Good Stuff Happens in 1:1 Meetings: Why you need them and how to do them well
mihealth - Service Design Leeds - October 2011
1. Jane Wood - Director
mihealth Limited
October 2011
mihealth is endorsed by The Association of Breast Surgery
2. The story
R&D Pilot studies Implementation
2001 2011
mihealth is endorsed by The Association of Breast Surgery
3. What is mihealth?
A personal information resources and healthcare organiser providing patients with
information and support tailored to their local places of care.
Patient centred - Connects them to the healthcare services they rely on.
National & local support - Generic and local information for
patients, their families and carers.
Personal - Tools to add personal information:
• web links
• diary appointments
• contact details
• make notes
• keep track of how you are feeling
mihealth is endorsed by The Association of Breast Surgery
4. Background
• BA Hons Fine Art
• MA Multimedia Design & Production.
• Teaching & learning in FE/HE & post graduate education
Art & design, time based and interactive media.
• Research project manager - International Centre for Digital Content (ICDC)
Part of Liverpool John Moores University, developing creative new media
solutions within cultural, creative and commercial sectors.
mihealth is endorsed by The Association of Breast Surgery
6. What are the challenges for patients?
• Patients faced with big decisions and often feel they are not given enough
information.
• Ability to retain and recall information greatly reduced.
• Communication in the doctor/patient relationship can be challenging.
• Cancer brings with it a new vocabulary.
• Internet and mass media offering information that is:
• Too general
• Difficult to determine if it is up to date, accurate and authoritative
• Contradictory
Patients become confused and often frightened and find it difficult to make
informed decisions.
mihealth is endorsed by The Association of Breast Surgery
7. What is the need?
Cancer research UK
mihealth is endorsed by The Association of Breast Surgery
8. Getting started
• Funding application for £98,000
• Develop a prototype
• Pilot with NHS patients
• The Health Foundation (formerly the PPP Foundation) - Independent charity
working to continuously improve healthcare in UK
mihealth is endorsed by The Association of Breast Surgery
9. Research
• My experience - 10 months of ‘belt and braces’ treatment for breast cancer.
• Exploration of current DH/NHS policy and services and plans for the future.
• Academic literature review of experiences of breast cancer patients.
• Exploration of current and emerging technologies.
mihealth is endorsed by The Association of Breast Surgery
10. Stakeholders
• Patients, carers & support group volunteers
• NHS health team
• Health information providers – NHS, Macmillan Cancer Support, Cancer
Research UK, Health Talk Online
• Health researchers – Liverpool University
• Digital researchers – Iinternationlal Centre fro Digital Content
• Hewlett Packard – provided devices
mihealth is endorsed by The Association of Breast Surgery
12. Working with patients
www.knowsley-cancer-support.co.uk
• Familiar environments where patients felt comfortable and well supported there.
• Mainly in the support groups that the patients attended.
• Our activities were slotted in between other activities – no special trips needed
mihealth is endorsed by The Association of Breast Surgery
13. How patients helped us:
• Interviews to identify key requirements
in relation to people’s experiences.
• Identify the information that should be made
available within the system.
• Paper based interfaces enabled us to discuss
how applications should look and function and
to identify requirements.
mihealth is endorsed by The Association of Breast Surgery
14. Patient experiences
How did you feel when you were diagnosed with
breast cancer?
Tina - http://vimeo.com/mihealth/videos
Why do you think it is important to have the right
information?
Maureen - http://vimeo.com/mihealth/videos
mihealth is endorsed by The Association of Breast Surgery
15. Eileen McGovern – support group volunteer
Lyndale – Knowsley Cancer Support Group
The patient/doctor relationship
and the assumptions made around
information needs.
Eileen - http://vimeo.com/mihealth/videos
mihealth is endorsed by The Association of Breast Surgery
16. How health professionals helped us:
• Understand patient/doctor relationship and
• To structure and develop content.
• To understand the context in which
information is used by health teams.
• How the system could be used within
the hospital environment.
mihealth is endorsed by The Association of Breast Surgery
17. Mapping the patient journey created by Consultant Breast Surgeon
mihealth is endorsed by The Association of Breast Surgery
18. Content map to convey content to stakeholders
mihealth is endorsed by The Association of Breast Surgery
19. Patient journey progressing along the breast cancer care pathway
mihealth is endorsed by The Association of Breast Surgery
20. Connecting patients to their local healthcare services
mihealth can easily be tailored for local use making the
service relevant to individuals and their local care services
and support teams.
• Local contacts
GP’s, clinical teams, local services and support
• Local clinical information and images of surgical procedures
• Local treatment & support centres
Virtual tours – floor plans, maps, staff and treatment centres
• Any amount and information in any media can be added
mihealth is endorsed by The Association of Breast Surgery
21. How to patients become aware of the service?
• Local breast unit web site
• Breast screening/referral
appointment letter
• NHS trust web site link
• Local NHS communications
Team
• social media
• web links
• news items
• press release
• Local charities and support
services
mihealth is endorsed by The Association of Breast Surgery
22. Health teams introduce mihealth at the point of diagnosis and throughout
each stage of the patient journey to support informed decision making
mihealth is endorsed by The Association of Breast Surgery
23. Connecting patients to their local healthcare services
mihealth can easily be tailored for local use to connect people
To their local healthcare services and health teams.
• Local contacts
GP’s, clinical teams, local services and support
• Local clinical information and images of surgical procedures
• Local treatment & support centres
Virtual tours – floor plans, maps, staff and treatment centres
• Any amount and information in any media can be added
mihealth is endorsed by The Association of Breast Surgery
24. Accessing mihealth - create a username and password
Register using the user identification number and create a username and password. Once you have
registered log in with the user name and password you have created.
mihealth is endorsed by The Association of Breast Surgery
25. Overview of mihealth
Web based system combining:
• Text based information
• Illustrations & photographs
• Video & audio patient personal
experiences
• Functions to support practical needs
• Information can be tailored for use
locally.
mihealth is endorsed by The Association of Breast Surgery
26. Cancer Journey
Information is structured around the cancer journey.
mihealth is endorsed by The Association of Breast Surgery
28. Support network
Help & support available to patients, their family and carers
mihealth is endorsed by The Association of Breast Surgery
29. Library
Allows users to bookmark web sites and relevant resources for future reference
mihealth is endorsed by The Association of Breast Surgery
30. Diary – Calendar view
Keep a record of all of tests, treatments and medications and follow up care.
mihealth is endorsed by The Association of Breast Surgery
31. Diary
Keep track of hospital and personal appointments and make notes about discussions
mihealth is endorsed by The Association of Breast Surgery
32. Diary – View all appointments
Keep a record of all of tests, treatments and medications and follow up care.
mihealth is endorsed by The Association of Breast Surgery
34. Well being
Record well being throughout the patient journey – view feelings as points in time
mihealth is endorsed by The Association of Breast Surgery
35. Well being
Record well being throughout the patient journey – make notes about feelings
mihealth is endorsed by The Association of Breast Surgery
36. Glossary
Explanation of treatment related words with links to ‘see also’ words and resources.
mihealth is endorsed by The Association of Breast Surgery
37. Search - Search the mihealth content database using key words.
mihealth is endorsed by The Association of Breast Surgery
38. NHS Pilots
Royal Liverpool & Broadgreen University Hospital NHS trust
Royal Victoria Infirmary (RVI) – Newcastle
Clive Griffith - Breast Surgeon – RVI Newcastle
Clinical Lead for Breast Cancer & Knowledge Management
Cancer Services Collaborative
Lovely man and great champion of mihealth
http://vimeo.com/mihealth/videos
mihealth is endorsed by The Association of Breast Surgery
39. The School of Population, Community and Behavioural Sciences
Liverpool University
Evaluation
• Provides a patient’s eye view of the treatment process.
• Enables patients to become active partners in their healthcare.
• Complements face-to-face interactions.
• Supports patients coping and decision-making strategies.
• Supports the needs of family, friends and carers.
• Supports the role of the Clinical Nurse Specialist
• Easy to use and navigate
• Does not require a high level of IT literacy.
Evaluation report executive summary - http://www.mihealth.info/findings.html
mihealth is endorsed by The Association of Breast Surgery
40. What patients said about mihealth
It was empowering - Well it was empowering because two days before I saw my consultant I rang the
nurses and I gave her two pages of questions that had come up in the course of me reading things, of
finding things, what if this? Does this apply to me and what happens if?
Local information very useful - I think the information about the actual hospital, that was more
interesting to me. What was I going to go through? Who was I going to come across?
A best friend to go to - It is good to have something that is there, that you can treat as an extra
friend, almost like a best friend that you can go to that’s quite intimate and discrete and that is a source
of information and just for you.
Making medical terminology simple - mihealth did help, especially the glossary section, which I
thought was very good, because there’s a lull with all the terminology that’s used. You seem to just
know and go, ‘Oh, OK I know what that means there but forget what it is the next day.
Healthcare team contacts very useful - Also then there’s the consultants. mihealth just sort of
reminds you what their names are. Because you get in a bit of a panic, you know thinking, ‘Oh
dear, who did I see?’ You can actually see it written down.
mihealth is endorsed by The Association of Breast Surgery
41. Implementing mihealth
NHS
• Chesterfield Royal Hospital - Derbyshire
• Royal Free Hospital - London
• Royal Lancaster Infirmary - Lancashire
• Royal Liverpool University Hospital
• Royal Marsden NHS Foundation Trust - London
• Royal Victoria Infirmary – Newcastle
Private
• Spire Healthcare - Edinburgh
mihealth is endorsed by The Association of Breast Surgery
42. mihealth successful in increasing health literacy
A comprehensive review of the of the best worldwide evidence of what
works to engage patients & the public in healthcare
www.investinengagement.info
Mihealth is show cased on
the web site as a tool
successful in increasing
health literacy
mihealth is endorsed by The Association of Breast Surgery
43. Jane Wood - Director mihealth Ltd
Old Broadcasting House
Woodhouse Lane
Leeds
LS2 9EN
Mobile: 07813125756
Email: j.wood@mihealth.info
Twitter: @ janelwood @mihealth_UK
Facebook: mihealth.UK
LinkedIn: http://uk.linkedin.com/in/janelwood
Web: www.mihealth.info
mihealth is endorsed by The Association of Breast Surgery
