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Lynn Quincy
April 11, 2012
Improving the Nation’s
Health: Making Sure
Consumers Can Play Their
Role
2
Yes, THAT Consumer Reports
The 2010 Affordable Care Act
….it requires a whole new script
Health Reform Implementation Timeline
(selected reforms)
Estimated Health Insurance Coverage in 2019
SOURCE: Congressional Budget Office, March 20, 2010
Total Nonelderly Population = 282 Million
6
In early March, heard oral arguments on:
• The constitutionality of the individual mandate;
• Whether the individual mandate can be severed from the
remainder of the ACA;
• ACA's provisions concerning expansion of the Medicaid
program; and
• Procedural questions regarding application of the Anti-
Injunction Act to challenges against the ACA (stems from
the Fourth Circuit's ruling in September 2011).
A decision is expected June 2012.
Selected reforms are being
debated by the Supreme Court
7
But there’s much more…
New Health Plan Transparency
Summary of Benefits and Coverage form
New public reporting on rates, customer satisfaction,
denied claims, out-of-network provisions, etc
New quality reporting
New Provider Quality Transparency
Value of employer provided coverage reported on
W-2.
Financial relationships among providers, suppliers,
and manufacturers will be publicly disclosed
Stronger appeal rights for consumers with “self-
insured” employer coverage.
8
Keep in mind …
The health reform law's true impact will
be shaped by the decisions of
consumers, employers, federal
health officials and states.
We have a
UNIQUE opportunity
to educate consumers
so they can navigate
health insurance
and health care.
10
Opportunity Arises from…
Tremendous consumer confusion
about the law and poor health literacy
and health insurance literacy
New public data reporting can help in
decision-making
Consumers are looking for
information – especially Fall of 2013
Some funding exists for ACA outreach
11
Let’s get into the weeds…
Consumer testing in support of the
development of the Summary of
Benefits and Coverage form resulted
in:
Improvements to the form
Better understanding of consumers’
difficulties understanding health insurance
Spotlighted the dearth of consumer testing
12
Three CU studies explored how
consumers shop for health
insurance
CO, MDMay 2011Actuarial Value
Concepts
MO, NYMay 2011“Coverage Facts
Label” (pages 5-6)
IA, NH, CA, OHSept-Oct 2010Pages 1-4 of new
health insurance
disclosure
Locations:
Mid-sized cities in…
When:Study Examined:
Participants were evenly divided between men/women; uninsured/
insured (non-group). A variety of education levels, ages (26-64), and
race/ethnic background, and prior familiarity with health insurance.
13
Lesson #1:
Abandon the image
of a careful
shopper capable of
weighing the
myriad costs and
benefits of their
health insurance
options
14
Lesson #2: Consumers Dread
Shopping for Health Insurance
I think medical insurance is probably one
of the hardest things for me that I shop for.
And I think one of the hardest things is to
figure out what’s covered.
-quote from report: Early Consumer
Testing of New Health Insurance
Disclosure Forms
15
Lesson #3:
Consumers Doubt the Value/
Purpose of Health Insurance
Many view health insurance as pre-paid
health care, rather than insurance.
If they don’t expect to use much health
care next year, doesn’t seem like a good
value.
Note: there is different from the notion that
“I’m young and invincible.” Rests on a
skewed notion of what insurance is.
16
Implications
Convey the value and purpose of
insurance in a compelling way
Expect to provide health insurance
education using a multi-layered,
“just-in-time” approach
Showing what the plan would pay for
a serious illness often altered these
views
18
Lesson #4:
Consumers want a good “value”
but can’t calculate value
Consumers care about cost.
But they don’t want the lowest cost
plan, they want the best value plan
they can afford.
Notion of value is sophisticated:
•scope of services covered
•share of the cost paid by plan
•sometimes the quality of providers
19
Lesson #5: Consumers are
confused by cost-sharing terms
This is the greatest area of confusion.
They don’t know the vocabulary: deductible,
coinsurance, benefit maximum, allowed amount,
out-of-pocket maximum
The underlying concepts are complex and they must
be used together to estimate patient costs for
services (do copays count towards the deductible?
the out-of-pocket maximum?)
20
Sophisticated computation skills
are required
Is this a
pharmacy
expense?
Have
I met the
medical
deductible?
Have
I met the
pharmacy
deductible?
No Yes
No
Pay full
amount
Yes
Have
I met the
annual
Out-of-pocket Max?
No
Pay nothing
Subject to any
annual benefit
limits?
No Yes
Yes
Pay full
amount
No
Yes
More calcs M l
21
Implications
We are effectively asking
consumers to shop blindfolded.
It is like providing health plan
detail in a foreign language.
22
Which would you choose?
Terms:
εκπεστέου είναι
$1,000 7
μητρότητα έχει
$5.000 όφελος
όριο
Terms:
εκπεστέου είναι
$4.000· η
μητρότητα δεν
είναι
καλύπτονται
Health Plan BorHealth Plan A
23
Lesson #6: Some medical
coverage terms are also
confusing
What is the difference between
primary and preventive care?
What are specialty drugs?
How does a diagnostic test differ from
a screening?
24
Implications
Assume that 85% of traditional insurance information
is ignored/not used.
Assume consumers will use cognitive short-cuts to
“get through” the task of shopping for coverage.
Consider developing short-cuts to help consumers to
make an informed choice:
Actuarial Value Tiers
Measures of network adequacy
Coverage Facts Labels
Avoid jargon (allowed amount, benefit limit,
preferred/non-preferred etc.) Use terms that are
familiar to most consumers. Substitute terms will
have to be tested.
25
Lesson #7: Consumers need a
“mental map” to navigate a
complex topic like insurance
If this “map” or framework is missing,
decisions aids like glossaries or well-
designed disclosures can do little to help
consumers—there is nothing for them to
attach the information to.
If they have prior experience with health
insurance, consumers view new information
through that lens. Example: Copays
counted towards the deductible in my old
plan so this plan probably works the same
way.
26
If they don’t have prior experience
with health insurance…
… they’ll use other experiences – like car
insurance.
Moderator: So let’s say [you] had a really bad year
and you had two accidents… you think each time
you're going to have to pay that deductible?
Participant: Yeah, because it’s just like an accident in a
car. If I crash my car 10 times I [would have to
keep paying the deductible] …it’ll be a loss for the
insurance company just having a one-time
deductible.
27
Implications
Provide a mental map. When people can
see the “bigger picture” of how insurance
works, they have a “map” on which to tack
the details.
Explain health insurance from the point of
view of what it means to them.
Short glossary definitions and other
decision aids should be provided but need
to be accompanied by that “map” to be
effective.
28
Lesson #8: Providing clarity is
insufficient; information must
also be trusted
If consumers don’t trust the information,
they won’t use it
Trust levels are very low for health
insurers
Even when consumers have a good grasp
of the information in front of them, they
often don’t trust their analysis. They
worry about the “fine print” because
health insurers are “tricky.”
29
Implications
Cultivate an image as a trusted source for
information
Manage consumer expectations – don’t oversell
Partner with trusted entities
Merit consumer trust:
vet health plans well,
strive for stability in offerings,
invest in good communications,
test communications with consumers, and
engage in these activities over the long run
30
Lesson #9: Consumers need a
manageable number of choices
Given the cognitive difficulty of
evaluating their choices, consumers
don’t want an unlimited number of
choices
Better: a manageable number of
“good” (vetted) choices
Even Better: reducing the number of
features that can vary between plans
makes them easier to compare
31
Implications
Pay attention to the number of options
facing consumers. Consumer testing in
Massachusetts led that Exchange to reduce
choices from 27 to 9.
Embrace the ACA provisions that
standardize health plan designs. Consider
additional benefits standardization.
Help consumers navigate the remaining
variation by explaining the implications of
their choices.
32
Failure to Address Consumer
Confusion has Grave Consequences
Consumers find themselves
underinsured, too often leading to
medical bankruptcy
Under-insured consumers act like
uninsured consumers – they delay
getting care
Inability to effectively compare plans
undermines the health plan marketplace
Strains customer help lines
33
The Ability to Measure Consumers’
Health Insurance Literacy Would
Change the Conversation
Financial
Literacy
Measures
(multiple)
Health
Literacy
Measures
(multiple)
Health
Insurance
Literacy
34
What is Health Insurance Literacy?
A working definition:
Health insurance literacy measures the
degree to which individuals have the
knowledge, ability, and confidence to
find and evaluate information about
health plans, select the best plan for
their own (or their family’s) financial and
health circumstances, and use the plan
once enrolled.
35
Don’t we have a lot of health
literacy measures?
There are at least 13 tools that measure
health literacy BUT health insurance
literacy is different.
A recent compilation of
over 200 studies, none
of which examine
health insurance.
36
Project Timeline
STATES USE THE MEASURE TO
PREPARE FOR 2014 REFORMS
(outreach, health plan
comparisons, etc)
Jan 2013
draft users manualDec 2012
field test/revise instrumentJul-Nov 2012
preliminary testingApr-Jun 2012
interview stakeholders, refine
conceptual model
Feb-Mar 2012
roundtable report releasedFeb 2012
expert roundtableNov 2011
37
Participate in Our Project
Join the list-serv and follow our progress
Read the expert roundtable report that
kicked off the project
Participate in our research committee
Participate in our dissemination committee
Help us identify funding sources
Become a spokesperson for the project
Find out more:
http://www.consumersunion.org/health_ins
urance_literacy_project
38
Thank you!
Please email
Lynn Quincy with
any questions:
quinly “at” consumer.org

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Quincy priester april 11 2012

  • 1. 1 Lynn Quincy April 11, 2012 Improving the Nation’s Health: Making Sure Consumers Can Play Their Role
  • 3. The 2010 Affordable Care Act ….it requires a whole new script
  • 4. Health Reform Implementation Timeline (selected reforms)
  • 5. Estimated Health Insurance Coverage in 2019 SOURCE: Congressional Budget Office, March 20, 2010 Total Nonelderly Population = 282 Million
  • 6. 6 In early March, heard oral arguments on: • The constitutionality of the individual mandate; • Whether the individual mandate can be severed from the remainder of the ACA; • ACA's provisions concerning expansion of the Medicaid program; and • Procedural questions regarding application of the Anti- Injunction Act to challenges against the ACA (stems from the Fourth Circuit's ruling in September 2011). A decision is expected June 2012. Selected reforms are being debated by the Supreme Court
  • 7. 7 But there’s much more… New Health Plan Transparency Summary of Benefits and Coverage form New public reporting on rates, customer satisfaction, denied claims, out-of-network provisions, etc New quality reporting New Provider Quality Transparency Value of employer provided coverage reported on W-2. Financial relationships among providers, suppliers, and manufacturers will be publicly disclosed Stronger appeal rights for consumers with “self- insured” employer coverage.
  • 8. 8 Keep in mind … The health reform law's true impact will be shaped by the decisions of consumers, employers, federal health officials and states.
  • 9. We have a UNIQUE opportunity to educate consumers so they can navigate health insurance and health care.
  • 10. 10 Opportunity Arises from… Tremendous consumer confusion about the law and poor health literacy and health insurance literacy New public data reporting can help in decision-making Consumers are looking for information – especially Fall of 2013 Some funding exists for ACA outreach
  • 11. 11 Let’s get into the weeds… Consumer testing in support of the development of the Summary of Benefits and Coverage form resulted in: Improvements to the form Better understanding of consumers’ difficulties understanding health insurance Spotlighted the dearth of consumer testing
  • 12. 12 Three CU studies explored how consumers shop for health insurance CO, MDMay 2011Actuarial Value Concepts MO, NYMay 2011“Coverage Facts Label” (pages 5-6) IA, NH, CA, OHSept-Oct 2010Pages 1-4 of new health insurance disclosure Locations: Mid-sized cities in… When:Study Examined: Participants were evenly divided between men/women; uninsured/ insured (non-group). A variety of education levels, ages (26-64), and race/ethnic background, and prior familiarity with health insurance.
  • 13. 13 Lesson #1: Abandon the image of a careful shopper capable of weighing the myriad costs and benefits of their health insurance options
  • 14. 14 Lesson #2: Consumers Dread Shopping for Health Insurance I think medical insurance is probably one of the hardest things for me that I shop for. And I think one of the hardest things is to figure out what’s covered. -quote from report: Early Consumer Testing of New Health Insurance Disclosure Forms
  • 15. 15 Lesson #3: Consumers Doubt the Value/ Purpose of Health Insurance Many view health insurance as pre-paid health care, rather than insurance. If they don’t expect to use much health care next year, doesn’t seem like a good value. Note: there is different from the notion that “I’m young and invincible.” Rests on a skewed notion of what insurance is.
  • 16. 16 Implications Convey the value and purpose of insurance in a compelling way Expect to provide health insurance education using a multi-layered, “just-in-time” approach Showing what the plan would pay for a serious illness often altered these views
  • 17.
  • 18. 18 Lesson #4: Consumers want a good “value” but can’t calculate value Consumers care about cost. But they don’t want the lowest cost plan, they want the best value plan they can afford. Notion of value is sophisticated: •scope of services covered •share of the cost paid by plan •sometimes the quality of providers
  • 19. 19 Lesson #5: Consumers are confused by cost-sharing terms This is the greatest area of confusion. They don’t know the vocabulary: deductible, coinsurance, benefit maximum, allowed amount, out-of-pocket maximum The underlying concepts are complex and they must be used together to estimate patient costs for services (do copays count towards the deductible? the out-of-pocket maximum?)
  • 20. 20 Sophisticated computation skills are required Is this a pharmacy expense? Have I met the medical deductible? Have I met the pharmacy deductible? No Yes No Pay full amount Yes Have I met the annual Out-of-pocket Max? No Pay nothing Subject to any annual benefit limits? No Yes Yes Pay full amount No Yes More calcs M l
  • 21. 21 Implications We are effectively asking consumers to shop blindfolded. It is like providing health plan detail in a foreign language.
  • 22. 22 Which would you choose? Terms: εκπεστέου είναι $1,000 7 μητρότητα έχει $5.000 όφελος όριο Terms: εκπεστέου είναι $4.000· η μητρότητα δεν είναι καλύπτονται Health Plan BorHealth Plan A
  • 23. 23 Lesson #6: Some medical coverage terms are also confusing What is the difference between primary and preventive care? What are specialty drugs? How does a diagnostic test differ from a screening?
  • 24. 24 Implications Assume that 85% of traditional insurance information is ignored/not used. Assume consumers will use cognitive short-cuts to “get through” the task of shopping for coverage. Consider developing short-cuts to help consumers to make an informed choice: Actuarial Value Tiers Measures of network adequacy Coverage Facts Labels Avoid jargon (allowed amount, benefit limit, preferred/non-preferred etc.) Use terms that are familiar to most consumers. Substitute terms will have to be tested.
  • 25. 25 Lesson #7: Consumers need a “mental map” to navigate a complex topic like insurance If this “map” or framework is missing, decisions aids like glossaries or well- designed disclosures can do little to help consumers—there is nothing for them to attach the information to. If they have prior experience with health insurance, consumers view new information through that lens. Example: Copays counted towards the deductible in my old plan so this plan probably works the same way.
  • 26. 26 If they don’t have prior experience with health insurance… … they’ll use other experiences – like car insurance. Moderator: So let’s say [you] had a really bad year and you had two accidents… you think each time you're going to have to pay that deductible? Participant: Yeah, because it’s just like an accident in a car. If I crash my car 10 times I [would have to keep paying the deductible] …it’ll be a loss for the insurance company just having a one-time deductible.
  • 27. 27 Implications Provide a mental map. When people can see the “bigger picture” of how insurance works, they have a “map” on which to tack the details. Explain health insurance from the point of view of what it means to them. Short glossary definitions and other decision aids should be provided but need to be accompanied by that “map” to be effective.
  • 28. 28 Lesson #8: Providing clarity is insufficient; information must also be trusted If consumers don’t trust the information, they won’t use it Trust levels are very low for health insurers Even when consumers have a good grasp of the information in front of them, they often don’t trust their analysis. They worry about the “fine print” because health insurers are “tricky.”
  • 29. 29 Implications Cultivate an image as a trusted source for information Manage consumer expectations – don’t oversell Partner with trusted entities Merit consumer trust: vet health plans well, strive for stability in offerings, invest in good communications, test communications with consumers, and engage in these activities over the long run
  • 30. 30 Lesson #9: Consumers need a manageable number of choices Given the cognitive difficulty of evaluating their choices, consumers don’t want an unlimited number of choices Better: a manageable number of “good” (vetted) choices Even Better: reducing the number of features that can vary between plans makes them easier to compare
  • 31. 31 Implications Pay attention to the number of options facing consumers. Consumer testing in Massachusetts led that Exchange to reduce choices from 27 to 9. Embrace the ACA provisions that standardize health plan designs. Consider additional benefits standardization. Help consumers navigate the remaining variation by explaining the implications of their choices.
  • 32. 32 Failure to Address Consumer Confusion has Grave Consequences Consumers find themselves underinsured, too often leading to medical bankruptcy Under-insured consumers act like uninsured consumers – they delay getting care Inability to effectively compare plans undermines the health plan marketplace Strains customer help lines
  • 33. 33 The Ability to Measure Consumers’ Health Insurance Literacy Would Change the Conversation Financial Literacy Measures (multiple) Health Literacy Measures (multiple) Health Insurance Literacy
  • 34. 34 What is Health Insurance Literacy? A working definition: Health insurance literacy measures the degree to which individuals have the knowledge, ability, and confidence to find and evaluate information about health plans, select the best plan for their own (or their family’s) financial and health circumstances, and use the plan once enrolled.
  • 35. 35 Don’t we have a lot of health literacy measures? There are at least 13 tools that measure health literacy BUT health insurance literacy is different. A recent compilation of over 200 studies, none of which examine health insurance.
  • 36. 36 Project Timeline STATES USE THE MEASURE TO PREPARE FOR 2014 REFORMS (outreach, health plan comparisons, etc) Jan 2013 draft users manualDec 2012 field test/revise instrumentJul-Nov 2012 preliminary testingApr-Jun 2012 interview stakeholders, refine conceptual model Feb-Mar 2012 roundtable report releasedFeb 2012 expert roundtableNov 2011
  • 37. 37 Participate in Our Project Join the list-serv and follow our progress Read the expert roundtable report that kicked off the project Participate in our research committee Participate in our dissemination committee Help us identify funding sources Become a spokesperson for the project Find out more: http://www.consumersunion.org/health_ins urance_literacy_project
  • 38. 38 Thank you! Please email Lynn Quincy with any questions: quinly “at” consumer.org