. No ideas - we don’t know our options, we just accept what we’re given. 4. No communication - people don’t know how to communicate with us. 5. No decisions - nothing gets done, things just keep going round in circles. We can lose our freedom
  • 25. 1. Control - remember we have the right to be in control of our own life. 2. Voice - learn to speak our minds and get help to speak out. 3. Options - get good advice, get information and find out all our options. 4. Listen - we need people to listen, to really understand what we are saying. 5. Decisions - we may need a good representative or support with decisions. To gain our freedom
  • 26.
  • 27. Are people free? Do we give people control?
  • 28. “We are obliged to surrender to the will of the strong. Big companies, cities and municipalities decide what is best for us. This is about power. Why do I feel a lack of power in my own life?” Sami Helle, before the European Parliament
  • 30. Citizens need money, at least enough to allow us to live with dignity and security. Too many people, especially disabled people, find themselves living in poverty.
  • 31. 1. Poor - we might not even have enough to live on. 2. Trapped - it can feel risky to try and earn money or save it. 3. Dependent - we may have to put up with the things other people choose for us. 4. Abused - other people can take advantage of us using our money as if it were theirs. 5. Fearful - we can feel we’ve got nothing to fall back on. We can lack the money we need
  • 32. 1. Rights - we should all have an entitlement to enough money to live on. 2. Earn - we may be able to find work to earn more money. 3. Use - we should be able to use our money flexibly, to get the best out of it. 4. Manage - we may need help to manage our money well. 5. Save - we all need savings, something to fall back on. To get the money we need
  • 33.
  • 34. Why do people not control the money for their support?
  • 35.
  • 36.
  • 38. Citizens belong. They have their own place, a home where they are safe and secure, in a community that’s right for them. Many disabled people, find themselves living with their families too long, or stuck in care homes.
  • 39. 1. No privacy - we might not be free to do our own thing, get grumpy or let off steam. 2. Wrong place - we can end up in the wrong community, not where we want to live. 3. Shut off - we can be locked in, not able to invite people in or share our home. 4. Wrong people - we can end up living with people we don’t like or who abuse us. 5. No rights - we can find ourselves with no real housing rights, at other’s mercy. Not every home is a real home
  • 40. 1. Private - home is where we can unwind - do our own thing - with no worries. 2. Belong - it is best to live somewhere where we belong, that works for our whole life. 3. Invite - we should be able to invite our neighbours, friends and family round. 4. Safe - we should be able to live with people we like and never have to live in fear. 5. Secure - we should have strong rights and not fear that we will easily lose our home. Real homes are our homes
  • 41.
  • 42. Why do people not share the same housing rights as other citizens? Why can people not buy their own homes and live with who they choose?
  • 43.
  • 45. Citizens need help. Everyone needs help. Help is good. But many disabled people are too dependent on those who help them. They get help at the price of freedom. This is bad help.
  • 46. 1. Controlling - sometimes people don’t really help us to do what is important to us. 2. Dependent - sometimes we are left weaker and more reliant on others. 3. Segregated - sometimes we get cut out of ordinary life. 4. Wrong - sometimes there’s no fit and the person offering help is just wrong for us. 5. Abuse - some people can even abuse their power over us. Bad help harms us
  • 47. 1. Support - good help gives us what we need to achieve our own plans. 2. Teach - good help keeps us learning and making the best of our abilities. 3. Connect - good help links us to other people and builds bridges into community life. 4. Respect - good help is respectful, it is given in a spirit of equality and mutual benefit. 5. Champion - good help means having someone to look out for us. Good help leaves us stronger
  • 48.
  • 49. Why do people not get support from people they choose?
  • 50. You can individualise everything
  • 52. Citizenship is about making a difference. We do this by getting involved and helping make our community be a better place. But many disabled people are excluded from community life.
  • 53. 1. Bored - we end up bored, living without purpose. 2. Not valued - nobody finds out what we have to offer because we’re not part of it. 3. False - some of us end up in services that are just strange copies of ordinary life. 4. Lonely - without community we make no friends and we can lose the friends we have. 5. Disconnected - without connections we are weaker and our options are limited. No community means no life
  • 54. 1. Join - we will find lots more going on in our community if we look. 2. Work - our community needs us, there are always plenty of things we can do to help. 3. Fun - find the places where we are happy, we can laugh and relax, have fun. 4. Together - being part of the community is how we meet other people and make friends. 5. Power - together we can achieve so much more than on our own. Community is where life is
  • 55.
  • 56. Community is where life happens… Why do too many people miss out?
  • 57.
  • 58.
  • 60. The most important thing in the world is love. Love exists even when citizenship is missing, but true citizenship strengthens the force of love in the world. Disabled people can love and be loved just like everyone else. But sometimes the world makes it harder.
  • 61. 1. Abused - we can be abused, made to have sex or be hurt in other ways. 2. Broken - we can lose our families and miss out on the chance to have children. 3. Lonely - we can have no real friends, even when we are surrounded by other people. 4. Missing out - we can miss out on sex and the chance to be someone’s lover. 5. Closed in - we can be closed in, unwilling to love, frightened of giving to the world. It’s hard to live a life without love
  • 62. 1. Self-respect - we mustn’t let other people hurt, use or abuse us. 2. Family - we can be part of a family, we have the right to have our own family. 3. Friends - we can find real friends, people who value us for who we really are. 4. Lovers - we are a full human being who should be allowed to have affection and sex. 5. Giving - we can give love to the world and to other people. Love is always possible
  • 63.
  • 65.
  • 66. My Mum: “You’ve missed out sex…” Wendy: “You’ve missed out sex…”
  • 68. We are people who have just woken up to the fact that for decades we have been digging a deep hole for ourselves. This is good. But we must also recognise that people who have been digging a hold may not always know how best to get out of that hole.
  • 69. Positive change means doing things differently: Innovation and creativity These seem like Finnish strengths
  • 70. Citizenship is for everyone. We’re all equal. We’re all different. We’re all citizens. Let’s make it happen.
  • 72.
  • 73. The Goal is Citizenship © Simon Duffy 2014 Published by The Centre for Welfare Reform http://www.www.centreforwelfarereform.org On Twitter follow: @simonjduffy and @cforwr For more information about citizenship join our Citizenship for All project. Just go to: http://www.keystocitizenship.com