The summary of Dr. Phil Webb's presentation from the Jun 11-12th 2019 event Data-driven systems medicine at Cardiff University Brain Research Imaging Centre.

1. Person Centred Design? Driving Data Through
Story Telling and Lessons From a Different Universe……..
Dr Phil Webb: Gun Slinger, Story Teller and Cat Wrangler

2. Warning
• This is NOT just about the data or the technology – but the
technology IS Truly Amazing;
• This is a story about people and how the data and the technology
gets SOCIALISED;
• Without socialisation any data and technology is meaningless;
• This is a TRUTH story

3. What happens in the now?
• Lets play a game
• Think of a number between 1 and……
• Double it
• Add 10 to it
• Half it
• Take away the number you first thought off
• Mentally project the answer to me…..

4. What problems does this cause?
• Causes the now to continue to be the dominant reality;
• Avoids the introduction of the new;
• Makes us complacent and complicit in FALSE and therefore
perpetuates now

5. Delusion (an idiosyncratic belief or impression maintained despite being
contradicted by reality or rational argument)
Reality (the state of things as they actually exist, as opposed to an idealistic or
notional idea of them)
= The bigger the delusion the less we do to change the
reality

6. 12 March 2019, London, King’s
Fund 11:35am, David Cogan

7. Truth Saying – How Can we Stop Continuous
Delusion?
Ask people what matters to them (stop labelling them as patients) and
give them a voice;
Remember our version of what is important is not their version of what
is important (and our version isn’t that important……);
Allow them to bring not only their experience but also their own skills,
expertise and personality;
Expose people to what can be done, not just what you can do;
Have fun

8. Making It Personal
Choice
Control
Communication
Independence
Information
Highest
quality
of care
Health
(Physical,
psychological
and emotional
wellbeing)
Is the patient really at the heart of
what we do?
What is a good health outcome?
What is a good experience?
What are realistic expectations?
How do we talk about this?
What actions do we need to take?
Where is the data to describe this?

9. What is data?
• Numbers?
• Pictures (pixels and voxels)?
• Sound (wave)?
• Heat?
• Light?
• Energy [entropic effects]?
• Language?

10. If our KPI’s included ‘inches’ we would be
world-class!
Less than 5% of ‘information we give out’
Less than 5% is ever read
Less than 5% is actually understood

11. Real Applications Velindre is Either Doing or
Supporting in Wales
• RiTTa – NLP and the power of language and conversation as data;
• Creating image classifiers using Power AI vision;
• Soundscaping and the invisibility of strings;
• Q and potential applications in the cognition of edge implants and
prosthetics

12. Realtime information Technology Towards
activation (RiTTa)
• World’s first virtual assistant trained in oncology;
• Designed to provide timely, relevant and accessible information any
time, place or where to support patients have better conversations as
they live with cancer;
• Does she talk, does she walk, does she come complete……meet RiTTa
The Real Rita
LIVE DEMO RITTA
https://youtu.be/OjSWbeMus2E

13. RiTTa – Interesting features
• Tonal analyser and emotional state responsiveness;
• Watson Discovery;
• Txt to speech and speech to txt;
• Welsh and other languages;
• Sign language;
• Preferences and behaviour;
• Data capture and data transfer

14. Images and Classifiers - Power AI vision
• No coding knowledge required to train ML!
• Developing POCs in:
• Opthalmology (Glaucoma and Macular Degeneration). 35mm film from a dads
old suitcase.
• Dermatology (click to diagnosis);
• Radionomics (heavy file processing to IBM China);
• 3D mamography

15. Sounds and classifiers
• Supporting an Arts Council grant to use soundscapes to develop
secondary use datasets to predict quality in NHS clinical contexts;
• Can you use ambient sound [or rather the gaps in the sound] to
differentiate between ‘good’ and ‘bad’ in NHS environments?
• Yes – we think we can
• What does this allow us to use over and above when we can see with
numbers alone? Much, much more – we predict better insight and
precision!

16. Q – The Power of Quantum
• Schrodinger’s Cat
• 1 or 0 or both at the same time in the same space
• Application in complex environment where superposition and
entanglement exists (e.g. I am both happy and sad in the past, in the
present and in the future; I am both dad and alive now);
• Applications in cognitive implants and prosthetics where the
environment constantly changes and the implant has to exhibit
continuous adaptation?

17. So what?
• Understanding people (patients and staff) and allowing patients (data generators)
to run design thinking that drove the data and the innovation;
• The joint endeavour met a need that inspired and challenged all of us and will
continue to do so;
• This are truly disruptive innovations – they have made all of us seriously consider
the future design of health and social care systems;
• It has created debate about what we don’t yet know;
• It has challenged industry partners about what they think and how they
themselves develop and grow;
• It has caused SMEs we now work with to expand and grow;
• It has attracted inward investment;
• It will improve patients experience of healthcare in a way we never imagined
possible

18. What more can we do?
• At least 4 NVIDIA’s within a 7 miles radius;
• Q is a real thing;
• Training AI is becoming easier and easier……..

19. So why aren’t we doing it then?
• Culture, control and dominance (and the location of it);
• Belief in the false potential of human labour and behaviour;
• Vision, intellect, design and courage – possibly

20. Measurement and observation…..what does
the cat say……
If you are going to observe, observe well, observe
bravely…….

21. June8,1972,TrangBang,c.25miles
northwestofSaigon,NickUtk