Jane Wood - Director  mihealth Limited   October 2011       mihealth is endorsed by The Association of Breast Surgery
The story            R&D   Pilot studies            Implementation2001                                                    ...
What is mihealth?A personal information resources and healthcare organiser providing patients withinformation and support ...
Background   • BA Hons Fine Art   • MA Multimedia Design & Production.   • Teaching & learning in FE/HE & post graduate ed...
mihealth is endorsed by The Association of Breast Surgery
What are the challenges for patients?    •   Patients faced with big decisions and often feel they are not given enough   ...
What is the need?                                        Cancer research UK                    mihealth is endorsed by The...
Getting started   •   Funding application for £98,000   •   Develop a prototype   •   Pilot with NHS patients   •   The He...
Research   •   My experience - 10 months of ‘belt and braces’ treatment for breast cancer.   •   Exploration of current DH...
Stakeholders   •   Patients, carers & support group volunteers   •   NHS health team   •   Health information providers – ...
Multi channel access                       mihealth is endorsed by The Association of Breast Surgery
Working with patients                                                                   www.knowsley-cancer-support.co.uk•...
How patients helped us:• Interviews to identify key requirements  in relation to people’s experiences.• Identify the infor...
Patient experiencesHow did you feel when you were diagnosed withbreast cancer?Tina - http://vimeo.com/mihealth/videosWhy d...
Eileen McGovern – support group volunteerLyndale – Knowsley Cancer Support GroupThe patient/doctor relationshipand the ass...
How health professionals helped us:    •   Understand patient/doctor relationship and    •   To structure and develop cont...
Mapping the patient journey created by Consultant Breast Surgeon                                mihealth is endorsed by Th...
Content map to convey content to stakeholders                               mihealth is endorsed by The Association of Bre...
Patient journey progressing along the breast cancer care pathway                                mihealth is endorsed by Th...
Connecting patients to their local healthcare servicesmihealth can easily be tailored for local use making theservice rele...
How to patients become aware of the service?• Local breast unit web site• Breast screening/referral  appointment letter• N...
Health teams introduce mihealth at the point of diagnosis and throughouteach stage of the patient journey to support infor...
Connecting patients to their local healthcare servicesmihealth can easily be tailored for local use to connect peopleTo th...
Accessing mihealth - create a username and passwordRegister using the user identification number and create a username and...
Overview of mihealth               Web based system combining:               • Text based information               • Illu...
Cancer JourneyInformation is structured around the cancer journey.                                         mihealth is end...
PersonalisationPatients can personalise information to their own needs and stage of treatment.                            ...
Support networkHelp & support available to patients, their family and carers                                         mihea...
LibraryAllows users to bookmark web sites and relevant resources for future reference                                     ...
Diary – Calendar viewKeep a record of all of tests, treatments and medications and follow up care.                        ...
DiaryKeep track of hospital and personal appointments and make notes about discussions                                    ...
Diary – View all appointmentsKeep a record of all of tests, treatments and medications and follow up care.                ...
ContactsRelevant local/regional/national contact details. Patients can add their own contacts.                            ...
Well beingRecord well being throughout the patient journey – view feelings as points in time                              ...
Well beingRecord well being throughout the patient journey – make notes about feelings                                    ...
GlossaryExplanation of treatment related words with links to ‘see also’ words and resources.                              ...
Search - Search the mihealth content database using key words.                                      mihealth is endorsed b...
NHS PilotsRoyal Liverpool & Broadgreen University Hospital NHS trustRoyal Victoria Infirmary (RVI) – Newcastle            ...
The School of Population, Community and Behavioural SciencesLiverpool UniversityEvaluation    • Provides a patient’s eye v...
What patients said about mihealthIt was empowering - Well it was empowering because two days before I saw my consultant I ...
Implementing mihealthNHS      •   Chesterfield Royal Hospital - Derbyshire      •   Royal Free Hospital - London      •   ...
mihealth successful in increasing health literacy                    A comprehensive review of the of the best worldwide e...
Jane Wood - Director mihealth Ltd              Old Broadcasting House              Woodhouse Lane              Leeds      ...
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mihealth - Service Design Leeds - October 2011

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mihealth - Service Design Leeds - October 2011

  1. 1. Jane Wood - Director mihealth Limited October 2011 mihealth is endorsed by The Association of Breast Surgery
  2. 2. The story R&D Pilot studies Implementation2001 2011 mihealth is endorsed by The Association of Breast Surgery
  3. 3. What is mihealth?A personal information resources and healthcare organiser providing patients withinformation and support tailored to their local places of care.Patient centred - Connects them to the healthcare services they rely on.National & local support - Generic and local information forpatients, their families and carers.Personal - Tools to add personal information: • web links • diary appointments • contact details • make notes • keep track of how you are feeling mihealth is endorsed by The Association of Breast Surgery
  4. 4. Background • BA Hons Fine Art • MA Multimedia Design & Production. • Teaching & learning in FE/HE & post graduate education Art & design, time based and interactive media. • Research project manager - International Centre for Digital Content (ICDC) Part of Liverpool John Moores University, developing creative new media solutions within cultural, creative and commercial sectors. mihealth is endorsed by The Association of Breast Surgery
  5. 5. mihealth is endorsed by The Association of Breast Surgery
  6. 6. What are the challenges for patients? • Patients faced with big decisions and often feel they are not given enough information. • Ability to retain and recall information greatly reduced. • Communication in the doctor/patient relationship can be challenging. • Cancer brings with it a new vocabulary. • Internet and mass media offering information that is: • Too general • Difficult to determine if it is up to date, accurate and authoritative • Contradictory Patients become confused and often frightened and find it difficult to make informed decisions. mihealth is endorsed by The Association of Breast Surgery
  7. 7. What is the need? Cancer research UK mihealth is endorsed by The Association of Breast Surgery
  8. 8. Getting started • Funding application for £98,000 • Develop a prototype • Pilot with NHS patients • The Health Foundation (formerly the PPP Foundation) - Independent charity working to continuously improve healthcare in UK mihealth is endorsed by The Association of Breast Surgery
  9. 9. Research • My experience - 10 months of ‘belt and braces’ treatment for breast cancer. • Exploration of current DH/NHS policy and services and plans for the future. • Academic literature review of experiences of breast cancer patients. • Exploration of current and emerging technologies. mihealth is endorsed by The Association of Breast Surgery
  10. 10. Stakeholders • Patients, carers & support group volunteers • NHS health team • Health information providers – NHS, Macmillan Cancer Support, Cancer Research UK, Health Talk Online • Health researchers – Liverpool University • Digital researchers – Iinternationlal Centre fro Digital Content • Hewlett Packard – provided devices mihealth is endorsed by The Association of Breast Surgery
  11. 11. Multi channel access mihealth is endorsed by The Association of Breast Surgery
  12. 12. Working with patients www.knowsley-cancer-support.co.uk• Familiar environments where patients felt comfortable and well supported there.• Mainly in the support groups that the patients attended.• Our activities were slotted in between other activities – no special trips needed mihealth is endorsed by The Association of Breast Surgery
  13. 13. How patients helped us:• Interviews to identify key requirements in relation to people’s experiences.• Identify the information that should be made available within the system.• Paper based interfaces enabled us to discuss how applications should look and function and to identify requirements. mihealth is endorsed by The Association of Breast Surgery
  14. 14. Patient experiencesHow did you feel when you were diagnosed withbreast cancer?Tina - http://vimeo.com/mihealth/videosWhy do you think it is important to have the rightinformation?Maureen - http://vimeo.com/mihealth/videos mihealth is endorsed by The Association of Breast Surgery
  15. 15. Eileen McGovern – support group volunteerLyndale – Knowsley Cancer Support GroupThe patient/doctor relationshipand the assumptions made aroundinformation needs.Eileen - http://vimeo.com/mihealth/videos mihealth is endorsed by The Association of Breast Surgery
  16. 16. How health professionals helped us: • Understand patient/doctor relationship and • To structure and develop content. • To understand the context in which information is used by health teams. • How the system could be used within the hospital environment. mihealth is endorsed by The Association of Breast Surgery
  17. 17. Mapping the patient journey created by Consultant Breast Surgeon mihealth is endorsed by The Association of Breast Surgery
  18. 18. Content map to convey content to stakeholders mihealth is endorsed by The Association of Breast Surgery
  19. 19. Patient journey progressing along the breast cancer care pathway mihealth is endorsed by The Association of Breast Surgery
  20. 20. Connecting patients to their local healthcare servicesmihealth can easily be tailored for local use making theservice relevant to individuals and their local care servicesand support teams.• Local contacts GP’s, clinical teams, local services and support• Local clinical information and images of surgical procedures• Local treatment & support centres Virtual tours – floor plans, maps, staff and treatment centres• Any amount and information in any media can be added mihealth is endorsed by The Association of Breast Surgery
  21. 21. How to patients become aware of the service?• Local breast unit web site• Breast screening/referral appointment letter• NHS trust web site link• Local NHS communications Team • social media • web links • news items • press release• Local charities and support services mihealth is endorsed by The Association of Breast Surgery
  22. 22. Health teams introduce mihealth at the point of diagnosis and throughouteach stage of the patient journey to support informed decision making mihealth is endorsed by The Association of Breast Surgery
  23. 23. Connecting patients to their local healthcare servicesmihealth can easily be tailored for local use to connect peopleTo their local healthcare services and health teams.• Local contacts GP’s, clinical teams, local services and support• Local clinical information and images of surgical procedures• Local treatment & support centres Virtual tours – floor plans, maps, staff and treatment centres• Any amount and information in any media can be added mihealth is endorsed by The Association of Breast Surgery
  24. 24. Accessing mihealth - create a username and passwordRegister using the user identification number and create a username and password. Once you haveregistered log in with the user name and password you have created. mihealth is endorsed by The Association of Breast Surgery
  25. 25. Overview of mihealth Web based system combining: • Text based information • Illustrations & photographs • Video & audio patient personal experiences • Functions to support practical needs • Information can be tailored for use locally.mihealth is endorsed by The Association of Breast Surgery
  26. 26. Cancer JourneyInformation is structured around the cancer journey. mihealth is endorsed by The Association of Breast Surgery
  27. 27. PersonalisationPatients can personalise information to their own needs and stage of treatment. mihealth is endorsed by The Association of Breast Surgery
  28. 28. Support networkHelp & support available to patients, their family and carers mihealth is endorsed by The Association of Breast Surgery
  29. 29. LibraryAllows users to bookmark web sites and relevant resources for future reference mihealth is endorsed by The Association of Breast Surgery
  30. 30. Diary – Calendar viewKeep a record of all of tests, treatments and medications and follow up care. mihealth is endorsed by The Association of Breast Surgery
  31. 31. DiaryKeep track of hospital and personal appointments and make notes about discussions mihealth is endorsed by The Association of Breast Surgery
  32. 32. Diary – View all appointmentsKeep a record of all of tests, treatments and medications and follow up care. mihealth is endorsed by The Association of Breast Surgery
  33. 33. ContactsRelevant local/regional/national contact details. Patients can add their own contacts. mihealth is endorsed by The Association of Breast Surgery
  34. 34. Well beingRecord well being throughout the patient journey – view feelings as points in time mihealth is endorsed by The Association of Breast Surgery
  35. 35. Well beingRecord well being throughout the patient journey – make notes about feelings mihealth is endorsed by The Association of Breast Surgery
  36. 36. GlossaryExplanation of treatment related words with links to ‘see also’ words and resources. mihealth is endorsed by The Association of Breast Surgery
  37. 37. Search - Search the mihealth content database using key words. mihealth is endorsed by The Association of Breast Surgery
  38. 38. NHS PilotsRoyal Liverpool & Broadgreen University Hospital NHS trustRoyal Victoria Infirmary (RVI) – Newcastle Clive Griffith - Breast Surgeon – RVI Newcastle Clinical Lead for Breast Cancer & Knowledge Management Cancer Services Collaborative Lovely man and great champion of mihealth  http://vimeo.com/mihealth/videos mihealth is endorsed by The Association of Breast Surgery
  39. 39. The School of Population, Community and Behavioural SciencesLiverpool UniversityEvaluation • Provides a patient’s eye view of the treatment process. • Enables patients to become active partners in their healthcare. • Complements face-to-face interactions. • Supports patients coping and decision-making strategies. • Supports the needs of family, friends and carers. • Supports the role of the Clinical Nurse Specialist • Easy to use and navigate • Does not require a high level of IT literacy. Evaluation report executive summary - http://www.mihealth.info/findings.html mihealth is endorsed by The Association of Breast Surgery
  40. 40. What patients said about mihealthIt was empowering - Well it was empowering because two days before I saw my consultant I rang thenurses and I gave her two pages of questions that had come up in the course of me reading things, offinding things, what if this? Does this apply to me and what happens if?Local information very useful - I think the information about the actual hospital, that was moreinteresting to me. What was I going to go through? Who was I going to come across?A best friend to go to - It is good to have something that is there, that you can treat as an extrafriend, almost like a best friend that you can go to that’s quite intimate and discrete and that is a sourceof information and just for you.Making medical terminology simple - mihealth did help, especially the glossary section, which Ithought was very good, because there’s a lull with all the terminology that’s used. You seem to justknow and go, ‘Oh, OK I know what that means there but forget what it is the next day.Healthcare team contacts very useful - Also then there’s the consultants. mihealth just sort ofreminds you what their names are. Because you get in a bit of a panic, you know thinking, ‘Ohdear, who did I see?’ You can actually see it written down. mihealth is endorsed by The Association of Breast Surgery
  41. 41. Implementing mihealthNHS • Chesterfield Royal Hospital - Derbyshire • Royal Free Hospital - London • Royal Lancaster Infirmary - Lancashire • Royal Liverpool University Hospital • Royal Marsden NHS Foundation Trust - London • Royal Victoria Infirmary – NewcastlePrivate • Spire Healthcare - Edinburgh mihealth is endorsed by The Association of Breast Surgery
  42. 42. mihealth successful in increasing health literacy A comprehensive review of the of the best worldwide evidence of what works to engage patients & the public in healthcare www.investinengagement.info Mihealth is show cased on the web site as a tool successful in increasing health literacy mihealth is endorsed by The Association of Breast Surgery
  43. 43. Jane Wood - Director mihealth Ltd Old Broadcasting House Woodhouse Lane Leeds LS2 9ENMobile: 07813125756Email: j.wood@mihealth.infoTwitter: @ janelwood @mihealth_UKFacebook: mihealth.UKLinkedIn: http://uk.linkedin.com/in/janelwoodWeb: www.mihealth.info mihealth is endorsed by The Association of Breast Surgery

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