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S. Pagliara, G. Cinquemani, G. Novelli
                         A Pepino, C. Freda
info@centroausili.org - www.centroausili.org
                  Phone +39 081 19301360
Autonomy
    “…ability to design own life, to get into
    relation with others and to take part into
        building up of society with them”
                                      (Andrich)
 Indipendence doesn’t necessarily mean
  doing things without help
 But it means to be actor of one’s own
  life, promoter of one’s own choices
Introduction
   The aim of this work is to facilitate the
    going back home of a person with a
    severe disability, by removing those
    barriers limiting activities and
    participation (ICF WHO 2001)
The case
   The person is a women 50 y.o.
   She has a severe motor impairment
   She needs rehabilitation therapies all week
    long to maintain fine mobility with her arms
    and hands and the control of respiration
   She rests in bed when is unnecessary to
    do something
   She moves with a wheelchair
   For all of this facts she has been so far
    forced to live in rehabilitation centre
The needs
 Living at home
 Near the rehabilitation centre
 Building up a “new” autonomy
…
The project
Multidisciplinary approach taking into
account different levels:
Project design with her
Building or strengthen her “Social
Network”
Implementation with less discomforts
possible
Costs
Promoters
 ASL NA1 - National Health Service,
  district of Naples
 Department of Biomedical, Electronic
  and Telecommunication Engineering,
  University of Naples Federico II
 Centro per l’Autonomia Ausilioteca
  Campana – A SME working in Assistive
    Technologies for Autonomy
   The person with disability and her family
Project Phases
 She demands ASL-NA1 for independent
  living at home
 ASL-NA1 with UNINA – DIBET and
  CAAC build up an individual project that
  takes care the whole needs
 CAAC implement the Project
Promoters: ASL NA 1
 Legislative support
 partial funding for the project
 supervisor of the entire process
Promoters : Department of Biomedical,
Electronic and Telecommunication
(UNINA - DIBET)
 Scientific supervising
 Validation of multidisciplinary
  intervention
Promoters:
Centro per l’Autonomia Ausilioteca
Campana (CAAC)
 Was born as a natural spin-off from the
  Department of Biomedical Engineering
 Is composed by electronic and
  biomedical engineers, psychologysts,
  AAC and rehabilitation therapists, ITC
  technicians
 Biased on a multisciplinary model of
  intervention
 Use ICF as a common language
CAAC’s - Workflow
Project implementation:
CAAC main role
 linking in a unique network different
  SMEs
For
 Home renovation
 Home automation
 Wheelchair and other assistive
  technologies customizations
Project implementation:
“side effects”

• Building up and strengthening of her social
  network through the action of health services,
  rehabilitation centre, family, caregivers and all
  other actors that could give contributions to this
  project.
Project implementation
Project Implementation
Outcomes
• installation of an environmental control tailored
  to the user’s real needs at lower costs
• Two wheelchairs one electronic to get out
  home and the other lighter to move faster in
  her house
• A new life… priceless
The Costs
   Before:
     About 45.000 Euros per year only for long
     staying
   After
     A one-time expense (investment) of about
     30.000 Euros for the first year and less than
     10.000 Euros per year
The Costs
 On  a three years experimental project
  the gross amount is less than 50.000
  Euros
 Versus a previous expense of
  135.000 Euros
S. Pagliara, G. Cinquemani, G. Novelli
                         A Pepino, C. Freda
info@centroausili.org - www.centroausili.org
                  Phone +39 081 19301360

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Autonomy at accessible costs

  • 1. S. Pagliara, G. Cinquemani, G. Novelli A Pepino, C. Freda info@centroausili.org - www.centroausili.org Phone +39 081 19301360
  • 2. Autonomy “…ability to design own life, to get into relation with others and to take part into building up of society with them” (Andrich)  Indipendence doesn’t necessarily mean doing things without help  But it means to be actor of one’s own life, promoter of one’s own choices
  • 3. Introduction  The aim of this work is to facilitate the going back home of a person with a severe disability, by removing those barriers limiting activities and participation (ICF WHO 2001)
  • 4. The case  The person is a women 50 y.o.  She has a severe motor impairment  She needs rehabilitation therapies all week long to maintain fine mobility with her arms and hands and the control of respiration  She rests in bed when is unnecessary to do something  She moves with a wheelchair  For all of this facts she has been so far forced to live in rehabilitation centre
  • 5. The needs  Living at home  Near the rehabilitation centre  Building up a “new” autonomy …
  • 6. The project Multidisciplinary approach taking into account different levels: Project design with her Building or strengthen her “Social Network” Implementation with less discomforts possible Costs
  • 7. Promoters  ASL NA1 - National Health Service, district of Naples  Department of Biomedical, Electronic and Telecommunication Engineering, University of Naples Federico II  Centro per l’Autonomia Ausilioteca Campana – A SME working in Assistive Technologies for Autonomy  The person with disability and her family
  • 8. Project Phases  She demands ASL-NA1 for independent living at home  ASL-NA1 with UNINA – DIBET and CAAC build up an individual project that takes care the whole needs  CAAC implement the Project
  • 9. Promoters: ASL NA 1  Legislative support  partial funding for the project  supervisor of the entire process
  • 10. Promoters : Department of Biomedical, Electronic and Telecommunication (UNINA - DIBET)  Scientific supervising  Validation of multidisciplinary intervention
  • 11. Promoters: Centro per l’Autonomia Ausilioteca Campana (CAAC)  Was born as a natural spin-off from the Department of Biomedical Engineering  Is composed by electronic and biomedical engineers, psychologysts, AAC and rehabilitation therapists, ITC technicians  Biased on a multisciplinary model of intervention  Use ICF as a common language
  • 13. Project implementation: CAAC main role  linking in a unique network different SMEs For  Home renovation  Home automation  Wheelchair and other assistive technologies customizations
  • 14. Project implementation: “side effects” • Building up and strengthening of her social network through the action of health services, rehabilitation centre, family, caregivers and all other actors that could give contributions to this project.
  • 16. Project Implementation Outcomes • installation of an environmental control tailored to the user’s real needs at lower costs • Two wheelchairs one electronic to get out home and the other lighter to move faster in her house • A new life… priceless
  • 17. The Costs  Before:  About 45.000 Euros per year only for long staying  After  A one-time expense (investment) of about 30.000 Euros for the first year and less than 10.000 Euros per year
  • 18. The Costs  On a three years experimental project the gross amount is less than 50.000 Euros  Versus a previous expense of 135.000 Euros
  • 19. S. Pagliara, G. Cinquemani, G. Novelli A Pepino, C. Freda info@centroausili.org - www.centroausili.org Phone +39 081 19301360