A Sweetwater family faces the challenges of a painful, potentially life-threatening disease.
See how Joseph Peeden, M.D., solved one of our medical mysteries.
Brittany Overton is alive today thanks to an automated external defibrillator -- and school staff trained to use it.
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It's About Children - Issue 3 2014 by East Tennessee Children's Hospital
1.
2. 30
25
Children’s Hospital
license plate
If you were one of the first 1,000
people to reserve a license plate
or you’d like to get one, visit
your local county clerk’s
office to pick up your plate.
Little Critter merchandise
Kohl’s department stores
Books, plush toys and other gifts
are $5 each.
Visit www.kohls.com for more
information. All net profits from
local stores will help fund our
helmet safety program.
Extra Life—a 24-hour
game marathon
Mark Your Calendar
FLETCH Savings Card
OCT.
NOW
Through
SEP.
NOW
Starts at 8 a.m.
In your own home
Free to sign up. Ask your friends
to sponsor you.
Visit www.extra-life.org to
register. Open to everybody—
from hardcore gamers to Candy
Crushers and role-playing
adventurers. All local proceeds
help provide training and
purchase medical equipment
for the hospital.
Get the card by making a $40
donation to Children’s Hospital.
Visit www.etch.com/FLETCH
SavingsCard to find out how to
get your card. Use it to save 20
percent at select retail stores
and restaurants between Oct. 24
and Nov. 2. Your donation helps
provide medical equipment
for the hospital.
2 It’s About Children, Issue 3 • 2014
3. Spotlight
4
9
12
18
Courageous Colemans
A Sweetwater family faces the
challenges of a painful, potentially
life-threatening disease.
The smile saver
See how Joseph Peeden, M.D.,
solved one of our medical mysteries.
Shock factor
Brittany Overton is alive today
thanks to an automated external
defibrillator—and school staff
trained to use it.
Safer scans for children
Our new CT scanner reduces
exposure to radiation by up to
70 percent.
Connect with us:
www.etch.com/ItsAboutChildren
It’s About Children is a publication
of the Marketing Department at
East Tennessee Children’s Hospital.
Editor: Paul Parson
Designer: Deborah Hosterman
Cover photo by Michael Dayah
NOV.
8
13
DEC.
5
Safe Sitter class for children
ages 11 to 14
9 a.m. to 3 p.m.
Children’s Hospital’s Koppel Plaza Building
(Meschendorf Conference Room)
Class costs $25.
Call 865-541-8165 to register. Learn correct
babysitting techniques, emergency responses
and how to use babysitting as a business.
MEDIC blood drive
DEC.
7 a.m. to 4 p.m.
Children’s Hospital’s Koppel Plaza Building
(Meschendorf Conference Room)
It’s free.
Call 865-541-8165 for more information.
All blood used at Children’s Hospital is
provided through MEDIC. One donation
can help up to three people. Donors must be
at least 17 years old, weigh more than 110
pounds and have an ID.
Donate at www.etch.com/ItsAboutChildren 3
4. Story by E. Anderson
Photos by Michael Dayah
continued on page 6
4 It’s About Children, Issue 3 • 2014
6. “I noticed he’d gone back to crawling—he’d stopped
walking,” Connis said. “I unzipped his onesie, and his foot
was swollen. I knew what to look for, so I knew he had to go
to the hospital.”
That was the first of many trips to East Tennessee
Children’s Hospital for Jonavin. His sickle cell disease led to
several bouts of pneumonia and pain crises in his first year.
“We take him to Children’s Hospital, and they give him
pain medicine and fluids,” Connis said. “It’s been a rough
road for him. I’ve lost count of how many transfusions he’s
had.”
As a mother, the pain crises are the hardest, Connis said.
“He’s in pain, and he’ll just start screaming and saying,
‘I’m hurting. I’m hurting,’” she said. “It’s really difficult to
watch him go through that when there’s nothing I can do.”
A one-in-four chance
Three years after Jonavin was born, Connis gave birth to
Juliana. The Colemans were thrilled to discover their daughter
didn’t have the disease, but was only a carrier of the sickle
cell gene.
A few years later, Jenayah was born. Connis and Willie
knew there was a one-in-four chance she’d have sickle cell
disease, but were hopeful because her sister was spared.
They were devastated when Jenayah was diagnosed with
the disease at 2 weeks old.
“That one hit us hard,” Connis said.
But unlike Jonavin’s constant visits to Children’s Hospital,
Jenayah’s sickle cell disease seemed to be under control. That
continued from page 4
He’s just 11 years old, but Jonavin Coleman already has
a plan for his life: Play football. Go to college. Become a
professional athlete.
His 5-year-old sister, Jenayah, also has dreams—to
combine her fiery personality with a set of pom-poms and
a megaphone as she cheers for her brother and his future
teammates.
But Jonavin and Jenayah’s mom, Connis, has her own
wish—a cure for the painful, life-threatening disease that
may keep her children on the sidelines.
The first diagnosis
Jonavin was just a month old when his newborn
screening confirmed he had sickle cell disease. Connis and
her husband, Willie, were overwhelmed.
“I was upset. I was crying. I went on the Internet and
read about sickle cell disease,” she said. “My husband has
a cousin who has kids with it, but other than that, we knew
nothing about it.”
Sickle cell disease is an inherited blood disorder in which
the red blood cells are abnormally shaped. Instead of their
normal round shape, the cells are shaped like sickles, which
can result in serious infections, chronic anemia, damage to
organs and extremely painful episodes—often referred to as
pain crises.
Jonavin was an active baby. He surprised his parents
when he pulled himself out of his crib at 4 months old and
was walking at just 9 months old. That’s when he had his first
pain crisis.
6 It’s About Children, Issue 3 • 2014
7. all changed when she was 4.
“She’d been in preschool all day and was fine. I picked
her up, and she was fine when we got home,” Connis said.
“Then she came up to me and said, ‘Mama, I want …’ and
just started babbling. I couldn’t understand what she was
saying, and I thought she was trying to be funny.”
Connis realized quickly it was no laughing matter.
Jenayah’s tongue was rolling in her mouth, which was
twitching uncontrollably.
The Colemans rushed Jenayah to their local hospital in
Sweetwater, Tenn., where doctors told them Jenayah had had
a seizure. When anti-seizure medications didn’t alleviate the
mouth twitching, Jenayah was transported by ambulance to
Children’s Hospital, where doctors confirmed Connis and
Willie’s worst fear. Their 4-year-old daughter had had a stroke.
“We knew that strokes were a possibility, but Jenayah
was doing fine. It was Jonavin who was having all the crises,
so this was really unexpected,” Willie said.
In good hands
Connis describes the staff at Children’s Hospital as
invaluable to her.
“It was scary to watch Jenayah’s stroke, but I knew she
was in good hands. The doctors and nurses were really good
about keeping me calm,” she said. “If they have to be in
the hospital, I’d rather they be at Children’s Hospital than
anywhere else.”
Jenayah has since recovered, but will need a blood and
marrow transplant. They’re currently trying to find a
matching bone marrow donor. In the meantime, Jenayah
goes to Children’s Hospital for monthly exchange transfusions,
during which her blood is removed and replaced with donor
blood. And Jonavin goes to Children’s Hospital every other
month for testing and regularly to treat his pain crises.
“There have been a couple of times we’ve had to get
a double room because they were both admitted,” Connis
said. “But they’re always so sweet at Children’s Hospital. The
kids love it there.”
For Connis, the hardest part of watching her children
battle sickle cell disease is the worrying.
“I’m on edge all the time. I feel like I can’t enjoy the
happy things because I’m always afraid the other shoe will
drop. I worry that Jenayah will have another stroke or Jonavin
will have another pain crisis,” she said. “It’s hard to enjoy
life.”
Still, both she and Willie are grateful for the support
of the Children’s Hospital staff, who’ve gotten to know the
Colemans well.
“They’ve done a great job with the kids,” Willie said.
“They’ve become like a second family to us.”
continued on page 8
Donate at www.etch.com/ItsAboutChildren 7
8. 8
What is it?
Key points:
Sickle cell disease
Sickle cell disease is an inherited blood disorder in
which the body makes sickle-shaped red blood cells
instead of normally round cells. Because those cells
aren’t smooth, they become stuck in the body, leading
to extremely painful episodes. Symptoms can range
from mild to severe, including infections, swelling of
the hands and feet and strokes.
Who gets sickle cell disease?
It affects 90,000 to 100,000 Americans. It especially
affects the African-American population—occurring in
one of every 500 births.
Is there a cure?
A blood and marrow transplant is the only known
cure for sickle cell disease, but it can be risky, especially
for young children. Most patients with sickle cell disease
manage their symptoms with regular fluids, pain
medication and transfusions.
How red blood cells move
through blood vessels
Normal red blood cells Sickle-shaped red blood cells
It’s About Children, Issue 3 • 2014
9. Joseph Peeden, M.D., solves medical mysteries.
“It’s not like on television, where the ants in the
Story by
Cassidy Duckett
Photos by
Michael Dayah
walls are the cause of the problem. It’s boring and a
lot of hard work,” he said. “But it’s important because
at the end of the day you get to help the child.”
continued on page 10
Donate at www.etch.com/ItsAboutChildren 9
10. It wasn’t. Jordan could no longer open her mouth wide
enough to fit more than one french fry inside. The middle
school cheerleader and pageant winner was losing her smile.
“It got worse and worse,” Sheri said.
An explanation
Throughout her life, Jordan has become familiar with
trips to the hospital. She has an autoimmune disease and a
thyroid disease in addition to her arthritis. When she was in
fourth grade, Dr. Peeden discovered a cyst in the center of
her brain.
“She’s been through so much and always does it with
a smile,” Sheri said. “It was incredibly painful to watch her
lose that.”
But Jordan knew she could rely on Dr. Peeden.
“She’s so confident in him, so she never seemed
worried. She said, ‘Don’t worry, Mom. I trust him. He’ll
figure it out,’” Sheri said.
Dr. Peeden quickly discovered that Jordan’s jaw joint—
the mandibular condyle—had completely disintegrated due
to her rheumatoid arthritis. He’d only seen one other
child who had the same symptoms since he became a doctor
in 1975. “It’s a common diagnosis, but Jordan had a rare
manifestation,” he said.
As the leader of the Diagnostic Clinic at East Tennessee
Children’s Hospital, Dr. Peeden takes a second look at complex
cases that seem to have no clear answer. He works with
SuAnne Cobb, care coordinator, and Meghan Buckner, social
worker, to agree on a unifying diagnosis. If the small team
can’t determine a solution, they find someone who can.
For 14-year-old Jordan Henegar, Dr. Peeden’s persistence
resulted in more than a diagnosis.
“He was able to save her smile,” said Sheri Henegar,
Jordan’s mother.
Literally.
The discovery
“One morning I was fixing Jordan’s hair for school when
I heard her jaw pop back into place,” Sheri said. The right side
of her daughter’s face was drooping downward. Her smile was
crooked. “Jordan said, ‘It happens all the time, Mom. I just
pop it back in.’”
Sheri realized that Jordan hadn’t been eating her
favorite foods, but instead requesting soft meals like soup and
mashed potatoes.
“I started self-restricting my diet,” Jordan said. She’d
been diagnosed with juvenile rheumatoid arthritis as an infant.
“I figured it was just another flare-up.”
10 It’s About Children, Issue 3 • 2014
11. Sheri cites Dr. Peeden as the difference in Jordan’s life.
“He’s brilliant,” she said. “I don’t have any doubt that
Jordan would be in a wheelchair now if it weren’t for
Dr. Peeden. He doesn’t just get patients treated, he wants
them to have a high quality of life.”
As the mother of a child who frequently comes to the
hospital, Sheri finds solace in Dr. Peeden’s unfailing focus
on finding an answer.
“Once he’s involved, you feel like he’s moving as quickly
as he can to get the right treatments for your child—like it’s
his priority in life,” she said. “I can’t imagine going through
this without someone you trust like I trust Dr. Peeden. How
wonderful to have that in our backyard.”
Visit www.etch.com/
ItsAboutChildren
to experience Jordan
Henegar’s journey.
A solution
After her appointment with Dr. Peeden, Jordan’s life
quickly changed. The bow tie-wearing doctor searched the
country for a treatment and discovered gel injections being
tested at Cincinnati Children’s Hospital Medical Center.
“He immediately called Hermine Brunner, M.D., and
cashed in his favor, as he likes to say,” Jordan said with a
laugh.
The Oak Ridge teen traveled to Ohio for the treatment,
which was injected into all of her joints including her jaw.
“They say it’s more intense than brain surgery,” Jordan
said. “You have to hit 1 millimeter of space with the gel or
the muscle stops responding.”
A happy ending
A week later, Jordan could cheer and eat her
favorite food, steak, again. She has returned to Ohio
one time since 2011 for another round of injections.
The honor roll student doesn’t take her success for
granted. She said, “I wasn’t supposed to be able to walk
when I was little, but now I can cheer and do anything I
want to do.”
Donate at www.etch.com/ItsAboutChildren 11
12. Story by Cassidy Duckett
Photos by Michael Dayah
Brittany Overton (center) with April and
Travis Freeman—two of the Anderson
County High School staff members who
helped save the teen’s life
12 It’s About Children, Issue 3 • 2014
13. Anderson County educators save student’s life with AED
Brittany Overton had been at school for
about 15 minutes on Jan. 14, 2014. The Anderson
County High School freshman was chatting with
a friend when she suddenly fell to the ground in
the courtyard. Her classmates, teachers and family
didn’t know it then, but Brittany’s heart was in
cardiac arrest.
“My heart went into an irregular beat,”
Brittany said. “I wasn’t getting enough blood into
my brain.”
Luckily, staff members at her school had been
trained to use an automated external defibrillator
(AED)—two of them hung on the walls around
the school at the time.
Travis Freeman, an assistant principal, was
close to Brittany and did CPR with other school
staff until Ben Downs, another assistant principal,
retrieved an AED from a school hallway. Freeman’s
wife, April, who’s a registered nurse and teacher
at the school, gave Brittany two shocks with the
machine. Her pulse returned.
Because Brittany hit her head when she
fell, she was transported to the University of
Tennessee Medical Center’s Emergency and
Trauma Center. After an initial examination,
Brittany was brought to the Pediatric Intensive
Care Unit (PICU) at East Tennessee Children’s
Hospital for five days.
“I was in complete shock at the hospital,”
said Kim Smith, Brittany’s mother. “Everybody in
the PICU was great and explained everything that
was going on every day. It was so nice to know
what to expect.”
Brittany was diagnosed with Long QT
syndrome. It caused her heart to go into ventricular
fibrillation, which is an irregular heartbeat. Though
she’d passed out two other times in her life, she
didn’t have any warning signs or other health
problems.
continued on page 14
Donate at www.etch.com/ItsAboutChildren 13
14. for these vital machines. Toward the end of the 2013-2014
school year, a group at her school created a video project that
included Brittany’s story to apply for an additional AED. They
won, and a third lifesaving machine now sits on the sprawling
Anderson County High School campus.
During her time in the PICU, Brittany was given a
defibrillator that monitors her heart rhythm and gives her an
automatic shock if it becomes abnormal. Other than going
to her six-month checkups with Dr. Sharma, the 15-year-old
has settled back into normal school days. She hopes to take
a class during her junior year that will allow her to ride along
with emergency medical technicians.
“I’ve always wanted to be a first responder,” she said.
In May, Brittany’s heart rate jumped beyond 200 beats
per minute while she was shooting hoops in the driveway.
“Her defibrillator shocked her, so we took her to the
Emergency Department at Children’s Hospital,” Kim said.
“The cardiologist on call had beat us there and already
gotten us a room, so when we arrived they brought us right
to him where everyone was ready and waiting. They were
wonderful.”
To increase awareness about sudden cardiac
arrest in children and improve school staff’s ability
to respond to it, Children’s Hospital has offered the
Project ADAM Tennessee program since 2011. The
initiative places automated external defibrillators
(AEDs) in local schools, helps train and coordinate
staff to prepare for emergencies and provides
information about emergency best practices.
Schools that participate in Project ADAM
Tennessee are offered support at no cost and are
considered heart-safe upon completion of training.
Since 2011, Children’s Hospital has placed AEDs in
more than 80 schools, with more on the way.
Visit www.etch.com/ItsAboutChildren to
see if your child’s school is heart-safe.
continued from page 13
“She was just feeling normal at school on a normal day,”
said Sumeet Sharma, M.D., Brittany’s pediatric cardiologist
at Children’s Hospital. “For most people, their first episode is
their last. She’s lucky her school had an AED and the staff was
trained to use it.”
“AEDs are most often used in schools during physical
activity—on the playground or during a game or field day—
but cardiac arrest can happen any time as in Brittany’s case,”
said Karen Smith, Project ADAM Tennessee coordinator at
Children’s Hospital. “Up to 25 percent of our population is in
school on a regular day, so having this lifesaving equipment
available is a very wise investment.”
Staff members who are trained and not afraid to use
an AED in emergency situations are essential to saving the
lives of children in school. Nationally, 70 percent of people
feel helpless to act in an emergency like Brittany’s due to lack
of training. However, when staff members are trained, their
intervention significantly increases the chance of survival.
Though Brittany didn’t think much about the AEDs
hanging on her school’s walls before, her experience has
spread awareness among her fellow students about the need
14 It’s About Children, Issue 3 • 2014
15. Every day, between one and three children or teens
suffer sudden cardiac arrest in the United States. In cases
like Brittany’s, having an automated external defibrillator
(AED) and trained staff in school means the difference
between life and death.
The portable, lightweight device can deliver an
electric shock to the heart to return it to normal
rhythm if delivered within three to five minutes of the
emergency. By having an AED on site and knowing how
to use it, school staff may increase a child’s chance of
surviving sudden cardiac arrest by 30 percent.
Otherwise, students would have to wait for emergency
personnel to arrive. Every minute that passes means a
10 percent drop in survival rates.
Because sudden cardiac arrest can occur in children
and teens with no history of heart conditions and no
warning signs, training staff to use an AED anytime,
anywhere in the school is essential. Staff members are
given specific roles when an AED is in use, including
crowd control, coordinating emergency personnel,
providing CPR and using the AED.
Not all schools are equipped with an AED or have
staff trained to use it. Children’s Hospital places AEDs,
trains staff and establishes emergency plans in local
schools through the Project ADAM Tennessee program.
Ben Downs, an assistant principal, who retrieved
the AED used to save Brittany Overton’s life
1. Electrodes, or sticky pads, are put on the chest of the person
who’s having sudden cardiac arrest.
2. The automated external defibrillator (AED) sends information
about the person’s heart rhythm to a computer in the AED to
determine if a shock is needed.
3. If the person’s heartbeat is irregular and a shock is needed,
the AED will charge its internal capacitor to give a shock.
4. An automated voice tells the user when to give a shock.
5. The shock hopefully restores normal heart rhythm to
the patient.
Donate at www.etch.com/ItsAboutChildren 15
17. His career-making touchdown
wouldn’t be possible without your
life-changing donation.
Every dollar you give to East
Tennessee Children’s Hospital
helps save a life.
Help expand our services to include
a new surgery center, a new 44-bed
Neonatal Intensive Care Unit and
more space to treat children with
chronic conditions.
Visit www.etch.com/expansion or call
865-525-GIVE to donate or learn more
about the $75 million expansion.
Donate at www.etch.com/ItsAboutChildren 17
18. Safer scans for children
News
Children’s Hospital is now using a new computed
tomography (CT) scanner that cuts exposure to radiation
by up to 70 percent. It not only increases your child’s safety,
but it also decreases time spent at the hospital.
The Toshiba Aquilion PRIME 80 scanner uses special
software to determine the lowest possible radiation dose
while maintaining image quality. This software allows each
scan to be tailored to each child.
In addition to safer scans, the new CT scanner is 20
percent faster than the previous scanner. Because the
machine has a wider scanning area, scans are completed
quicker and there is a decreased chance of patient motion.
The increased speed in scanning may reduce the need for
sedation, which involves medicine that relaxes children
during medical procedures that may be stressful, painful
or require a child to hold still.
“For our patients and their families, this groundbreaking
technology means a quicker and safer trip to the hospital,
with the same high-quality test results,” said Barry Payne,
radiology manager at Children’s Hospital.
18 It’s About Children, Issue 3 • 2014
19. At the Knoxville spring Color Me Rad 5K, the most
enthusiastic participants weren’t all seasoned athletes or
experienced runners. According to 2-year-old Grayer
Morgan’s parents, the 3-foot-tall tyke stole the show.
“He did the whole race,” said Misty Morgan, Grayer’s
mother. “Then afterward he was dancing and wanted to be
close to the stage so he could hear the music. He loved it.”
For the Morgan family, the colorful race was more
than a test of endurance. They gathered a team of family
and friends to raise money for Children’s Hospital, which
the race benefits and where Grayer is treated for acute
lymphoblastic leukemia. “We spread the word and told
everyone that if you’re going to run a race, this should be
the one,” she said.
Thanks to donors like you, the spring event raised
$15,074 for Children’s Hospital and splattered thousands
of runners—including Grayer—in bright pink, purple,
yellow, orange and blue.
Your Dollars at Work
Rad race
Donate at www.etch.com/ItsAboutChildren 19
20. Your Dollars at Work
Cruising for a cause
With engines roaring and revving, the
Good Fellas motorcycle group blazed down
East Tennessee’s roads this summer to raise
money for Children’s Hospital. The Maryville-based
club created T-shirts featuring artwork
by two hospital patients for the ride. The
event raised $695, which will be allotted
toward Children’s Hospital’s most immediate
need. Sponsors included Buffalo Wild Wings
Café, Cruzes Tint and Tune, Bi-Lo Markets
and Gary Underwood Construction.
Saying “I do” to giving
Newlyweds Lindsey Crosnoe-Shipley and
Adam Shipley didn’t revel in registering for new
dishes and silverware during their engagement.
Instead, they chose to forego traditional wedding
gifts altogether. Guests invited to their May
nuptials and reception were encouraged to
make a donation to East Tennessee
Children’s Hospital.
Adam and Lindsey raised $885 for
Children’s Hospital, which will help provide
social work-related services for patients and
their families. Lindsey is a medical
student at Quillen College of Medicine in
Johnson City, Tenn., and Adam works for the
U.S. government in Washington, D.C.
20 It’s About Children, Issue 3 • 2014
21. Hitting the jackpot
After selling a winning Tennessee Lottery ticket
worth $259.8 million, the Kroger at 6702 Clinton
Highway received $25,000 of the winnings—and gave
it all away. Children’s Hospital was one of five local
causes to receive $5,000 from the Kroger. The donation
will be used toward the purchase of much-needed
medical equipment for the hospital.
Kroger was the first Tennessee Lottery retail
winner to give all of its winnings to charity. Kroger
has long been a supporter of Children’s Hospital and
has raised thousands of dollars for it through the
Children’s Miracle Network Hospitals.
Pey-ing it fore-ward
Fox Den Country Club was packed with more
than 230 golfers and one NFL quarterback this June
to raise money for Children’s Hospital and the
PeyBack Foundation. Thanks to participants like
you, the 17th annual Peyton Manning Golf Classic
raised more than $165,000 that will be split between
the two causes.
Children’s Hospital will use its half to purchase
much-needed equipment to safely lift and transport
patients, high-tech infant monitors and special
machines to keep newborns warm.
In between swings, the golfers visited with
Manning, who’s the quarterback for the Denver
Broncos. All of the money raised for PeyBack,
Peyton’s own foundation, will be used for causes in
our region, including leadership programs and
opportunities for disadvantaged youth.
Gold sponsors of the tournament were
Cellular Sales, Knoxville News Sentinel and Republic
Plastics Ltd.
Donate at www.etch.com/ItsAboutChildren 21
22. Enjoy something for the entire family—from designer trees and holiday gift shops to children’s activities and live entertainment.
Wednesday, Nov. 26, to Sunday, Nov. 30, at the Knoxville Convention Center
30th anniversary ticket prices: $8 for adults; $4 for children ages 4 to 12; free for children age 3 and younger;
$20 for a family four-pack (online only)
Buy tickets at www.fantasyoftrees.org or at the door. Proceeds go toward the purchase of medical equipment at
East Tennessee Children’s Hospital.
22 It’s About Children, Issue 3 • 2014
24. Nothing puts a smile on aNothing puts a smile on a child’s face quicker than getting a gift— child’s face quicker than getting a gift
Get useful news
and information
about your
child’s health.
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