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Highlights EULAR 2012

 Health Professionals Sessions

       John Verhoef MSc PT PhD
     Professor of Physical Therapy
  University of Applied Sciences Leiden
             The Netherlands
Wednesday 06th of June 2012:
Crossing boundaries of primary to
         secondary care


     Future demands for cooperation between
         specialised care and primary care
Opportunities and challenges in a future
     primary health care for people with rheumatic
                        diseases

          – Primary care is not the same all over Europe!
          – Primary care could give opportunities regarding:
               • Early diagnosis, efficient referral, more future patients to treat
                 and follow, life long management, life style interventions, deal
                 with comorbidities, some diseases are mainly treated in PC and
                 organizing care.
          – Primary care challenges:
               • Use and develop checklists, specific training of HP and
                 patients, IT support for communication, and teamwork



No abstract available; S. Bergman, Sweden
Collaboration across health service levels

         – Need for health sector reform: develop integrated care
           and collaboration between primary and secondary
           specialist care
         – In Norway treatment for OA is taken as a pilot for
           health sector reform, because there are no treatment
           pathways available
         – Three projects were started to stimulate cooperation
           between PC and SC
         – Key factors for succes: funding, changing behavior, and
           keep it simple, but structured!
SP0040: Nina Osteras, Norway
Hopes and real life experiences of
     communication between specialist health care
                and primary health

         –Real Life experiences:
              • In communication the responsibility is transferred to the
                patient (unwanted by the patient)
              • Survey-results: patients are frequently used as messenger
                between specialist care and primary care
         –Hopes from the patient perspective:
              • Responsibility for transfer of information goes back to the HP
              • Develop tools to enhance communication
              • Patients themselves should ask for changes

SP0041: Connie R. Ziegler, Denmark
Future challenges for health professionals;
         communication across health care levels
         – Literature overview from a health systems perspective
         – Comparative institutional ethnographical (patient-
           centered) study routine care processes to RA patients in
           Austria, Sweden and the UK
         – Despite the differences in the systems in principle it is
           possible to ensure continuity of care
         – Getting insight into processes and structures of
           communication across care levels opens opportunities
           for changing daily practice


SP0042: B.Prodinger, Canada
Thursday 7th of June 2012:
   HPR abstract session



   Progress in rehabilitation –
       the future is bright
A MULTIDISCIPLINARY AND
       MULTIDIMENSIONAL PROGRAM FOR
        HAND OSTEOARTHRITIS IS NOT
                EFFECTIVE:
          –Single blinded randomized multicenter trial with patients with hand
          OA:
               • Four weekly multidisciplinary intervention (goal setting, exercises,
                 education, splinting): n=76
               • 30 minutes education and 3 months on waiting list: n=75
               • Outcome: pain, activity limitations, grip strength, self-efficacy, pain
                 coping and QoL
          –Conclusion:
               • No benefit on short term
               • Future reseach focussed on effectiveness of single treatment elements
                 targeted on patient characteristics and needs


OP0075-HPR: M.J. Stukstette et al, Netherlands
EFFECTS OF A SOFT THUMB
                     BASE SPLINT

         – Randomized controlled trial with patients with carpometacarpal
           OA:
              • Splint-group: hand exercises (twice a day) and splint; n=30
              • Control-group: hand exercises (twice a day); n=29
              • Outcome: grip- and pinch strength, pain, thumb-webspace, joint
                mobility, self-reported hand function (two months follow-up)
         – Conclusion:
              • No benefit on long term
              • Only an immediate pain-relieving when worn




OP0076-HPR: M. Hermann et al, Norway
EFFECT OF INTERACTIVE WORKSHOP
       ON ADHERENCE WITH DUTCH PT
    PRACTICE GUIDELINE HIP AND KNEE OA
           – PT’s from 5 regions were randomly assigned to:
                • Interactive workshop (content guideline, 3 clinical cases with patient
                  partners and 3 regional experts, lasted 3 hours): n=141
                • Control group (waiting list group): n=134
                • Outcome: QIP-HKOA, knowledge questionnaire, guideline barriers
                  questionnaire (before, after, 2 months later)
           – Conclusion:
                • Statistical difference on all measures in favour for IW
                • Effective strategy to improve adherence with the recommendations of
                  the Dutch PT guideline on HKOA


OP0077-HPR: W.F. Peter et al, Netherlands
THREE WEEK REHAB PROGRAM HAD
    POSITIVE LONG TERM EFFECTS IN
PATIENTS WITH ANKYLOSING SPONDYLITIS
         – Observer blinded randomized contolled trial with patients with
           ankylosing spondylitis:
               • Three weeks inpatient rehab program: n=46
               • Usual treatment: n=49
               • Outcome: BASDAI (disease activity), BASFI (function), well-being,
                 spinal and hip mobility, SF-36 QoL (4 and 12 months)
         – Conclusion:
               • Significant benefit in favour for the rehab group regarding BASDAI,
                 well-being and some SF-36 variables.
               • This 3-week inpatient program should be considered an important
                 complement to medical disease management in patients with AS
OP0078-HPR: I. Kjeken et al, Norway
EFFECTS OF A ONE WEEK
     MULTIDISCIPLINARY INPATIENT SELF-
      MANAGEMENT PROGRAMME FOR
       PATIENTS WITH FIBROMYALGIA
        – Randomized controlled two-armed assessor-blinded trial with
          patients with fibromyalgia:
             • One week multidisciplinary inpatient SMP (psychological distress,
               health consumer skills, self-efficacy, information on FM): n=58
             • Waiting list control group: n=60
             • Outcome: General Health Questionnaire-20, Effective
               Musculoskeletal Consumer scale-17, Fibromyalgia Impact
               Questionnaire, Self-efficacy (ASES) (3-week follow-up)
        – Conclusion:
             • Small short-term effect on skills and behavior important for managing
               and participating in health care (EC-17)
             • No others differences found
OP0079-HPR: B.Hamnes et al, Norway
Aerobic training in patients with ankylosing
                        spondylitis
         – Randomized controlled assessor-blinded trial with patients with
           ankylosing spondylitis:
              • Intervention group: fifty minutes of walking in the individual
                anaerobic threshold associated with stretching exercises three times a
                week for twelve weeks: n=32
              • Control group: only stretching exercises: n=32
              • Outcome: BASFI, HAQ-S, BASMI, BASDAI, CRP, aerobic capacity
                treadmill-test and 6-minute walking test at T0, T6 and T12 weeks
         – Conclusion:
              • The IG showed significant improvement in 6MWT compared to the
                control group. There was an increased walking distance and
                cardiopulmonary capacity.

OP0080-HPR: F. Jennings et al, Brazil
Concepts important to patients with RA in rehab
          and their coverage by rehab tools
          – Qualitative focus group study with patients with RA in
            combination with a systematic literature review:
               • This study aimed to explore whether RA patients’ perspectives on
                 rehabilitation are covered by current rehabilitation instruments (RAP,
                 COPM, WHODAS-II, ICF Core sets)
               • Outcome: Using the ICF as a common framework, the focus groups
                 (19 patients in 4 groups) showed that personal characteristics,
                 handling disease and limitation, self-confidence and maintaining
                 independency was not at all covered within the rehab tools
          – Conclusion:
               • Current rehabilitation tools poorly cover the concepts that patients
                 find essential during rehabilitation
               • The ICF-CSRA best covered patients'’ perspective
OP0081-HPR: J. Meesters et al, Netherlands
Short term effect of 2-weeks rehab on disease
     activity and health status in patients with AS
         – Descriptive retrospectively study for AS patients who participated
           in 2-week rehab program January 2007 to June 2011: n=87
              • One week multidisciplinary inpatient SMP (psychological distress,
                health consumer skills, self-efficacy, information on FM): n=58
              • Waiting list control group: n=60
              • Outcome: BASDAI, BASFI), BASMI, Gait Velocity, Timed-Stands
                Test, Occiput-Wall Distance, Finger-Floor Distance, Chest
                Expansion, ESR and CRP
         – Conclusion:
              • short term rehab improves disease activity and physical function.
              • did not reduce ESR and CRP


OP0082-HPR: G. Haugeberg et al, Norway
Thursday 7th and Friday 8th of June 2012:


       Guided Poster Tour HPR
Friday 8th of June 2012:
     HP Workshop Session


        Challenges in HP’ practice:
  how to develop and execute a treatment
plan for a patient with rheumatic conditions
             and comorbidities
Interactive presentation of two examples from
     daily practice regarding a patient with OA and
                      comorbidities
          – Setting individual treatment goals in complex cases
             (T. Dager, Norway; SP0138)

          – Exercise in case of multiple health problems
             (M. de Rooij, Netherlands; SP0139 together with a patient Mrs. Linderman)




Tutor: J.A.M. Linderman, Netherlands
Setting individual treatment goals in complex cases

        – Goal planning: essential part of rehab practice and is a
          collaborative process between the patient and the
          rehabilitation team
        – Qualitative study of rehab outcomes emphasizes the
          need to understand and take into account the patients'
          own understanding of challenges when formulating
          individual rehabilitation goals
        – At the work-shop, the goal-setting process was
          illustrated through patient cases, and factors facilitating
          or hampering the goal setting process was discussed.

SP0040: Nina Osteras, Norway
Exercise in case of multiple health problems
        – OA: highest rates of comorbidity associated with more pain,
          greater limitations in daily activities, and worst functional
          prognosis
        – Comorbidities in knee OA: coronary diseases, heart failure,
          hypertension, type 2 diabetic, obesity, copd, chronic pain, non-
          specific low back pain, depression, and visual and hearing
          impairments.
        – Exercise therapy is one of the key recommendations lacking
          comorbidity-associated adaptations
        – In this inter active session the adaptations that have been made in
          the diagnostic and intervention phase in a patient with OA of the
          knee and comorbidities (diabetic type 2, hypertension and obesity)
          was discussed
SP0040: Nina Osteras, Norway
Saterday 9th of June 2012:
Joint Clinical-HPR-PARE Session

      Move, groove and improve
        exercise and RMD’s

   How to ensure safety, quality and
   motivation in provision of exercise
Physical activity promotion in peolple with RMD’s:
                     RheumaNet

         – No physical activity estimates for patients with RMDs
           are available in Flanders.
         – Initiated by patient organisations and Leuven
           University: ReumNet.
         – Goal: research project for developing tailored PA
           intervention programs
         – A web-based survey will start and will provide a good
           estimate of PA needs in Flanders

SP0183: P. Verschueren, Belgium
How to ensure quality in exercise groups organised
             by patient organisations

   • In the state of North Rhine-Westfalia: 35.000 patients take
     part in hydrotherapy exercise groups, about 10.000 in other
     physiotherapy groups.
   • Volunteers in about 100 local branches organize these
     therapy groups.
   • How do we enable that the patient gets the right therapy?
     How is it made possible that the therapists working for us
     are doing a good job?
   • “asking these questions is the start of the solution’

SP0184: D. Wiek, Germany
An early morning stretch:
                      practical use of THERA band




No abstract: I. Kostas,Cyprus
Exercising safely – a PT perspective
           – Aerobic and strengthening exercises are recommended
             in treatment guidelines in patients with rheumatic
             diseases, including rheumatoid arthritis and knee and/or
             hip osteoarthritis
           – adverse events 9low incidence) have been reported:
             increase in pain, increase in joint inflammation,
             increased cartilage degeneration, musculoskeletal
             injuries and falls due to exercise
           – There is a need to investigate adverse events resulting
             from exercising as part of the improvement of care for
             patients with rheumatic diseases
SP0185: M. van der Esch, Netherlands
Take Home Message
• Plan your next trip to the EULAR congress
• Give input to the EULAR HP Standing
  Committee regarding the program
• Take a look at the EULAR website
  regularly
• Have a save journey and see you next year!

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Highlights eular hp 2012 berlin john verhoef def

  • 1. Highlights EULAR 2012 Health Professionals Sessions John Verhoef MSc PT PhD Professor of Physical Therapy University of Applied Sciences Leiden The Netherlands
  • 2. Wednesday 06th of June 2012: Crossing boundaries of primary to secondary care Future demands for cooperation between specialised care and primary care
  • 3. Opportunities and challenges in a future primary health care for people with rheumatic diseases – Primary care is not the same all over Europe! – Primary care could give opportunities regarding: • Early diagnosis, efficient referral, more future patients to treat and follow, life long management, life style interventions, deal with comorbidities, some diseases are mainly treated in PC and organizing care. – Primary care challenges: • Use and develop checklists, specific training of HP and patients, IT support for communication, and teamwork No abstract available; S. Bergman, Sweden
  • 4. Collaboration across health service levels – Need for health sector reform: develop integrated care and collaboration between primary and secondary specialist care – In Norway treatment for OA is taken as a pilot for health sector reform, because there are no treatment pathways available – Three projects were started to stimulate cooperation between PC and SC – Key factors for succes: funding, changing behavior, and keep it simple, but structured! SP0040: Nina Osteras, Norway
  • 5. Hopes and real life experiences of communication between specialist health care and primary health –Real Life experiences: • In communication the responsibility is transferred to the patient (unwanted by the patient) • Survey-results: patients are frequently used as messenger between specialist care and primary care –Hopes from the patient perspective: • Responsibility for transfer of information goes back to the HP • Develop tools to enhance communication • Patients themselves should ask for changes SP0041: Connie R. Ziegler, Denmark
  • 6. Future challenges for health professionals; communication across health care levels – Literature overview from a health systems perspective – Comparative institutional ethnographical (patient- centered) study routine care processes to RA patients in Austria, Sweden and the UK – Despite the differences in the systems in principle it is possible to ensure continuity of care – Getting insight into processes and structures of communication across care levels opens opportunities for changing daily practice SP0042: B.Prodinger, Canada
  • 7. Thursday 7th of June 2012: HPR abstract session Progress in rehabilitation – the future is bright
  • 8. A MULTIDISCIPLINARY AND MULTIDIMENSIONAL PROGRAM FOR HAND OSTEOARTHRITIS IS NOT EFFECTIVE: –Single blinded randomized multicenter trial with patients with hand OA: • Four weekly multidisciplinary intervention (goal setting, exercises, education, splinting): n=76 • 30 minutes education and 3 months on waiting list: n=75 • Outcome: pain, activity limitations, grip strength, self-efficacy, pain coping and QoL –Conclusion: • No benefit on short term • Future reseach focussed on effectiveness of single treatment elements targeted on patient characteristics and needs OP0075-HPR: M.J. Stukstette et al, Netherlands
  • 9. EFFECTS OF A SOFT THUMB BASE SPLINT – Randomized controlled trial with patients with carpometacarpal OA: • Splint-group: hand exercises (twice a day) and splint; n=30 • Control-group: hand exercises (twice a day); n=29 • Outcome: grip- and pinch strength, pain, thumb-webspace, joint mobility, self-reported hand function (two months follow-up) – Conclusion: • No benefit on long term • Only an immediate pain-relieving when worn OP0076-HPR: M. Hermann et al, Norway
  • 10. EFFECT OF INTERACTIVE WORKSHOP ON ADHERENCE WITH DUTCH PT PRACTICE GUIDELINE HIP AND KNEE OA – PT’s from 5 regions were randomly assigned to: • Interactive workshop (content guideline, 3 clinical cases with patient partners and 3 regional experts, lasted 3 hours): n=141 • Control group (waiting list group): n=134 • Outcome: QIP-HKOA, knowledge questionnaire, guideline barriers questionnaire (before, after, 2 months later) – Conclusion: • Statistical difference on all measures in favour for IW • Effective strategy to improve adherence with the recommendations of the Dutch PT guideline on HKOA OP0077-HPR: W.F. Peter et al, Netherlands
  • 11. THREE WEEK REHAB PROGRAM HAD POSITIVE LONG TERM EFFECTS IN PATIENTS WITH ANKYLOSING SPONDYLITIS – Observer blinded randomized contolled trial with patients with ankylosing spondylitis: • Three weeks inpatient rehab program: n=46 • Usual treatment: n=49 • Outcome: BASDAI (disease activity), BASFI (function), well-being, spinal and hip mobility, SF-36 QoL (4 and 12 months) – Conclusion: • Significant benefit in favour for the rehab group regarding BASDAI, well-being and some SF-36 variables. • This 3-week inpatient program should be considered an important complement to medical disease management in patients with AS OP0078-HPR: I. Kjeken et al, Norway
  • 12. EFFECTS OF A ONE WEEK MULTIDISCIPLINARY INPATIENT SELF- MANAGEMENT PROGRAMME FOR PATIENTS WITH FIBROMYALGIA – Randomized controlled two-armed assessor-blinded trial with patients with fibromyalgia: • One week multidisciplinary inpatient SMP (psychological distress, health consumer skills, self-efficacy, information on FM): n=58 • Waiting list control group: n=60 • Outcome: General Health Questionnaire-20, Effective Musculoskeletal Consumer scale-17, Fibromyalgia Impact Questionnaire, Self-efficacy (ASES) (3-week follow-up) – Conclusion: • Small short-term effect on skills and behavior important for managing and participating in health care (EC-17) • No others differences found OP0079-HPR: B.Hamnes et al, Norway
  • 13. Aerobic training in patients with ankylosing spondylitis – Randomized controlled assessor-blinded trial with patients with ankylosing spondylitis: • Intervention group: fifty minutes of walking in the individual anaerobic threshold associated with stretching exercises three times a week for twelve weeks: n=32 • Control group: only stretching exercises: n=32 • Outcome: BASFI, HAQ-S, BASMI, BASDAI, CRP, aerobic capacity treadmill-test and 6-minute walking test at T0, T6 and T12 weeks – Conclusion: • The IG showed significant improvement in 6MWT compared to the control group. There was an increased walking distance and cardiopulmonary capacity. OP0080-HPR: F. Jennings et al, Brazil
  • 14. Concepts important to patients with RA in rehab and their coverage by rehab tools – Qualitative focus group study with patients with RA in combination with a systematic literature review: • This study aimed to explore whether RA patients’ perspectives on rehabilitation are covered by current rehabilitation instruments (RAP, COPM, WHODAS-II, ICF Core sets) • Outcome: Using the ICF as a common framework, the focus groups (19 patients in 4 groups) showed that personal characteristics, handling disease and limitation, self-confidence and maintaining independency was not at all covered within the rehab tools – Conclusion: • Current rehabilitation tools poorly cover the concepts that patients find essential during rehabilitation • The ICF-CSRA best covered patients'’ perspective OP0081-HPR: J. Meesters et al, Netherlands
  • 15. Short term effect of 2-weeks rehab on disease activity and health status in patients with AS – Descriptive retrospectively study for AS patients who participated in 2-week rehab program January 2007 to June 2011: n=87 • One week multidisciplinary inpatient SMP (psychological distress, health consumer skills, self-efficacy, information on FM): n=58 • Waiting list control group: n=60 • Outcome: BASDAI, BASFI), BASMI, Gait Velocity, Timed-Stands Test, Occiput-Wall Distance, Finger-Floor Distance, Chest Expansion, ESR and CRP – Conclusion: • short term rehab improves disease activity and physical function. • did not reduce ESR and CRP OP0082-HPR: G. Haugeberg et al, Norway
  • 16. Thursday 7th and Friday 8th of June 2012: Guided Poster Tour HPR
  • 17. Friday 8th of June 2012: HP Workshop Session Challenges in HP’ practice: how to develop and execute a treatment plan for a patient with rheumatic conditions and comorbidities
  • 18. Interactive presentation of two examples from daily practice regarding a patient with OA and comorbidities – Setting individual treatment goals in complex cases (T. Dager, Norway; SP0138) – Exercise in case of multiple health problems (M. de Rooij, Netherlands; SP0139 together with a patient Mrs. Linderman) Tutor: J.A.M. Linderman, Netherlands
  • 19. Setting individual treatment goals in complex cases – Goal planning: essential part of rehab practice and is a collaborative process between the patient and the rehabilitation team – Qualitative study of rehab outcomes emphasizes the need to understand and take into account the patients' own understanding of challenges when formulating individual rehabilitation goals – At the work-shop, the goal-setting process was illustrated through patient cases, and factors facilitating or hampering the goal setting process was discussed. SP0040: Nina Osteras, Norway
  • 20. Exercise in case of multiple health problems – OA: highest rates of comorbidity associated with more pain, greater limitations in daily activities, and worst functional prognosis – Comorbidities in knee OA: coronary diseases, heart failure, hypertension, type 2 diabetic, obesity, copd, chronic pain, non- specific low back pain, depression, and visual and hearing impairments. – Exercise therapy is one of the key recommendations lacking comorbidity-associated adaptations – In this inter active session the adaptations that have been made in the diagnostic and intervention phase in a patient with OA of the knee and comorbidities (diabetic type 2, hypertension and obesity) was discussed SP0040: Nina Osteras, Norway
  • 21. Saterday 9th of June 2012: Joint Clinical-HPR-PARE Session Move, groove and improve exercise and RMD’s How to ensure safety, quality and motivation in provision of exercise
  • 22. Physical activity promotion in peolple with RMD’s: RheumaNet – No physical activity estimates for patients with RMDs are available in Flanders. – Initiated by patient organisations and Leuven University: ReumNet. – Goal: research project for developing tailored PA intervention programs – A web-based survey will start and will provide a good estimate of PA needs in Flanders SP0183: P. Verschueren, Belgium
  • 23. How to ensure quality in exercise groups organised by patient organisations • In the state of North Rhine-Westfalia: 35.000 patients take part in hydrotherapy exercise groups, about 10.000 in other physiotherapy groups. • Volunteers in about 100 local branches organize these therapy groups. • How do we enable that the patient gets the right therapy? How is it made possible that the therapists working for us are doing a good job? • “asking these questions is the start of the solution’ SP0184: D. Wiek, Germany
  • 24. An early morning stretch: practical use of THERA band No abstract: I. Kostas,Cyprus
  • 25. Exercising safely – a PT perspective – Aerobic and strengthening exercises are recommended in treatment guidelines in patients with rheumatic diseases, including rheumatoid arthritis and knee and/or hip osteoarthritis – adverse events 9low incidence) have been reported: increase in pain, increase in joint inflammation, increased cartilage degeneration, musculoskeletal injuries and falls due to exercise – There is a need to investigate adverse events resulting from exercising as part of the improvement of care for patients with rheumatic diseases SP0185: M. van der Esch, Netherlands
  • 26. Take Home Message • Plan your next trip to the EULAR congress • Give input to the EULAR HP Standing Committee regarding the program • Take a look at the EULAR website regularly • Have a save journey and see you next year!