Speakers: Sheila Colclasure, Global Privacy and Public Policy Executive, Acxiom
The Digital Health Summit, produced by Living in Digital Times, convenes one of the broadest spectrum of health care and technology audiences in the world. The Summit features innovations and advancements in genomics, diagnostics, wearables, telehealth and more in the mobile health market which is expected to reach $26 billion by 2017. This is a must see event each year that takes place at the International Consumer Electronics Show (CES) in Las Vegas.
Website: Http://www.digitalhealthsummit.com
Twitter: http://www.twitter.com/dhsummit
Hashtags: #digitalhealthces #ces2016
Photos: https://www.flickr.com/digitalhealthsummit
3. Data Driven Everything
History - Data and Privacy
∙ Top of mind for decades
∙ Active collection/consent based uses
∙ PII and aggregate/batch enabled
∙ Innovation ahead of regulation
Massive New Sources = Big Changes
∙ Volume, Velocity, Variety & Analytics
∙ PII, DII, Pseudo anonymous, De-identified
∙ Observed Data
∙ Passive Collection
∙ New Harms
∙ Definition of “sensitive data” evolving
Accelerating into IoT
*Acxiom best-in-class earning the only 5 out of 5 perfect
score across all competitors in Privacy and Security of
data* *Forrester Wave: 2015
Customer Insights Services
Providers
4. Accelerating into Data Driven Health
Patient Journey Signals Everywhere
∙ Digital Identity Resolution: cookieID, mobileID, globalpatientID, tvID, audio beacons, behavior, other….
∙ Place in Time Data: Points of Interest, Points of Relevance, Placefulness
∙ Sensor Data: embedded meds, shirts, shoes, consumables, home products, cars, locations
∙ Passive Signal Send/Receive
∙ Unanticipated Uses
Dangers of Misuse
∙ Social Damage, Reputational Harms
∙ Physical Harms, Health Outcomes, Financial Harms
∙ Enforcement = Deception or Unfairness
∙ Supersede, Disrupt, Ignore, Bypass Human Values/Social Norms
∙ Algorithmic Discrimination, Digital Determinism
∙ Broken Trust = Brand, Service, EcoSystem
∙
5. Operationalizing Ethics
Contextual Ethical Interrogation = Legal, Just, Fair
• Characterize Project: Purpose, Sources, Preparation, Accuracy, Insights, Accountability,
Stakeholders
• Benefits vs. Risks: Analysis, Risks Mitigations
• Progressive: Outcomes
• Sustainable: Insights, Quality
• Respectful: Apply Judgement Based on Documented Facts
• Fair: Apply Judgement Based on Documented Facts
6. Ethical Use of Data - Unlocking the Possible
1. Confidence that Allows Use of Massive New Streams of Data and Analytics
2. Deliberate Method Results in Outcomes that are Good for Brand and
Patient: Legal, Just and Fair
3. More Mature Organizational Information Governance System
4. Addresses Complexity, Nuance and Uncovers Data/Analytic Quality Issues
5. Pathway to Compliant Big Data Enablement in Other Markets
6. Data Governance Increasingly Competitive Differentiator goes to Brand
Trust and Loyalty
7. In a World with Less Legal Certainty, More Data Breaches, Privacy
Incidents and Greater Penalties…Identify and Document Facts and
Deliberation to Prepare for External Oversight and Defend when Questions
Arise
Editor's Notes
Established 1991
Strong support from CEO and Exec Team
Report to Global General Counsel w/n Legal Org
Global in Scope with regional specialists
Evolved and extended over time
Extreme pivot to Digital 48 months ago
Supports ethical practices of Company
Protect and extend Brand Trust
Four constituencies: clients, shareholders, employees, individual consumers
Use based:
marketing uses
fraud detection and prevention uses
sectorial regulation (FCRA, HIPAA, etc)
Education
Required annual privacy education & test
Job-role specific education
Privacy Certification Series
*AboutTheData.com for Consumers = transparency
* Digital Literacy Initiative
Established 1991
Strong support from CEO and Exec Team
Report to Global General Counsel w/n Legal Org
Global in Scope with regional specialists
Evolved and extended over time
Extreme pivot to Digital 48 months ago
Supports ethical practices of Company
Protect and extend Brand Trust
Four constituencies: clients, shareholders, employees, individual consumers
Use based:
marketing uses
fraud detection and prevention uses
sectorial regulation (FCRA, HIPAA, etc)
Education
Required annual privacy education & test
Job-role specific education
Privacy Certification Series
*AboutTheData.com for Consumers = transparency
* Digital Literacy Initiative
Established 1991
Strong support from CEO and Exec Team
Report to Global General Counsel w/n Legal Org
Global in Scope with regional specialists
Evolved and extended over time
Extreme pivot to Digital 48 months ago
Supports ethical practices of Company
Protect and extend Brand Trust
Four constituencies: clients, shareholders, employees, individual consumers
Use based:
marketing uses
fraud detection and prevention uses
sectorial regulation (FCRA, HIPAA, etc)
Education
Required annual privacy education & test
Job-role specific education
Privacy Certification Series
*AboutTheData.com for Consumers = transparency
* Digital Literacy Initiative